Not breastfeeding but diagnosed mastitis
Comments
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just wanted to give a follow up -
i have to start over with another doctor (we couldnt find a doctor in my network that could see me) so I am getting a referral next week.
I started my cycle today. The lump is still there and more prominent when i lay down just above the nipple on the right and it still causes sharp intense pain. It is immobile, doesn't move and its hard. When I lay down my nipple is still inverted and flat at times (my other is not). Antibiotics are done.
I did get my final ultrasound results which is confusing to me since I still have the above symptoms...
This was done last week (tuesday)
no cyst or solid lesion. no abnormal shadowing no fluid. There is asymmetric hyperemia manifested as increased flow on color in this distribution.
Impression: hyperemia is in an area of induration outer mid right breast corresponding to incompletely resolved presumed mastisis.
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trace, this is worrisome and obviously creating so much anxiety. It is even more worrisome that it seems like you are being treated very dismissively. With your symptoms and family history you clearly need good evaluation of this lump. The swollen lymph nodes could be from the infection, if that’s what you have, but your breast is not responding to antibiotics so it begs the question. If there is a teaching hospital near you they may be more responsive. As others have said, keep advocating for yourself. Until you get a definitive answer you are going to be worried. Good luck and don’t stop fighting.
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i am just very frustrated, sad and defeated. im assuming if it was an infection, both antibiotics would have reduced the lump or helped with inflammation.
would a fibroadenoma cause my nipple to be inverted? i had one surgically removed in my left breast a few years ago.
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Question. (I only know my experience) End of Summer 2016 I had pain, sorta in my groin. I felt like my leg was buckling, from time to time. Saw PCP. Saw Sports Orthopod. Went to PT. I fell into a chair in a theater. I fell into a door jam. MD requested MRI. I tried to wait patiently. Dec-Jan I called the insurance company to see how the approval was coming. Said I was falling into things & was worried that I would break an arm or something in a fall. My MRI was approved.😉 Saw the Knee & Hip replacement specialist, 2-5-17 I got a brand new hip. No more falls.
I think perhaps asking about the status of my approval && expressing concern about injury that would lead to a claim, helped.
If there is a way to suggest/ ask if seeing Doc ASAP, because of (you know the thing to say here this is just a crazy idea) 5 women that are close biological relatives had this situation & because of delays.... something possible & credible happend.. And you are worried about that....(I said falling & breaking an arm, wrist....) Does that make sense? Sometimes I only make sense to Me.I felt like that was advocating for myself. If I am off-track, please, let me know
NancyB
I didn't get a new hip by speaking up. I think I might have helped move things along. I had AVN in the head of my femur & it was crumbly in the surgeon's hands in the OR. He told my DH.
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thank you for sharing! i expressed the concern i had with family history and the multiple ultrasounds I had prior and the importance of finding out what is wrong! but i kept getting the wrong info and no one seemed concern. so i went out of network and trying another route because something is obviously wrong
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With some insurance, if there is no appropriate doctor in your network, they have to pay an out-of-network doctor and get you a timely appointment. It seems like it is time to call the insurance company and talk to a nurse navigator or patient advocate type. Or a person like that at the medical facility. You may need someone in the system to advocate for you. Starting over is unacceptable in my opinion.
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I am so sorry you are getting the run-around. Do you live in a small town? As someone else suggested - is it possible that there is a teaching hospital nearby that you could go to?
I would think that if you have a palpable lump they would have done a biopsy by now. Did the doctor explain why you are having a large amount of blood flow to the lump?
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she didnt explain anything except i "might" have mastitis or an infection. There were 3 doctors to choose from (one was a man (i dont feel comfortable with that, personal reasons), another i saw for the past year and was very dismissive, and the last only see patients that do have cancer.
I went to my endometriosis doctor, there is a nurse practitioner that can give me a quick exam and then refer me to the breast clinic that is also one of the biggest hospitals in our state. The other doctors above (lower end hospital but closer to home).
I am so deflated (that is a better word than defeated), I am just gonna start over with this doctor and see what happens because no one will see me.
I noticed today my nipple is flaking...is that normal? The pain that is shooting near my nipple/lump is eye crossing painful.
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just wanted to post an update incase anyone is reading this/following -
I started over with a new doctor (I met the nurse practitioner at my endometriosis surgeon's office) - she felt 3 lumps and saw nipple inversion. She scheduled me to see a breast specialist the following day with exam, mamo and US.
I met with breast NP and she felt same found 3 lumps, 1 lump on my left side (previous fibro tumor was removed) very concerned about the lump near my nipple and noticed it is inverted but also starting to dimple/sag downwards to the side of the lump. Swollen lymph nodes in right armpit. Mamo (3d) and US should NOTHING, no lumps (only very very tiny cysts) but n lumps the NPs could feel. I have extremely dense breast tissue. She ordered an MRI and I have it scheduled in a few days (all went by very fast).
3 lumps -
2 ( on right side / inverted nipple is)
1 (on left breast) - I had a fibroandenoma removed in 2017 / mamo and US never picked it up except on an MRI, had surgery to remove that week)
My family history -
Dad's side - my aunt was diagnosed in mid 70s. my cousin (daughter of my aunt) has dense tissue, diagnosed with a cyst and kept going back and then was diagnosed with stage 3 and have both breasts removed.
Mom - she has classifications but has been removed and is monitored.
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Glad you are getting the appropriate attention at last!
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Trace, I have a question. Did your nipples change when you raised your arms over your head, at any point? When I look in the mirror, straight on, I look 'normal'. When I raise my arms up the nipples sink in & the areola sagg. Hasn't always been that way.
Thanks for letting us know about your updates❤️
NancyB0 -
when I raise my right arm up or I lay down (normal or raised arm), my nipple inverted, flat and is semi droopy. It never did that before. When I am standing normal, upright, the are normal.
Dunno why tho yet
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Thank you! When you don't know the right symptoms for the right doctor, it is hard to know who 'cares' about what you have observed. Please let us know what your Doctors say ,& How you are doing.
🤙♥️
NancyB0 -
thank you all for the support. I know I shouldn’t be googling but it’s hard not to especially waiting and my MRI is in 2 days but...
I belong to an endometriosis group and asked if anyone experienced problems and a few did (they had BC because of the hormonal meds from endo). I didn’t think this would be related but...
I was diagnosed with endo 6-7yrs ago. 5 surgeries total (lost my left ovary/tube) and all my pain is right side heavy (hence same size as inverted nipple) I was on every type of birth control, Lupron for 3-6 months, IUD (heavy on progesterone) for about 2.5 yrs. I developed the fibroadenoma during that time (along with liver tumors). Removed iud, had surgery on fibro. 2yrs go by (no hormone meds) and I had an excision on my endo (really bad surgery). During that time, I had gotten the ultrasounds and “something is there, come back in 6 months” 2-3x and here I am.
Maybe it’s my nerves and I’m scared and google is bad
but does anyone have info or experienced similar?0 -
I know others have said this before, but if you can find pleasurable activities offline to distract you between now and when you get your results, then try to do that. Otherwise you're just going to spin and marinate in a sea of anxiety and fear.
This is hard, no doubt about it. Here's a trick I use when recovering from surgery or waiting for news (good or bad)--I tell myself "this time next week I'l feel better/know more/ it will be over" as appropriate.
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Good advice from Edj3. Maybe clean out your refrigerator or Marie Kondo your closet? And please keep us posted. We care! Regardless of the source it will be good to get to the bottom of it and actually heal whatever is causing the pain. Hoping you get clarity and it's something simple to take care of. ((hugs))
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thanks. Sorry I know I shouldn’t post and need to stop worrying and googling. Almost here
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just wanted to give an update -
they did find something but they wont tell me what it is or what it could be but they are rushing me into a biopsy tomorrow!
they also accidentally found a hematoma on my liver that needs to have extra testing on so that will also happen sometime soon but the priority is the breast issue.
after the biopsy tomorrow, will they know after the exam or is there more wait?
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Trace, posting should be fine. You will receive so much comfort and encouragement! Sometimes I believe Doctors want to confirm before they 'tell you what it is'. Yes, it is scary to wait. I'm not good at waiting. But, this is a good place to be! We will we waiting to hear from you, in our virtual waiting room. We really care.
❤️🌺 NancyB0 -
Post as much as you want! Absolutely we're here for you.
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trace621, are you sure they didn't say hemangioma (not hematoma)? They are pretty common and usually don't require any treatment.
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Trace the biopsy has to go to a path lab for analysis, to see what it is (C or not?... if so, what specific type?). It may be ~Friday or even Mon to get results. You could beg them to rush it... (I would). Your new doc sounds much faster and more proactive. Keep being a squeaky wheel and pushing for speedy diagnosis.
The fact you are getting an immediate biopsy makes me want to strangle the initial dipshit who give you antibiotics and sent you home. It's sooooo good you kept advocating for yourself! I am sorry there is something they are concerned enough about to biopsy and yet you already knew it was something, so the biopsy will tell you specifically what you are dealing with. Hoping for a fast result for you. We are here!!
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Trace, relieved to hear that you’re getting the care you needed.
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thank you all for the support! I got my MRI results but I am not sure what it means....
Impression
Nonmass enhancement measuring approximately 2.9 x 2.8 cm in the middle 3rd lateral right breast, with areas of clustered ring enhancement (series 102, image 65 and series 6 image 126). Focus ultrasound with intent to biopsy is recommended.
There are scattered foci of subareolar enhancement in the lateral right breast (series 102, image 60 and series 6, image 124) with question of continuity to the non mass enhancement in the upper-outer quadrant.
Probable flash filling hemangioma in the liver.
RECOMMENDATION:
Focused ultrasound with intent to biopsy is recommended. In the absence of sonographic correlate, MRI guided biopsy of the upper-outer quadrant is recommended.
MRI of the liver (MRI abdomen with and without contrast).
RESULT/FOLLOW-UP CODING:
ACR BI-RADS Category 4B: Moderate Suspicion for Malignancy
Result Code: 4BFINDINGS:
Right breast:
Fibroglandular Volume: c. Heterogeneous fibroglandular tissue.
Background Parenchymal Enhancement: Minimal.
There is non mass enhancement in the superior lateral right breast middle 3rd measuring approximately 2.9 x 2.8 cm. There is rapid wash-in and progressive delayed washout kinetics. There is suggestion of clustered drain enhancement within the area of non mass enhancement (series 102, image 65, series 6, image 126). There are no suspicious axillary lymph nodes.
Additional foci of enhancement in the subareolar region, slightly lateral to the level of the nipple are present (series 102, image 60).
There is no nipple retraction, or skin thickening. There is no enhancement of the pectoralis muscle.
Left breast:
Fibroglandular Volume: c. Heterogeneous fibroglandular tissue.
Background Parenchymal Enhancement: Minimal.
There is scattered nonspecific foci of background parenchymal enhancement. There is no suspicious clumped, linear or segmental enhancement. There is no skin thickening, nipple retraction or adenopathy.
Chest and Abdomen:
There is a T2 hyperintense focus in the liver which demonstrates delayed enhancement which may represent a hemangioma.0 -
I don't understand all of it either, but the basics are:
-It looks like there's a moderate possibility of cancer (moderate suspicion of malignancy) requiring biopsy to confirm or refute.
-There are no involved lymph nodes in the armpit-- which indicates that if it is breast cancer, it is an early/less advanced cancer.
-The area of possible tumor is medium-large (3 x 3 cm).
-They seem to be ruling out Inflammatory BC with the comments on the skin/ nipple.
If you want more info there is a thread by djmammo where you can get more specifics... he's a mammo doctor who gives his knowledge to people struggling to understand their report.
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thank you for replying! at first i wasnt scared but i am starting to now. This morning the hospital app told me I have another exam before the biopsy. I am worried that its an US biopsy but the ultrasound couldnt find the lump before...how could it now?
if it was a papilloma or fibroadenoma, wouldn't the MRI pick that up?
sorry
i know the the questions dont help. im just overwhelmed. I googled "clustered ring enhancement " and its bad0 -
The US might find the lump now that the MRI pinpointed where it is. And breasts are weird--my cancer didn't really show up for what it was with my screening mammogram or the diagnostic mammogram, there was just enough of a something for the radiologist to want that diagnostic mammogram and the ultrasound. The ultrasound did find the tumor, which led to the biopsy etc. etc.etc.
And I agree with santabarbarian post your report so djmammo can see it. He's great about taking a look and breaking things down into plain English. And he will also tell you to quit googling your symptoms or possible diagnoses
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i posted the report above...is there another forum that is only for understanding results?
I know, google is evil right now. it's like you know you shouldnt be looking, but you do anyway and then you are so far down the rabbit hole, you just sit.
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look up djmammo's thread. Do a search for that poster and you will find his thread. He is not all over the forum but he does monitor his own thread -- so you need to post the results there.
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