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What percentage ER+ and how many years NED?

24

Comments

  • luckypenny
    luckypenny Member Posts: 13
    edited September 2015

    Only 70% er here and just 5% pr. Uh oh!!

  • fd1
    fd1 Member Posts: 62
    edited September 2015

    It was 100% ER+ and 90% PR+ - Allred scores of 8. It's been almost four years for me - four since I found the lump.

  • tectonicshift
    tectonicshift Member Posts: 102
    edited July 2020

    .

  • graceb1
    graceb1 Member Posts: 56
    edited July 2016

    i was 100% ER+, 12% PR+, Now 2.5 years out and NED

  • kathleen26
    kathleen26 Member Posts: 10
    edited July 2016

    I had to look it up also!

    95% ER+, 10% PR+

    I'm a little over 6 years since diagnosis, currently NED.

  • nancy2581
    nancy2581 Member Posts: 408
    edited July 2016

    100% ER+, 59% PR+

    I'm 2 years out.

    Nancy

  • shycat
    shycat Member Posts: 46
    edited July 2016

    100% ER+

    2 years NED


  • thinkingpositive
    thinkingpositive Member Posts: 564
    edited July 2016

    98%. ER. 68% PR.

    1 year 10 months since diagnosis.

  • kathy1925
    kathy1925 Member Posts: 6
    edited July 2016

    100% ER, 95% PR 6 years NED

  • LizM
    LizM Member Posts: 46
    edited July 2016

    75 to 80% ER and 70 to 80% PR, 11 years NED, 10 years on Femara

  • caaclark
    caaclark Member Posts: 19
    edited July 2016

    95% ER+ and maybe 30% PR+.  Not sure and I'm not looking it up.  My path report freaks me out!!

    BTW- I am 10.5 years out from diagnosis.  YAY!!!!

  • DayLily15
    DayLily15 Member Posts: 34
    edited August 2016

    66% er+ and 66% pr+

    i was told that 66% for ER+ was strong, and 66% for PR+ was moderate. so the percents have different values i guess, i was too stressed and scared at the time to clarify this.

    Hugs to All :)


  • Hopeful56
    Hopeful56 Member Posts: 7
    edited August 2016

    I was 100% ER+ and 0% PR+. I'm 5 years out from diagnosis.

  • LizM
    LizM Member Posts: 46
    edited August 2016

    DayLily15,

    They may have been talking about the staining. I was 75 to 80 ER+ with strong staining, and 70 to 80 PR+ with strong staining. I think the staining is a different than the number of cells that were positive. I read somewhere that strong staining can be a good indicator of response also.

  • muska
    muska Member Posts: 224
    edited August 2016

    At my hospital they stopped reporting % ER/PR+ a few years ago. They report whether the tumor is or is not positive for ER/PR receptors based on the following stratification:

    The percent of immunoreactive nuclei in the tumor cells is assessed visually and reported as follows:
    - The tumor cells stain (> 10% of nuclei stained)
    - Some tumor cells stain (1 to <10% of nuclei stained)
    - Rare tumor cells stain (< 1% of nuclei stained)
    - The tumor cells do not stain (0% of nuclei stained)

    Mine was reported as:

    The tumor cells stain for estrogen receptor protein.
    Focally, some tumor cells stain for progesterone receptor protein.

    I don't think %ER/PR+ matter much for the treatment options. For example, I would expect they put everybody who is in the first bucket (>10% of nuclei stained) on some form of hormonal treatment anyway, whether they are 15% or 99%. And we know that when progression happens, it is often a different type and the original tumor's receptor status does not matter unless it is confirmed by new biopsy.



  • tectonicshift
    tectonicshift Member Posts: 102
    edited July 2020

    .


  • Mommato3
    Mommato3 Member Posts: 468
    edited July 2017

    90% ER+ and 90% PR+. I'm 3 years, 2 months out from diagnosis.

  • kicks
    kicks Member Posts: 319
    edited July 2017

    ER+/PR-. Never thought/'worried' about that. Or my Stage IIIc or being IBC. Just living every minute I have to live to the utmost. Next month will be 8 yrs since,DX (still NED) and living every minute to the utmost is what matters to me.

    As far as I am concerned - life is to be lived.

  • LM070917
    LM070917 Member Posts: 68
    edited July 2017

    90% ER+, 30% PR+ nearly two years out..

  • slousha
    slousha Member Posts: 181
    edited July 2017

    Hi;

    It's me!

    Greetings!

    Usha

  • slousha
    slousha Member Posts: 181
    edited July 2017

    Hi ,

    E 100%, P 40%, Her2 3+

  • slousha
    slousha Member Posts: 181
    edited July 2017

    Hi ,

    E 100%, P 40%, Her2 3+

  • letsgogolf
    letsgogolf Member Posts: 65
    edited July 2017

    Er 100%, Pr 99.89%, 4 months NED. Also, Grade 1, Stage 1B, Oncotype Score = 3.

  • Elizabeth1959
    Elizabeth1959 Member Posts: 78
    edited July 2017

    ER + 99%, PR+ 99%, 16.5 cm tumor stage 3A now 7 years out. Plan is AI's till I'm 100 years old

    Elizabeth

  • yatcomw
    yatcomw Member Posts: 58
    edited July 2017

    TectonicShift


    I am 99% ER and 98%PR......from this article below it tells me that I am at high risk for late recurrence due to my high PR status......which is why I am never letting go of my Femara. I am 13 years out....but I know at any time this beast may choose to raise its ugly head. With all that I do try to not think about it too much.


    Jacqueline



    Discussion

    We investigated factors associated with late recurrence in primary breast cancer. Risk of recurrence persisted from the first treatment to at least 20 years after treatment, and the risk is significantly increased even in patients with lymph node metastasis occurring >10 years. Regarding the biology, a reverse phenomenon was seen compared to early recurrence. The recurrence risk ≥10 years was high for the patients positive for ER and PgR, with low Ki-67 index and luminal/HER2- subtype, and negative for HER2 and p53. Multivariate analysis revealed that lymph node metastasis and PgR positivity are significant factors for late recurrence in all the tumors as well as ER-positive tumors. The recurrence rate beyond 10 years was low, and as a result the power of statistical analysis may be limited. However, the results indicated that late recurrence would occur in the PgR-positive patients with lymph node metastasis.

    The full article at https://www.karger.com/Article/FullText/353099

  • ck55
    ck55 Member Posts: 28
    edited July 2017

    I was 100% ER/PR at diagnosis back in Nov 2006, with a 9 cm ILC tumor and 2 + nodes. I am 10 1/2 years NED and assuming I will stay that way. 🙂

    Cheers!

    Cyndi

  • maggs09
    maggs09 Member Posts: 74
    edited July 2017

    100% ER and 100% PR, HER2 0, 5 years from dx

  • Denni46
    Denni46 Member Posts: 1
    edited July 2017

    I can't remember what they said my ER/PR percentage was but I think it was up there. HER2 0%

    I had 22/30 nodes positive and am 16 years out with NED. Like Elizabeth19 I will be on an AI until I'm 100 as well.

  • Waronbreastcancer
    Waronbreastcancer Member Posts: 11
    edited July 2017

    100 % ER - almost two years since operation..

  • Momine
    Momine Member Posts: 2,845
    edited July 2017

    100% and 6 years so far.

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