Stage 1a to Stage 4 in 6 years. 39 yo. Mets to liver & bone. Chek2+
Hi everyone, my first dx was in 2018 (age 32) after self discovery. I had a Bi-lat mastectomy and had been on tamoxifen. Oncotype 11 so no chemo recommended. ER+/PR+. Chek2 positive. Feeling great with no symptoms, I did a Galleri test this October 2024, which came back with positive breast signal. CT scan w contrast showed 2 liver lesions & several bone lesions. Liver biopsy confirmed metastatic adenocarcinoma. Nothing in my blood work was off. Awaiting Guardant test results and subsequent MO appt to discuss treatment. Hoping to meet other young-ish ladies dealing with this. Love to you all.
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@aimeeeee we are sorry to hear you are back at this, but we're all here to support you.
Other than our discussion forums, we offer professionally moderated free Zoom Support Groups. This week we have our Young with MBC group on Thursday at 1pmET if you think that could be helpful (https://breastcancer-org.zoom.us/meeting/register/tZcqc-qvrj0oE9WdOqdK0-w_M7DB3bsUHKc2#/registration). Also, there are 3 other MBC groups, also with some younger women.Are you HER2-neg or positive?
We send you gentle hugs, and are here for you!
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Thank you! Hope to make the zoom soon, although I cannot make it this week. I am Her2 negative.
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We will see you when you can. Thanks for letting us know your HER2 status. One day at a time ❤️
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hi! Your post caught my eye because I have chek2. I am so sorry to hear of your recent diagnosis. Big hugs!
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Hi! Thanks so much for the message! Will get through this! I’m telling everyone about the Galleri blood test because I never would have found this otherwise. MSK had me in survivorship, and all my labs are normal. Sending love!
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Hugs to you @aimeeeee ! Glad you are at MSK (Memorial Sloane Kettering). You're in good hands there.
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Hi, just an update on my treatment - faslodex, lupron, and xgeva infections monthly and Ibrance and Inavolisib pills daily (ibrance 3 weeks on, 1 week off). I started the injections 4 days ago and have had no SE so far. Awaiting the pills. Will update as I continue this journey.
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