Sacituzumab Govitecan (Trodelvy)
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My wife is about to start Trodelvy and was wanting to know from those who are/have used it, how significant is the hair loss from this medication and if you used the cold caps with success.
Thanks very much.
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I am glad to see a forum on Trodelvy. I have had two rounds already. My liver enzymes are going down so I hope that it is a positive sign.
How are ya'll dealing with the nausea?
Cathy
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I just found this old post about Trodelvy?
Anybody on it? How is it? Do you loose your hair? Nausea? Etc..?
I may have to go from Xeloda to this, I just don't understand one things...is not Trodelvy for TNBC, or for who have an high TROP2? I don't have an high TROP2, and i'm still 90% ER+...i think i would prefefe something else.
Hopefully i don't have a recurrence and stay on Capecitabine, but I like to look haehad...
Thank you for any info!
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Bumping hoping someone sees this!
I read earlier comments from a few years ago saying people lost their hair, I was wondering if there is anyone who can give an update on how they’re going? I’m starting next month.0 -
hi everyone, just joining this thread and glad to read about everyone’s experiences. So helpful. I start Trodelvy next week , I have high hopes it stops the progression in my right breast and skin. Enhertu lessened the cervical spine lesion and cleared another, but stopped working on the breast tumor after 5 months. And the triple negative tumor started growing again, fast! Ugh. Onward , grateful there are chemo choices. Wishing everyone well.
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@rlschaller this thread doesn’t seem very active, could you please share your experience as I’ll be a few weeks behind you?
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Hi all, I’ve been posting about my Trodelvy experiences in another thread… so many threads I’ve forgotten what I post where… lol. But for all Trodelvy users thought I’d cycle back here. I started Trodelvy in June after Enhertu failed, and am on cycle 3 day 8 tomorrow of Trodelvy.
All in all, I’m loving Trodelvy. After almost 2 months it’s been easy to tolerate and is working so far. A lot of premeds though, but happy no nausea or diarrhea. I work full time and am out and about so no complaints. Wish I didn’t have to go in for infusions 3 x a month (day 1, day 8 and start again day 21) but it is what it is. Enhertu was only once every 21 days, but my breast tumor pushed right through it and started growing with it , though one of the 2 of my cervical spine mets resolved on Enhertu so it’s a good drug as well.
Trodelvy for me carries very minimal side effects, “sludgy “ slight off feeling on day 4 for the morning in each cycle and then it passes. To counter my lower WBC I self administer a zarxio injection the Saturday after infusion which is easy. I did loose my hair however. But have an amazing wig from a salon called Bits n Pieces In Manhattan, which I highly recommend. The Trodelvy has so far been amazing, my 8cm tumor in right breast is hard to locate now via physical exam , and the skin lesions have healed tremendously. Have Pet scan on Thursday and will see how the cervical spine lesion is doing, and breast MRI in September.1 -
still on the Trodelvy train. Just finished cycle 5, SE are minimal. I did loose my hair, but love my wig. I named her Leya lol.. Will start radiation for the skin Mets which we’re getting better but not are getting worse again. I will have 15 whole breast treatments and then a boost week. I’m hoping this takes care of it. MO wants me to stay on Trodelvy since the tumor in the breast was responding really well, and all other troublesome areas have resolved. I’m so hoping the radiation treatment creates a stable result.
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