Bodily feelings (side effects?) that are difficult to put into words
I was diagnosed with stage 2 breast cancer with a high oncogene score. I finished chemo and surgery and am now on letrozole and Kisquali (been about 6 weeks). I wonder how many others feel like "their body is dealing with something" but don't know how to put it into words. I do have some digestive issues, some joint pain, but there is something else that I feel that is hard to articulate. It's almost a feeling of body harm, if that makes sense. I'm reaching out to see if anyone else has had this feeling. Thank you.
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@lori81459 - Welcome to Breastcancer.org. We're sorry for what you have to be here, but we're really glad you found us.
Hope you hear back from other members soon. In the meantime, we thought these articles from our main site might be helpful to read:
We hope this helps. Please, do come back to let us know how you're doing.
Warmly,
The Mods
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I have been on Anastrazole for two months. Hot flashes, tingling hands, joint stiffness which is the worst thing.
Am seriously thinking of not taking it as all I can see is a worse future, I had stage one cancer, lumpectomy, radiation for three weeks. Told it was due to HRT, which I stopped immediately.
I am 70 years old and exercise every day walk for at least two hours, eat healthily.
I am having a review telephone call in two months time so probably will continue taking Anastrazole until then ,
I am trying to get as much information from people who have stopped.
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Hi again @amberina,
We're so sorry again to hear of the side effects you've been experiencing. We commonly hear the same issues from others taking aromatase inhibitors like anastrozole. But there are things you can do to help mitigate the side effects, (some members suggest things like exercise, claritin, and tart cherry juice to help with bone and joint pain). As well as the option to try another aromatase inhbitor, such as exemestane or letrozole, which might be a little less harsh for you.
You can also read about how others have handled their experiences on anastrozole on this long and helpful thread:
It's also good to keep in mind the risks of discontinuing hormonal therapy - we'd suggest checking out this page for lots of good info:
We hope this helps. Please let us know how else we can help!
—The Mods
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