Bottle o Tamoxifen
Comments
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lol yes so true hooray for fat!!!!!... Love the Tink Jo! thanks!!!
Thank you all
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Tink awesome news chickie.......lets keep the streak going with Jo telling us good news
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Tink ! So happy for you ~ good luck with your daughter at the Dr.
Those look like some yummy treats !
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Heres a hot guy for your good news Tink!!!!!!!
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Thanks for the pocket party ladies - and oh my, what a party it was. I had to really concentrate on what my PS was saying. Drain is still with me. PS seems to think Monday - I say no and I hope he proves me so wrong. The pain I was having is from the stitch pulling. He purposely tugged on it and I just about went through the ceiling. He apologized and said he wanted to make sure that is what I was talking about. He could have taken the stitch out but then the tube would need to be taped and I can't have tape in any one area very long. I did ask my I get some much drainage overnight and he said it is because I am laying down and the fluid pools and the drain picks it up. I told DH I am going to sleep in his recliner sitting up as straight as I can. I will do anything at this point to get this damn thing out.
You ladies are the best - thanks for being here for me.
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Geez Paula that one was a knockout and by the looks of it Tink seems to be busy with him.....ha ha
Jo my gosh I feel so bad for you right now I cannot even begin to think how you are holding up so darn well. You are one strong cookie. Hang in there and drink heavily.
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Tink, glad to hear your good news.
Jo, not so glad to hear YOUR news. Sending special lovingkindness your way.
Paula, you completely distracted me from drinks & desserts! Hubba hubba!
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Jo - I am so sorry that drain continues to give you grief. I had one of my four post BMX for 4 weeks and was ready to yank the dang thing myself. Hang in there!!! And great party today, hope we didn't leave any chocolate smudges on the shorts.
Tink - Congrats on the good news! It is always stressful when our kids are sick so I am really glad you can breathe a sigh of relief now.
Happy Thursday ladies.
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Just checking in girls...long day. Drove 3 hours each way to a funeral for a 27 yr. young man who died from an aneurysm. So sad.
Tink..... so happy to hear your good news.
Jo....I would sleep in the recliner too if it meant I could get the drain out sooner. I hope it helps reduce the output.
I'm going to bed....tired and drained.
Have a good evening everyone.
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Tink,
I am sorry I haven't been on for awhile. They changed this whole message board around and I can't find anything!
Glad to hear that your biopsy results were B9!! YAY! FAT IS A GOOD THING!
Hope everyone is doing well.
I will be seeing my surgeon on Friday... just my yearly follow up....
Oh, and tomorrow is my Pink Warrior Sisters Event with the Guardians of the Ribbon! They are bringing the Pink Truck!!
I hope it will be a success... I'm trying to get more ladies involved with the support group.Good Night everyone!
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Hi,
It's been so long since I've been on but I missed all of you. Tried to catch up a bit. Jo, hang in those drains will eventually come out but it's so frustrating.
After an incredibly valiant fight my Dad succumbed to AML leukemia in late April. I basically moved back to my parents house and my Mom and bros and I took turns being with Dad in the hospital all the time. Was really hard to be so far away from hubby and kids for so long but im grateful for the time with dad. Very very sad as he wasn't old or sick for long ad we were really close.
Now i need your help! Had my yearly MRI today and I am a total basket case. No reason except I think 4 straight years of family cancer (mom, lung ca 2009, she's ok, me 2010, then Dad in 2011) is doing a job on me. Four mos onthe leukemia floor in an all cancer hospital was very intense. Hard to deal with dads death and now this MRI has got me in such a state. I just would love to avoid drs for a bit, and scans, tests, waiting. Xanax is helpful but just need some hugs too. Family is great but I don't want to burden them with more illness talk.
Thanks for listening, nice to be back,
Shari0 -
jo-it could be perimenapause. Up until I started taking T everything was very normal and I'm only 46. I have an appt with my gyno tomorrow and I will discuss all of this with her.
June-wow it helps to know I'm not alone, but I feel bad so many of us are having such troubling SE's. My stomach bothers me at times and sometimes I get like a burning sensation. It's so confusing because you start thinking everything is a result of the T. I agree quality of life is important. If the SE's outweigh the benefits of a med you have to think long and hard about staying on it. I wondered about going off it too, but they say it's cuts my risk of recurrence from 14% to 7%. I seems like a lot, but is it really? I was a big walker too. Been walking for 7 years almost every day. I joined the Livestrong program at the gym and really kicked up my routine to spinning, treadmill and weights. Guess what, only lost like 3 pounds which keeps coming back on!
Paula-what I don't understand is I have read a couple of times that the side affects of T are weight loss. Why can't I have that side affect! I was like you too, could eat almost anything and stayed pretty trim. It could be our age too. I keep hearing once your in your 40's and beyond it's so hard to even just maintain.
Amy-Thanks for sharing your story. It helps to know I'm not alone. I am going to try what you suggested. I've been researching everything I could about YI. It all does seem related, when something changes it's a domino effect. Sigh all the perks of being a girl!
Anyway, I'll let you all know my doc says tomorrow.
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Shari - had a 6 month follow-up MRI on Tuesday. Follow-up apt next Wed morning to get results. I think the problem is a scan/test is never simple any more as we know what bad news really means. I know before the test I was more worried about waiting for the results than I was about the test itself (scanxiety - hate it!) Here is to getting B9 results. So sorry about your dad.
Jo, hope you take some good drugs before you go to get it out. Must be frustrating to have it pulling all the time. Praying for soonest for you.
On a lighter note it is my daughter's 18th b'day today. To many more milestones with our families.
{{{HUGS}}} to you Shari, hang in there.
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Drain output was down this morning - Yay! Still has a ways to go but finally seeing some progress. Still hoping for Monday.
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Jo what bummer you did not get the drain out. I think I agree sleep in the recliner. My PS had me do that for about a month even after my drains where out. Here's hoping to Monday.
Shari-so sorry to hear about your Dad but I am so glad that you got to spend the time that you did with him. I lost my Dad last October and was able to spend alot of time with him as well and I am so thankful for that. Hoping your MRI is all clear. You have every right to be having scanxiety. You have had enough cancer to deal with in the last few years.
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Sorry Jo about your drain. The STINKS!!!! Maybe there has been a plug in it somewhere and now he moved it out of the way!!!!
Shari, I hope you get GREAT results from your MRI!!!!
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Shari so so sorry to hear about your Dad. I know how hard it can be and I am so glad that you were able to be there with him even though you were so far away from your family.....hugs!
Jo hang in there strong lady, just a few more days sweetie.....Where oh where is Paula I think you need more eye candy.
Well I feel like ever since I hit a certain age all I do is have one problem after another.....passing another freakin stone and you would think after my history I would have a clue that I was passing one. I had major major lower belly problems and thought it was a bad case of PMS......ha ha, joke is on me. Stone is stuck again and I have drank literally a gallon of water in hopes of passing this baby as if you ladies recall the last stone stuck around for a whopping 16 days and I DO NOT want to go through that again!!!
Tink honey how are you today and the fam????
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June - You are so right - I do need more eye candy and this time I will share it with you pretty lady. So sorry you are having to deal with another stone. I can't imagine the pain you are in. Just remember - this too shall pass.
Hope everyone is having a great day!
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June not another stone! gee you have had enough of those. Too bad they can't find a way to turn those into diamonds. You would be worth a fortune.
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Hi Everyone, wow, you give great parties ladies! thanks, especially enjoyed the latest hot guy. Sweetie, I'll be with you at your appointment and do let us know what your doc says.
I had my lumpectomy several weeks ago in LA. I'd flown back here to Guam to finish my student's grades. Now in two days I'll fly back to LA for treatment. I have set up an appointment with an oncologist, ordered oncotyping and have SAVI catheter placement and treatment set up as well. But everything I have been reading about my triple positive statues is scary. It seems that with IDC triple positive, even with no nodes, it looks like chemo. And that would be before the brachytherapy. And then the tamoxifen! Disheartening, esp. with my sharing sweeties terrible side effects and being premenopausal as well. Do you all think that it is worth it to take all of the treatments possible? I guess I will have to do like you, sweetie and hear the number, the survival rates.
One thing I've come across in my research seems to be working to get me strong for this. I've switched to mostly plant based diet and make much of it raw as possible. The movie forks over knives is good, and so is the documentary "food matter" which you can google and watch the first forty minutes of.
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alowen2 - i think we need to do all we can to prevent a recurrance and/or a new primary. The course of treatment you described it pretty much standard. Each of us has to make our own decisions based on pathology reports, oncotype scores and what our MOs tell us. You will do what is right for you.
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thanks, jo, you are my hero, a strong, brave and awesome woman. As are you all:-) I'm going to fight!! Got my warrior woman gear all ready, my bows and arrows, my shields and now getting on my horse, ready to meet whatever greets me. Did you ladies know that the real amazon women, likely from central asia, were buried with their horses and bows and arrows. They often removed a breast just to be able to shoot better.
CHARGE!!!!
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alowen - That's the way to look at this. Just take one thing, one step at a time. Come here to laugh, cry, vent, ask tons of questions. There is a real wealth of knowledge and experience here. We will all help you through this.
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Hi ladies! I've been so busy lately but I wanted to ask y'all something that I've been noticing for a while. I feel like I'm in pain all the time, at least somewhere if not everywhere. Then I've noticed many, many posts on the board about other gals being in pain all the time. Is it the Tamoxifen/AIs? Or is it just a long-term leftover SE from having had cancer that will finally ease up? I guess it could also be from the mental stress and anguish just from having this diagnosis that keeps us - at least in our subconscious - worried all the time. So if you're stressed, all your muscles stay tense and that hurts, for sure! Does anyone else feel like they're in pain all the time? If it's not one thing, it's your mother! (as my mother likes to say)
Jo, so sorry you are still stuck with that drain. I can't imagine how much that hurt when the doctor pulled on it! If I have tape on too long it starts eating at my skin, too. The good news is you KNOW it's going to come out soon - it has to because it's way past time for it, so it will. So there. Right? I bet it's going to be Monday!
Funny, I've heard that about praying for patience, too. Don't do it! I believe all of us have demonstrated a lifetime's worth of patience by virtue of being women, wives, moms, breast cancer patients, you name it. I just pray for good stuff now, but I don't think I've quite figured out the right way to pray for more money because it hasn't happened yet! Oh, dear - do I need patience for that? Probably...
June, I'm so sorry you have another stone! Are they kidney stones? OMG, I just hope it passes quickly! My friend's husband has them and they just lay him up for days and days. I'm just like you as far as not recognizing something until it hits me in the head! I don't think that will ever change, either.
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Jo my pain is nothing in comparison to yours my friend.....you ROCK and are my hero!
I am thinking of doing lithotripsy treatments again but it is sooooo time consuming and I guess I have had enough of Doctors. But after dealing with this again and it being as painful, I am all done. I kid you not when I say I have had more than 40 or 50 stones since I was 17. I would have to take off work for 4 treatments (2 to each side) and it is not painful but not fun either. I do end up black and blue which can be a pain in the tush. So 4 more days of work off......
Do any of you feel like WTH, again, something else!!! I just would like to win a year of pain free, is that too much to ask for. I always tell my husband that I am sorry that I had no idea I would end up like this.
Sherri how are you doing and the garden? I cannot wait to start mine, probably in a few more weeks.
Heartnsoul Life sucks sometimes doesn't it? I feel like you have much more reason than me to be sore and in pain as you had to endure chemo which I did not. I have aches and pains all the time but I swear mine was from lovely Tamox. Hang in there sweetie and know you are not alone.....
Hugs to all you fine ladies.
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Alowen... It is true.. there are no wrong decisions, you will do what is best for you and we are hear to support whatever decision you make! hugs
Jo.. so sorry you are still hurting sweetie.. praying and praying it comes out for you Monday!!! great big gentle hugs for ya!!!
Junie... so sorry about the stones.. when does it end.. yes defitnely feel like it is always something thats for sure.
Hoping they pass for you soon!!! hugs!!! Ali was feeling better today thank goodnees we are keeping a temparture jurnal to take with us to the rheumatologust next month , hoping to get answers.. thanks sweetie love ya too!!!!
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June, someone told me that lemon juice helps control the stones by attacking the crystals. Worth a try.
June, I hated my drains!!! Then when I had my recon, they gave me another one....WHY??? Oh well, they are but not forgotten and soon yours will be just a memory too!!!! Hey, then we can have a PARTY!!!!! YAH
Always something to celebrate!!! Alowen, I hope that your Onco type come bad good. I know it saved me from chemo by the kin of my teeth. Sometimes I wonder though, but not much left to show up in.
OK, I'm done.....Good night all !!!!!! No nerve meds until after my test....UGH!!!!!
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Hi all I've been reading the last few pages it's a very busy thread isn't it
Eye candy check ,Perfect may I add,, pocket partys , check sounds wild ,drains gotta go , great good news on results , and hang in there ladies some times we have to just roll with the punches and at times it's not much fun BUT SHIT HAPPENES unfortunately , for me yep great news on mamo all clear ,now ,next tues and Wednesday im having scans and bone scan done to get to the bottom of this hip pain ,so ,can I book in for my first pocket party please for both days tues and wed so clear all diarys please ladies it will be the party of the year Byo booze or drug of choice but need to be legal cause well be in a place of public the weather is warm so summery clothes and dress hmmmm let's see let's go formal it's always good to get really girly or should we go fancy dress ????
Let me know your preference
Ooh I'm getting carried away aren't I Oh and flattish shoes cause there will be lots of dancing
Princess Jojo
. Think I might need to get my wand out for you JO and get that friggen stupid *^#%+%^} drain out0 -
Princess Jojo -- sounds like a party --- I will be there --- that is one heck of a trip for me to make but count me in.
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Looks like Monday will be the day I get this last darn drain out - Yipee!! The level was down again this morning. I usually don't like Mondays but this one I can't wait until it gets here. My appt is at 3:00 so if you ladies want to come along that would be great. Perhaps I can talk Paula into supplying some nice eye candy. It never hurts to have some you know.
Hugs & Kisses - You all are the best!!!!
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Heres a hot guy for your good news Tink!!!!!!!