Can we have a forum for "older" people with bc?

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Comments

  • globalgal19
    globalgal19 Posts: 42
    edited April 2014

    Jess, don't need a thing at the moment, but what a kind offer!  I've been to Oz an LOVED it.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2014

    Jess bless you.  I'm not in need just now either but it is in fact part of the reason we are on this thread.  We are a comfort to each other in so many ways and so yes, this is what our forum is about.....helping and caring about each other......sharing just whatever comes up......sometimes we have actually helped each other through some rough chemo patches or radiation issues. 

    We all started out the same way here and we stay because it has worked out so well.  I hope you and Global and everyone else stays too.

    Blessings

    Jackie

    ETA:  I sure like your avatar, Jess

  • mema4
    mema4 Posts: 484
    edited April 2014

    I'm  back!  I could feel those positive thoughts as I went through every stage and I so appreciate it. I didn't feel any fear walking into that hospital. And I had a strong discussion with the anestheologist  Even though I don't have a "traditional" friendship with any of you, I look forward to what we do have. Today's the first day I'm out of the dopey fog.So, I couldn't wait to get on and see what all of you have been up to. You're a busy bunch!

    Love, hugs, and kisses  Happy

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2014

    Welcome home Lost. 

    Glad to see you back.  Also glad that things seem to have gone well.  Sounds like you have a positive experience to build on now. 

    Capped off a glorious day with junk food.  I'd say shame on me, but I enjoyed it so much that just don't feel like beating myself up about it. 

    Glad the fog has lifted for you.

    Blessings to you

    Jackie

  • ritajean
    ritajean Posts: 4,042
    edited April 2014

    Just a quick "drop in" to tell everyone Hi!  I've had a hectic day and I'm ready to grab my book, my cat, and a cup of tea and curl up for a bit.  Susie, I'll have to check out "Secret Daughter."  That sounds interesting and I never pass up a good book suggestion!  

    Jess, how nice of you to offer to help with legal questions!  I'm sure everyone will keep that in mind!

    Hugs to all of you.  I'll be back tomorrow.

    Rita

  • dwill
    dwill Posts: 248
    edited April 2014

    jessozzie, I feel like the oldest, although I am 61. Diagnosed with osteoarthritis one week and a couple weeks later osteopenia.  Most 85 years olds can move faster than I can.

    Happy Palm Sunday to all who celebrate!  Love and Hugs!

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2014

    When you commit yourself to living love, you feel at peace with
    yourself because you are at harmony with the flow of life.  Viewing life from
    the highest perspective, you feel confident and secure.  You realize that no matter how things may
    appear, you are loved and protected.  You
    know you are one with God, and you bring your peace with you wherever you go. 
    You’re not looking for love, but for opportunities to love.
    image
    Susan L. Taylor

  • Miminiemi
    Miminiemi Posts: 260
    edited April 2014

    Hello all again.  I've loved reading about the vast array of interesting life experiences we all have.  And Jess, what a kind offer.  I think I already shared I was an elementary teacher, school psychologist, school administrator and now after retired do clowning at kid's parties and town or corporate events.  It's the best of all the jobs!  Four year olds are easy to please and love to see you coming.  

    It's also good to know that we all have grown children who have alternately needed us badly and pushed us away as they strive for independence and need comfort.  It's so delightful when they are happy and awful when they are sad.  Mine, too, had dreadful fertility experiences and one a divorce within a year of marriage.  Happy to know they will never be reading this thread.  My own mom must have been so struck down when I casually reported I had taken a teaching job and was moving from Chicago to Seattle.  Her only comment when I became engaged was "now you'll never come home".  Surprise - Bill was from Ohio and we landed right back in the midwest.

    Friends of mine were stunned that neither child made it to the hospital the day of surgery.  But toddlers and work make all things complicated.  We are lucky to have friends to comfort, support and help.  And this is a great place to know that the problems we experience are shared.  The kinds of things we enjoy are universal.

  • Debzjourney14
    Debzjourney14 Posts: 41
    edited April 2014

    welcome back Lost!  I am so thankful I have a place to come with people who understand.  My son was unable to come for my surgery, and I understand, his wife is 9 months pregnant and due any day, but it would be nice to get a phone call.  He texted me yesterday to tell me he had the flu and was so miserable, and his work was not being understanding, blah, blah, blah.  Didnt even ask how I was feeling. I know the flu is miserable but sheesh...men are such big babies!  

    image

  • Debzjourney14
    Debzjourney14 Posts: 41
    edited April 2014

    image

  • anneb1149
    anneb1149 Posts: 821
    edited April 2014

    Sandra- I so agree that younger people can't always see things from their parents view. When our first DD was about 14 months old, we decided to move from the Bronx, NY to South Florida. Or more accurately, my husband decided and I was too young and naive to understand what that meant to me, my parents and our daughter. From that point on, my parents saw their grandchildren once a year, and my relationship with my parents was through snail mail because long distance phone calls were too expensive. We made a very nice life for ourselves and our children, except that I felt bad that they didn't really know their grandparents or extended family on either side. We became friends with a wonderful couple who took over the grandparent role for the kids, but it wasn't the same as I had growing up with extended family I really knew. Anyway, my children growing up always said they were going to stay geographically close so their kids would know aunts and uncles and cousins. That worked until my oldest son married and moved to Charlotte, NC, because his wife was in the mortgage business and that was the "home" of the mortgage industry. I handled that okay, because no children were involved, and he continued to spend summers with us because he runs a camp in our area. Meanwhile, all three of our girls had gifted us with a total of 5 grandchildren and I was extremely close to all of them. I was devastated when DD#1 announced about 4 years ago that they were moving to the Atlanta area and even worse- they were taking my grandsons with them. It was at that point, nearly four decades later, and long after my parents had passed on, that I realized how badly I had hurt them by taking, at the time, their only granddaughter so far away from them. Oh, and the difference between then and now- I flew to Atlanta 3 days after them to help them unpack and settle in. My husband and I had been to our son's home before his wife ever arrived (she stayed to sell their townhouse, and he went to close on the new house), and traveling became routine. I was probably at my daughter 's new home 7 or 8 times that first year. We also had Skype and email to stay in touch. When I think back to the hurt I caused my parents, I am overwhelmed that it never crossed my mind at the time. I have gone through his whole BC  journey with DD#1 in Atlanta, and while she and her husband (and the boys) have been absolutely great, they do not get why I am so anxious to go home as soon as possible. I have 3 children and 3 grandchildren there that I have seen once since last Sept, and my home of 38 years is there. My husband passed away less than 2years ago and his presence is still there. I will be on the move a lot, because I want to stay close to them all, including my son's 9 mo old daughter, but So Fla will always be "home" to me. I have already talked to my Onc about getting some of the Herceptin infusions in Fla and she said that's not a problem. I am so blessed that I am welcome at each of their homes whenever I want and for as long as I want. And that I have the financial stability to be able to fly whenever I want. Sorry this is so long, but once I start, I can't seem to stop. Probably because you all have become my friends now, and I don't have anyone here in Atlanta except my daughter and her family.

  • sandra4611
    sandra4611 Posts: 1,750
    edited April 2014

    What an interesting bunch of friends we are! Now we know we have a barrister and someone who has lived in China!!! I feel so lucky to be among you and look forward to daily "chats" with you.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2014

    Can't stay long, and actually shouldn't really be here now, but I needed a protein snack ( I'm outside doing work Dh should have had done -- a yearly fiasco where I end up helping more than I think I should )  and it is going to rain, but I was touched by your entry Anne.  It is so much a part of why we came here and never left.  We need the normalcy of allowing ourselves to un-burden now and then.  Cancer is not an easy disease....very life-changing.  Though I don't do it often, I've been able to say things here that I've never uttered anywhere else. 

    Sometimes....I think maybe due to having the same illness our compassion and understanding changes....and definitely for the better. 

    We are all for one and one for all here and share just about anything and everything.  It is great to have a place to feel understood.  We may be far apart and only able to give verbal cheers, and support or even at times a few tears across the miles.....but its an important thing.  Life is short and I love being just about anywhere, where I can be myself and this place is usually at the top of the list.

    Well time to get hard at it again before the rain.  Talk to you all later.

    Blessings

    Jackie

  • mema4
    mema4 Posts: 484
    edited April 2014

    Yeah, I've learned that our breast cancer is an after thought to even our closest loves. Today I've just wanted to talk to someone. My DH is tired, he's been traveling and wants to do everything so I hate to whine to him. He just read the doctor's report and realized I've been doing too much. Now he wants to do everything. Dishes and laundry are piling up!  Daughter lives 300 mi away and is so busy with 4 kids. I just tell her it's fine We talk about every few days but really, she's too far. Two more close but one is crazy and the other is busy (her DH is busy). His wife died died of breast cancer a while back so he doesn't like to discus it.  

    This surgery is harder that  thought it would be. The upper chest area is sooo sore  and sensitive to touch. They do not look the same size. Who he knows. I'm supposed to see PS for tube morrow and I plan b______ a lot!  Despite all those comments I get, like " you are good new boobls, what's the big deal, you don't have cancer anymore, you're well, get busy, yet back walking," and all that crap.  I am tired, I don't want to eat, and I don't have anyone that gets it! 

    Thank you ladies! The photos, the questions and answers, the quotes, everything, helps me. It's a God send for me!  All of you deserve Cake!


  • illinoislady
    illinoislady Posts: 46,506
    edited April 2014

    Lost I think you are doing too much and fretting too much, and maybe some other too much's too.  Women just are around because the home fires need stoking all the time and that means major amounts of work sssooooooo many times when we don't feel like it.  Is there any way you could afford to have the Merry Maids come in -- even for only an hr. or two, and you could assign the things that most need attention to keep the bill down.

    There is no way to "plan" breast cancer.  It will likely show up at  the worst possible time.  Even when you are neat as a pin and you do all you can to put things in order beforehand, it tends to steal your starch a lot of the time. 

    Nature sometimes demand that we stop what we are doing and take care of ourselves.  This is one of these times.  I survived ( ultimately in what became a pretty dirty house ) by deciding what priorities to see too and the devil worry over the rest.  The bath and kitchen had to stay clean.  Laundry got done and the rest was pretty much catch as catch can. 

    People really don't understand and never will unless they too get cancer.  Then they will realize that this is not pneumonia or strep throat.  This is totally un-like anything you have ever had before and creates so many limitations for a while.  How long ????  As long as they last....everyone is a little different. 

    Lost.....this is why this site is here and why all of us are here.  We all wore ( and in some ways still are ) each others shoes throughout the crazy cancer journey. People who don't have it seem to want to look at it like a bad cold.  People who do, know better right from the get-go.   It can be a real struggle.  Having a Dh who cares helps a lot, but sometimes even they don't quite get the full picture. 

    If I were there or no doubt anyone here, you would not have to fret one minute over housework, laundry or where the next box of chocolates was coming from --- the only thing anyone would ask of you is that you enjoy taking it easy.  We don't get to pick and choose, but if I could, that would be my choice. 

    It is hard to see, but this too will pass.....maybe not fast enough, but it will.  Hang on Lost.

    image

    We struggle, but we are going to make it.  I'm sending lots of love and soothing energiy and lots of hope and inspirations.  This is the place where we all care.


    Blessings

    Jackie


  • Wilsie2
    Wilsie2 Posts: 240
    edited April 2014

    Its discouraging that my body cannot do things it was able to do just a few months ago!  I have been going to physical therapy for four weeks, three times a week. I need a hip replacement, not getting it because of mets. I felt so good Thursday and Friday, that I took on the task of giving my very fluffy pomeranian a summer haircut. I had to chase him down and,get him back on the table 4-5 times. He looks very nice with his Schnauzer cut (the only hairdo I know how to do).   Still having energy, I hosed out the garage and tidied some things up there.

    I woke up this morning with aches and pains in places I forgot I had!  Barely could walk when I got out of bed. After I warmed up a bit, was able to wobble to the car and get to church. Every time I sit for even a few minutes I have to start over again.  I hope I can get back to the place where I was last Wednesday. 

    I will keep plugging away, I want to get better if I can. I guess no pain, no gain.

    Wilsie

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2014

    Wilsie....not sure that I met you before but I am sorry to hear you are having so many difficulties.  Maybe if you are still on a physical therapy schedule, you will be able to work out some of the kinks you got over the week-end. 

    I have a Pomeranian too.  His name is Baby Boss.  It will soon be time for him to get a summer cut as well.  I can bathe him, but need a groomer to give him his cut.  My daughter who is a groomer has been doing it for me, but she is going to Utah soon and I will have to start going back to a grooming shop.

    We have had some really nice weather the past couple of days but some storms and cooler weather is going to turn up.  I think Alabama may be stormier and cooler the next few days as well. 

    I do hope you will be able to figure out just how much you can do at one time, to avoid being full of aches and pains for all of your efforts.    Wishing you well.

    Blessings

    Jackie

  • Wilsie2
    Wilsie2 Posts: 240
    edited April 2014

    Thanks, Jackie. Alabama is in full bloom now, I am fortunate that I don't have allergies. My Amelia's and camellias, plus dogwoods, are glorious!  I have been in this house a little over a year, and it came with this beautiful landscaping. I always wanted camellias, now I have 6 which are 15-20 ft tall! 

    I am done whining about aches and pains. I really feel very fortunate that I can do as much as I can. Just thinking that last year this time, I was doing Zumba! I am building back up, just let the hip go unattended for too long. 

    My Pom is Bubba, and he rules the roost. 

    As long as I have sense, I will check in here. I read a lot, but don't post that often Pleased to meet you!

    Wilsie

  • blondiex46
    blondiex46 Posts: 2,726
    edited April 2014


    welcome to the nubies,  I am just 60....no matter how old the kids are there are still issues and I am still stupid....it is funny

    cancer sucks and I am tired of doing all this chemo and crap but it is what it is....

    Joan...I adore you!!!

    Happy sunday night!!

    Sandy

  • camillegal
    camillegal Posts: 15,710
    edited April 2014

    Hi Wilsie, glad to meet u, I hope u enjoy reading this thread and come back. The ladies here are so nice and our talks are so visual and just plain good feeling. Don't ever worry about whining here, do it all u want. U know sometimes when we feel good we end up doing to much when our bodies aren't ready. U sound like u'r really trying to take care of it, but sometimes it just takes long now, all this BC doesn't help a thing that's for sure. I hope u start to feel better.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2014

    Blondie/Sandy  I loved your post and Cammi's too.  We really don't care if someone has a rant or a whine.  Some things just call for a pass you know.  I can't think of a better one.  I've often wanted my 'ignorant bliss' back....sigh !!!!!  That is never going to happen -- the minute you take the reins to be responsible...you never get to put them down again. 

    Just a bit earlier found yet another tick on me....ggggrrrrrr.  That is three in a week, two of them today.  I am just amazed.  We don't even normally see them around here for a few weeks yet.  If this keeps up I'm going to have to leave home till tick season is over.

    Blessings

    Jackie

  • camillegal
    camillegal Posts: 15,710
    edited April 2014

    Jackie what do u do to get rid of ticks? See this is the only reason I don't really like summer, I hate bugs of any kind and summer is their time to wonder wherever they want inside or out. GRRR is right.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2014

    There is not anything that I'm aware of....they are little opportunistic creeps.  I'm not much for bugs either.  You can get Lyme Disease or Rocky Mountain Spotted Fever from them too.  Cam, we lived in a rigged world but we got to do the dance while we are here. 

    Dh has had to take all three of the ticks off of me.  I don't like anything that bites, but I especially don't like the  ones who insist on staying attached for as long as inhumanely possible.   Little creeps.

    Jackie

  • camillegal
    camillegal Posts: 15,710
    edited April 2014

    OK Jackie u'r right but I still don't like these things. LOL

  • di2012
    di2012 Posts: 871
    edited April 2014

    MISSED EVERYONE!!!!

    First as some of you know I have been fighting chemosis since Dec 2 in
    both eyes (since my
    lower eye lift). I saw my eye MD twice before leaving for Mexico and
    was using PRED drops once every hour for a week and then every two hours
    for another week and when leaving for Mexico cruise he said to continue
    drops. After returning I came down with eye infection in one eye, saw
    him twice for that too, my chemosis has now cleared up after more than 3
    1/2 months and now have a bad case of dry eyes.....and my glasses were
    not helping, I knew I was losing my vision and he said I should NOT
    drive...feeling very down and restricted about that!....still using my
    drops and eye lubricants....*:( sad
    I loved our Mexican cruise, I saw lots of whales but no babies. VERY VERY hot!
    I
    started swaying/losing balance in Cabo San Lucas from the
    heat, I thought.....drank lots of water, wore a large brimmed sunhat,
    and 30 SPF, also tired of hearing, "Senora, Senora.....almost FREE!" and
    was anxious to get back to the ship and air-conditioning and my
    cabin/bed, even though the bed was HARD as a rock.... There was only one
    other ship (Carnival) anchored/tendered in the harbor...I have been
    there when there was SIX ships anchored in the harbor.
    Then up the Sea of Cortez.
    La
    Paz was a port I have never been visited before but a 20 min bus ride
    provided for the ship's passengers from where we docked, not many ships
    stop there so everyone seemed friendly, very clean and a nice
    waterfront walkway.


    Next port was Loreto (another port that not a lot
    of cruise ship stop)....I loved that town!...very very clean place,
    friendly people. Mountains behind the little town, very scenic! (love
    to walk but was painful)


    Puerto Vallarta...just ok....been there
    before....cruise ship docks
    across the street from Walmart and a mall. Took a tour to a tequila
    factory out of town, so we could see the country side, I had one sample
    of tequila and hubby had his six and then 5 of mine! I had the BEST
    chicken taco there with home made taco shell...not crunchy but soft and
    still warm off the grill....instead of Office Depot ,
    KFC....etc.....also saw OLD Vallarta, very narrow streets very old
    buildings.


    I was still favoring my left side/leg, pain in left hip
    bursa and having trouble with the stairs on the ship. Gave my self the
    "stroke" test everyday....all okay.

    Saw my PS a few days after
    getting home and he said my brow lift was improving.... (NOT!) but I
    took it as he did not want to refund me, as he said he would refund the
    surgeon fee several times before. He also check if his created nipples
    were even, even though they weren't all along..."droopy/floppy" wasn't
    gone to rise and shine for him!....I put
    my arms straight out at my sides and he said they looked even....I
    said yes, because they were like they were when I was on the OR
    table....put my arms down and he measured and one nip is 2CM lower than
    the other...I am pissed!
    He's talking about another surgery! *:-O surprise (I had 7 surgeries in 1 year and 10 days...UGH!)

    Then I got an eye infection and back to my eye Doc for two more visits and more treatment.

    Went
    to an my orthopedic surgeon to get a shot for my bursa in my hip, as
    my old doc wouldn't give me one again....dropped her found a new
    doc...that is so new...he had to check on treatment....and did not ever  give a shot of cortisone for hip bursa....decided to go to someone
    in the "KNOW" An orthopedic Doc, I saw long ago.He gave me a shot in my
    left hip bursa and the next day it was instant
    relief...he also checked my left leg as I was getting
    pain/spasms/charlie horses in it and my lower back, he found my left
    leg was much weaker than the right...they took x-rays and the next day I
    had an MRI and he found a pinched nerve and arthritis of the lower
    spine near where I had a disc removed 22 years ago.....so a week and a
    half ago I had a procedure in their OR suite (I was awake) and they used
    x-rays to target & shoot me with meds and epidural...20 minutes later
    I climbed off the table and walked to a recliner and had a diet coke
    and said I was ready to go.....I do feel somewhat better.....my eyesight
    comes and goes (last 2 days I had more that a couple hours of
    vision!)....I am hoping it is just the pollen and my allergies, as it
    was fine in Mexico....my eye doc suggested maybe I should move there, as
    I did not have any eye trouble there. (other than the chemosis and it
    cleared up! FINALLY!)

    image

    LORETO at dawn

    Hugs, Di

  • mommarch
    mommarch Posts: 534
    edited April 2014

    Dear Lost, I know how you feel.  It is very hard.  Stop trying to do everything and ask for help.  I know it is  a hard thing to do.  I am one of those people who just take the bull by the horns and try to get it done.BC is a hard thing to go through.  I think my DH and I are closer then we have ever been.  I have always been the rock through 45 years of marriage.  Sometimes the rock chips or breaks. I am on Tamoxifen and I do not have the energy any more to get alot done at once.  I have to pace myself.  If it gets done today ok and if not it will be there tomorrow.  Hang in there.  Hugs

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2014

    Di....now that I read your entry.....I want to tell you how much fun I had in Mexico....except for that Tequila.  Every thing else really had the wow factor for me.  Guess you can tell the stay-at-homes just by their responses. 

    Sounds like you had a pretty nice time and so welcome home.  Do hope some of the other issues smooth out and glad you got the hip shot.  Also that you persisted and found out what was causing some of your problems.  I guess we have to deal with some things.....22 years later too.  Yikes -- that part is not fun.

    Raining tonight finally....just sounds fairly steady.  Blech.

    Have a good night all.....I'm off to the living room and my recliner.

    Blessings

    Jackie

  • mema4
    mema4 Posts: 484
    edited April 2014

    You guys are the best at making me feel balanced. Just talking with BC women helps me to catch my breath and realize I'm not crazy! Jackie and Mommarch, thank you for your soft words today. I'm glad to meet some of that I haven't met before. This a very blessed forum. I love the photos and news about things other than BC but how it also works into our every day lives!  Love and hugs

  • Debzjourney14
    Debzjourney14 Posts: 41
    edited April 2014

    ThumbsUp

  • sandra4611
    sandra4611 Posts: 1,750
    edited April 2014

    Di, I have been wondering about you. Oh my gosh, you've been through too much! I know the possibility of losing your eyesight has been terrifying. So glad you found a doctor to help you with your hip. Man, this getting old stuff is for the birds!