ER-, PR-, Her2+ Roll call

i have the same issue but wasnt aware of it until i went for a haircut recently. I havent tried anything yet so I will be curious to see what responses you get. It does still feel tender there too. Chemo the gift that keeps on giving…

@grammie2 I think I'm going to be like you. I have hair coming in on top of my head, but it's so light you can only see it in really good lighting. My hubs says I have way more hair in back and on the sides, but I think it's just really darker. I read online to use baby shampoo, so that's what I've been doing. I even went to buy a baby hair brush yesterday, but my Walmart didn't have any! I bought the softest bristle brush I could find. Ran it over my head this morning. Girls! It felt SO good! My head hasn't had a brush on it since September…man, did it feel good…lol

I went to a cancer center that is only 30 minutes away. It's the same doctors, just a closer location (the other is 1.5 hours away). I had only used the other one because I could get labs done there on the same morning of treatment. I have to go the closer one on the Monday before treatment between 8:00 and 9:30 to have blood drawn. They leave at 9:30 to go back to Gainesville to run the testing. My oncologist and his nurses are at the closer one on Wednesdays. Everything went well at my appointment. I went to the restroom and came out and the radiation techs were ready to take me back. However, my onc said when she gave my paperwork to the infusion team, they didn't have me on the schedule. They looked and I was erroneously scheduled for infusion at the Gainesville location. So, I went there after my simili. My radiation sounds a little different from what y'all have talked about. I laid on the table with my arms above my head and holding onto spindles while they positioned me. They then had me move my right arm to the top of my head and placed stickers on my torso. They did something to the pillow to make it hard. I was then sent through the CT machine. The radiologist approved the position. I had to sit up then lay back down to ensure they could repeat the position. We did. I go next Wednesday for a dry run, to be followed immediately by my first session. My oncology nurse in Gainesville said to be prepared…I will be tired. I'm hoping I'm the exception to that rule. I will be able to get my walks in as a trail I like to walk at is just down the road from the cancer center. I also go Friday for PT consult. I'm glad for that. I cannot believe how weak my right arm has become. Looking forward to getting strong again!

@beekaycro24 I am so happy for you! I know you are glad to be moving forward!! Our radiation sounds similar. I had both arms over my head and holding on to handles but they stayed in that position. I had to turn my face to the right (radiating left side) and I did breath holds during the zaps. They made really small tattoo dots on 3 or 4 places. You probably don't do breath holds because it's on the right side maybe? How many sessions are you having? And in my experience, I felt way more tired during this than chemo. With chemo it lasted a couple of days or so and then was a little better until the next time. With radiation, it didn't ease up. But I worked every day until 2 and drove over an hour one way to radiation. I bet you will find your walking doable for sure!! Any yay on the bottom lashes!!!

@grammie2 I am doing radiation for six weeks, so 30 sessions. I'm thinking it might be 28 since I'm starting on a Wednesday…idk how that works. I'm with you on the holding the breath thinthing. I mean, you're just breathing normal and all of a sudden they say HOLD and you kinda panic to get a big enough breath to hold…lol. This happened during my chest & pelvic CT scans with contrast. It's so nerve wracking.

@snm I think it depends on the age and health of your parents. I just know as a parent, I would be extremely hurt if my children kept something like this from me. I'm the type to jump in and help where I can (I'm a Leo and can definitely take charge), but I can also accept it if someone says "Too much!" or "Go away!"

@beekaycro24 agree with you on the parent thing for sure. Dad was 87 when I was diagnosed and relied on me for a lot of things. And I too would be hurt if it were one of my kids at this point in our lives.

The thinner areas on my head remind me of male pattern baldness 😟

@grammie2 i think you gave your dad a beautiful gift.

@beekaycro24 I’m so happy for you that you are seeing hair growing again, eyelashes included! I cold capped, and would say because of that kept about 2/3 of my hair. The hair that came out was where everyone is talking about, around the crown plus about halfway down the back of my head, and very noticeable to the point that I wore a wig for work and in public (also because I’m all gray and couldn’t dye my hair). It all has come back since stopping chemo 12/23 and initially had a sharp wave to it. I did a keratin straightening 8/24 once the short hair growing back in was about 4 inches long. I would say with the straightening it feels all about the same as before the chemo except that 1/3 is still much shorter than the rest because I have shoulder length hair. I think I have another year at least to go before the hair growing in is the same length as the rest, but with the straightening it mostly blends in. I think the cold capping helped with it all back in at the same thickness as prechemo. Did anyone else here cold cap?

How are eyelashes going for everybody who’s finished chemo? Mine are still evolving. Mine used to be long, thick and curl up. Now they are still patchy, shorter and straight but seem to be filling in more and getting longer.

Yaaay for your hair 😊😊😊

Hi everyone, had my CT scan in preparation for radiotherapy a couple of days ago. Surgery showed pcr (apart from a bit of DCIS).

I know it's not a diagnostic scan, but I assume that if they saw anything unusual they would have to do something about it? For context I have no reason to believe that there's anything bad, I just am now very paranoid after everything lol.

@jessybessy Awesome on the pcr!! That is what they want!! And yes! We all seem uneasy about things and I tend to downplay the good stuff sometimes because I'm afraid something bad is around the corner. Lot's of ups and down in the treatment stage!

@beekaycro24 good to hear you are feeling well and no major issues with your new treatment!!!

@aborayis that's interesting that you lost that area even when you cold capped. I still think that Phesgo effects hair growth. It does list it in SE's but it in conjunction with TC. Hard to find a SE list of stand alone Phesgo (without chemo). I'm holding out hope that once Phesgo is complete there will be a difference in the hair growth.