Bottle o Tamoxifen
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Ok, I am warning you all, I box, in real life. Tinkertude, here's my first wack, all for you!!!!!! Because that's a great attitude:-) Thanks so much you all for the thoughts regarding my triple positive status. It got me looking into what may be up ahead after the SAVI. The liturature says more than one test is good and I've only had the needle biopsey done. So I requested the onc, through email, who I am meeting for the first time in LA in one week, to type my tumor. The more info the better when you are talking strong drugs, right? Guess we are all rare in our own way, our BC is unique in what it does. Mine I guesss is rare in the alphabet soup of the genes and makes it especially voracious, pac man gone amuck:-)
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Oh alowen2 no you didnt just do that! Well guess what WHackkkk back, lol! Jo will be back in the game soon and this feathers will sure be flyin come the weekend, I do have a stash of pillowa saved back for her. Oh and alowen2 just incase I missed you, WHHHackkkkkkk!
Girls Im gonna spread the word on the Sista day as well. I know there are walks, runs, and relays that support cancer in everyday life. But a day where we can celebrate each other and our journey with what has bonded us together would be great. I also want it to enclude the women who fought this battle and were lost as well. Let me think on this for a few days and then I will report back with the details!
I had a wonderful day with my mom. She was so sweet and had all of us over and she cooked the main course, lazagna (thats how my granny always said it, so it stuck) yummy!! My mom was my one of my rocks while I went threw chemo. I was very blessed that she took time outa her day to spend it in the way she did. I remember her crying in the doctors office because she had a 2nd daughter go thru this and that she had passed this on to us. Because I have been the first one to test for the gene, we really dont know whos side it comes from. But with my moms family history its pretty much a given. I told her that it was ok. I was gonna be fine. My dad up and left her with 5 kids and completely shut us out of his life and she raised us all. I told her ya know what we can just say it came from him. I know that sounds mean kinda, but I was just trying to make her feel better. Anyways where I was going with this is that I am blessed to still have her as she is getting older and one day (hopefully not soon) she willed be called home. Anyways Im sitting here at home all fat and sassy from my yummy lunch and am ready to dive into my gifts. The kids got me my favorite candies for mothers day, so I think I'm gonna open my bag of twizzlers and get as close as I can to a sugar coma. The bag of reesies pieces will go to work with me for a mid afternoon pick me up. Have a great evening all!
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Ohhhhh so Alowen2 did it......ha ha here ya go girl......WHAAAACKKKKOOOOO!!!!
Paula I love that you spared me today, thanks for that....lol! I think what you want to do would be sweet and perfect and I think everyone will respond to it......glad you enjoyed your day and you deserve it......
Love you all!!!
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I so want to whack Paula and June but that would not be fair. Just counting the days. I'll have to get my buddy Tink on my side. LOL!
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Oh June thats my mothers day present for you, lol! When Sista Day comes about I don't know if I will be able to hold back, lol!
Ok I have been thinking and this is something that I came up with and wanted your gals thoughts on this. Do you want to keep the a BCO thing or let it out into the world. I have other gals that are survivors but don't come here. I just want to do this for all but if you gals want it here thats cool too! Ok you can tell I have had way too much java cause Im starting to ramble. Anyways you all know Im a ink freak and love it. Well I have wanted to get my scars covered and haven't been able to come up with a pic that I liked. Well awhile back I got hooked up with an artist thru an fb contact. She is an amazing artist so I contacted her to see if I could use one of her drawings and what I wanted to do with it. Well anyways she got back to me and told me that it was already sold, but she would design one just for me. How cool was that. She did a fab job and I can't wait until I get my ink done. I only have a few more months to wait then I can do it. Anyways, I was going see if she would design something for our sista day. If this sounds good to you all just let me know and I will contact her. Her fb page is Abandoned Orchards by Amanda Nutzman if you want to check her out.
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I like the idea of the sista day. I also may check out the artist since I want a tattoo to cover up the little dot between my breast where they marked it for radiation. Just something small and I may never do it but want to get ideas.
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Paula - I love the idea of having a sista day for everyone. There are sistas out there that don't know about BCO - I know 3 of them myself. Having something designed just for us would be amazing. Go for it girlfriend.
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Paula, I like the idea of all sisters and actually had decided to suggest you consider it.
I do think we would need a symbol or logo of some kind. Perhaps it would be well to avoid the pink ribbon or any other symbol tied in any way to existing fund drives and not just avoid copyright infringement. We would want to assure our own identity.
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oh its on now!!!!!!!!!!!!!!!!!!
whaaaaaaaaaaaaaaaaaaaaaack a doodle!!!!!!
Hope everyone had a great day!
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Ok I have been thinking of just what to come up with so I'm gonna bounce this idea off to you gals. How about a picture of several womans hands in a circle. Each hand is that of a BC survivor? I will look around the www to make for sure that isn't being used anywhere else. If anyone has some ideas just post away and we can run from there too. Something that maybe you would like to see?
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Oh Tink I am just gonna have to get one last comment in before I have to retire for the night. I will leave you eith this, WWWWWWWWWWHHHHHHHHHack!!!!!!!!!
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Paula, I think I've seen the circle of hands logo--maybe All State Insurance? No that is two hands in a circle.
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I got to looking at hand pics and I don't know if thats the right direction. I pm Amanda and when I hear from her I will let you all know. I also have another artist friend who is very creative so I can pick her brain as well. I don't know if you gals are familiar with mildweed or not. But its the weed that the monarch butterfly lays their eggs on. It goes differently depending on where you live. My area it grows on a vine and the seed pods are about 4 to 5 inches long. They are smooth on the outside as well. Inside there are tons and tons of seeds that float in the air and thats how they get from place to place. I was thinking of a woman lying with her back facing forward and milk weed floating around her? I somehow vision us as the little floating things that come from all over, is that a bit too weird? I just love milk weed and what its purpose is. From my understanding its the only plant the monarch butterflies lay their eggs on.
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Paula -- thank you so much for that lesson -- I did not know that ....
http://www.naturecanada.ca/take_action_monarch_friendly_garden.asp
very interesting ---
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Seems I missed the pillow fight. darn. I had a nice Mother's Day. Saturday evening my mother and Inlaws came over and we cooked for them. Went to church with my mom yesterday as we don't go to the same church and that was what she wanted. After church told DH that I wanted to go to the movies. He hates chick flicks but went along with it cause it was my day. Then we drove the back roads home. All my boys called wish they did not live so far away. My son in Seattle always sends me jib jab cards for different things. They are so funny, I laugh so hard I cry.
Paula I think the Sista Day is a great idea.
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I have gotten a reply from Amanda and she would be happy to design something for Sista Day! I don't know if any of you have went to her page but from what I have seen she does alot of black and white drawings. She does do color but its more of an accent then anything. Sorry I'm not good at describing art very well. I also know that she has an etsy page as well. You don't have to have an account on there to look at her work. So if you gals have any ideas just let me know and I'll get them to her.
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Hi Ladies,
I haven't been on this thread in a while. I started taking Tamoxifen almost two years ago and had no issues up until about 4-5 months ago. THe first thing was my period stopped. No big deal there. Kind of liked that. Now lately I find I am getting yeast infections. Something I never had to deal with before. Along with that I have lost my sex drive and that "area" is very dry,iritated and itchy. I am also feeling VERY tired lately. Almost like I felt after surgery. The kind of tired where I need to take a nap and don't feel that much better afterword. I also try to excerise and eat right. I work out almost 7 days a week, hard and have not lost much at all. Am finding it hard to just maintain my weight. Anyway, ladies is all of this normal and does it go away? I was so happy in the begining because I went over a year with no side affects, now it feels like it all hit at once. Any advice?
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sweetie2040 - Sounds like you may have gone through menopause. Other than the yeast infections, that is what you are describing. I would eithet talk to my MO or GYN.
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Sweetie long time no see......the same thing happened to me. Small se in the beginning then well into the 2nd year whammo. I started having major problems with my foot (plantar fasciitis) joint pain, irritable, extreme fatigue and major major stomach problems and the list goes on. I too eat right and love to walk as my exercise and have gained weight on my 2nd year and could not lose it for the life of me. I am now on a 3 month break as the stomach thing has been way too much for me. My Onc told me my quality of life is far more important and I believe that. I am afraid to stay off it and wont know what I will do until June 18th. Till then my stomach still seems to bother me but people have told me it could take more than 6 months to a year to get completely out of my system. Could this also be a late se of radiation? I hate the unknown but hate not feeling well.
I know these girls will all chime in and hopefully give you some answers.
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I wish I had something to contribute but I never had my cycle come back from chem so I don't know the right way menopause happens. I'm not for sure of the yeast infections though. I would for sure check with your doctor. Im having an issue with weight gain as well. I just can't seem to loss anything. Before all this hit me I was one of the girls that could eat anything and not ever worry about it, ugh!
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I'm 5 days into my 3 week tamox. break and so far, I don't feel any different. Still having body and joint pains, night sweats, leg cramps and fatigue. I lost weight initially, but 5-6 lbs have crept back on and it is not budging! It all seems to be in my stomach and thighs too! I started taking the Tamoxifen on July 1, 2011 so I am approaching a year.
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Yea openheart, I am the same way. I have curves that I never had. My daughter even goes, mom you getting a but. Gee thanks I know I am, but I dont need to hear it. Why cant my foobies get so of that fullness too, lol.
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I was having my period every 3 months before all this and .... my last period was March 8th before I started the Tamoxifen. I started to take it on April 10th so ..... am waiting for June ...
As for weight -- I need to lose weight. I have not been paying attention at all and I am holding my own. I do think if I actually made an effort to eat healthy then I would be ok and would get some weight off.
I am finding I am having more of a sensation that I have to pee but I really don't need to .... I started to pay attention after I read the posts above -- maybe this is all part of the same thing.
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Hi Sweetie, I can address the yeast infections and the sex drive. I am very, very sensitive to chemicals and have had those effects. I haven't met with the onc yet, just waiting but I am triple positive and so will likely have SAVI, chemo, tamoxifin, and other strong drugs. Even birth control pills did these things to me, the weight gain, yeast infections and lost sex drive. It's related, I think. If you get a yeast infection the rest of it comes with it. The drugs mess up the flora in your vagina and so the yeast takes over chronically. You need to change the atmosphere with something, your good yeast likes a healthy environent and the chemicals destroyed it so only harmful itchy ones grow. Food is really good for this, eat yogurt and acidophilous, etc. In the area iteself, apply and esp. if you are sexual use coconut oil, I'm serious:-) Virgin if you can get it. That stuff is the most healing for all skin, it is a miracle. Last yeast infection went away in about a week and it felt better quick. Hope this helps, Amy
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Back from a morning of tests. Don't have official results, but learned a little from the tech and radiologist talking. Cyst on left ovary and some concern about thickening of endometrium and possible hyperplasia already (only on tamox less than 5 months. Guess the come & go pain I was ignoring as just another SE is actually a real issue possibly.
Had my follow-up MRI - hoping they see nothing bad and that what they were concerned about on other side hasn't changed or has maybe disappeared.
Mostly, jut waiting - as well all hate!
My period disappeared very quickly after I started taking tamox (just around 47th b'day). All my SEs have progressed quickly. Not sure if fatigue and sleep problems are directly due to tamox or if a roundabout SE as a result of being shoved towards menopause.
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bgirl hang in there girl. I hope they can get you fixed up real quick!!
I have a kinda weird question for you gals. I cant wait until July for my Onc appt. so I thought maybe you gals could help. Before all this BC stuff I was a real bleeder. Any cut, poke, or scrap I was a bleeder. Well I have noticed that I have not bleed like I use to. In fact I had an issue that I have done the same kinda wound and that I bleed like I always did. This time not. In fact I hardly bleed at all. I do take an asprin everyday also. Has anyone else have this going on. Is it a concern that you would bring up with your onc or am I just concerned over nothing?
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Thanks Paula, I have never been a bleeder, but if this is new I would mention it to your MO. Remember clotting is a side effect so it could be the tamox. I think they can test your clotting factors. If you don't want to wait until July maybe for PCP could get that blood test for you.
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Hi ladies the cutting bleeding thing well I'm the opposite befor all this I wasn't much of a bleeder but now ,wow look out when I cut my self
And all those side effects ME TO weight, itchy around my phey phey , so so tired all the time and all of the above PLUS the fear of it all comming back oh we'll this pillow fighting sounds a good way to get physical count me in ladies but remember I'm a bit of a woose I'm a lover not a fighter so take it easy with the waaacks on me OK
Well of now for mommo and ultra sound hope all goes well as I've found a few little lumps in both boobies
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I know I have not been hanging out here much lately but have been feeling like crap. I still have one drain from my recon surgery and it is taking forever to get the drainage down so I can have it taken out. The drain site has been really sore on and off and tonight it hurts so bad it has just about brought me to tears. I have had this stupid thing for 4 weeks tomorrow. I am seeing my PS tomorrow afternoon at 3:45 and would like to ask you wonderful ladies for a pocket party. i have been so down in the dumps I have at least been trying to read the posts every day but have not been able to bring myself to do much posting. Thanks for listening.
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You bet my Sista! I'll be right there in your pockets! Let me go get ya something to make you feel better.
I found a rugged guy who is hot and just might scare that PS and he will get that pesky drain out for you!!! I hope he does. You have been handling the best that anyone can for having the drain in for that long.
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