How long have you been Stage IV?
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Congratulations on the excellent news. Fingers crossed for the next PET scan.
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@livinglifenow Pam, So glad everything went well! I’ll be praying for great results on your next PET scan.
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I just realized when I woke up this morning that two years ago today I was diagnosed with stage IV MBC. So, two years and going strong. I will be celebrating today! 🎉
Wishing all of you many years! 🌷Hugs, Pam 💗
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@livinglifenow Congratulations, Pam! Here's to many more good years!
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@livinglifenow Yes, here's to many more good years. It's been about 2 1/2 years for me and I'm starting to get bored with breast cancer. I am sure it will get exciting again, but I hope not for a long time.
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Hooray for two years ! Hope you have many more anniversaries to celebrate .
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Thanks you, ladies, for your words of encouragement!
@tougholdcrow Thank you for the laugh. I know what you mean about getting bored with cancer. It is a drag. But, the less excitement the better. Will just have to find excitement somewhere else!
Hugs, Pam 💗0 -
I have stage IV MBC Her2 positive. lung, lymph node, chest wall mets. some bone. had 5 rounds of chemo. now on immunotherapy infusions, letrozole and just started the ibrance 125 mg, about a month ago. Was on the last day of my 3rd week when out of the blue I got a bad infection in my left arm. Turned deep red, tight, inflamed, chills, etc. I have two tumors in my left axilla Cutaneous met that never totally went away from the chemo. Was put on an antibiotic. infection went away, but the 2nd day after the infection started I got severe pain in my upper left shoulder. I just started my week off, so ibuprofen helped quite a bit, but after i started the ibrance again last tuesday it got allot worse even with nsaids pain wouldn't ease. After researching, i find out ibrance can cause that. i think it's time to tell my oncologists to lower the dosage. the pain is unbearable.
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@elohimis1 It looks like this is your first post on BCO. Welcome! But sorry for the reason you are here. All I can say is "Wow!" You've been going through a lot. It sounds like, through your research, you've determined that Ibrance might be the cause of all your current pain. Hopefully, a lower dose or switching to something else might help.
I had a similar situation recently. I had been on Anastrozole for a year. At first I felt OK, but eventually I felt so yucky that I asked to switch to Exemestane. That was about a year ago. Again, at first I felt great on it, but slowly I began to have achy, weakened muscles. Then the muscles started tightening up to the point that my sciatica was being pinched and I could no longer sit, barely walk, and even lying down eventually became painful. My doctors tried PT, muscle relaxants, neither of which helped. I even started taking over-the-counter and prescription pain medications, which barely tamped down the pain a few hours each day. Finally, I requested going off the Exemestane. Five days after stopping, my symptoms began to improve. Thirteen days later I could sit to eat breakfast. (Trying to eat in bed was getting old after several months of doing so.) After 2 weeks of no Exemestane, I started Tamoxifen. Although I feel better than on the aromatase inhibitors, I have some fatigue and, of course, hot flashes. My research shows that these symptoms can improve in some people after 3-6 months. Fingers crossed!
It is my hope that research continues to find better treatments that have fewer side effects. Please keep us posted on your treatment and any changes that lead to improvement. We all love hearing success stories.
Hugs, Pam💗
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Hi @elohimis1 , welcome to Breastcancer.org. We’re really sorry for all you’re going through right now.
As you can already see, there are members here who understand treatment changes, side effects, and the uncertainty that can come with them, and you’re in good company here. Please keep sharing and updating us on how things go, especially after speaking with your oncologist.
We’re glad you’ve found us.
The Mods
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