Did you know this about where ILC recurs?
I found this on the Fred Hutchinson Cancer Research Center website. It's something we should all know, and not a single doctor in 10 years has told me. ILC not only has a tendency to recur later than other breast cancers, but it tends to come back in different locations in the body than others.
Lobular's metastatic spread is also unconventional. While ductal spreads to the liver, lungs, bones and brain, lobular tends to go to the bones and ovaries or enmesh itself in the gastrointestinal tract, the abdominal lining or the tissue around the kidneys and ureters. But lobular survivors aren't always aware of this oddball spread pattern. Nor is it common knowledge among the primary care physicians who care for them years after treatment. This is especially problematic because lobular leans towards late recurrence.
"Several women in our [ILC] group had mets to the GI tract and the ovaries and never knew it was possible to spread there," said Pate. "Lobular patients often have terrible problems getting diagnosed because imaging can't see the mets or their doctors misdiagnose their symptoms. Patients need to understand their disease so that if they're having persistent issues with their ovaries or abdomen, they can advocate for themselves."