new diagnosis
I was recently diagnosed with her2 negative metastatic breast cancer stage 4 that is not in breast but now in bronchial, bone , abdomen , pelvis. I have been coughing a full year. Had breast cancer stage 1b in 2020. So recurrence.
Wonderful Pulmonologist was one that finally found what was wrong through lung biopsy ! Went through Multiple tests! Multiple specialists trying to figure out what was causing cough! Had pneumonia too. Even had a normal mammogram! Bloodwork came back normal previous months before and tumor marker bloodwork was 38 in March of this year . Now TM is 75 and recently 100
New Oncologist is starting me on letrazole and kascali (don't know if i spelled correctly) I have a cough that doesn't quit but is changing. I am in pain in multiple places/fatigue . I have been prescribed hydrocodone for pain. I am concerned about my loss of appetite! I weigh 110! I previously was 135 pounds5 ft 6inches tall ! It's been a very difficult time. Does my prognosis not look good or will treatment help me gain weight and have an appetite again and feel better??. I have felt pretty crappy for a full year! Frustrated it took a year for doctors to diagnose. My muscle tone is basically wasting away! I am 64!I have minimal support system on these concerns. Not comfortable joining a big support group locally. Please help……anyone else have input?
Comments
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Hi @apple61, and welcome to the BCO community. We are so sorry for what you are going through and we are really glad you found us. It sounds like it has been a long and exhausting year trying to get answers. Starting treatment can feel overwhelming, but many members with metastatic disease do find that once therapy begins, symptoms like appetite, pain, and fatigue can improve.
While you wait for others to join in with their own experiences, here are some pages from our main site that may help:
Letrozole (Femara): What to Expect, Side Effects, and More
Kisqali: What to Expect, Side Effects, and More
We are here for you. Please keep sharing how you're doing, and let us know how we can support you.
Sincerely,
The Mods
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Dear Apple61,
I don’t have what you’re experiencing but I felt love for you when I read your post. Just want to let you know your thought of with tender care. I often forget to breathe under stress, so remember to breathe 🌬️. Wishing you all good wishes.
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@apple61 I'm so sorry you have had this diagnosis, but the newish treatments (like Kisqali) are really changing the game, and many people are living for a long time. I hope this is true for you and that the treatment brings you strength and relief.
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