What is one thing you wished you knew about DCIS or any breast cancer diagnosis??
I went into my post DCIS diagnosis under the false assumption that my lumpectomy on the right breast and reduction on both was a one and done deal. I was not prepared for the roller coaster of events that occurred post surgery. DCIS in the 3X biopsied benign left breast, a left mastectomy, tissue expander placement, radiation , Letrozole for 5 years and then DIEP flap breast reconstruction. I wish I had joined a support group right after my diagnosis, I think I would have been more aware of the what ifs.
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@befuddled2 - Welcome to Breastcancer.org. And thank you for sharing your experience and for starting this thoughtful question. What you describe really highlights how unexpected and complex the path after a DCIS diagnosis can become, even when the first plan seems relatively straightforward.
If you’re open to it, we have some resources on our main site that explore DCIS, treatment pathways, and life after treatment that may be helpful for others reading along too:
We hope this helps. We're here for you!
The Mods
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