Abemaciclib Verzenio for Stage IV
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@threetree yes! Same! I don't want to hurt my gut further with more antacid type meds but DH is pushing it haha. I do a tablespoon of manuka honey each day too. I will add black seed. Is that an oil? Will also add bananas back in to my smoothie!
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Hi Iacmelis11 - I get ground black seed powder on Amazon. It is my understanding that the oil is not deemed safe, whereas the powder is. It's easy to mistakenly get the whole seeds (which is OK if you want to grind them yourself), but I get the pre-ground kind. Yeah, the combination of honey and black seed is supposed to be good for heartburn/ulcer type problems. Interesting also, is that I saw somewhere on this board where someone successfully uses a product called "Banatrol" to help their digestive problems. I looked Banatrol up at one time, and it is a supplement that is mostly just powdered banana flakes and lactose (i.e. milk). That made me figure my probiotic Greek yogurt and bananas are essentially the same thing, and I would just as soon have the "real thing". I am not supplement averse, but just like with the prescription and over the counter stuff, I'd rather not if I don't have to. By the way, buckwheat honey is considered a runner up to Manuka honey, so sometimes I alternate/substitute the two, plus the buckwheat is a little less costly and using that too can help lower the overall cost. Buckwheat honey though, is not sweet and tastes much more like molasses than what we think of as honey, and many don't like that. Personally, I don't care either way. (Also, black seed has a whole bunch of other names like black cumin, black caraway, Kalonji, and many more. It is not actually related to caraway or cumin. Just make sure what you are actually buying by whatever name is officially botanically "nigella sativa" seed.)
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@iacmelis11 We do have similar timelines. I didn't do any treatment at all after my mastectomy in 2013. I ended up having double mastectomy, no chemo or radiation or hormone therapy although all were strongly encouraged. I decided that since my surgeon felt so positive about "getting it all" that I would pass on all of that. It turns out according to my current onc that it is a good thing for my body that I never used any of the above because now it is all new to my system and will likely act very positively in fighting the tumors. So far so good. Do you have bone mets only? So far that is all I have - in hip, sternum, ribs and skull. That's enough as far as I'm concerned. Sorry misread your MRI info - good luck Friday!
Threetree I am the same as you with over the counter stuff and supplements. I not only prefer to get what I need from my diet & home remedies, but supplements have never agreed with me. And I tried so many, even before my dx. I hope you get to keep your oncologist! It makes such a difference to go to someone who listens. I'm going to start "shopping" for a new one I think I had mentioned in previous posts. I just don't feel like it yet. I looked up all of the breast cancer oncologist at the center I go to and haven't made any move yet.
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Ladies, interesting discussion. My onc recommends I stay away from any supplements but I am not very good with natural remedies—still learning. I am 8 1/2 years into a Stage IV dx and you would think I would be anexpert by now… I love reading your posts. I do eat yoghurt and bananas, and try to eat healthy meals, but would love a good smoothie recipe. My DH loves kefir but it makes me gag. I react strongly to smells.
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8 1/2 years Intolight that is so encouraging for us all and I am hoping that you continue on! My favorite smoothies are:
- organic protein powder (currently using Whole Betty Berry Green Vanilla Strawberry)
- organic Coconut milk
- fresh or frozen strawberries, or banana, or blueberries or all of them (I try to use organic)
- ice
- peanut butter occasionally - if I want extra fat (I don't need) and more protein
Very satisfying!
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Thanks marcials. I will try it.
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@marcials1 Hi - Yes bone mets only. Cervical spine, hips, iliac and base of skull. @threetree Thank you for the info on the black seed I will look on amazon! I met with onc today and she does recommend Pepcid and called that in. She said verzenio cause all kinds of GI issues and to top it off, I had Rad to my cervical spine in Feb of 2023 so she reminded me that radiation is the "gift that keeps on giving" and I may have some throat soreness / constriction / acid etc etc from that complicating things a bit. Going to try more banana and black seed and Ph diet too. @intolight My daily smoothie:
1 scoop organic Vanilla Sunwarrior protein powder
1 scoop organic green vibrance powder
2 tbsp organic flax seeds
1 cup ish (I eyeball) frozen organic berries
(Will be adding banana!)
1 cup forager probiotic coconut / cashew drink - basically a dairy free kefir
water (I like it watery not thick)0 -
Intolight - I've never done any smoothies, but the two recipes given above look like good bets. I think I rely on my yogurt bowl with banana, flax seed, walnuts, and berries for much the same thing that people get with smoothies.
Marcials1 - I so agree with you about what an inspiration Intolight is with her over 8 years of doing this! I have been amazed and inspired ever since I learned this about her earlier in the year. Raising a glass to Intolight!
Iacmlis11 - You're very welcome re the black seed info. I'm not surprised that your doctor recommends Pepcid. Mine does and I think they pretty much all do. I do have some sitting here on my counter and I've used it a couple of times, but just not crazy about that sort of thing if I can at all do something else. Interesting about how the radiation might still be causing you some trouble. That's too bad and I hope it's not the radiation too, but "only" the Verzenio and any anti-estrogen that you might be taking.
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It's good to know heartburn is so "common." I asked my MO about Tums and she said it's fine, Verzenio isn't affected by stomach pH. I'm on day 9 of the 50 mg beginning dose and so far so good. The worst part of this whole debacle has been the biopsy sites where I'm obviously allergic to something they use! Itches like crazy.
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@orknitter my onc prescribed Triamcinocolone topical cream. Helps with itching.
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