Triple Negative Bone Mets, and ???
I posted not long ago when it was discovered after 12 years of NED of have mets in the bones. I'm having a really hard time navigating this new forum, so I apologize in advance if I'm not posting in the right place. Never had issues "before." I'm sure I'll figure it out eventually lol.
So of course I don't have the two forms of chemo i received today (once I retrieve those I'll update), but after having numerous tests, scans, and blood work taken, the oncologist it still waiting on the results of one particular marker that must come back negative as well to get me approved on Keytruda. Wondering if any of you all have had that included in your regime and how it's been going. Also, wondering how long some of you have be diagnosed with the triple— . Is triple — a good or BAD scenario? Sheesh, crazy when ANY form of cancer is considered "good" or "bad"—but you all know what I mean.
Also, wondering if they ever biopsy other areas based on pain? They only biopsied the sacrum, did a full body bone scan, MRI of lower quadrant, CT of whole body but that was over a month and a half ago, and I'm having tugging and pulling in my lymph node areas under both arms. Would there be any benefit knowing if cancer was there too, and how they treat those area as well as organs differently than bone breast cancer??
I'm pretty lost still. For some reason, things registered better with my initial dx and I hadn't found this group until AFTER surgery and mid chemo if I recall. This seems so much more complex.
Thanks for listening everyone. I'll sit down soon to try to get a better handle on this new format!