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Topic: Pinktober Revolution

Forum: Emotional Crises: Anxiety, Depression & Other Emotional Effects —

Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.

Posted on: Aug 2, 2012 02:03AM - edited Dec 23, 2015 10:34PM by sas-schatzi

sas-schatzi wrote:

We support the efforts to bring awareness to breast cancer during the month of October, but we are frustrated by Pinking and Pinkwashing. Please, join us as we seek to improve knowledge re: breast cancer.

Vision Statement:To bring full awareness of the reality of breast cancer to the general public; the surgeries, the treatments and the horror that there is NO cure. To ensure that proceeds donated to the cause are publically noted and distributed in an appropriate manner for the community in which the funds were raised. To keep corporations accountable for the use of pink products and the medical field driven to move the cure closer to the finish line.

A Look at Charitable & Non-Charitable Organizations

Archive storage for Pintober Revolution-non discussion area

This is just a sampling of the bonehead comments we hear all the time. Thanks Scuttlers for finding this :)

scuttlers wrote: I may make a copy, put on the fridge, and play bingo for one week. If I get a "Bingo", hubby takes me to dinner. If I get a "full card", I get a full spa treatment. Then all those idiots would be wondering why I jump up and down and scream happily at their stupid and asinine remarks. :-). !!!!!

Breast Cancer Action webinar on Sexualization of breast cancer.

http://www.bcaction.org/resources/webinars/free-webinar-please-stop-staring-at-my-breasts-the-sexualization-of-breast-cancer/ Traveltext, 2015

Please ask Look Good Feel Better To Stop Giving Carcingoneic Products to Breast Cancer Patients through the Look Good Feel Better program JackBirdie, 2015.

American Cancer Society, Stop Giving Carcinogenic Cosmetics to Women With Cancer

Thurs. 29 October 2015 By Katy Skahill, Truthout | Op-Ed (BCO member Jackbirdie)

https://community.breastcancer.org/forum/102/topics/791442?page=89#post_4539402

Google hits sexualization Oct 2015 43,100

http://pinktobersucks.com/


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Oct 8, 2017 10:40PM shepkitty wrote:


From NPR:
The Painful Side Of Positive Health Care Marketing


The Food and Drug Administration doesn't regulate hospital ads.

There are lots of "you can beat it" messages out there for cancer patients. For some, the positive spin feels insulting.

"Keep passing open windows" Dx 2/2013 Stage IV mets to bones/spine, IDC, Left, 1cm, Grade 3, ER+/PR-, HER2-. Dx 1/23/2017 brain mets. Bone Rads, 2 Kyphoplasty, 1 Craniotomy, 3 Gamma Knife. Xeloda May 2017. DX 11/7/17 DCIS,Left, Ibrance 6/18
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Oct 9, 2017 09:51PM Maire67 wrote:

so glad I can watch an NFL game without pink shoes, gloves and hats. Progress??? Maybe??

Dx 6/2005, ILC, Right, 5cm, Stage IIIB, metastasized to bone, 1/9 nodes, ER+/PR+, HER2+ Chemotherapy AC + T (Taxol) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Surgery Lymph node removal; Mastectomy
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Oct 10, 2017 08:31PM Traveltext wrote:

Instead Of Celebrating The 25th Anniversary Of The Pink Ribbon, We're Taking Action

https://www.huffingtonpost.com/entry/59dd1964e4b0d...


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 10, 2017 08:57PM marijen wrote:

Hmmm that pink ribbon is starting to look like a noose.


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Oct 11, 2017 09:48PM Traveltext wrote:

Breast Cancer Survivor Sees Red Over Pink


https://www.curetoday.com/community/barbara-tako/2...


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 11, 2017 09:57PM - edited Oct 11, 2017 09:58PM by Traveltext

Does 'Pinktober' Risk Trivializing Breast Cancer?

https://health.usnews.com/health-care/patient-advi...


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 13, 2017 05:31AM Traveltext wrote:

This year BCO is leading the charge to pinkwask October, more specifically, Halloween, a kids fun day. More here:

https://community.breastcancer.org/forum/114/topic...

This is one of their banner ads

NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 15, 2017 06:00PM Traveltext wrote:

5 Problems With "Pinktober" and What YOU Can Do About It

http://nottodaycancer.blogspot.com.au/2017/10/5-pr...


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 19, 2017 02:30AM kathindc wrote:

Excellent article Traveltext! Keep them coming. This thread has been fairly quiet this year.

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Oct 19, 2017 02:33AM - edited Oct 19, 2017 02:39AM by kathindc

This Post was deleted by kathindc.
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Oct 19, 2017 05:42AM - edited Oct 19, 2017 05:45AM by Traveltext

Kathindc, there's another BCO post here with more Pinktober stuff here

https://community.breastcancer.org/forum/26/topics...

And here:

https://community.breastcancer.org/forum/102/topic...


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 19, 2017 12:33PM kathindc wrote:

Been following those as well.

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Oct 25, 2017 07:13PM - edited Oct 25, 2017 07:22PM by Traveltext

From the Underbelly folks:

Another October is coming to an end...

Thank the Gods! But unless we rethink the #hotpinkmess that is Breast Cancer Awareness Month - and do things differently, truly differently - the sad and painful truth is that the dying will continue. So how do we help make a change?

Remember that we all resist change and we all prefer the easy road. The way to make a shift and make it stick is to build bridges rather than burn them and to find what we have in common rather than all the ways in which we are different. And we must be willing to admit where we have been and where we continue to be - wrong.

The days of walking for the cure and decorating bras and flooding stores with PINK - in excess - are broken records. It's a totally played out song and dance. Folks who think "any awareness is good awareness" need to ask themselves, "what am I personally getting out of this belief?" Are they in it for true change or are they in it for the sense of belonging it provides them (i.e. everyone wearing pink).

We would assert that you can have both, but you can't have it under the guise of awareness for awareness sake. Instead, you must break away and find a new belonging in doing the good, hard work of advocating, talking to our legislatures, and giving money directly to the places and people who need it most rather than passively through big box stores and end caps.

This is a fantastic video that helps explain how best we can come together and create the change we want to see. Be the change we want to be. We'd like you all to think about the ways in which we are stuck in our thinking regarding breast cancer and how we can bridge the gaps between our divisions within the breast cancer community.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 25, 2017 09:10PM TaRenee wrote:

I teach school. For 14 years elementary and this year moved up to middle. I wear pink every day in October. I have for years. I wear it because I have so many BC survivors in my family. And now I am one too. I educate my students about WHY I wear pink. This year was a bit more “real” for all of us as I was at work for three weeks then went out for my surgery. My students have been real troopers this year. Helping me out, moving things or carrying things, asking how I’m feeling and if I need to take a rest break. This is the month that I can get fundraising for Relay for Life kickstarted. This is when my advocacy group has support for more research or legislation or new treatment trials. Yes, Pinktober can be really overdone and overmarketed and fluffy. But I hope that maybe it does some good too.

Dx 7/29/2017, IDC, Left, 2cm, Stage IIA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 9/14/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/29/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Oct 27, 2017 11:20AM - edited Oct 27, 2017 11:26AM by VLH

Just a point of interest...

"The View" on ABC today is focused on metastatic breast cancer and has emphasized that men can get breast cancer. A multi!colored ribbon icon is featured. The show is associated with the Lilly pharmaceutical company, which will donate $100 to Living Beyond Breast Cancer for each Tweet during the show with the hash tag, #MoreForMBC. They hope to raise $250,000.

Lyn

Dx 5/20/2016, IDC, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Surgery 7/14/2016 Lumpectomy: Left Dx 7/18/2016, DCIS, Left, Stage 0, Grade 3, 0/3 nodes Surgery 7/25/2016 Lumpectomy: Left Chemotherapy 10/10/2016 AC + T (Taxol) Radiation Therapy 9/5/2017 Whole-breast: Breast
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Aug 30, 2018 04:48PM Spookiesmom wrote:

Getting to be THAT time of year again. This was in the current issue of Cure Magazine. I have mixed feelings.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Aug 31, 2018 04:28PM Rosabella wrote:

hate it all. Hate the color pink too.

Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, PR+, HER2- Surgery 8/5/2015 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/3/2016 Whole-breast: Breast, Lymph nodes Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy
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Aug 31, 2018 08:11PM ceanna wrote:

I just don't get what the "pink-ifying" does or provides or fund raises for. If 100% went to research and a cure, now that would help to make sense, but "awareness" is a myth. No one is "aware" from these campaigns. It's big business to fund raise, treat, but not cure cancer. IMHO. Please stop the Pinktober nonsense.

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Aug 31, 2018 09:49PM Traveltext wrote:

Pink has long been the signifying color for breast cancer, because it is primarily a woman's disease. Pink just reinforces community perceptions and ignores the fact that one percent of new cases are men. More money is raised for breast cancer than almost all other cancers combined. The pink charities have long worked the community up into a fundraising fever at certain times of the year and are rolling in funds to be distributed after administration costs. Admin often takes up over 50% of funds raised, so when you donate one dollar, 50 cents gets spent on something not related to just keeping the charity afloat. Of this 50 cents, most of it goes to awareness campaigns, that is awareness campaigns directed at women. This is despite awareness levels that women get this disease running at 100 per cent. For men it's more like 30 per cent. So many people tell me that they didn't know men get breast cancer, that I think this figure may even overstate awareness. The cancer stage that kills up is Stage IV. It turns out that around seven per cent of funds raised goes to research on Stage IV. A pretty poor show all round.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 16, 2018 09:21PM sas-schatzi wrote:

Traveltext Whooohooo, you are here, EricV is not. You are so RIGHT, nothing is done to support the identification of men's BC. We Come to this year each time with tribulation. We have learned to hate  October. . The Pink. The Talk. The false giving. 

So, let's make this year about organizations that actually help women and men with co-pays, , and bills. ********* 




Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Sep 16, 2018 09:24PM sas-schatzi wrote:

I'll start------check out if your chemo center is connected to a foundation. Contact them and ask what they will cover?


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Sep 16, 2018 09:30PM Traveltext wrote:

Good start Sas. Perhaps we can ask members to send links to the best organizations that offer financial assistance.

I have some memes to present this year, and no doubt offers will chime in.

Let's make this Pinktober a big one! The site is still online: www.pinktobersucks.com



NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 16, 2018 10:06PM AliceBastable wrote:

I hate the whole pink ribbon thing. Ten years ago, I had endometrial/uterine cancer and had surgery to remove the uterus, ovaries, and cervix. About the same time, a co-worker had breast cancer, removed by a needle. She did the whole pink Disneyfication experience, proclaiming at every opportunity "I am a survivor!" and covering her workspace with pink ribbons and teddy bears and wanting everyone to wear pink shit for her. She came into my office one day with some random-colored ribbon pin and said "I couldn't find one for what you had, so this should do." Then she expected me to wear pink for her because she was a WARRIOR. I've never felt so invisible. So I think pink crap simultaneously trivializes and glamorizes breast cancer. Having it this year, with a breast that looks like a chayote squash now, hasn't changed my mind, or made me feel that THIS one is special. I've also had skin cancer (luckily, just basal cell, but several of them, including a messy one that left a long scar on my face from MOHS surgery), and now I have kidney cancer, for which I'll have a radical nephrectomy this week.

I don't need any damn trinket souvenirs, thank you. I have scars to remind me every freaking day what has happened to my body. They all suck, equally.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Sep 16, 2018 10:20PM Traveltext wrote:

Well written AliceB. And what a ringing endorsement for Pinktober. Not.

We might start a competition for the most egregious pink anecdote this year. I hope you'll enter this one!


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 16, 2018 10:35PM - edited Sep 16, 2018 10:45PM by sas-schatzi

Alice. I get the "Noise" . My day was a breast +, brain tumor, and thought I should tell the boss. In less than 4 hours. How wrong was I. She said " We have to make sure your safe, I have to relieve you from work"  BC,brain tumor , loss of career in less that 4 hours. 
Sorry folks ,I think I have a record, I had no clue about being truthful. I was so, clueless

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Sep 16, 2018 10:39PM sas-schatzi wrote:

OH. path report said  "Unfavorable outcome" That was 2009. Whole negatives 2009. This is 2018 F***ck m'em

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Sep 16, 2018 10:48PM sas-schatzi wrote:

Alice, I'm so sorry for what you had to go though.  Sucks.


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Sep 16, 2018 11:08PM AliceBastable wrote:

Oh, saz-schatzi, how horrible! I got "laid off" due to a difficult pregnancy years ago, but I thought those barbaric days were long gone.

Traveltext, I equate the whole pink thing with those pink school erasers, trying to rub out the ugliness and just leaving a slightly smudged cartoon version of our reality to present to the world.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Sep 16, 2018 11:24PM - edited Sep 16, 2018 11:25PM by sas-schatzi

Alice I was stupid regarding the law. The story gets worse. My DH was dx'd with the worst form of Lymphoma 3 months behind me. If all the worst didn't happen to me, I would have not been "freed" to take care of him. The next year was horrific. Had I had to work, I wouldn't of survived. In 2010 he had a spider bite that took about 6 weeks, Then from the remainder of Feb till his death in August . There were 10 hospital admissions, 4 for chemo, 6 for complications and screw ups. Had I been determined normal with the required psych b/c of the brain tumor...………….I could have never taken care of him. So, it was a blessing I flunked the test.



Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Sep 16, 2018 11:47PM AliceBastable wrote:

sas-schatzi. Wow. Just wow. It's hard enough to go through your own hell, but having a loved one go through it is worse because you feel helpless -- and at the same time? Hugs to you for all you have endured.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes

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