TRIPLE POSITIVE GROUP

Im only on for 30 days but they put me on lupron shot since Day 1 with Chemo because they also did not want me prego. 

Geez get im in for a real treat getting a hysterectomy at 33...

thank you, miss very SpecialK! we discussed risks and benefits of each one, a little, last time. At the initial consult a few weeks ago, she felt it was probably not necessary at this time for a drug intervention, but she did want me to be informed about them, while she ran other tests. my thyroid is good! and i dont have celiac disease! so, today, i will get the results of whatever she found in my urine, and go from there. prolia sounds good to me, and i especially like the no side effects bit! Yay! so glad we are here for each other...means the world to me.

goutlaw, I do think that the recommendations for the youngest of us all are especially difficult, and that endocrine data aquisition and endocrine analysis and management are essential to provide better answers for that. I'm sorry that you are caught up in all of it at such a young age.

lago and kathec -  as a side note I did try the oral bisphosphonates years ago and could not tolerate either Boniva or Actonel as I had a GI surgery many years ago for reflux.  I experienced esophageal burning with both drugs and at that time military hospitals did not administer Reclast by IV.  I know that many worry about the incidence of ONJ with these drugs, which is definitely a scary SE and worthy of considering whether or not to use these drugs, but Prolia has a low incidence and it is usually in those with pre-existing serious and invasive dental issues and/or those prescribed higher doses for bone cancer.  The injection is sub-q and much like Neulasta - a little stinging at the injection site.  Some experience some mild flu-like symptoms, but I have not.  I have discussed how long I will stay on Prolia with my MO - he says as long as I am on an AI - which is still up in the air.  We also discussed a switch to Tamoxifen after 5 years on Femara, I would be less likely to need the Prolia at that point, but this is all speculative planning at this point.

I am working on weight right now, meds, gym& diet....I really dont want to hear the bad news it came elsewhere! Im already called counseloring dealing with this! I started going to church Sundays but I just dont understand! God made us different so why make us fat ppl so sick! 

You guyz have an advantage cuz ur toothpicks,! I could probaly pick u up with one finger lol....Anyone else here with hypothyoidism?

SpecialK GI issues are part of what I worry about along with the brittle bones. I have had reflux in the past. I have also had an ulcer in my throat from taking doxicyclin (listed now as being allergic but I'm really not. Just won't take that drug again). So it will be interesting if they try to offer me one of those little pills. I too had my teeth cleaned last Wednesday. My dentist isn't worried. He says my teeth and gums look great. No gingivitis. Thank you sonicare, dental floss and night guard.

Goutlaw if you look the same, pretty as ever. I would recommend you use a bigger scarf so the back hangs lower. It will look less like a chemo scarf. That's what I did. linky. What's with the weight issue? Are they telling you to lose weight? You don't look fat to me. There are risk factors for breast cancer and they claim weight is one of them. Well if I look at all the risk factors I had (no kids and dense breasts) I would say pretty minimal  yet I still got it and pretty aggressive (that's why I'm here on the triple+). They really don't know what causes it. I mean there are lots of obese, not fat I mean obese women that never get breast cancer. So what's up with that? Don't blame yourself. I like to blame my old asshole boss. My BS told me my started about 1+ years after working for that jerk. Seriously I have said this before and I still believe it. Stress is a major contributor. I wish they would start studying that theory. 

Everyone Says I dont look it but I am! Im just pretty well proportioned well! Im 5"2&3/4-220 pounds losing it for lower chance of recurrence! I had pet scan in Dec right before sugery do u know whenthey test again?

goutlaw my onc won't test again unless there is symptom. Granted my liver was scanned a couple more times because they did see some "lesions". They ended up being stable or went away so it is assumed they are cysts. (You know... internal zits).

when my onc switches me to an AI, he automatically does prolia. I thought that would be this year sive been on tamoxifen for three years in July. Since the new recommendation, it will be interesting to see if I stay on a Tamoxifen another couple years before switching. I see him in March and it's on my list, as well as all my three year out paranoia test requests.

Hey there ladies! I am sorry just to bust in here with a question after not having replied to anyone in a while {really really trying to take a "mental cancer break"}, but I have a question that I think pbrain might be able to help me with.

I just had one of my routine echos today and I got the results emailed to me via the medical records server and I am a bit confused and it was after hours or course!

So I open the results and I see some abbreviations and some numbers and then I see "EF 46%" and, of course, I FREAK THE EFF OUT!! Because holy crap my EF has always been 55% and I have been running every day and I certainly don't FEEL any different! I about passed out when I saw that number, I felt my hands go numb, my head go light, etc AND THEN I scroll down and I see "ECHO EF 55%". So, I am thinking that this is the number I have been told in the past, the "echo EF", whatever that is. I haven't actually seen the results before for my echos, so I don't know if any of the other numbers have changed. My question is this: Which one of those numbers is actually my ejection fraction? I really think it's the 55 {at least that's what I am hoping!} because it's at the bottom of the report and I remember the study nurse scrolling to the bottom of the report to find it for me before whereas the other number is at the top. Ugh. I just really want everything to be okay with the ol' ticker.

Thanks in advance if any of you can help with this!

Thanks SpecialK, I am thinking it is something like that and the 55% is correct. I am also thinking if there were an issue they would have called in the cardiologist {as I think that's protocol there}. In addition, I don't think the information would have been released to me prior to discussing it if there were a concern.

twinmama - that all sounds very reasonable!  Hoping that the correct number is 55%!  A drop below 50% usually signals at least a temporary halt to Herceptin, so I would think someone would have addressed that if the lower number was the true EF.

kathec - that is too many shots in one day!  Did you get a cortisone injection for the trigger?  I had one to the knee last May - man, that was a big needle!  The ortho surgeon said "now just relax..." with this massive syringe in his hand, lol!  I felt like asking him how relaxed he would be!  Hope the injection helps your trigger - mine resolved with immobilization and a switch of AI drugs.  After a year I developed three new triggers (finger, toe and ankle) so switched back, and they resolved too, I was lucky.  Hope the scans show nothing of note, but that you can get answers to your pain - has to be frustrating.