INSOMNIACS place to talk in the wee hours

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  • camillegal
    camillegal Posts: 15,710

    Good Morning---

    Aussie but u'r story is priceless, I would tell everyone. LOL

    Susan I think when u act good people assume u'r fine and over all this, so I'm really glad u'r DH got involved.

    OK I already forgot but I love that green car, I would love to have that just for myself.

    And no Chevy not U'R pic. of a green car, u probably don't wash that car but do u mow it??? I'm glad u learned yet another point on u'r computer, after all this will keep u out of the strip joints.

    Ahem I took my shower this morning, today I'm back to peaches, very calming and happy. And it's also cold out hahaha High today will be 65, right now it's actually chilly--strange summer.


     

  • Chevyboy
    Chevyboy Posts: 10,258

    Okay miss Peppermint!  THAT was soooooo funny!

    "motorcycle riding , bong smoking, pole dancer exterior. "  You mean Extrordinaire, right?    Yes, I AM an old softie...   But I just hope that I am luck enough to live that long... I was talking to my DD, and SHE said, "okay, if you get like HER, I will prop you up in front of the TV and make you watch Shirley Temple movies!"

    She said she would take care of ME, when I said I feel bad for her Son & DIL because they are TRYing to take care of her...  

    Okay.... going to jump in the shower....I have a pole in mine, you know.... that's where I practice....  I also smoke a toke.... in there.... or how do you say it?  Cammi?

  • susan3
    susan3 Posts: 2,631

    LoopyChevy, hope u smell as good as cami when u get out of shower 

    Love the green car :).  I always wanted a orange one...but mine is white :(

    PP.....hugs your way..waiting stinks

    Tang..how did it go?   Thinking of you...hugs

    Got a long work day today :(

    Cancer side note..my neck hurts again..swollen nodes...blahhhhhhhhhh . See doc on Wednesdays , so we will see tomorrow . Might change chemos without scans. Just had one in May, next one due in august. But we will see, he might want to see if it traveled more too, maybe that makes a difference on the chemo he would switch me to, not sure, who knows...there aren't many left :(.    Takes me a couple of days to be happy again after I know it's back....wish I could stay in bed today with covers over my head...but it's prob good to be working instead of thinking about it.....I think I will go have myself a good cry and then get on with life :)

    Enjoy the day everyone !!!

  • sas-schatzi
    sas-schatzi Posts: 15,889

    OwliesMorni! 

    chevy your memory is usually better than this? Enerva posted pics of her Harley when she first joined us. Great  pics....I love my new computer too. So glad I fried the old one. I'm sitting in my Brookstone massage chair, coffee on one side, smokes on the other.. This is after using the Brookstone foot massager for a half hour. Pampering myself. 

    pPaws ,please, describe how to get that sleep app.If it could only tell us the oxygen saturation when we don't breathe , it would be perfect.

    LMG Hay day. Then Rain.

    The owner of the dealership is going to PERSONALLY oversee me getting another car. Need to get there BBL.

  • PattyPeppermint
    PattyPeppermint Posts: 8,950

    on Susan.  Go get that crying out and reapply your makeup. You have a good attitude. Hoping tomorrow comes quickly for you so you know what the plan is. Do I read correctly , you have been stage IV for over 13 years?   Wow that's impressive. 

    Chevy. I think it's take a toke, not smoke a toke. Not sure but I bet cami will set you straight. 

    Cami - wonderful weather. It has been a crazy summer for low temps. I think our high today is 77. That's record breaking. I don't mind. Glad for a break from the heat. And my pocketbook is glad to have ac off. Yes 

  • PattyPeppermint
    PattyPeppermint Posts: 8,950

    what do y'all think about a card shower for fbb ? Does anyone have her address ? 

  • camillegal
    camillegal Posts: 15,710

    Patty, clever, Sas might have it.

    And it sounds to me like u have a good handle on the wacky weed stuff, so nothing for me to add.Happy

    Tang we're waiting.

  • camillegal
    camillegal Posts: 15,710

    Susan I meant to address u first have a good cry as long as u want, then come and join us.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Cami Susan's SIL problem was fixed by DH.

    Susan Tell your DH from us, he's the bestest :)

  • susan3
    susan3 Posts: 2,631

    PP,  3 yrs from recurrence Metatastic .....13 yrs all total, on treatment the whole time, tomaxifin then femara then back to chemo 3 yrs ago.  I don't think I spelled them right...lol.  See how we put them out of our mind..lol.  And I am VERY lucky. I am doing really well under the circumstances. Just need readjustment period every time it changes. I need to talk about it, but I hate burdening my clients or family with my info all the time...so it is so nice to be able to purge it all out to you guys. You can skip over my stuff if you want and I would never know it lol.  So this is such a great place to throw your feeling down.  SillyHeart

  • camillegal
    camillegal Posts: 15,710

    Susan I don't think anyone skips over anything cuz we all care altho I do read things I don't understand, but I don't skip it. My posts are the boring ones and I don't blame anyone for skipping mine, I never leave my hous LOL

  • Holeinone
    Holeinone Posts: 1,418

    Morning all....

    PattyP.....I love your idea about a card shower...getting funny & supportive cards can lift ones heart. Sorry your numbers are up....

    Chevy, you said that your grass car was from google, & we want to believe you...but is it possible you created a "pot growing vehicle"? First you posted that sleek car, then a fine photo of your recent hobby, growing a crop of ??? Was it White Russian ? I cannot remember the name of your contraband. We are on to you now. Lots of older ladies are doing it, growing for family & friends....

    Susan, hugs to you, does it always mean it spread or could it be an infection..

    Maddy, let us know how your folks are doing. That is tough...

    Sas, new car smell....I do not know one car from another, but a new one does smell & look good. I drive a Nissan Rogue... It's perfect for me & works for DH & I on road trips with gear & golf clubs.

    Phyliss...thinking of you..

    FBlueBird, wish I had words to help...it is unfair.

    Morning Cami, glad you are smelling fine...

  • tangandchris
    tangandchris Posts: 934

    This was on Sunday....Isabella and Me. I love this pic and wanted to share. Sorry it's so big!

    image

  • tangandchris
    tangandchris Posts: 934

     

    I love the idea of the cards for FBB! patty, sorry about your counts and that you have to worry...how long of a wait is it?

    I love the car story, sorry I can't remember your name my brain is fried!!

    2nd-are you okay, saw some stuff about your parents.

    everyone else-I'm so fried that I know I've missed alot :(

    as far as my rads goes...I really lost it yesterday afternoon. I just let alot of my feelings come out and it was probably good. I didn't realize how scared I was about doing this! But, it wasn't so bad. The tech could see that I was a wreck and she talked me thru it all. they are zapping from 4-5 different directions and had to put this thing on me to make the machine think there was more of me there. I can't remember what they called it though. Bolus maybe?

    I'm just terrified at this point that something will go wrong, because everything has already gone wrong. I know it is pointless to worry, but I can't help it.

    love ya'll and I really would like to participate in the card thing for FBB. ((hugs))

  • PattyPeppermint
    PattyPeppermint Posts: 8,950

    hey SAS. Do you have fbb address ?  If so what's the best way to do a shower ?  Don't know if she  would want everyone to have her address but others wouldn't mind.  What's your opinion oh great smart one ? 

  • camillegal
    camillegal Posts: 15,710

    Oh what a pretty picture---good one.

    And Tang I'm sorry this is so difficult for u I really thought it would be better, I wish I could help u with how worried u are, but worry is very difficult to deal with, I do know, it takes a long time to overcome worry if u can. But u't this far along now and it's a good thing, so if u can think of that in this way maybe it will help. U would not be giving rads yet if u weren't ready for them.

    HaHa Chevy u got caught this time, Smarty Pants. Hole figured u out right away. She must be very familiar with this type of growth.

  • Enerva
    Enerva Posts: 2,985

    ok I need to go back and find about the card thing, I missed it. 

    So here is a picture of my ex bike lol I sold it. It was a Honda cbr250 2011 so not a big Harley lol I can't afford one of those Harley I wish I could.

    image

    Here is a picture of the one I want now lol

    image

    Well it's the 500cc sporttouring 

    But the one I really wish I could get is this one lol

    image

    DUCATI LOL 

    Anyway here are the bikes from the show I went.

    image

    image

    image

  • Holeinone
    Holeinone Posts: 1,418

    On one of the other threads, they had everyone mail to one person & she mailed them in a pkg. I PM FBB & asked her if she would like & be comfortable with Getting cards from us. I enjoyed funny, witty cards when I was sick. 

    Tang, beautiful photo. I did not take any photos bald. I think my DS might have one, right after he buzzed my hair. I always had a hat or beanie on. Your hair will start to grow, looks & feels like baby hair in the beginning. 

    Today is my DD 28th birthday. I had my biopsy one year ago today. I got the results 24 hours later, even though I already knew....the radiologist had pretty much made it clear after the mammo. 

  • Smaarty
    Smaarty Posts: 2,615

    blessings, where are you? How's your head?

    Jwoo, didn't forget the lamp, just have email the pic to myself.

    Tang, you have a beautiful daughter. How old? Thought you said 4-5?  Now that the first one is done, hopefully not so scary from now on.

    Off to swim class, then a retirement party from where I used to work. A little packing after that. 

    Have a good day everyone or best that you can handle. Like the card idea.

    Oh yeah, I want the flaming bike!

  • tangandchris
    tangandchris Posts: 934


    I like the flaming bike too!

    I knew too Hole after the mammo and ultrasound-radiologist told me right then and there. Of course he said we have to biopsy, but it was all clear to me after he told me. Hard day for you? ((hugs))

    I feel like a whiney baby.....I'll get my stuff together soon and keep on keeping on!

  • Enerva
    Enerva Posts: 2,985

    Tang I wanted to tell you I used alovera on my skin as soon as I got home after each rad and it helped me a lot. I just bought a plant and I cut of a piece of on of her leaf 🍁 then take the crystal and put it on my Skin . Just wanted to mention in case you have a plant at home ;) 

    I will love to send FBB a card too ;) 

    Or a crochet hat ;) if any of you lives near her and can pm me your address I can Send tobyou then you can bring to her from me? 

    Sending u all hugs . Oh Ya the bike thing is now a dream lol I don't know When I will have $ to get another one :( but I enjoy just dreaming about it and I won't give my gear away ha ha ha 

  • phgraham
    phgraham Posts: 909

    I'm 15 pages behind!  I talked to sassafras yesterday and let her know the good news.  I may be eligible for a clinical trial at MD Anderson in Houston for bone mets.  I'm waiting for the appointment now.  Going nuts waiting for the appointment.  Oh wait...maybe I was already nuts.

    Sorry I'm MIA.  I'm nuts and I suck.

    P

  • susan3
    susan3 Posts: 2,631

    Phgraham..hope u find out soon :)

    Great bikes...but I'm afraid of them Snooze

    Tang..thanks for posting the pic..I love it :).  I think you r doing great..loosing it it part of the process. Hugs to you

    Blessings...are you staying on your feet ?

    I missed card thing too. Would love to participate

    Cami, haven't heard about your smells recently !! No showers lately :(

    Opppps, back to work

    Ta ta

  • camillegal
    camillegal Posts: 15,710

    Phylotimeforgoodluck----I pray u get that app't soon.

    OK I want the flames too. (bike)

    Oh Susan I forgot to mention my shower, how could I, I washed with vanilla, but put on the fragrances of peaches--soothing and want to bite my own arm.

  • Holeinone
    Holeinone Posts: 1,418

    Phylisswhoiswaitingbutprobablyonlyalittlecrazy, great to see you post, the unofficial/official worry wort is always worrying, about everybody!!!!! I hope you get good news soon..

    Tang, yes today, tomorrow are unsettled, nervous feeling. I'd better get over it cause all the anniversaries, the 1st surgery, 2nd surgery, chemo date.....yukky sucky.....it's all in the next few weeks. The good thing is I'm busy, most of the time. Still battle the fatigue and Arimidex SE but I know I am lucky. 

  • gardengumby
    gardengumby Posts: 4,860

    luv, maybe you already got your answer... I get pedicures - love em - usually I get one about every 4 to 6 weeks.  I probably should do it more often, but don't want to spend the money.

    Nettie, my DX was also following a perfectly pk mammo the prior year.  Yet I had DCIS 7+ cm, 3 IDC - the largest was 13mm, and 2 positive axillary nodes.  They had to have missed it a number of times which is one of the reasons I am so opposed to backing off on mammos to one every 2 years

      

  • susan3
    susan3 Posts: 2,631

    luvmygoats, forgot about pedicure question. I get them as long as white counts are up. Here is my philosophy , I am sure you asked me for lol......they took my foobs, so I will treat myself to pedicures and sometimes manicures so I can feel special :) now I only get them every 2 to 3 months...but that works for me. I can cut my own toe nails, but never think about it until the big toe hurts in my gym shoes.

  • Nettie1964
    Nettie1964 Posts: 627

    Sorry but I can't remember if I commented about the mani/pedis before, but this is how it happened for me...

    I never stopped getting them, but I go to the same shop everytime, been using them for over 3 years now, I lost my hair at about week 3, so when I went in with no hair, they never asked anything, but when they seated me, they sat me with no one next to me on either side, usually they would seat me in an end chair that way they only left one chair vacant and I noticed they would get their "tools" directly from that little sanitizing box!  (maybe they always do this, but this is when I noticed)!   I went one time with my sister, actually she met me there, I got there a little earlier and was already seated and she came to sit by me and the salon worker ran over to her, touched her arm and said, "no, no...you sit over here"!!  That's when I realized that they understood!  But I spoke up and said, it's ok, she's with me and all was good!! 

    Anyway, that's my story!!  And I never had any problems, even once when I was losing my big toenail, they put on a fake nail to protect it!

  • Enerva
    Enerva Posts: 2,985

    humm me too I forgot to comment on the man/pedí I love to get them but I don't often due to not wanting to pay lol I remember my onco telling me not to get them saying it's dangerous but when ever I can afford I do it, the ladies do a better job than me and it feels so good to be pamper lol 

  • tangandchris
    tangandchris Posts: 934


    ohhhh, I want a pedi so bad! I was told no too.....and now I'm just waiting for what I don't know.

    Not sure if this a good place to ask, but here goes. I've noticed period cramps the last 2 days. I haven't had one since my first chemo in FEB. Will I get another one?? I know that might stop when I start hormone meds, but I wonder if I'll get a period before that. This is a MO question, but I thought I'd see if anyone had this experience.