Invasive lobular carcinoma
I am new to the forum, felt I needed some support to go through this whole process of my diagnosis. I am 73 years old, biopsy report invasive carcinoma, 7mm, her2 negative, ESTROGEN/PROGESTERONE POSITIVE GREATER THAN 90%.. appointment with surgeon 1/6 hopefully have surgery date set up. Due to the nature of this disease I had an MRI with/without contrast did not show any other disease in that breast or my other breast. Total area was measured at 1.1 cm. I have been always up-to-date with all of my mammograms, ultrasounds etc. November 2024, they found a focal assemetry on the diagnostic mammogram that was’ probably benign’ six months later follow up ‘stable,’ November 2025 ‘suspicious’ and biopsy was done. Hindsight, I wish I had not accepted a probably benign and had a biopsy when first seen…I know they were following protocol but I did fall into that 2% or less where it is a malignancy. Really upset about that. just so overwhelmed at this point in time, don’t really want to do any of this but I know I have to…Just so worried, it has taken forever to get this process going especially with the holidays. The waiting is awful, I have researched way too much online and just fuels my already existing anxiety that I have. I am hoping to do a lumpectomy and the hormone blocker drugs. Not sure if that is the right decision at this point and I have no idea how the hormone drugs will affect me, really concerned about that also. So any insight, comments advice is more than welcome at this point. I just feel I need extra support to help me get through this process. I know breast cancer is treatable, but it just seems like so many of them do come back. I know with this particular type of cancer, long-term it may reappear… once I have the final pathology report I am going to be going to Sloan Memorial Kettering Cancer Center which is about a 2 hour drive from my place in Albany New York. . I have already set up and sent all of my information to them thus far. I definitely want second opinions going forward as I feel I was slighted through this whole process and this diagnosis. Thank you all!
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Hi @marleysmom -
Sorry that you have to join us, but very glad that you have found us.
Take a deep breath. You WILL get through this. I'm sorry that your correct dx was delayed. I went through something similar with my 2nd dx. It is very frustrating when that happens. However, know that b.c. usually grows very slowly and it sounds like it has been still caught very early for you.
The waiting is one of the hardest things about this journey. It sounds like you only have a couple more days to at least get your chat with the surgeon. Write down all of your questions and bring them along, so that you don't forget to ask them. Some people bring someone with them to be another set of 'ears'.
B.C. does come back sometimes. I don't know if it is often or not, but for me it took 19 years and then it was actually a new b.c., not one that "came back". Try and take things one step at a time.
Take Care.
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thank you💕
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Hi @marleysmom , and welcome to Breastcancer.org. We’re really glad you found this community. Many members here understand well what you’re experiencing, including the waiting, the uncertainty, and questions about treatment choices. You might also find extra support and real-time connection in our virtual support groups, where people share experiences, ask questions, and support one another as they navigate surgery, hormone therapy, and beyond. There are different days and groups; please feel free to ask if you have questions.
Take things one step at a time, write down your questions for your surgeon, and remember that this community is here for you whenever you need to reach out.
Best,
The Mods
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Thank you!
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