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Tips for Bilateral Mastectomy with Immediate Tissue Expander AND Implant Exchange
My Breast Cancer Journey from the perspective of a physician/patient/wife/mom of 3 boys and 1 pup: Dec 2022- First screening mammogram (Age 45, no risk factors) found over a 5 cm area of microcalcifications of left breast near nipple, which then led to 4 additional mammograms and ultrasound biopsy. Biopsy showed DCIS, high…
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Upgraded post-lumpectomy to IDC
I am new to this forum and want to share my experience so far at this very early stage. I went in for surgery in mid-April for a lumpectomy / excisional biopsy) of what was previously diagnosed per biopsy as ADH (atypical ductal hyperplasia) which is a benign condition. Pathology of removed tumor upgraded me to IDC ( ER+/…
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DCIS Grade 2 Diagnosis
Dear Brave Pals, I had lost my Mum to Metastatic Gallbladder Cancer at the age of 60 within 2 months of no symptoms to diagnosis to farewell. So cancer is the most dreaded word in my family. Unfortunately, last month I was diagnosed with DCIS Grade 2 (with expansive Camedo Necrosis, ER/PR+ as per my Biopsy report). They…
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Recently got diagnosed with DCIS at 24 years old
Hi everyone, I’m really glad I came across this space. I’m 24 years old and was recently diagnosed with low-grade ductal carcinoma in situ (DCIS), estrogen-positive. It started when I noticed a lump in my left breast, which I honestly didn’t think much of at first. I think I was influenced by people around me—some of my…
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Any FANCM Triple Negative Breast Cancer Gene sisters?
Good afternoon! I and my daughter both carry the FANCM TNBC gene. I’m a breast cancer survivor who was diagnosed in 2011 at age 43. I had a 1 cm DCIS, Stage 0, Solid/Grade 3 tumor and a subsequent bilateral mastectomy. In 2011, the only recognized breast cancer genes tested were BRCA1 and 2, and TP53 which were obviously…
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What is one thing you wished you knew about DCIS or any breast cancer diagnosis??
I went into my post DCIS diagnosis under the false assumption that my lumpectomy on the right breast and reduction on both was a one and done deal. I was not prepared for the roller coaster of events that occurred post surgery. DCIS in the 3X biopsied benign left breast, a left mastectomy, tissue expander placement,…
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Waiting for biopsy, but pretty sure lobular cancer is back
From my report: "In the left axillary tail and low axilla there is an ill-defined hypoechoic hypervascular mass with shadowing measuring 1.5 x 0.8 x 2.8 cm. No enlarged abnormal-appearing lymph nodes seen." Maaaaabe not, but I always had a suspicion it would come back. Previous history: DCIS - 2007 ILC, stage 2, grade 2 -…
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Another biopsy after 2 years clear......
My wife was operated on for stage 0 DTIS and received radiotherapy at the end of 2023. She thought with today being the last day of the year, she would go and see the results of her latest followup checkup, which for work reasons, she has no way to get to the hospital until today. She just called me and said the doctor is…
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October & Where do I fit?
November 11, 2024 I had a routine Mammogram. December 4th they did a diagnostic mammogram and ultrasound. December 30th I had a biopsy and was diagnosed with intermediate DCIS. January 21 2025 I had a lumpectomy but they didn’t get clear margins so I had a re-excision on February 5th. After healing I had radiation 5 days a…
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DCIS Alternatives for treatment
I have a recent diagnosis with DCIS moderate to high grade. Has anyone else received this diagnosis and chosen to do nothing but monitor the situation? I went from biopsy and ultrasound results with a likely lumpectomy to the MRI results with a 4cm + area and recommendation for a masectomy to remove the 'cancer'. Any…
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Grey area here! 5mm tumor- chemo or no chemo?
hi everyone, first time posting here. I am struggling to make a decision as my oncologist, even after a second opinion, is saying it is my choice if I want to do chemo or not! I am 54 years old. I am “borderline they tell me, I’m the grey area”. I am T1a, ER +, PR-, Her2+, DCIS I had a lumpectomy 5 weeks ago, all went…
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DCIS, receptor positive and still on HRT. How risky is this?
Hi everyone. Never thought I would be spending my holiday break talking and researching cancer. Yet here we all are. I was recently diagnosed with DCIS and receptor positive for both ER and PR. I had a lumpectomy on 13 Dec 2024 and was advised I need a further one (scheduled 22 Jan) as they didn't get clear margins all…
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Segmental Calcifications (BI-RADS 4) & Biopsy Questions
Hello! I (40F, no family history, no children, no symptoms) got my first mammogram in December and was called back to do another one two weeks ago. I was recommended a stereotactic biopsy because they found calcifications in my left breast. Like a lot of people, I googled my findings and started to have a lot of worries…
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High grade DCIS / ADH. Lump in right breast. Formerly treated with Duct Ectasia in left breast.
I had been experiencing a small pain in underarms and left breast in 2024. Later it was found to be Duct Ectasia in a medical report and no intervention was done as it wasn't serious. And around 25th May 2025 I again felt uncomfortable with my breast and arms and went for a mammogram. Further reports from MRI, Breast…
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Winter 2025 Breast Cancer Research Round Up
Winter 2025 Breast Cancer Research Round Up Have you been diagnosed with metastatic hormone receptor-positive breast cancer or DCIS? Dr. Kevin Fox discusses the latest research. Apr 18, 2025 Can people diagnosed with metastatic hormone receptor-positive breast cancer avoid chemotherapy and take a CDK4/6 inhibitor instead?…
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Should I skip recommended radiation?
I am grade 3 DCIS ER/PR negative and had a lumpectomy. My surgeon mentioned that I needed to take radiation due to high grade. He referred me to a radiation oncologist, whom I met this morning. The oncologist said my recurrence rate is 20 to 25%, and radiation can reduce it to be less than 10%. The side effects include…
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DCIS Grade 2. Anyone told to skip hormone blockers?
I was diagnosed with a wide span of DCIS, Grade 2. I had a lumpectomy and reconstruction on my right breast and a reduction on my left, clear margins, no invasive detected. My oncologist recommends I do radiation but no hormone therapy. He feels it is not needed and will not change my long-term outcome. I am wondering if…
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Whether to take the drugs that take away the estrogen
I found out in August of 2024 I had ductal carcinoma in situ, 1.1 cm. There was no evidence of invasive carcinoma. No cancer found in the lymph node on the left side. I had a lumpectomy and did not require radiation or chemo. My cancer is positive estrogen receptor status. I have a decision to make regarding taking…
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Breast implants
I just turned 43 and was diagnosed with invasive ductal carcinoma grade 3 & high grade ductal carcinoma in situ. Im planning on a bilateral masectomy. Im meeting with my surgeon on Tuesday. Im having a hard time deciding on if I want to get implants or not. My question is how did you decide on reconstructive surgery or…
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lymphovascular invasion or tissue displacement dcis
Just got my final pathology report after BMX, still pure DCIS. My Surgeon said no chemo, no radiotherapy and no tamoxifen. After reading through the whole report, there is one additional comment I don't quite understand: "In one block, at the edge of the tissue and partially within a thick walled vessel, there is a group…