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My Husband, My Life, My Love, My Family, My Cancer

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  • micmel
    micmel Posts: 10,126

    thinking of everyone tonight scanning , waiting on results. Not feeling good. Side effects getting on your nerves. Just here to say I care very much for everyone and think of you all often. Hugs to all of you. Candy. 🍬 shout out to you!

  • chicagoan
    chicagoan Posts: 1,499

    @candy-678 Glad you have a couple of fun things to enjoy this week. Enhertu does sound like a really tough treatment. Regardless of what the PET scan shows, could you talk to your oncologist about finding another treatment that might be more tolerable for you? It seems like you still have a lot of options. Or maybe Enhertu will get easier as your body adjusts. The first 3 months of a treatment are hardest for me. Wishing you well.

  • threetree
    threetree Posts: 2,632

    @micmel - Oh Mel, you just can't get a break. My sympathies re your stomach bug.

    I understand what you mean about "remission" just being stable. I started Xeloda in January and my bone mets are "healed" and they can no longer see the 10 lesions that were on my liver, but I remain fairly miserable. I still have to take this drug that makes me totally wiped out with side effects, I had a month of not being well at all due to RSV, and I still have to go to all the appointments and be monitored, etc. The reality is that there is just no cure, and all we can hope to get is a longer break from time to time. Don't get me wrong, I'll take this over progression any day, but to think that it's some big beautiful thing is not realistic. Again, I'll take it for sure, and I am really happy to have this situation over what could be, but it is just more "stable" until who knows when.

    That's sounds like a real nasty bug that you had. I read that something is going around, particularly on the east coast. Maybe that's what you had? Just so very glad that you are over it now. Wishing you continued improved health!

  • mara51506
    mara51506 Posts: 7,455
    edited June 6

    Slept alright last night, window AC keeps it cool in the apartment but do have living room window open as it helps keep the living room fresh smelling. Ordered more canned lentils, 4 cans since they go with everything. I still like the dry ones but the canned variety are easy to use with everything. Got a box of old el paso mexican rice, more canned lentils as mentioned, chicken dogs, sour cream and the sour cream and lime crema, beef mini pot pies. Was going to go below the 35 but thought that was stupid so deleted and spent the 35 minimum. Got chips as well as even if I do not eat from the bag, they make a good chopping ingredient besides the cheese. I can just get delivery less frequently, got lots of food

    I got the express delivery, apparently 47 to 97 mins, that is fine by me. It did arrive shortly after ordering. Figure chicken dogs can be the major protein beyond lentils or beans. I did skip the dried lentils, cans cheap enough and really unnecessary to cook them up when open a can, rinse and use as needed. Before the groceries, just heated up one of many bean and beef burritos.

    Got laundry on the go, need to clear out sink between chores and want to budget boost as well. Still have ads playing while I watch TV, there are a few games to play as well. Paypal has a 15 dollar minimum for me to cash out, I have 10.00 thus far which is not bad. You would never get rich playing games or watching ads but better than a kick in the butt.

    Hope all are having a good day or at least the best possible day and in pockets for everyone.

  • threetree
    threetree Posts: 2,632

    @shanagirl -Oh Shana, this is just not fair! Way too much for one person to have to bear. You continue to be in my thoughts and I continue to send nothing but good wishes for a speedier recovery, and good news when you finally do get to your appointments. In your pocket for sure.

  • threetree
    threetree Posts: 2,632

    @irishlove - Stay safe - can't believe all the preparations you've had to make! I've never lived where those kinds of storms happen, and I'm amazed at what people in those zones go through. And dear Pigeon; sending all the best and hopes that this is just a "one off" and all will be good soon.

    Very glad for your NED status - hope you get a real long run with it.

  • mara51506
    mara51506 Posts: 7,455

    Well, I slept well last night. Found a mess left by cat, cleared it up, discovered the wetjet bottle in new one would not allow removal of lid despite heat which was supposed to work. Got couple more tall bottles, they are coming later today. The one that will not come off when heated is a smaller bottle. Bought couple of the taller bottles of the wetjet solution. Had some budget boosting stuff from gaming so not such a big investment.

    Other than laundering dirty cloths, I am planning to have eggs and hashbrowns. Unsure if using breville oven to heat up hashbrowns or use the mini griddle to heat it up, I will see. I do have two of the mini griddles, don't ask why, I cannot really give a reason but there it is. I still enjoy the fact that two things can be made at once without setting off circuit breaker since both griddles only use up to 600 to 650 watts, more than enough power. I will also make up a butter english muffin, boring but good. Lentils come later I think.

    I do hope all have a good rest of weekend, in pockets for all. If meals are remarkable, will post about them later.

  • mara51506
    mara51506 Posts: 7,455

    I slept OK last night, just woke up now, started some laundry. Cloths and a scrub brush to clean it up and a metal drain to remove the lint out of there. Later, may do a blanket. We are in for a humid week which is not unusual but does not matter for me. Floors can be done throughout the day, no need to run both electric dryers but nice to be able to plug the dryer in from the bedroom, it is good for clothes.

    Planning to open some canned lentils. Converted back to those as they are nutritious and easy to add to multiple meals. I am starting with rice I think. Not sure if mexican rice or just put in some seasoning in the rice and dump canned lentils in the mix. Need to eat better nutrition. Can take 1/4 cup of legumes with meals, honestly tired of beans right now but lentils in a can are ready to go and take on whatever flavour I give them. Got chicken dogs in coldest part of fridge too, add some extra protein to meals as well, quite an in expensive protein.

    MEAL 1 Going to prepare some white rice, make an egg in the mini griddle, get a hot dog and possibly some ham to chop in the egg with cheese, no need to chop with the lentils, let the air fryer heat everything up together with some queso and taco seasoning. It was really good, added some veggie crisps that were crunched up. I wound up skipping the eggs but did use the 1/4 cup white rice, 1/4 cup canned lentils and the teaspoon size chia seeds, heated up in water on stove, added taco cheesy and mild taco seasoning. Once all done, put the contents in a bowl, added the shredded cheese, brought out to the microwave to heat for two minutes to melt cheese, broke up the veggie crisps. Added french onion and sour cream and onion seasoning. It was really good.

    MEAL 2 was harder for me to decide what to have so so instead, ate a few spoonfuls of peanut butter. That was nice.

    I do hope all had a good day, always in everyone's pockets.

  • intolight
    intolight Posts: 3,046

    @threetree Good news! Here's hoping Xeloda treats you well for a long time.

  • chicagoan
    chicagoan Posts: 1,499

    @threetree Glad to hear your good news!

  • mara51506
    mara51506 Posts: 7,455
    edited June 9

    @threetree I am really glad your meds are working for you, may you stay on same treatment a very long while.

    Nothing new for me at this end, slept OK once went to bed, washing up a blanket that needed a wash, I enjoy going one at a time. Keep on top of container holding blankets as well. I do need to rinse out AC filter, dry it and hang in the dryer on my closet, only take 10 mins to dry which is good. Have to struggle to get in all the way, my instinct is to want to go fast but not wanting to bend the filter. Will also use my small blower on the unit itself, make sure nothing building up in there. It works super well. Use a fan to blow air from bedroom to living room.

    I am thinking of food, need to use up eggs so debating two eggs in a large sprayed bowl, put butter, garlic spread and some french onion dip, put whisked eggs on top, add a mini pot pie, 1/4 cup canned lentils and one cutup hotdog, throw some shredded cheese in as well. May need to book a trip to a grocery store later if run out of items, I will see. Nothing running low at this point. Later, may make up an egg mcmuffin riff. Will post if meals are good.

    EDIT1 Wish me luck, need to bring down a large pan from top of cabinets meaning going up my step ladder. I should be alright as I can hang onto a handle. The regular pan had a finish but it is wearing off, no need to possibly eat finish that is coming off. Other pan I already have should be fine to use, no finish to wear out, large pan.

    EDIT2 Got up on the step ladder to grab the large pan, will throw away damaged pan next garbage cycle, need to clear larger burners to be able to use the larger pan. It is a copper pan. Oh well. I am leaning toward a more simple meal, two eggs, whisk up in a sprayed bowl, add some lentils, chicken dog, possible ham and some shred cheese. Heat in microwave for 5 mins, take out and decide on binders. Only 1/4 cup of lentils as well. Might consider a mini pot pie as well. Sounds like a lot of food BUT can always use for two meals, leaning toward that I think.

    EDIT on the first meal, I did put garlic spread and little butter at bottom of sprayed bowl, cracked in two eggs, whisked up a bit, added 1/4 cup lentils, one chicken dog, torn up and a slice of ham. Put cheese on top of all the other stuff, put in microwave on HIGH for 5 min and 30 seconds. Brought it out, binders included a spoonful of plain yogurt and tostitos queso, put extra sour cream and onion dry seasoning and bit of salt. Mixed all together and surprisingly was able to eat it all. Skipped the pot pie since it was a large meal but definitely enjoyable.

    I hope everyone has a good day and in pockets for everyone.

  • threetree
    threetree Posts: 2,632

    @intolight - Thanks very much for the good wishes. Is Taxol the chemo you are on, or is it another one? I'm sorry, but I can't remember.

    @chicagoan - I appreciate your uplifting comment - thanks. How is your hip doing? It's been awhile.

    @mara51506 - Your wish for me to keep going on this treatment for a long time is a very welcome one. I also hope that you have a real good day, and I am always in your pocket too!

  • chicagoan
    chicagoan Posts: 1,499

    @threetree-My hip is doing very well. So grateful that I was able to get a replacement. Last summer was so miserable with all the pain I had walking. This year is so much better. Thanks for asking!

  • intolight
    intolight Posts: 3,046

    @threetree I'm on Taxol. Actually I'm at the hospital getting the chemo as I write this. Not the way I want to spend my 54th anniversary, but it is what it is.

  • chicagoan
    chicagoan Posts: 1,499

    @intolight Happy Anniversary! Hope that you and your husband can celebrate in a better way in a few days.

  • threetree
    threetree Posts: 2,632

    @intolight - A Happy Anniversary from me too. I know what you mean about it is what it is, but you can always make up for it another time.

    I was curious about what chemo you were on, because you'd said it wasn't going super well. I remember Taxol (pacletaxol) back when I was originally diagnosed and I can remember it not being great, but being a lot better than the Doxorubicin had been. I thought you might be doing Enhertu and I recently read some on here saying that that one gets better with time, and so if you were having initial problems, to hold on, because it does improve. Those people were saying it was about a year for them now, and that was encouraging.

    I hope the Taxol gets easier and gives you a much better run. Sending a hug too!

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