My Husband, My Life, My Love, My Family, My Cancer
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Sending hopes and wishes that each day of your recovery becomes easier and that you start to feel better, Mae. So glad the procedure went well
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Arms around you Mae, in a gentle loving way. Get well xx
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So glad to hear from you Mae! That sore throat after surgery can be a real bitch to put up with. Hate the post surgery nausea too... now I ask for a Scopolamine patch that they put behind my ear before surgery and it works great. You’re amazing to be up and walking!! Feel the love and support we are all sending you and hang in there!! 🌺🌷🌼🌸🌻
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Mae, Hoping that each day gets a little better for you. Im so glad to hear the surgery was a success. Yay!
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Hello ladies~ slowly waking up. Cold season. Yuck. I’m trying to stay away from everyone.
Mae~ been on my mind. Sending good thoughts and vibes always.
Rosie~ nice to see you. As always. Jen 🌹🌷🌻 hope all is well!
Minnie~Hello lovely woman!
Movingsoccermom~lovely distraction from worry. I appreciate green anything I look outside and see mud and dirty snow!! Yuck. Yuck. Ty for sharing and hope you’re doing good!
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Mea, so glad your surgery went well. Hoping you have a speedy recovery.
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Mae! Thinking of you this morning. Surgery recovery is first right now. I know that's hard but just be good to yourself and let each day get a little better than the day before. You'll be strong enough to go home before you know it.
I got scan results yesterday. As usual, good and bad news. My bone mets are are basically stable. I have one new spot on my pelvis that the doc is radiating. Otherwise she's keeping me on Afinitor for the time being. I was SURE that my bone mets had progressed more than that but I'll take it. It's really the first (close to) stable scan I've had all this time.
The bad news was that the new radiologist who did my CT last week believes that one of my lung tumors is a primary lung cancer. I've had this tumor all along and it shrunk a little on Ibrance and has remained stable for the last seven months. Nobody has mentioned lung cancer!!!!! So I find this a very hard thing to swallow. I quit smoking over 25 years ago which makes this even harder to accept. MO said "whooooaaaaaa whoa - there are tons of people who never smoked and get lung cancer and tons of people who smoked and got lung cancer years after quitting"
But MO is sending me to a thoracic surgeon to look things over and decide if they think this looks like primary lung cancer too. Where the tumor lives in my lung is difficult to biopsy or remove. So thoracic surgeon will be first to look and see if they can even DO that.
Can I get off this ride for a little while please???
Ugh!
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Mae I have been watching and listening and sending you soooo much love and healing and positive healing energy!
Post-op is a bitch and you are almost through the worst part (the first 25-48 hours). Soon you will be home sleeping comfortably in your own delicious bed and allowing the true healing to come. Hospitals just aren’t great places to heal. So disruptive and noisy.
Love you Mae!!!
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Moomala, sorry to read about the uncertainty of diagnosing due to the position of the lesion in your lung...I hope that it turns out to be much ado about nothing. It’s good that you can continue on Afinitor.
I don’t know if this will lift your spirits, but it’s the first thing that came to mind....my American mom lived with some sort of inoperable cancer in her lungs till she died of old age at home. She was 96. She lived a normal life.
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Thanks Frisky. That's a pretty neat story about your mother! I'm really mystified by this but I mean - it's also cool that I happen to be going to Dana Farber Monday and will have additional smart people looking at me and my history.
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There was an article in the Washington Post in the last few weeks about how more scanning activity means more 'things' are being identified to be treated that, perhaps, don't need to be. I do recall one example being a lung tumor of some sort. I'm sorry to see the news moomala, but I guess good news on the bone mets?
And on the plus side they've been keeping an eye on the lung cancer so it hasn't gotten to the point of no return.This has been a really crap week after such a great weekend - I made it into the office Tuesday but over did it and now my left (non-cancer) pelvis side is really acting up and it feels like all the good improvement of the last 3 weeks is wrecked. That is number 1 on my list of MO questions for next week because I am so over this.
Considering taking long-term medical leave for up to six months as I am not dealing well emotionally with my workplace and the work requires a lot of sitting, which is how I ended up like this. I'm still struggling with some extreme burnout that was never resolved before diagnosis and yeah, I think its time to get physically stronger, move house, and remember what the hell joy is. Being in the dumps or feeling some sort of obligation to a place where that isn't valued seems like it would be at cross-purposes with getting some proper healing done, mentally and physically. I like working, I want to work, I just really, really hate this job.
Also would probably be a good idea to take some time to sort out 'affairs'. I need to find a financial and tax advisor here and move some 401K stuff around in the US. And some embassy stuff to find out about medicare and SSDI, just in case.
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Hello all.
Mae- Still in your pocket as you recover.
Moomala- Wow. Wish you could cut a break soon too. As Sondra said, they have been keeping an eye on the lung thing and it has been stable for 7 months. That is good. Glad you have the Dana Farber consult coming up---see what they have to say about it. How can the rad determine it is primary lung cancer versus met that the Afinitor is keeping stable without a biopsy.
This morning I went for my Port Flush and Lupron shot. The staff surprised me by giving my 3 month Xgeva also. I had miss-counted and thought Xgeva was due next month. So today 2 shots. Woohoo. Feeling kind of achy this afternoon. Also, insurance approved next scans so I am scheduled for CT and bone scan on Feb 5. Scanxiety time coming. Yeh.
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Moomala, holding out hope that you are not diagnosed with a second cancer at the same time as MBC. I sort of wonder how they determine the difference between a lung met from MBC and lung cancer without a biopsy. I will be in your pocket for all of the tests to find out what is going on for you.
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Moomala,
Oh my goodness. I am so upset to hear this news. I know how hard you fight, and to hear that you could have primary lung cancer is very scary. I will start praying immediately that it is neither breast or lung cancer. I hope you let all of us help you and support you through this time. There are some amazing new drugs out there for many different kinds of lung cancer, so stay strong.0 -
Mae,
Thinking of you this morning and sending prayers of love and healing your way. I can’t wait to hear more of your travel stories and adventures. Get well soon
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Hi everyone, no time to catch up yet but wanted to say that this is the best group ever. I truly appreciate the support and genuine concern. I am feeling much more human today and have graduated to runny purées but the throat issues are by far my biggest struggle. I got off oxygen yesterday and off IV fluids this morning, happy for that but so tired of being awoken every hour or so for monitoring.
The head nurse is the unit it named Queenie, so as I passed her on my walk, I gave a curtsy to the queen, the staff seemed delighted.
Can’t wait for a salad and thin crust pizza 😩
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Mae- You sound so good for just having brain surgery !!!!! Keep moving forward. Hugs.
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Good to hear from you Mae. I don't blame you for being tired of being woken up. Even if you understand why, sometimes you have been in a good sleep. Food sounds good too.
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"Throat Coat" tea (made with slippery elm) is remarkably soothing on a bad sore throat. May be a partial relief? So glad you are doing better!
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Mae! Glad to see you up and posting. Bet you are walking better than me too.
Take care and best wishes for speedy recovery!
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Hi Illimae: Just wanted to send you best wishes. I am here and there on different boards, but you are my favorite poster and I am following to see that you are well and good and getting better. That thin crust pizza will be the best ever. I suggest two! or perhaps one in every single flavor you love!
xo Love, Belle0 -
Illimae - So glad you're up walking around & already making them laugh. Following you here for now & keeping you in my thoughts.
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Keep on keeping on Mae
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Nice one Mae. Just pace yourself though!
Easier said than done!
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Hi ladies. I've been absent on this thread for too long. I'm posting on liver mets thread and y90 thread because that's what I've been doing since November. I'm finally finished with those procedures as of January 15.
I went to MO on January 6, she could actually feel the difference in my liver by her exam. She said it felt so much better than it did in October. Evidently, my right lobe was really enlarged, hard and had a whole lot of tumors. I had my liver AVF embolization done on the 15th. My IR said that the tumors were getting smaller. Also that the blood vessels looked better. He said they are not as enlarged because they are not having to feed the tumors. Interesting. So, I'm feeling confident about the effectiveness of the y90s.
However, my next PET isn't scheduled until March 20. It will show everything, including how my lung mets are doing. Since November I've been on a break from chemo. I am only taking Fazlodex for now. I haven't had a PET since October. It's a long time to wait, but necessary so that IR can get the definitive info on the y90s. If a scan is done too soon it won't give the best information.
I only read a few pages back but I think Mae just had surgery to remove a brain tumor? I'm assuming pathology says it's mets? Sounds like no fun for you Mae. Will they have to do radiation too?
I'll try to post more often but you can always find me on liver mets thread.💞
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I'm home! Surgery went well and my head seems quite good, unfortunately, there's still this confusion going on with my esophagus and vocal cords. I can take small sips if tilting to the left and most of the liquid goes down right but some gets stuck causing me to choke and cough, then air comes up too. It's beyond irritating and I'm still horse as hell, everything sounds like a screaming whisper until I lose my breathe halfway through my sentence. Anyway, I'm happy to be home. Thanks for all the good vibes 😁
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illimae - Oh great news that you're home. I know you're pleased to be back in your own bed. Sorry to hear about the esophagus issues. I can just imagine how irritating it is that liquids are choosing the wrong path. Sounds like you're not back on solid foods yet? Holding you in my thoughts.
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illimae, I hope your throat heals soon...it’s amazing how every single treatment comes with it’s own set of problems....I’m increasingly fatigued due to the chemo not the cancer...I will need a blood transfusion because of treatment not cancer...I had a talk with MO on Friday and yes she explained there’s no way around it...I find all of this fkng unbelievably primitive...
Enjoy your bed, being home will surely expedite recovery...I think honey is soothing to the throat, if you can manage it...
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you’re amazing Mae! I am so glad you’re home. There’s no place like home. I’m so sorry you’re irritated. I hope tomorrow is a lot better for you! Continued good vibes !!! For you my friend
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Illimae— so glad you are home. Hoping the irritated esophagus heals very quickly.
Sending positive vibes your wat
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