INSOMNIACS place to talk in the wee hours
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Chevy - dh, dd, & I all love Netflix. they also have other "channels" you can watch - lots of free ones & others for extra $. we've tried all the other options (Dish, Comcast, etc.) but netflix has more than any other and you can't beat it for the price.
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Good Evening Ladies,
Today I had an appt. with Palliative Care. My BP was high 182/87. My arms, legs & feet are swollen, plus I've gained 10 lbs. in the last 3 weeks. I've also been experiencing SOB, which I thought was related to my asthma. Doctor put me on another 3 day dose of Lasix, plus I have an Echo Cardiogram scheduled for tomorrow. Hopefully that 10 lbs. is all fluid. Certainly don't need to add a Cardiac problem to my list too.
Today was day 15 of 21 on the Ibrance, but I had to stop it because my ANC has dropped to 0.91. With all of this and the stress related to my Mother, I just don't know what to think. However I have come to one decision, and that is that I will no longer keep quiet about what I've learned about my Father and that I am in contact with my Sister just because it might/will upset my Mother. If she chooses to stop talking to me, so much the better for me. I refuse to spend whatever time I have left on this earth in constant turmoil over someone who will NEVER approve of anything I do anyway and takes such pleasure in being cruel too.
Ok, I'm done now. I hope everyone else is having a better Thursday.
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JunieB ~ So sorry about the Ibrance. Can you re-start it later on? As for your Mother, I would not tell her shite. Nada, nothing. You are in the beginning of a very special relationship with your Sister. Don't tell Mother anything! She takes such delight in hurting you - don't give her that power. Close that door, seal it shut and hide it behind a concrete wall.
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Mominator- I am with you at the moment, too many losses. Was very sad when Blondie left us and a friend where I live passed last week. Funeral for him tomorrow. I will come back to that though.
Shepkitty- you are right on track sister, patio store said it should be here next Wed. Then they will look it over, must go pay for other half and get it delivered. Hope to get it here by next weekend if possible. Fingers crossed!
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Thanks Shep! I like the saying you posted. I'll be off the Ibrance until at least August 4th. See MO on the 3rd and they'll do blood work then to see if my count has gone back up. The count was down like this before surgery and I had to stop the Ibrance for 3 weeks before & 2 weeks after surgery. It may be that I'll have to start a regimen of 2 weeks on, then 2 weeks off. Will talk with MO next time.
Jazzygirl - Yeah! the patio party is just around the bend. Something exciting to look forward to. Hope all goes well with the delivery of your new furniture.
Off to bed now. Sleep well everyone.
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Our current heat wave got extended by one day. Won't end now until Thursday of next week.
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JazzBug.... I don't know what SOB is... I always thought it was something else....Not even ANC!!! I am not good with technical terms...
See, we go all our lives trying to please our Mother's.... even when they don't really want our appreciation, or could not care less... But we don't see that until we are much older.... They are all we have, so we hold on, just hanging in there.... It never changes.... But we accept it because we don't know any different........ Even after they are gone... You think.... " wish I had good memories, had at least something to hold onto, that showed me she cared... " We look for love and caring from other people... and that's okay.
And Shep is right! Don't tell her NOTHIN'.... Nobody's business... People are in our lives for a Reason, or a Season, or a Lifetime.... Is that how it goes? So your Mom's "season" is over...Your Sister is your new guardian angel... She is in your life for a reason.... Just like we are.
Thanks for the tips on Net-flix Shep & MM! I copied the names of the shows you mentioned! Soooooooo hot here also... Gotta play outdoors in the early mornings, before it gets to be 100....... You know? Snow sounds good about now!!!
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M0mmy Congratulations and best wishes with your studies. Mature students have the edge with discipline, motivation and experience. 2 grown up ladies in my area just finished their hons degrees, both got 1.1s. They left the 18 year olds in the dust.
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Feline ~ How true! Grown up folks have much more incentive to do well with their studies. My Step-Son totally wasted his 1st two years of college. He had gone straight after high school . He grew up and realized how important a degree is. He was promoted to a position at his workplace that usually requires a college degree. Once he saw the usual pay rate for that position, he was re-inspired to return to school! He works full time and takes classes on campus or online. He is a great student now!
More importantly.....Did Zils get to meet Sir Arthur? Did he treat her with royal disdain or did he allow her a brief chin rub?
Chevy ~ I think these girls make up half of their "abbreviations". Wenchie had me so confused about all her FU's. I thought she was fixin' for a throw down! "Moms season is over" Very well said. That's from the Good Book isn't it? "For everything there is a season" JunieB, you can't argue with scripture! Shows on Netflix....still thinking of 'em all, FFH looooves the old Andy Griffith Show. And not only because it's a "cop" show. Although he does have a few Barney Fife's he has to keep in line in real life...... Parks and Recreation might be my all time favorite TV comedy. I so wish it was still on! I never much cared for Amy Poelher but I now adore her! Chris Pratt got his start on the show and there are many "big" names who make appearances. AbFab is my fave comedy from England - those gals are crazy! The 100 is a wicked good show too. It's science fiction and an action packed drama too. Wonderful character development. Adam Sandler has a cute movie on there The Cobbler. What are some of the other shows you like?
ooops.............gotta scramble for heck ride with old Fart Face to see my docs for FU's 😛Ha!
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sheps, cutting a room is doing the edges...especially with all the different colors. Prob won't get pics. Most like what she does cause it's her. Black walls, Green walls,white walls, eggshells, and flat finishes. Ceiling green and white....then there is the leopard print stuff everywhere.....looks cool, but I couldn't live with it.
And yes I have a very very mean streak.......what I don't have is boundaries. Started with a new counselor last week, mine retired. About every 5 months my bucket overflows and I need to purge. This new counselor wants to work on that not being a recurrence all the time. Boundaries and learn to say no. I don't know, can you teach an old dog new tricks?? We will see. But I did like her:)
Happy Friday to all:)
All the surgery gals....pray all is going well for you guys.
All you gals on new treatments, praythat they are gentle for you
Everyone else, go out and have fun today
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can you believe she was 5/8 when she was born!, I think Claire is producing cream...lo0 -
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Shep, Zills and I met near to where she is staying as that suited her circumstances best so couldn't pack Arthur in the handbag
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Jazz, I agree with everyone else. Only let those who really care about you know what is going on. As you know I too have the same kind of relationship with my mom. Don't let drama queens and bullies drag you down.
Thanks for the well wishes for getting into the college and program I wanted. Everyone but my mom was ecstatic for me. My mom is the type of person who has to make everything about them. I have come to see her as a bitter person, who unlike her own parents and siblings, as well as my siblings worked for everything that we have. She would rather sit around and have it given to her or live off someone else's efforts. Had enough of that when I moved to be with my hubby and never have looked back. It's a shame that some people can't be supportive
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Shepk, hope you behaved yourself with FFH today and you got your questions answered. My DH complained yesterday how sore he was from helping with the constructions. Not sure how many homes they have put together so far. It's hot and humid there. He told me everyone on the team got attacked by mosquitos. Mosquitos everywhere seems to love American blood. I don't think he will have time to visit other places in Ecuador. Seems like an interesting place to explore. We tried to encourage my "wayward driver" child to go with her dad, but she didn't want to go without me and DD2. I think the real reason she didn't want to go was because she was afraid to get attached to the children there just like she did with the ones in Mexico. It was really hard on her to part with the kids she had grown to love.
Mommy, good for you!!! Congrats on your acceptance!
Susan, I don't see a mean bone in you. Sweet pic of Claire and Elena.
JunieB, thinking about you. Hope your heart is not taxed. Don't let your mother in on this good thing you have with your Sis. Why? What good is it to tell her? The best revenge is to nurture the relationship that you have with your sister. Look the other way. Ms. Chevy and Shepk is right-there is a time and season for everything (Ecclesiastically speaking).
Jazzy, we all are heading to your place for a party.
Boy, the crickets in my ears have been very noisy. Bad crickets. Good thing it's the crickets and not voices (shudder). Got to look at the bright side, right?
Hello to everyone else and my lurking friends.
Oh here are the pictures he sent.




A child with his makeshift toy. DH regrets he didn't bring a soccer ball for the kids.
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Just checking in to wish all a pleasant night of happy dreaming 💜
Just woke up from my 4th nap and am nodding off again. Zometa infusions zonk me out the first 2 days. Can't hardly keep my eyes open.
Appointments went well. Still waiting on a surgery date.
Will catch up later............
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Patty ~ not sure what meds you've tried for nausea. but thought I'd mention MO just wrote me an RX for Ativan. Zofran makes my guts turn to cement, uck, and Phenergan makes me sleepy and only works sometimes. Ativan is supposed to more effective for the pukies and is not supposed to cause constipation or any other unpleasantnesss. Still looking for the "silver bullet" to kill hip pain.........
Hope you are enjoying some nice lazy summer days with your boys 💙
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Chevy - SOB = shortness of breath, and ANC = Absolute Neutrophil Count. Neutrophils are a type of white blood cell that fight against infection.
I took the first Lasix pill yesterday and only lost one pound of water weight, but today after the second pill, I lost 4 pounds of water weight (5 total). I was able to breath so much better today and swelling in limbs is better too, plus my fatigue was greatly reduced as well. Crazy how extra fluids in your body can create havoc.
I had the Echocardiogram today, and apparently they are checking for congestive heart failure. Oh great!
As explained to me by the tech, there are 2 kinds of CHF. One is worse than the other. Supposed to get test results Monday or Tuesday next week. Hopefully this is just a fluke and will subside after the Lasix pills. Tech also explained that women taking Herceptin have to get Echo's pretty regularly. 0 -
Sheppie - I know what you and Chevy are saying in regards to my Sister, and I agree with you. The timing of her coming into my life is too perfect to mess with. This has been a busy week for me in regards to medical appts., so I haven't texted her yet this week. Need to make sure to do so tomorrow. Her birthday is mid August and I have started making her a quilted cross-body purse in dark teal with a cool design. I hope she'll like it.
As far as sharing the info about my Father, only the fact that he has passed, not the details my sister shared about him. I have to admit there is a serious bit of orneriness/spitefulness in me that wants to tell my Mother for the sole purpose of being not nice. But again, to what end? Nothing good would come out of it that is for sure. But sometimes I think it would sure feel good, if only for a minute. Ah, the constant battle we have with our sin nature.
Also, how did your appts. go today?
Wenchie - How are you doing? Haven't seen very many posts from you recently.
Loverly - Good pics of DH's work site. Hope his team is able to accomplish a lot while they are there.
How is your week going? Also, how is Miss. Mitsy these days?
Susan - Precious pic of Claire & Elena. I am headed in the same direction here shortly. My pillow is calling.
Hello Feline, Wren, Mags (hows the kittie?), JudyRN, M0mmy, Lookie, & Chevy!
Please forgive me for anyone I missed. Goodnight & sleep well everyone.
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Hi there! I was waiting to hear from you. Yes, hope it's a fluke. I am glad you are breathing better and have a little more energy. Quite a few drugs can cause heart damage that leads to CHF. How long were you on daptomycin post-op?
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Enjoying my coffee in the 70 degree air. Was the hottest day of the year in Connecticut.
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Hey Mom2.... You still up? I'm having coffee too, and it's just 65 outdoors right now! Gotta hurry with this so I can go out there before it gets light!
JazzBug... No, it's alright.... Let it go..... Saying everything that you are feeling wouldn't help a thing. It's just not worth your time to put down what you would like to say, and especially tell her. We would hope that telling people something would like make a light-bulb go off in their head, and they would SEE how others see them... but they are stubborn, and selfish, and it wouldn't help.
It's done with... and I guess you could thank God that you are above it now.... It happened, and now it's over. And now you can just go on, and every day some of those feelings will leave you.... You will have an emptiness always... but that's okay.... better than hanging around your Mother and having her put you down any more.
SOMEtimes, people who are absolutely stubbornly mean, will change... Usually after a life-threatening event.... And their whole personality will change! It isn't good for them, but it is for us! Their stubborn, mean personality will be "gone" and someone sweet, and vulnerable will come through. This happened with my fiesty, little German Step-Grandmother... That little woman was hell-bent on turning everybody against her! She would rule the WORLD, and smack anybody that disagreed.... She just chased all the love out of her life.
But after everyone gave up on her, and I was the only one left, (and I just DREADED her orders to take her there... do this... etc!) She had a heart-attack. Ambulance, Hospital, me trying to help her walk again......... But they finally said she couldn't go back to her house.... yet.
So they helped me find an Assisted Living place, right close to my house. I asked my Dad, (her step-son) to please come back in town to help me rent a truck, and move a little furniture to her new room. He finally came... helped us move... Damned near ruined the transmission in that TRUCK! Didn't know how to work those gears!
Got her moved, and in. I took her little dog Patty home with me... to stay. I would run down the street every day to go see her and help her out. She slowly forgot to be mean & cranky! She smiled at me, and I would make her laugh...I would take Patty to stay with her... But she started forgetting ....things....... everything. I made her an album with her family pictures.... and us! But she then forgot who anybody was.... No-one else came to see her... And I would give her a shower twice a week, to save her money.... And I would bundle her up in her robe, and sit her down and do her hair..... But she became like my "little girl".... The two years that followed were with just me in her life.. I would visit her with my little Grand-sons... but life just became too hard for her...
Then it was one nursing home after another... no more thinking of her going "home".... But I thank God that I had that time with her! She only knew me, and even that became hard for her.... So hard to watch someone you love slowly going away....
So don't give up hope.... Just keep her at arm's distance.... maybe something will change.....
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Ms. Chevy, this can't be the same grandma whom you moved in with after your parents moved to California? Bless your heart for being there when most distanced themselves from her. Must have been a lonely world for her
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Yes.... My little Grandma... Grandpa gave her such a hard time... with his drinking..... But during those years, I was working for the phone company, and spending most of my time with the guy I was going to marry... 1 1/2 years later, we finally did... Mom came to town for our wedding at the JP... But Grandma took care of me & Hubby.... bought us our first box of groceries... gave me an old wringer washer, and had us over for Dinner a lot.
She was USED to ruling the roost... making people mind... and I did.... showed me how to take care of my babies... But after Grandpa passed, she had to be even stronger... She fought with her neighbor, AND when my folks came into town... told them to go back where they came from.....
My Cousins would not go see her anymore... But I helped her as much as I could, because she was all I had also! My Mom & Dad were gone, & my Brother was in the Navy.... She just got lonely I think.... and just got crabbier.... It was really hard to be around her.... until she had that heart-attack..... And then, she lost all her crabbiness and went slowly into some type of dementia.... I was FLOORED! I called places, trying to get help and advice.... I learned how to deal and comfort her.... AND me.
I would stop & see her before I drove to work..... and cry all the way to work..........because she would have 2 dresses on......
I didn't get mad when she would call me 5 times in a row.... forgetting each time that she had just talked to me.... I finally had to take her phone out.... and stop her paper to her room.... because she didn't know it was there. I would take her lipsticks, because she "lost" hers.... I would find them hidden in a little red velvet Christmas tree, that I had made her, she had put them in-between the ruffles. Then she would take them to the front desk, and tell them someone left them in her room.
If any of you have to learn what it is to live with someone going through dementia/Alzheimer's, it just breaks your heart.... I'm just thankful I could help take care of her.... All the not-so-fun memories of how she used to be, became beautiful memories we made, for her last 2 years....
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Loverly - I wasn't on Daptomycin after the hip surgery, but had a 7 day course in 2015 when I was hospitalized for an infection in my right arm where I have lymphedema. No one at the time said anything about CHF being a possible SE. What ever happened to a patient's right to informed consent?
Chevy - You are not the first person to relate a personal story such as the one about your Mother becoming pleasant and easier to deal with once they have a major medical event. My Mother has had breast cancer, kidney cancer, and last year had a malignant spot in her lung that she had a short round of radiation for. She has had numerous other surgeries too. So you would think that those events would cause her to have at least some empathy for others. But NO!
After not hearing from her all last week, she called last night, but I was outside. Then today she called 3 times every hour because she has to be out of her house for a showing and she just needed someplace to go while that is taking place. In her voicemail you can hear her sighing because I 'm not available for her to park herself at my place. Another example of her complete self absorption.
Did you make it outside to watch the sunrise this morning?
Last night when I posted I said that I'd lost 5 lbs. of water weight, but this morning I get up and check my weight and I'm back up those 5 lbs. WTHeck!
This last week has been nothing but doctors appts., medical tests, etc. There's gotta be more to life. I even forgot to contact my Sister until today when I texted her.
I was feeling good yesterday and of course over did it and was severely paying for it all night and today.
Guess That's all for now. Will check back later.
Ok, after re-reading this post I made some corrections.
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Mostly likely not the Daptomycin then. Hopefully,it's just a fluke. Did they ask you to watch your salt intake?
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If we were making the money Tyler Perry is making maybe we could go to our "other place", as long as we can come back here! He's hilarious no matter where he gets his material. 😄
I see you've had breakfast, who's ready for a snack? Baad Lori!!!
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WenchLori: Husband and I are both snorting/eyerolling at that sign. Somebody needs an editor...or not.
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