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DCIS Alternatives for treatment

I have a recent diagnosis with DCIS moderate to high grade. Has anyone else received this diagnosis and chosen to do nothing but monitor the situation? I went from biopsy and ultrasound results with a likely lumpectomy to the MRI results with a 4cm + area and recommendation for a masectomy to remove the 'cancer'. Any thoughts?

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Comments

  • maggie15
    maggie15 Posts: 1,667

    Hi @theunexpected , There is currently an ongoing clinical trial (COMET) studying the effectiveness of just monitoring low grade DCIS. It sounds like your DCIS is not considered low grade which is why surgery is being recommended. I’m sorry that you can’t have the lumpectomy you would prefer but the size is too big to get a good cosmetic result. Some DCIS will never become malignant but scientists are still researching how to determine that. I had a small amount of DCIS adjacent to my IDC so it’s quite likely it could have been removed before it became invasive if it were found earlier.

    There is a genomic test called the Oncotype DCIS that some clinical trials are using to determine low grade (score less than 39.) You could discuss the possibility of using this with your surgeon if you want to try monitoring but high grade on pathology is unlikely to come back as low grade genomically. All the best as you figure out your treatment options.

  • Thank you.

  • I found that high grade has about an 80 percent chance to become stage 1. I am trying vitamin C IV of 50mg, soursop bitters, apricot seeds just 2-3 after a meal once a day to help it not grow and kill it. There is no reason to go to surgery without trying to have your body heal itself. I’m trying it. I don’t want any surgery. Also don’t stress because that won’t help you heal,

  • @Joyfulnhappy, Did your doctor recommend this alternative treatment?

  • exbrnxgrl
    exbrnxgrl Posts: 5,465
    edited March 10

    @joyfulnhappy , have you checked out the alternative medicine threads? They are not very active (bco specifically states they do not endorse alternative medicine) but you might find an audience there. Overall, this forum is very much oriented toward conventional medicine but many of us use complementary medicine for comfort and symptom relief.

    I can’t paste URL’s but the title is Alternative Medicine. Take care

  • Thank you. I will check that out.

  • exbrnxgrl
    exbrnxgrl Posts: 5,465

    It is unlikely that any doctor practicing conventional oncology would recommend this.

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