DCIS Grade 2. Anyone told to skip hormone blockers?

I was diagnosed with a wide span of DCIS, Grade 2. I had a lumpectomy and reconstruction on my right breast and a reduction on my left, clear margins, no invasive detected. My oncologist recommends I do radiation but no hormone therapy. He feels it is not needed and will not change my long-term outcome. I am wondering if anyone else has had this recommendation or has any experience with this.

Comments

  • tb90
    tb90 Member Posts: 297

    hello imcloud

    As my experience is already old ( dx’d in 2013), I wasn’t going to bother to respond But as no one else has, I wasn’t even offered the option as my drs felt the risk of the blockers far outweighed their benefit for DCIS

  • imcloud
    imcloud Member Posts: 2

    Thank you for your response. I am confused because my surgeon told me I would be needing five years of hormone blockers, then my oncologist recommended I not take any. I am curious what others have been told/done. I appreciate your reply.

  • tb90
    tb90 Member Posts: 297

    Your oncologist is the specialist to address medications. Not the breast surgeon.

  • bella6162
    bella6162 Member Posts: 3

    DCIS stage 2. No chemo but radiation was suggested and hormone treatment after radiation. I opted out of radiation but am currently on letrozole. I’m 61 and in year 2 of Rx

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,320

    A surgeon, although a doctor, does not specialize in cancer tx. You oncologist is your go to for a cancer treatment plan.

  • gggetsit
    gggetsit Member Posts: 1

    Depends on breast surgeons qualifications.

  • bella6162
    bella6162 Member Posts: 3

    DCIS 2. No chemo after lumpectomy but radiation recommended and adjuvant systemic treatment (rx). Opted out of radiation but started letrozole per my medical oncologist. I’d already researched and had questions for him. My surgeon is in agreement with me and my medical oncologist. 5 years on letrozole and onc tests me for any recurrence. If I’m good I’m off Rx in 3 more years. Clear margins nothing to report from sentinel nodes excision biopsy.

  • flowergal58
    flowergal58 Member Posts: 4

    DCIS lumpectomy, clean margins, clean nodes, stage 0, grade 3 ER+ 15% weak. On Letrozole after trying Anastrozole. Lots of side effects.

    Fatty Necrosis in surgical breast, Calcifications now being being watched in the other breast.

    Question how can I find out what my reoccurrence rate really is? My surgeon didn't do an oncotype test.

    I really would like to get off the Letrozole for a better quality of life. I'm 69 my mom died at 74 and I think about that while struggling to have a life. I miss being an active grammie.

    thank you

  • tb90
    tb90 Member Posts: 297

    Flowergal: Did you receive radiation following lumpectomy?

  • flowergal58
    flowergal58 Member Posts: 4

    Hi yes I had radiation. Just had a clean MRI next week I have a mammogram and see the surgeon. I am hopeful for a stable result.

    :)

  • pinkrules
    pinkrules Member Posts: 107

    Hi. Radiation and hormone therapy was recommended for me. I'm so glad I did the radiation because just after five months on hormone treatment, I had to stop due to extreme side effects, with the okay from my oncologist. In my opinion, I would highly recommend radiation treatment in case hormone treatment doesn't work out. I chose the five day accelerated partial radiation treatment but now wished I chose the whole breast because it was so easy and painless.