INSOMNIACS place to talk in the wee hours
Comments
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Sass-thanks for the advice, I'm gonna make some calls tomorrow.0 -
I think my biggest issue is just not knowing what is causing my pain and the mental worry and then the lack of sleep is just compounding everything, so I'm going to try to have faith in my doctors and try to stop worrying and maybe if I can stop worrying then the lack of sleep will not affect me as bad!
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Tang I hope it was enough. There's a fine line between scaring you and getting you the info you need to protect yourself.
Nettie, how about filling spousal abuse charges? I give. Unless you are willing to get him to take it serious, you are going to be sleep deprived. There is oodles on the web about sleep deprivation and the physical consequences. It is used in torture. It can be grounds for an order of protection for the disabled in Illinois(only state I looked at). Not sure where to go with this. Based on what you have said, you have 1. told him the problem. 2. you've asked him to sleep in another room. 3.he refuses to see that a problem exists. 4. your health has been affected. 5. he interrupts your sleep for sex when he has been told you are sleep deprived. Honey, you are being abused.
Call a local abuse hotline and ask what you can do?
in fact I'll call a local hotline and see what they say. BBL
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Nettie I pm'd you0 -
Thanks Sas, but I'm ok! Really I am! If I can just figure out the cause of this pain! I'm so pitiful I can even tell if it's muscle or bone pain and that's what scares me!! I do know that any pressure on certain areas of my back are very painful and if I mop or sweep the pain is worse! I'm so confused as to how to distinguish bone pain from muscle pain!
And you must understand, he doesn't care how much or when I sleep, it's just that I am so sensitive to everything that every little thing wakes me! The point I was making is is that he doesn't even try to not wake me! I was much more tolerant before the bc dx, heck I was even tolerant during treatment, but during treatment I was NOT in pain, the pain has come after treatment!! So I think it's the pain that is making things so out of control! and it's a vicious cycle!
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notself, that is why I am afraid to switch. You are right the pain is the worst thing. My bones ache so bad some days, I am using ice packs all day from my knees to my ankles. I cannot take NSAIDS because of a bleeding problem so I only have the choice of Tylenol or pain meds on the upper end, Vicodin and Percocet. My doctor has no trouble giving them to me. I just know not to take them at the same time. Sometimes the Percocet won't let me sleep so try to stick to the Vicodin. What kind of pain and SEs are you having on Arimidex?
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Sas, thanks for trying, I'll tell him. I'm the one with SOA, ask Phyllis! Yes confirmed, can't tolerate c-pap.
Nettie I have to agree with Sas, he needs help! Old school Southern mentality doesn't work in my book
All y'all, feel better!
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dwill,
I had pain, osteoporosis, hair loss, weight gain, dry girly parts, mild depression. After a year off of Arimidex (5 years on), my hair is thin and not improving but not getting worse; my osteoporosis has improved slightly; my depression is gone. I am losing weight slowly and my energy is back almost to normal. I am free of pain.
Be sure to have regular liver enzyme tests if you are taking Tylenol or anything with acetaminophen in it. It is rough on the liver.
Hang in there.
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Nettie - still wondering if you read my question to you...
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Pawprint......seems like there is a bunch of us close to the same age. I turned 59, three weeks ago......

Phylliswhenisit ???? Pocket Party???? Are you getting the biopsy on Friday?
Tangadang, so, so sorry. It all sucks... I cannot imagine how frightening this had to be for you. & DH...
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happy birthday paw..here is a pretty picture for you

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HI ladies!
I am so far behind, just read the last 2 pages.
Been thinking about all of you, just had a bunch of chit going on.
Tang- sending you healing thoughts. I know you can beat this infection!
Nettie- Don't minimize your feelings, or the effect that sleep deprivation is having on you. You matter. Your health matters.
PawPrint- Happy Birthday!
Enerva- that is the cutest puppy in the universe.
Sas- thanks for checking on me.
Chev, Cam, Phylo, HoleIn1, FBB, Susan, Spookiesmom, Blessings, EVERYONE


hope you are all doing okay. 0 -
Jwooohoot glad you are here, you probably popped off to bed. I sent you a pm back yesterday (day before?). it was blocked. Had allot of sweet thoughts towards you then-wipe out by automod. Hope all is straightening out.
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i am wide awake! just trying to read a few pages back. wth? deleting your PMs? I want to get all the messages that are sent to me. That is NOT okay. what a mess.
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Thank you all for the birthday wishes and beautiful pics. I hope you all have less pain and can get some sleep tonight. I had my iron infusion again today. Been sucking on peppermint candy because of that metal taste from the iron...yucky. Even my dogs sniff at me and turn the other direction.
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Jwoo---I thought we had freedom of speech. My research showed all sites that have Terms of Use requirements include in some form the Freedom of Speech clause. The law then allows them to negate that by allowing any form of discretion they want on determining what is acceptable to THEM. Shocking, I know. Took me days to believe it.
From this experience I learned to understand the story of the MATRIX. I was on the outside, looking at the words on the screen, not being able to communicate. Very bizarre. I wasn't plugged into the MATRIX.
I was sent notices of restrictions in the future, after the ban was lifted
So, we communicate, but we are watched. Or at least I am.
If anyone has read George Orwell's 1984, this is the epitome of Big Brother. It's not just here it's all over. Pretty freaky. Orwell wrote his book in 1936. His focus was what Hitler was doing. He put the time of the book into the distant future so he wouldn't be killed for what he wrote.
I remember very well reading it in the late 60's and being entranced by what he described. I reread the book a few years ago. What in the 60's amazed, was in the 2000's plodding. That in itself amazed.
There have been studies re: our freedoms granted by the Bill of Rights and the Constitution that show people are willing to give up their freedoms to feel safe. But where does it end.
Fast forward to this century and everything Orwell wrote of is standard day activity/action/thought monitoring. What was absent from Orwell's book was the DELETE button.
We are in the MATRIX
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PP- that stinks. I hope they are making you feel a little better though.
Sas, I fully agree. At work it is the big joke, but we are all creeped out all the time.
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OK I'm up good time to catch up cuz I'll probably sleep most of the day.
Oh 1984 was a bizarre book in the 60's now it 's more than that, everyone can be monitored at any time the government chooses--really spookie, fine for the enemies but where does it end.
Oh spookie I loved that little doggie, ours is a border collie and lab and he is so smart and not stubborn I don't know what they understand but he seems to get a lot of things quickly.
Obviously I don't know how to handle a husband except to divorce them, but Nettie u need u'r rest especially now and just tell him that, I don't understand why he's so stubborn about the sleeping arrangements, I mean if he knows u'r having a problem, why can't u 2 just sleep apart for a while and see if u notice a difference in how u feel. That's all.
Blessings u are a dear, u'r name fits u so well.
I'm just starting to hear the birds wake up that means it's time for me to go back to sleep. LOL
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Sass, you are amazing. Just wish you could have been there when I went in for my hip... Ha! You wouldn't have made me get up to get in the wheel-chair for that bathroom trip! They SHOULD have put that catheter in if they even "assumed" it was broken. Oh well, I survived.
Why did you leave that job? Sounds like you knew more than the other people around you!
The Doc did the blood test, for the uric acid, but it came back okay... she said sometimes it doesn't show up? We still don't know for sure. But his heel was better, and walking on it within 2 weeks... Just don't think an Achilles Tendon tear heals that quickly.
Nettie... I kind of know what you mean... but YOU will get more stubborn than him, the older you get.... or the more TIRED of it all you become. Yes, I hear that too!
Sometimes he asks what is wrong, and I say "it just hurts..." And he says, "I know, my hands and arms go numb when I sleep, and my left knee gets pains."
So right away it is "done with me" and how can we fix YOUR problems!
But I think you are used to it.... You just have to think by yourself. Think of how YOU can fix things, cause he ain't-a-gonna! He thinks of himself, so you can too!
I don't know about your sleeping situation, but I think I would really try something else. Like in another "bed" or even in the neighbors house... Ha! So have you tried sleeping aids?
And yes.... I THINK you need to ask for some sort of depression pills! If you can stop worrying, that would help! Find a Doctor that will listen to you..... like WE do!
Sass, I don't think she will report anything... There ARE hot-lines she can call to talk to SOME-one.... even in the middle of the night... When things get just too damn rough, you can talk to someone. These agencies know how to help you... You can start with calling the non-emergency police line, and they will direct you.
Wakes you up for sex? How old IS this guy? WHERE is that skillet?
Tell him, "Okay, it's either NOW before bed, or forget about it in the middle of the night... DAMNIT!"
Love you pictures Susan! And I really do love the rest of you gals!
SASS!!!!! Oh God, just watch your P's and Q's! Dang girl! I know you don't like email, but sometimes that is the best way to communicate, you know? I don't even know what a matrix is...
Okay Cammi.... THAT was funny.... about handling a husband.... Yes, it takes a Village.... Ha, ha! I heard that somewhere... but it's true.
SOMEtimes it takes shaking the living day-lights out of them, by just taking off, and promising to never return! Then you do this several time, with lots of tears and help and friends and classes, and meds for him, and somehow seeing past all that heart-ache, and starting over.
But everyone is different, right?
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Blessings, I did read your question and I thought I answered, but that may have been in one of my posts that disappeared!
However, I have NOT been to pain management and can NOT go without a referral! My sister in law works for a pain mgmt doctor and she advised that unless it just gets completely unbearable, that I NOT go! She said some of the laws under our new insurance regulations have changed so that if you are under the care of pain management, you have much difficulty getting pain meds at any other medical facility without the consent of the pain doctor! I don't know all of the legalities, but believe me, she would NOT lead me astray! She wants me to feel better also, but doesn't want me to get tangled up in the new laws until absolutely necessary!0 -
good morning, I had a good sleep due to I took a sleeping pill around 11pm lol I hate how I am dependent on it
. Just thinking Nettie, have you try 👂 earplug ,I can't sleep with them but have a friend that her Dh snorting is so loud that she says She can't sleep without earplugs . I have to admit I admire all or you married ladies .I am so grateful I was single at the Moment I was dx . I could not have survived with another living creature through bc lol
Sure I missed having that special person to provide me TLC but I bc just took all the loving and patience I once had.
Today my sister goes home, I am hopping for her recovery
Hope you all have a great day.
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good morning, I had a good sleep due to I took a sleeping pill around 11pm lol I hate how I am dependent on it
. Just thinking Nettie, have you try 👂 earplug ,I can't sleep with them but have a friend that her Dh snorting is so loud that she says She can't sleep without earplugs . I have to admit I admire all or you married ladies .I am so grateful I was single at the Moment I was dx . I could not have survived with another living creature through bc lol
Sure I missed having that special person to provide me TLC but I bc just took all the loving and patience I once had.
Today my sister goes home, I am hopping for her recovery
Hope you all have a great day.
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I'm not sure where I stated that he would wake me up for sex...if I did say that, it was in a moment of dementia! ha!! Anyway, he learned early on in our marriage that you NEVER wake me for that! Even as a young'un, I didn't tolerate that! Now, I'm sure, when his alarm goes off at 4 am, he would like to have that, but that would start WWIII!! That's one of our other problems, we don't agree on the "when" that should happen! And until I start getting rest, guess what, it probably won't!
Anyway, last night was fairly decent for me, he turned the TV off around 11, so I was probably asleep by 11:30, didn't wake at all until his alarm went off at 4..so that's what, about 4 1/2 hours of constant sleep! I think I dozed again between 5 - 6:30! That's pretty good for me! If I could get this to happen most nights, I think I would be much better!
thanks for all the concern! It helps just to be able to get it off my chest!
Hope everyone has a great weekend!!! Sorry, I haven't been commenting to everyone, I do read and I do constantly think about all with issues! And I thoroughly enjoy all the lightheartedness that goes on on this thread!
And Sas, I to would call BS on the moderators deleting a PM!!! That's just dictatorship!! Hope I don't reap the same by posting how I feel about it!
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Okay.... we are oblivious.... we don't know nothin' ..... we just want to carry on and be happy and not get into anything controversial, because this is not my ORG.
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Yes Mom
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And that's why I asked for your email, to keep the nosey mods away!
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Morning all, had your coffee yet?
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Yes, Sas, you aer such a wealth of information, it's sad to think that you can not send us information even through PM! I will PM you my email, so if you ever try to send me something that gets deleted, you can send that way!
I'm not sure I'm cool with the knowledge that someone is monitoring even our PM's!! But it is good to know, that way if need be, we can find another way to communicate!
So, Sas, please let me know if you do NOT get my PM containing my email address!
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http://www.sunnyskyz.com/happy-videos/736/The-Olde...
Hope you older ladies will enjoy this as much as I did!!
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