ER-, PR-, Her2+ Roll call
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@grammie2 yes, under the eyes, but in a completely absurd way, and my face got super swollen. And I also had slight swelling in my hands and arms. But, as I told you, this is rare to happen. So don’t worry! In any case, when I reduced the dose, it only took 2 or 3 days to go back to normal. Good luck to you! I’m sure your hair will still improve a lot, the improvement you see after 2 months is very slight compared to 6 months.
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Thanks for sharing your experience. The dermatologist did mention the swelling, which I am prone to anyway. Just four days in taking the 1/2 dose and haven't noticed any weird symptoms. Maybe this eases me into it and lets my body adjust slowly. Time will tell I suppose :)
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Hello everyone
My sister is currently receiving her first infusion and is in very good spirits. Now, if you could tell me the expected daily effects of the first of her six chemotherapy cycles, I would be able to follow them. The doctor gave her an injection to be given in 72 hours... I think it's for white blood cells. I told her to suck on ice, and she's using gloves and socks for her hands and feet. I told her to drink plenty of water and to move around when she feels well. I also told her to rest more between days 3-7, and to eat small amounts of food, like dried beans and meat, even if she doesn't feel like it.I would appreciate it if you could share any thoughts you have with me.
I love you all.
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Update- so much MO ordered a PET to investigate my chest discomfort though breast MRI was normal. She thought it sounded like scar tissue pain from implants which is probably right. Any thoughts?
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@myoldersister You are giving her great advice! And yes, the injection that you get after the chemo session is for immunity building. I was told it could cause bone pain and was advised to take Claritin (strange an allergy drug can do this, but I used it and had minimal pain). I had mouth sores with my first two, but none of the other. My MO prescribed Magic Mouthwash which was a lifesaver! Everyone is different. If she has stomach issues, take Immodium before every meal. It was a learning process for me, but I generally had those issue around day 4-7 post treatment. So I would start taking Immodium before every meal starting day 4 and do that until about day 7. I didn't have issues with nausea until about treatment #4. So I then had to start taking the nausea meds. Never actually was sick…just that feeling which is horrible. Please ask for advice on any SE's she is experiencing. I'm sure one of us here had them too and might be able to help. Hugs to you both!!
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@grammie2 hi there, the discomfort is more noticeable in evenings while at rest or when I move position in bed and sometimes with certain yoga moves and stretches. There are times during day I don't notice it. It's deeper than the submuscle implant almost like an ache on upper part of chest. I've read that pain after submuscle implants can happen from scarred tissue or from pec muscle being stretched over implant etc. I'm hoping it is just that. It would be really weird to have a normal breast mri and normal CT chest but a cancer recurrence on PET? I'm thinking maybe it is inflammation from the implant.. not really sure just hoping it will go away with time. 🙏 That all will be ok.
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Hi @grammie2
Today marks 12 days since the first infusion . My sister isn't feeling too bad and is honestly trying not to worry too much about the symptoms. She's drinking plenty of water and can go out when she feels better. She feels better in fresh air and sunshine. She has a metallic taste in her mouth, though not necessarily, but she doesn't have any problems with nutrition. She can tolerate the pain from the injections. Her doctor told her not to restrict herself too much, just avoid contact and hugging with people she thinks might be sick, and try not to be in the same environment as them.I might be a little strict with her about this. I tell her to stay in her room and avoid being in the same environment with people all the time. She doesn't really like that :)For now, she seems to be doing well and is at a normal level. I hope it continues like this, or even better.
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@myoldersister is it good to hear she is not feeling too bad. During my chemo education I was given a list of medicine that I could buy over the counter for different side effects. One was for the metallic taste and was called Lactoferrin. I had to order it from Amazon because I couldn't find it locally. I took it through the entire treatment and never had a lot of taste issues. I did have texture issues where things would feel like mush in my mouth. You could ask her oncologist if it would be allowed.
It was hard trying to stay away from germs. I still worked but limited my contact with people as much as possible. I went to an outdoor wedding and even went on a vacation towards the end of treatment. My boys and family came home to visit and I spent time with my grandkids. My DIL caught Covid on the plane and my husband also got sick, but I never caught it. I think the immune building drugs they give really make a difference. I got Neulasta. Hugs to you and your sister!! Keep us posted!
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Hi @grammie2
Sharing my experience with you all here , and also getting advice and understanding the process, is very reassuring for me. Last night, my sister shaved her head because her hair came off in her hand while she was showering. Honestly, her hair was short and it wasn't too difficult. I wanted to ask, after completing 6 TCHP courses, how long does it take for her hair and eyebrows to start growing back?
I love you all, it's great to have you here!🍀
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Update- Hi all! Just wanted to let you know that I had a Pet scan for my ongoing chest wall pain x6 months and it was all clear!! No cancer seen! I'm relieved by that but wonder why I'm having discomfort with my submuscle breast implant. I have concluded that my pec muscle is super tight and maybe that is pulling on the rib at breastbone. So I'm back to doing pectoralis stretches to see if it improves. No sign of capsular contraction to warrant surgery per plastics. Guess it is something to live with..oh well. Time will tell..
Take care everyone!
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@snm that is great news about the All Clear!!! I hope the fix will be just stretching!!
@myoldersister we are here for you! And honestly the hair regrowth is different for everyone. Some has it start coming back within as little as 4 weeks after. I was a little slower. Saw a little fuzz on my head about 2 months afterwards. But eyebrows and lashes were a lot slower. My eyelashes especially. It took almost a year for them. I am struggling with hair as it seemed to come back fairly thick, but after about 3-4 months it thinned a lot. I've started taking oral minoxidil but it's only been a month and they say it is a slow process. I know some ladies on here had great hair growth and generally that is the case. I'm on the odd side I think LOL. Hope this helps.
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@snm so glad your pet scan was all clear. I still have pain on my surgery side and my armpit so I feel you.
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Hello everyone,
It’s good to know you’re doing well.It has been 6 days since my sister’s second infusion. For the past 2 days, she has had a slightly hoarse voice and a mild cough. Yesterday they gave her oxygen and IV fluids, and today her doctors examined her again. She has postnasal drip, her lungs are clear, and she has no fever, but a mild infection was seen in her blood tests. She received IV treatment and was started on antibiotics. She is now resting at home.
I got worried… even if they say it’s mild, I wish she hadn’t had to go through this at all.
Has anyone here experienced something similar during chemotherapy?
Love you all.
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@djschmidt1 thanks everyone! I bought a backpod to help stretch my pecs- will see how that works out!
@myoldersister I'm so sorry that your sister and your whole family have to go through this. Emotionally exhausting I'm sure. Hold steady as the treatments are solid and the body finds a way to rebound with time.
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@myoldersister
If the SE's become intolerable, ask the oncologist if your sis can switch to Enhertu and Perjeta. This treatment was shown in the DESTINY-Breast09 trial to be more effective than THP.
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