Likely to be diagnosed with bone mets and need some advice in the interim
Nearly 14 years after my initial diagnosis, I'm back at the rodeo. My tumor markers are up, and some pain in my leg that I thought was due to gait issues or sciatica is likely bone pain. I saw my MO today, and she said that the description of the pain is consistent with bone mets. Tomorrow, I will get called about when my PET scan will be. I'm in Europe, and I don't know how long the wait will be during August, the month of universal vacation.
I was wondering how to handle a couple of things while waiting. I was being treated for sciatica with physical therapy. Should I continue that? Is there any value or help if it's bone mets? I am scheduled to see a neurosurgeon. Again, any value in that?
Regarding exercise (specifically, walking or weights), do those of you with bone mets find it helpful or does it cause pain? I think it's causing me pain several hours later, but I'm tired of being so inactive.
Thanks for your help!
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I can't really help with your questions, but wanted to send a virtual hug as you navigate this! It's scary to wait in worry. Hopefully others can help you with your specific questions.
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@mary625 So sorry you're dealing with this. Lots of us here have bone mets and still exercise, but you'll want to get the ok from your oncologist since fractures are possible. It depends on the extent of the disease, which they will know from the PET. Once you get the OK, exercise is essential in keeping up bone strength and alleviating joint pain caused by the meds. It may even lengthen life. Not sure about the sciatica treatment. Just let your care team know what's happening.
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