My Husband, My Life, My Love, My Family, My Cancer
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Mae....so sorry to hear your story...I hope it all gets strengthened out quickly so you can concentrate on your health....this level of stress and cruelty exceeds all expectations...
May you get only excellent results from the operation.
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Mae-That just sucks that you had to deal with all that insurance BS on top of everything else. Glad you were your persistent self and at least got the form. Unbelievable to be treated that way after all your years of hard work!
Hope all goes well next week with your craniatomy.
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Hello all,
Mara those words of wisdom and experience that you send to Mae were so comforting.
Mae I hope all goes well with your surgery. I get so stressed over insurance stuff. It’s kind of like the last straw kind of thing. I hope they get it all sorted out for you pronto.Waving hello to all.
Tanya
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Illimae— OMG. Hate that you encountered the insurance crap today. I can only imagine how awful that news was to hear. Hoping that is all worked out ASAP.
Surgery next week. Will be praying for you and know that we are all here, if you need us.
Maybe we should move Micmel’s living room to your hospital room so you will know how much you mean to us. Kick butt and tell cancer to f—- off and leave you alone.
Wish there were words I could write that would make it all go away for you and all of us. The best I can do is be in your pocket and send you virtual hugs.
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Mae~I am so sorry you had to deal with the money trap cobra,during this frustrating time. I just want your surgery over. You're a killer strong woman so I can Agree on that being in your corner! I know it's hard , but Mara has a good point with your stamina and your drive. Insurance companies suck royally and it's never about the patient , always money. Am sending hugs and support,,!!!
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Thanks ladies 🙂
Not sure how I’m gonna handle multiple days in the hospital but at least MDA has a great breakfast. I’ll have s solid plan on Tuesday when we meet with the neurosurgeon. Until then I’ll be teetering between “I got this” and &!$@!!!!!!!
The Laughlin trip is off though, bummer.
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Mae, what a horrible gut punch. My heart is aching for you. Hugs....Mary jane
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ugh Mae totally feeling your pain with you. F-ing insurance companies!!! 😤😠😡🤬
This is all seriously like criminal that anyone would do something like this to a person diagnosed with stage 4 with BRAIN METS. Like how much more bananas does it get here?
I am sorry I’m a little miffed right now - my insurance is now asking my MOs office to mail (that’s right mail) paper copies of my records. They are saying that faxing (which is the norm) is not allowed.
So the Petscan is getting pushed back another week at the least...third time needing to reschedule due to the insurance company denial. So weird! Why would they do something like this? Trying to wrap my head around it and make sense of it?
But I am doing good distracting myself and trying to enjoy every day and every moment. 💕
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Hating this for you, Mae. Sitting glumly by your side, hoping to grab a lobster that might exit your pocket. Hugs to all.
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Hang tough Mae - this is a lot of scary stuff and insurance malarky to deal with first of the year, but you can do it. What a disappointment about the Laughlin trip, though, that sounded like such fun and a great break. Can you plan something else to look forward to in a few months?
Take care of yourself.
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Mea,
Sorry to hear of the insurance issues. Hang in there, I hope your surgery goes well.
Philly,
That is crazy. I've never heard of a MO having to mail in information. Enjoy your time off though.
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Mae
We are all in your corner. Sending big love and calming thoughts. Everything will work out. I just know it...but agree that you should not have to go through this crap.
I'll be thinking of you and in your pocket on surgery day.
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I am in a funk. I want to shop lol I got so many nice gifts that I’m obsessed with my skin regimen. My bff enrolled me into fab fit fun. I’m loving it so much talk about pampering yourself Just heavenly
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I thought I was alone in the skincare obsession Micmel! I've spent so long being pumped full of drugs that I'm damned if I'm going to put crap on my skin too...my husband is flummoxed by the whole thing as I'm such a no make up and outdoors person!
I actually spent yesterday afternoon at a look good feel better workshop at Maggies centre in Glasgow. Only 8 of us ( I was the only stage 4 so kept that quiet), with volunteer Beauty therapists and a free big bag of high quality skincare and cosmetics. I especially loved learning how to properly put on eyeliner and mascara and deal with the thinning brows. Plus we had such a laugh.... it's Glasgow women, so impossible not to!
Beats the usual crappy reasons we spend time on hospital campuses by a country mile!
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Karen~I am constantly moisturizing my hands, arms, elbows, feet, face . I am always trying new skin care lotions and eye creams. Some have been sheer heaven. For my Hands. Omfg. Omfg. I'll show you. It works lovely. I am so obsessed with this especially since winter hands are here in full swing. ! I'll show you my new favorite items. Lol.
Crazy alignment. Doesn’t look like that on my phone. These are amazing products. For cracked feet and hands. I mean mine were terrible and they have helped me. So much within. A week. Love them both. 0 -
I also attended the look good feel good presentation. And trust me you got over $600 of prime make up. I'm so happy that you signed up for that. I loved mine and still use some of the unopened products as I cycled through them as needed. I became very good at application of make up once self taught from that class and the wonderful make up kit they have Given to us ladies! I can't rave enough over how great that program is. Everyone should go. Pampering ourselves is important. And why shouldn't we. We fight every single day. Why not have smooth ass skin and hands And look good while trying to live. It's fun to put on make up. I never was a make up gal either. But it's growing on me A light amountr of course. Not too much. But it does give you a pep. so many nice things, they provided me I was lucky enough to get two kits Because I knew the facilitator and she had an extra, Little things make big differences for sure !
Packed with Lancôme and top of the line make up. Such a wonderful program. I've also come across hopes scarves. They send a scarf with a a story. You use the scarf until you don't need it anymore, or you send your own scarf in with your story and they send it to someone else. They ask favorite colors and etc. it's really very sweet. I had mine done and received a beautiful blue scarf. I sent my story with my scarf. They ran it. Should be more like these things.
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Mae Big Hug! Stupid Insurance. I look forward to seeing pics of breakfast at MDA. Gotta have something to look forward to in the situation
Oh man Mel how i wish I could use all that skin care. I'm a Cerave girl becuase I have so many allergies. I don't wear much make-up-it just all makes me break out.
Pockets Pockets! Tomorrow is MRI of my hip. Thursday is CT and Nuclear Bone Scan. I'm pretty sure I'm moving on to a new medication but I won't know for another week AND you just never know. I've been wrong before. I hate hate HATE when my MO can' t see me for a week after scans. It's barbaric when I KNOW the scan results will be in THIS Friday. Ugh.
I also have a dentist appointment and a haircut this week. Beezay!
I sent off my packet to Dana Farber today. I can't wait to go there!
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available For pocket duty!!!
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Reporting for pocket duty Moomala...count on me to be there bright and early!
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Moomala I’m in with gourmet miniature cupcakes-dozens of them!
Tanya
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Moomala— reporting tonight for pocket duty tomorrow and Thursday.
Had rads and bone biopsy today so really feel worn out. Going to sleep in your pocket tonight to make sure I’m not late. Brought a thermos of hot tea for the morning
Best of luck to you on both days.
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Me too, jumping in pockets with fudge pops! I’ll try my best not to make a mess 😋
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Mel and Karen, The look good feel better session sounds like it’s up my alley. I wear minimal makeup, often none, and wouldn’t mind some tips. There is a center in my area that may have it.
Mae, Joining everyone in pocket duty for your surgery day. That insurance mess was awful. Sounds like it started with your employer but kept on rolling?
Moomala, in for pocket duty for your tests. I totally agree on the week or more waits for results. I’m in that waiting mode now but will probably call sooner for some info. The first scan I was actually called with a very brief thumbs up message but no details. It did help, but now I have to do the asking if I’m anxious. Maybe you could give the office a call?
Philly, your insurance delays are maddening too. Have they denied other tests before? Glad you’re in a good place mentally. Keep on doing what makes you happy 😊.
Calm week (of waiting) here. DH is having a knee repair next week so I will become the support person instead of the patient next week. I definitely prefer that role.
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jumping in pockets too! I would like to bring delicious popcorn with lots of butter and yummy toppings, whatever everyone prefers!!!
Rosie24 thank you for your sympathy. This is the first time I have encountered this issue. It turns out my MOs office faxed over my medical records that the insurance company requested, twice. And the insurance company is saying they never received them and now they have to send everything via regular mail (or maybe FedEx?) my MO team says this does happen all the time and has asked me to hang in there. I am doing my best! Today I did some yoga and got into the hot tub at my gym - always feels so good to me. Sleep has been difficult I think from nerves.
Mae how are you doing today? Any updates?
Mel thanks for sharing about that organization! If there's one thing for sure about the world of breast cancer is that there sure are a TON of amazing organizations out there trying to help us. I'm going to see if they are going to be in Philly!
I have been a lazy butt the rest of the day. Back is achy and I am resting on my one day off this week.
Yesterday I did a home visit for someone with stage 4 cancer. They are really having a tough time with the medications they are on. The whole family seemed like they were deers in the headlights. I am VERY grateful for the knowledge and experience I have so I can offer support and direction. 💕💕💕 we honestly cannot know what it's like unless we are going through it!
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Please be in my pocket tomorrow. Get CT scan results tomorrow.
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jumping in Mara!!! 💕💕💕
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I’m good, ran errands with DH today. So, the insurance drama began with my applying for disability retirement with a date of 12/31. My MO completed the form and my employer sent everything in about mid December. Before Jan 1st, I received a letter that the doctors form was incomplete and my application was pending, upon review I discovered that the 1st question on two pages weren’t answered (I assume a paper clip prevented those from being noticed. Well, I’m sure you know it’s no quick or easy task to have the MO complete these AND get it notarized. In the meantime, 12/31 rolled around and my status in the HR computer system was changed to terminated but I couldn’t be moved to the retirement group either, so that triggered cancellation of medical, despite the check for January clearing on 12/31. Ugh, just a mess. I’ve completed the cobra continuation and sent a new check, hopefully to be reinstated tomorrow. Then, I’ll have to call retirement group, BCBS and MDA to make sure we’re all on the same page. I’m telling everyone it’s a matter of life or death, and I mean it but I’m not dwelling on surgery at the moment, so silver lining I guess.
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Thank you LovefromPhilly. I can feel you in my pocket.
Mae, I am in your pocket both for the insurance issue and of course your surgery. Will be sending healing thoughts toward the surgery.
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Mara,
Count me in for pocket duty. And anyone else who needs it. I LOVE the support we share in Mel’s living room. There is nothing else quite like it.
So, I saw my new MO yesterday. Friends, I strongly encourage you to look until you find an MO who you click with. Yesterday was like a breath of fresh air. I talked with her for over an hour about my wish for quality of life over quantity (of days), and we discussed so many things about her treatment process. In truth, I should have done this with my last MO...would have saved me a lot of time and heartache!
Anyway, she agreed we should start Abraxane immediately to get the bone mets under control. (The whole process at Baycare is so organized.) So I will lose my hair again, but that’s ok. I am just so darn happy to have found someone who will sit and listen, who wants to collaborate with me on my care options, and someone who appears to deeply care about her patients. I am feeling blessed and really excited about my future with this new doctor.
Love to all,
Boo
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Thanks Laurie, I appreciate it. I am also glad you found an MO that you like. That is so important.
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