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Zoladex/Goserelin + Letrozole + Kisqali
hello! I was diagnosed with Stage 2 ER/PR+ HER2- lobular breast cancer late last year and have completed surgery and preventative chemo as there was no sign of spread post-surgery. I started hormone therapy consisting of monthly injections (Zoladex) and daily Letrozole in July and will add Kisqali this month. My hair is…
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Long term benefits vs awful short term sacrifices
Hello all Lumpectomy Oct 21, post op meeting with surgeon, she said"pathology looks good, got the tumor, nothing in the lymph nodes, treatment remains radiation A week later, met with the MO who blindsided me with my high oncotype score(31), and recommended chemo. The idea of going through LBC/risk of infection, hair loss,…
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Newly diagnosed with bone mets
I'm not sure whether to post here or in the Stage IV forum. I had a PET Scan on Monday. I was called in by the nuclear medicine doctor and told there were mets in my femur, which were causing the pain I have been having. I then received the written report confirming a large met in the femur with fracture risk and spots…
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Just diagnosed with ILC mets
Hi, all I had ILC back in 2008. Had radical mastectomy on the right breast and prophylactic on the left. Chemo AC→T, radiation and 7 years of Arimidex. 16 years later I am back in the game. Still in discovery phase. Had FDG Pet Scan that shows liver uptake, had endoscopy that shows little spot in the stomach consistent…
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Paget's disease with ILC
I have had breast cancer and also have a friend with a rarer case that I can't find a ton of information on. Does anybody know how Paget's disease influences a prognosis? Specifically paget's with an ILC invasive component? I can find some info on it with IDC but nothing with ILC.
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Tamoxifen vs. Ovarian Suppression & AI
Hello! I am new here, newly diagnosed and trying to navigate all this. I was diagnosed with ILC in June 2024 and opted for a bilateral mastectomy, right breast was healthy. Currently with tissue expanders, waiting for implants in a couple months. Stage 1A, tumor was 1.7cm (grade 2), high ER+/high PR+, HER2-, Ki67 15%.…
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Waiting for Surgery
Hello, I'm 48 and I was recently diagnosed with Invasive Lobular cancer of my left breast after a long journey. It started in December of 2023 when on a MRI they saw a spot that they wanted to recheck in six months. I was not super concerned as this had happened before on the right-hand side and it turned out to be…
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Newly Diagnosed with ILC
Hi everyone, it’s still feels strange to say that I have breast cancer. I’ve had a long journey with breast screenings, biopsies and surgeries. In 2017 I was diagnosed with LCIS which I was told was not cancer. I was given the option of preventive mastectomy or the watch and wait option as I had no genes for cancer,…
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AWAITING SECOND OPINION
Is there a cancer hiding somewhere in this moderate to highly dense Fibroglandular breast tissue of mine? From Sydney, Australia HISTORY: Age: 36yo Menstruating since 11yo Endometriosis - surgery in 2022. 2 children - 10yo and 5yo Recurrent mastitis infections since the birth of first child. Spontaneous and recurrent…
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Mom with stage 2 ILC
hello everyone! this is about my mom, she just went through a single mastectomy for stage2A ILC(multifocal). There were two tumors, one was 23 mm and the second one was 10 mm.No lymph nodes involved, no LVI but PNI was found. So far, no chimeotherapy or radiotherapy was discussed, only daily letrozole. Is this an ok course…
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Lobular Stage IV Imaging Issues - I Know I’m Not Alone
Hi, everyone. I was thinking about starting a Facebook group for those of us who have so many issues with imaging. I got some feedback from others that they did not want me to start a separate group, so I am starting a group here. Below is my post on Facebook so that you can get a sense of the imaging issues I've had.…
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Important Links About ILC
For helpful information, check out Breastcancer.org's ILC section. Podcast: Imaging Tests for Lobular Breast Cancer Lobular Breast Cancer Alliance Brochure - Information for Patients There is also advice and personal experiences from other community members here on the discussion boards, including: ILC Long Term Survivors…
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Recurrence symptoms: swelling and heaviness?
Hi all, Has anyone experienced mild swelling or a feeling of heaviness in the breast as a symptom of local recurrence? No pain, redness or itching, but something just feels “off”. Laying on my back feels like something kind of heavy it sitting on my treated breast. Already have yearly mammo and US next week and will…
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Curious about time to recurrence for Lobular (ILC)
Hi there fellow lobular thrivers, I was basically a De Novo Stage IV as I had progression shortly after I was diagnosed when I had just started neoadjuvant chemo. But I’m curious how long it was for others between their first diagnosis and recurrence to a distant (non-breast) metastasis. My theory is that the statistics…
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I am lost and scared that my next option is chemo. Emotional Yo-Yo and I have chemo PTSD
Hi there i just need to vent my fears. Not even 2 years with MBC and i am about to quit all treatments. Emotional Yo-Yo takes tall. Back in 2016 chemos were rough but i was going for the win. But this time around is different. There is no end of treatment and there is no win per se. I am lost and scared that my next option…
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Trials or other treatment options
Hello everyone, I was diagnosed with stage 3 ILC in Feb 2023. Since then I've done chemo (AC-T), radiation, endocrine therapy and just recently started Verzenio. I want to do everything I possibly can to reduce the risk of recurrence. Is there anything I should be considering as well as the above? Thanks!!
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Not dx with stage IV but feel it's coming
In short, I had a CT scan in August that showed a partially blocked ureter, a slight swollen kidney, bladder wall thickening, slight ascites, and my ovaries were hidden because of bowels but looked suspicious. The CT was to rule out a bump I felt in my upper adoment that my MO thought was nothing. It was nothing. But like…
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Recurrence after nearly 6 years
Just processing this new diagnosis. Five and a half years out from mastectomy, Had Stage I lobular as well as a small ductal tumor in right breast. Lump in armpit, took me seemingly ages to get a biopsy, which I had yesterday. Lobular cancer again. On some level I knew it wasn't the "scar tissue" people kept telling me it…
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New here, found out 4 days ago MBC
Hi all, I've written long posts on other discussion threads, but I'll keep it short here. I feel like I'll get more responses at this board till I know more about my dx and what other threads I need to check. I was dx 4 days ago with lung/abdomen and probably ureter mets. PET scan revealed. I'm not ready to hear stats…
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Imaging Tests for Lobular Breast Cancer
Imaging Tests for Lobular Breast Cancer Nov 9, 2023 Maxine Jochelson, MD, explains the imaging tests for lobular breast cancer, as well as why lobular disease is harder to see on mammograms. Lobular breast cancer is cancer that starts in the lobules, the glands in the breast that produce milk. Lobular breast cancer is the…