My Husband, My Life, My Love, My Family, My Cancer

Happy birthday to you, Goldens ❤️

Happy birthday Goldens.

Thanks Mara for pocket duty today. I get my faslodex injections.

Yesterday I stayed in pajamas fatigue and pain from mouth lesions and other issues. It doesn’t take much to start the pity party over here. I willed myself to get up and bake cookies with my grandkids. They love to crack the eggs and none ended on the floor. Afterward cvs finally had magic mouthwash after more than a week of back and forth about missing ingredients.

Grateful as soon as I had mouthwash.

Afterward going to check on my friends cat as she’s out of town. I may pick up something for dinner. I’ll see how I feel.

Take care all

Tanya

@tanya_djamila i had a pj day today too after long hospital day yesterday and walk to the tube station. I felt sort of guilty...then fell back asleep each time :) You really do need to push yourself to do things, though, but once you get going you keep going.

Happy birthday @goldensrbest! I hope you had a fab meal with family and everyone let you know how loved and appreciated you are:)

@sf-cakes I went with the Optibac brand as it had specific strain i needed to boost post c diff. However, after seeing what you ladies are taking, I think ill check out those Culturelle products with a broader spectrum. I think a happy gut can take uou far and that whole link is only started to be considered vv cancer. What's one more pill, at least one im choosing to take, in the evenings anyway?

Today was ok, as noted it was a post infusion recovery day. Scan results were confusing as they showed worsening but there was a month between last scan in April and when I started Taxol that we suspect a lot of this stuff happened during that period. We'll scan again when I get back from the US but I have another cycle of three Taxol here to see if it continues to improve stuff or not. But my pain is under good control and ten ton leg is softening and lessening so we are getting somewhere more positive at least.

Got loads to do and I don't want to do any of it, so I guess I'll start with something small while the football match is on in thr background. Have a nice day everyone!

Sunshine, saltines really do help if you don't know how stuff will go down. Rice is always a good option as well and quick options for food are also very good to have. My problem with diet nowadays is not knowing if something is going to cause problems on the opposite end. Never so serious that I cannot shut down the pipes and when going out, I do make sure that take loperamide before so that nothing happens. Small concessions and not bothersome.

Hope you had a wonderful birthday Goldens. I'm only 6 months behind you. My wish for you is many painfree days in the future. Oh yes, and remission that lasts and lasts. I wonder if they make a birthday card like that?

Mara, I marvel at your cooking sensibilities. Sounds so good, too. My diet consists of lots of cereal and chicken, turkey, mashed potatoes and rice. I miss eating what I want, when I want it. Since DH does the cooking now, it's a lot of frozen dinners, but I am appreciative that he takes care of me. I sat on the stuffed recliner and enjoyed the Phillies game tonight. Just enough rain came to sprinkle the grass and flowers. But it made going outside terrible humid, sticky and as my Grammy use to say, close. I totally understand labored breathing, but I believe it's extra difficult in 100 degree weather.

I hope all were safe from the storm. Hoping we all can dodge any more hurricanes this summer.

In pockets for scans and life in general.

Irish, I understand your digestive issues better now. I know that seasoning could be an issue but you should be able to cook rice in a broth be it chicken or beef vs seasoning which may be an issue just to give some variety. Cereal is always good to me as well. In your pocket for more foods being able to be eaten.

I am awaiting delivery of my even smaller portable washer, will live in the tub next to the bigger one. I am also awaiting Crispy Minis farmhouse cheddar flavour, I will see how it tastes.

Yesterday, I made a bowl of fibre 1 cereal even better, put a bit of the reese cookie mix, comes powdered with some mini reese pieces and peanut butter protein powder, was super filling but not bad. I have also mixed the reese cookie mix in peanut butter as a snack. Today I still have 2 more frozen meals to eat due to not having enough room in the freezer, need to open lentils or beans to put on top of the frozen and will put something garlicky in the seasonings I think. May also grind up a couple hot dogs in a meal or grill them on my wee grill, cannot decide what I want to do yet, so much fun deciding. I do have to slow my roll on the food purchasing, running out of room and the hooks and bags cannot accomodate much more of the stable pantry items.

Other than all that, laundry is still happening, since the original portable washer works if I agitate it for shorter cycles, will keep using it, should help having two that I can use so the cloths don't run out.

Hoping everyone has a good day and in pockets for everyone else to feel better as well.

Got some tax money so put through another Walmart grocery order, bought several of the beefless grounds, they are adaptable to several recipes some mexican rice and frozen pizza among other things. More pantry options, will look for places to put them. I have not eaten yet, will be waiting for the order to come and baking the pizza for my first meal. I can make so much with all of this food, it will be enjoyable to create more recipes with what I have and what is coming. Just need to keep up on the eating knowing that each piece of pizza can live in the fridge for up to 4 days from now. The pizza was awesome as well.

Chicagoan, that is great that it works for you. In my case, I need and want both the breeze created from my fan but also the less humid air, 75 is good for AC but at night, I do turn the temp up a bit in the living room. Once the nighttime temps cooldown, I will use the AC in the bedroom as a window fan. I cannot sleep with cats so door is shut and living room gets pretty hot so will keep the constant temp. At night keeping room at 70 so I can sleep. I am waiting for some less humid and cooler weather as well to bring in fresh air. I don't mind the cold either, enjoy wearing fleecy leggings and warm hoodies.

Carol, good thinking to review your trust. I should too. And I need to look into getting a DNR for a fella friend I help.

Scans monday. Bone scan shows nothing new. Yay. Still waiting on ct report.

The weather is starting to get Scarry. Heat hadn't been too bad here. But the humidity is too too much for me. I just realized it's one of my meds SE. We've been getting rain all spring. Downpours. Flooding isn't too bad, usually.

Im a big fan of ceiling fans and cross breezes, but at some point you need A/C just to dry out the house. You can get by with a good ceiling fan for a long long time in the summer lol. Wish you guys would send some heat this way, I had the space heater on the last few afternoons and tomorrow its going to struggle to get above 63F, along with rain all day. I feel like we've had the same grey 50s-low 60 degree days for the last 15 months!