ER-, PR-, Her2+ Roll call
Comments
-
i have the same issue but wasnt aware of it until i went for a haircut recently. I havent tried anything yet so I will be curious to see what responses you get. It does still feel tender there too. Chemo the gift that keeps on giving…
1 -
@aborayis thank you for the info on nanoblading!
@grammie2 well, I also had much less dense hair on the top of my head and was feeling sad about it, but I think it has finally improved a lot. I've been applying a natural serum for three weeks now. I don't know if you have access to this there:
Even my sister said that she finally noticed my hair has been getting much denser in the past few days. I don't know if it's a coincidence, but the truth is that this serum has great reviews.
I think you did well not telling your dad, he would have been worried, and it wasn’t worth it… That was a good decision on your part! Stay strong - you’ll see that your hair will grow. If you can give it a little boost with a non-aggressive product, I think it might help.
A big hug!
2 -
@grammie2 I think I'm going to be like you. I have hair coming in on top of my head, but it's so light you can only see it in really good lighting. My hubs says I have way more hair in back and on the sides, but I think it's just really darker. I read online to use baby shampoo, so that's what I've been doing. I even went to buy a baby hair brush yesterday, but my Walmart didn't have any! I bought the softest bristle brush I could find. Ran it over my head this morning. Girls! It felt SO good! My head hasn't had a brush on it since September…man, did it feel good…lol
I went to a cancer center that is only 30 minutes away. It's the same doctors, just a closer location (the other is 1.5 hours away). I had only used the other one because I could get labs done there on the same morning of treatment. I have to go the closer one on the Monday before treatment between 8:00 and 9:30 to have blood drawn. They leave at 9:30 to go back to Gainesville to run the testing. My oncologist and his nurses are at the closer one on Wednesdays. Everything went well at my appointment. I went to the restroom and came out and the radiation techs were ready to take me back. However, my onc said when she gave my paperwork to the infusion team, they didn't have me on the schedule. They looked and I was erroneously scheduled for infusion at the Gainesville location. So, I went there after my simili. My radiation sounds a little different from what y'all have talked about. I laid on the table with my arms above my head and holding onto spindles while they positioned me. They then had me move my right arm to the top of my head and placed stickers on my torso. They did something to the pillow to make it hard. I was then sent through the CT machine. The radiologist approved the position. I had to sit up then lay back down to ensure they could repeat the position. We did. I go next Wednesday for a dry run, to be followed immediately by my first session. My oncology nurse in Gainesville said to be prepared…I will be tired. I'm hoping I'm the exception to that rule. I will be able to get my walks in as a trail I like to walk at is just down the road from the cancer center. I also go Friday for PT consult. I'm glad for that. I cannot believe how weak my right arm has become. Looking forward to getting strong again!
0 -
Forgot to mention….I have eyelashes coming in on the bottoms of both eyes. I can't see anything on the top, though. Hopefully soon!
1 -
@beekaycro24 I am so happy for you! I know you are glad to be moving forward!! Our radiation sounds similar. I had both arms over my head and holding on to handles but they stayed in that position. I had to turn my face to the right (radiating left side) and I did breath holds during the zaps. They made really small tattoo dots on 3 or 4 places. You probably don't do breath holds because it's on the right side maybe? How many sessions are you having? And in my experience, I felt way more tired during this than chemo. With chemo it lasted a couple of days or so and then was a little better until the next time. With radiation, it didn't ease up. But I worked every day until 2 and drove over an hour one way to radiation. I bet you will find your walking doable for sure!! Any yay on the bottom lashes!!!
0 -
@grammie2 I'm curious to see what the others say about hair issue! Congratulations on your freeing experience! I'm impressed by your selfless act to spare your dad. I do wonder about sparing my mom n dad if this cancer decides to show its face again. I don't want them to worry about me.
0 -
@grammie2 I am doing radiation for six weeks, so 30 sessions. I'm thinking it might be 28 since I'm starting on a Wednesday…idk how that works. I'm with you on the holding the breath thinthing. I mean, you're just breathing normal and all of a sudden they say HOLD and you kinda panic to get a big enough breath to hold…lol. This happened during my chest & pelvic CT scans with contrast. It's so nerve wracking.
@snm I think it depends on the age and health of your parents. I just know as a parent, I would be extremely hurt if my children kept something like this from me. I'm the type to jump in and help where I can (I'm a Leo and can definitely take charge), but I can also accept it if someone says "Too much!" or "Go away!"
0 -
12 years out from chemo & hair loss & all the rest of it. But to the hair issue…. My hair was wavy before I lost all hair to chemo. Thank heavens the hair did not come back under my arms since there's no way I wouldn't have cut myself. The hair in my head is pretty much down to my waist. That length is a Covid protest. But it is still thin. My hair was always fine, but it was thick. No longer like it used to be. Sigh… The best I can do it haul it back in a sort of pony tail.
0 -
@beekaycro24 agree with you on the parent thing for sure. Dad was 87 when I was diagnosed and relied on me for a lot of things. And I too would be hurt if it were one of my kids at this point in our lives.
The thinner areas on my head remind me of male pattern baldness 😟
0 -
@grammie2 I agree with you on your dad, with him being that age and not doing well. There was no reason to worry him. On your hair, I would ask if there's anything you can take or apply. Mine looks patchy, but I can see the hair on top of my head in certain light…it's just super light. I think once it grows out some more it will be more noticeable like the darker spots. The light hair is the same length as the darker, you just can't see it. I try to fluff it up so it sticks out and is more noticeable…lol
So far so good with the Kadcyla, except the dexamethasone in my pre-med infusion keeps me awake. I went to bed at 1:30 this morning, couldn't sleep so I got on my tablet. I didn't get sleepy until after 4:00 a.m. Luckily, I slept until after 9:00 so I did get almost my normal sleep hours. I vary anywhere from 5-6 hours of sleep each night. Occassionally I'll sleep 7, but that might happen once every other week. Since starting treatment, I do listen to my body and if I need to nap I will nap.
0
