We are 226,650 members in 82 forums discussing 158,896 topics.

Help with Abbreviations

Topic: Pinktober Revolution

Forum: Emotional Crises: Anxiety, Depression & Other Emotional Effects —

Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.

Posted on: Aug 2, 2012 02:03AM - edited Dec 23, 2015 10:34PM by sas-schatzi

sas-schatzi wrote:

We support the efforts to bring awareness to breast cancer during the month of October, but we are frustrated by Pinking and Pinkwashing. Please, join us as we seek to improve knowledge re: breast cancer.

Vision Statement:To bring full awareness of the reality of breast cancer to the general public; the surgeries, the treatments and the horror that there is NO cure. To ensure that proceeds donated to the cause are publically noted and distributed in an appropriate manner for the community in which the funds were raised. To keep corporations accountable for the use of pink products and the medical field driven to move the cure closer to the finish line.

A Look at Charitable & Non-Charitable Organizations

Archive storage for Pintober Revolution-non discussion area

This is just a sampling of the bonehead comments we hear all the time. Thanks Scuttlers for finding this :)

scuttlers wrote: I may make a copy, put on the fridge, and play bingo for one week. If I get a "Bingo", hubby takes me to dinner. If I get a "full card", I get a full spa treatment. Then all those idiots would be wondering why I jump up and down and scream happily at their stupid and asinine remarks. :-). !!!!!

Breast Cancer Action webinar on Sexualization of breast cancer.

http://www.bcaction.org/resources/webinars/free-webinar-please-stop-staring-at-my-breasts-the-sexualization-of-breast-cancer/ Traveltext, 2015

Please ask Look Good Feel Better To Stop Giving Carcingoneic Products to Breast Cancer Patients through the Look Good Feel Better program JackBirdie, 2015.

American Cancer Society, Stop Giving Carcinogenic Cosmetics to Women With Cancer

Thurs. 29 October 2015 By Katy Skahill, Truthout | Op-Ed (BCO member Jackbirdie)

https://community.breastcancer.org/forum/102/topics/791442?page=89#post_4539402

Google hits sexualization Oct 2015 43,100

http://pinktobersucks.com/


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Page 5 of 109 (3,262 results)

Posts 121 - 150 (3,262 total)

Log in to post a reply

Aug 4, 2012 06:56PM - edited Aug 4, 2012 07:13PM by sas-schatzi

Brain cells

How I miss ya, How I miss ya

From  the  time

before cancer got you,  

 cancer got you.

Will I   ever see you 

ever see you

My, dear old brain cells

(I think I'm thinking of Suwannee, But could be something else) 

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Aug 4, 2012 07:19PM 1Athena1 wrote:

LOL at Veggy! I still love my "BOYCOTT PINK"

It is nice to see that in four pages we have still not been visited by the "rah, rah" crowd saying "oh, we've made so much progress."

EnglishMajor hits the nail on the head. The true way to measure breast cancer in epidemiological terms is to answer the question: "If you get BC, what are your chances of dying today?" There is no such thing as "updated" survival/mortality figures for obvious reasons. However, it appears that chemotherapy and radiation have made a minimal impact on survival, as data has barely changed since the 50s. The increase in identification of women with DCIS skews the figure (hence the increase in reported "incidence."). The reason why BC "is no longer considered a death sentence" for everyone is because if it is caught early, a person who will eventually die of it lives longer to receive treatment - NOT because that incurable person can now be cured.

The pink movement has done nothing but cover up these facts. They are a sexist, outdated movement that has done women terrible harm. There needs to be much more emphasis put on metastatic cancer.

Anyone diagnosed with cancer should learn to have a healthy disrespect for statistics. Statistics are maths. It's the science which still eludes us. Dx 3/2009, IDC, 3cm, Stage IIB, Grade 3, 3/8 nodes, mets, ER+/PR+, HER2-
Log in to post a reply

Aug 4, 2012 07:25PM Dakota212 wrote:

Veggie~
That is great!!!!

💓💓💓 Onco type score 32 Dx 7/16/2012, IDC, 2cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 9/28/2012 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 11/8/2012 AC + T (Taxol)
Log in to post a reply

Aug 4, 2012 07:27PM Dakota212 wrote:

Mini~
Love that too!!!

💓💓💓 Onco type score 32 Dx 7/16/2012, IDC, 2cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 9/28/2012 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 11/8/2012 AC + T (Taxol)
Log in to post a reply

Aug 4, 2012 07:28PM Dakota212 wrote:

Mini~
Love that too!!!

💓💓💓 Onco type score 32 Dx 7/16/2012, IDC, 2cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 9/28/2012 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 11/8/2012 AC + T (Taxol)
Log in to post a reply

Aug 4, 2012 07:30PM voraciousreader wrote:

The name of Dr. Brawley's book is HOW WE DO HARM.

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
Log in to post a reply

Aug 4, 2012 07:32PM 1Athena1 wrote:

VR, I think that book is next on my list.

Anyone diagnosed with cancer should learn to have a healthy disrespect for statistics. Statistics are maths. It's the science which still eludes us. Dx 3/2009, IDC, 3cm, Stage IIB, Grade 3, 3/8 nodes, mets, ER+/PR+, HER2-
Log in to post a reply

Aug 4, 2012 07:36PM Dakota212 wrote:

Gracie1~
That's a great shirt !!!

💓💓💓 Onco type score 32 Dx 7/16/2012, IDC, 2cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 9/28/2012 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 11/8/2012 AC + T (Taxol)
Log in to post a reply

Aug 4, 2012 07:37PM Dakota212 wrote:

Mini~
That is so true, sadly!!! Be careful what u wish for.

💓💓💓 Onco type score 32 Dx 7/16/2012, IDC, 2cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 9/28/2012 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 11/8/2012 AC + T (Taxol)
Log in to post a reply

Aug 4, 2012 07:44PM Joanne_53 wrote:

I am in Canada and having socialized medicine does make a difference I think. I read some of the posts here on various threads about the number of appointments and tests being done and wonder why. I know our system is not perfect but I do wonder about the need for all the tests. I have not had an MRI, bone scan, CT scan or any blood work since my surgery. I will have a mammogram in November. I saw my RON weekly during rads and the 7 weeks post and see him again in 3 months. I have not seen my MO since he gave me the prescription for tamoxifen and will see him in September which will e 6 months. Of course if I was having any problems he would see me.

Joanne - Onco DX score 12 Dx 12/8/2011, IDC, 3cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 1/11/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Hormonal Therapy 4/9/2012 Radiation Therapy 4/10/2012
Log in to post a reply

Aug 4, 2012 07:46PM Dakota212 wrote:

scuttlers~
What an impact that has!!! Glad u thought of it.

💓💓💓 Onco type score 32 Dx 7/16/2012, IDC, 2cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 9/28/2012 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 11/8/2012 AC + T (Taxol)
Log in to post a reply

Aug 4, 2012 07:47PM Mini1 wrote:

You are right, i didn't have the book in front of me, and those pesky missing brain cells failed me. I do rememner that the Dr/author's name is Otis Webb Brawley. It's not a long read. I read it in a day, but it's worth it. It hits on prostate CA too, so pass it around to any men in your lives. Like I said, it's an eye opener.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 4, 2012 07:48PM voraciousreader wrote:

Regarding statistics and mortality, Dr. Brawley discusses the development and use of computational biostatistics. What I found fascinating is that, in the 1970's there was a small group of physicians who understood and appreciated the importance of creating computer programs to advance biostatistics. Dr. Brawley believes that their foresight has truly helped advances in treatment. He does discuss the controversies as well. But he truly believes in the importance of statistical analysis.

Again, he is critical of advocacy groups who advance their own agendas while dismissing the statistics. He believes if data is correctly accrued and interpreted, then it becomes the responsibility of researchers, clinicians and patients to APPRECIATE what the data validates or dismisses.


Having read Dr. Brawley's book, I understand his frustration in how advocacy groups undermine the important work being done in the field of epidemiology.

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
Log in to post a reply

Aug 4, 2012 07:53PM voraciousreader wrote:

1Athena!.... You will love his book! For sure!

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
Log in to post a reply

Aug 4, 2012 07:58PM Mini1 wrote:

Exactly. Groups that are focused on promoting their own agenda not the patients best interests. I wish he'd stayed in Detroit. I'd pay the out of area cost to be his patient. I like the way he explains things without dumbing it down to the point of inanity and his willingness to call things what they are whether it makes his profession look good or bad. We need more people like him to speak out.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 4, 2012 08:08PM voraciousreader wrote:

Mini... We are beginning to see a handful of doctors speaking up and calling out what needs to be done. John Abramson, MD's Overdosed America and H. Gilbert Welch, Ph. D.'s Overdiagnosed... come to mind. Incidentally, Dr. Welch's wife was also diagnosed with breast cancer.

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
Log in to post a reply

Aug 4, 2012 09:26PM Mini1 wrote:

I'll look for those, thanks. I am trying to decide on whether to stay on the meds or not. Maybe they will help me make the decision.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 4, 2012 11:08PM duckyb1 wrote:

"When the other shoe drops....I hope it lands on the head of some bastard who told me "I had the good cancer","..........who said........."How lucky I was it was BC"...................or "Glad its all over"..............who said "You look wonderful".................or "We got good margins"..................... or"Radiation will get anything left".................or."Femara will give you a  better chance for survival"............................to those assholes I say

1.......There is no good cancer...........

2......Lucky would be not getting it at all.

3......It is no where near f/n over

4......Margins, if their so good, then why do I need radiation

5......Oh yes, radiation will get anything left......there is nothing left, I'm tired, wonder each day what else the

        radiation destroyed.

6.......Better chance for survival......what about QOL.......fatigue, aches, pains, and for this survival, we are some kind of a "lab experiment" ...........go ahead...............tell me how "lucky" I am................and by the way.........................there isn't one of those optomistic assholes who would change places with anyone of us...............................Yell

Ducky Dx 2/15/2011, IDC, Right, 1cm, Grade 1, 0/8 nodes, ER+/PR+, HER2- Radiation Therapy 4/24/2011 Whole-breast: Breast
Log in to post a reply

Aug 5, 2012 12:33AM - edited Aug 5, 2012 12:45AM by Bluebird-DE

Ducky is on a roll.

SLOGAN:::

On back, Barbe's FOCTOBER

on the front - PINK TEE SHIRT BONFIRE ON TOWN SQUARE - Noon October 1st

Statistics --- In 2005 an announcement was that for the first time in 70 years the absolute number of cancer dealths had fallen.  Dr. Eschenbach, director of the US National Cancer Institue called this "momentous news" and Dr. Thum, head of epidemiological research for the American Cancer Society said it was "a notable milestone."   The celebrated decline was a total of 370 from 557,272 to 556,902 in 2004.  0.066 percent.  Granted this was 8 years ago.......... but the mentality is still the same. ETA: reference then took it off but info was pulled from the book You Did What? by Quinn.

I think that  the Susan Love's Army of Women Walk could be in every major city and large town in North America and would be very well attended.  I would go.  Then have the pink tee shirt BONFIRE.

Thanks Sassy for organizing this one! This is a good walk.

Diane Essa

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/5/2017 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes Surgery Lumpectomy: Right; Lymph node removal: Left
Log in to post a reply

Aug 5, 2012 12:53AM Surly wrote:

  Bumper sticker?   Puck Fink    
Pardon me, hounded hope, for laughing from time to time. . . . Mets to bones, liver, and lungs. Brain mets treated with gamma knife. Dx 3/25/2010, IDC, Stage IV, mets, ER-/PR-, HER2+
Log in to post a reply

Aug 5, 2012 01:09AM Joanne_53 wrote:

That is good .... Or do like the brand of clothing and perfume .... FCUK pink!

Joanne - Onco DX score 12 Dx 12/8/2011, IDC, 3cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 1/11/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Hormonal Therapy 4/9/2012 Radiation Therapy 4/10/2012
Log in to post a reply

Aug 5, 2012 02:43AM kyliet wrote:

ducky I would like to add:

 - don't tell me you know someone who has a worse one. 

When life gives you a 100 reasons to cry, show life you have a 1000 reasons to smile. Mulitfocal, ECE, lymph. channel invasion, Chemo. RADs. Arimidex. Monthly Zoladex. Dx 11/11/2011, IDC, Left, 1cm, Stage IIA, Grade 1, 3/26 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 5, 2012 08:23AM voraciousreader wrote:

When advocacy groups have seminars that teach patients statistics so it can help patients make INFORMED decisions about their treatment...then that would be a REVOLUTION that I would join. No one needs to show me how to do my make up. I don't need a shoulder to lean on. I want all my sisters to be able to step up to the plate when the time comes and make the best treatment decision possible and that requires EDUCATION. Is that asking for too much until there is a cure?

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
Log in to post a reply

Aug 5, 2012 08:43AM duckyb1 wrote:

Katopet....................yea, got that comment too................like I gave a shit at the time who had a worse one then I did........do I need a reminder about cancer...................doubt it........Mother.....Colon, lived a year........Father....Esophageal...lived a year, suffered like a dog.....................and the "worst" on of all...........Husband........Pancreatic..............lived 2 1/2 years....lost 100 lbs.............so don't tell me about "worst"................I lived "worst".......................so after all that, someone wants me to be greatful, I got the "good cancer"...........and "it could be worse"........................to them I say F---k You, and the horse you rode in on............................

How about this one..............at least your not in "pain"................to those people I say...........Would you like to share a bottle of Femara.......When I hear people now, whining about "sunburn", I think........."try radiation"

Oh, yea..............I forgot about Lymphedema..................try wearing a rubber gadget on your body when the temperature hits 100...............and it becomes a part of your body..........its a lifetime reminder that you had "cancer".................

HAVE I COVERED EVERYTHING...........IF NOT, FEEL FREE TO ADD YOUR COMMENT............HUGS.

Ducky Dx 2/15/2011, IDC, Right, 1cm, Grade 1, 0/8 nodes, ER+/PR+, HER2- Radiation Therapy 4/24/2011 Whole-breast: Breast
Log in to post a reply

Aug 5, 2012 09:57AM - edited Mar 25, 2013 10:09AM by Shrek4

0

Log in to post a reply

Aug 5, 2012 10:00AM GramE wrote:

T shirt:

I am aware there is no cure... 

Log in to post a reply

Aug 5, 2012 10:53AM - edited Nov 10, 2015 07:10PM by leggo

This Post was deleted by leggo.
"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
Log in to post a reply

Aug 5, 2012 11:42AM - edited Aug 5, 2012 11:43AM by painterly

Great ideas...I still like Foctober!

 

ALL

THIS

MONEY

AND

STILL NO CURE



 

Log in to post a reply

Aug 5, 2012 11:58AM Mini1 wrote:

How about - Invite 8 friends over. Now pick the one you want to have cancer. I guarauntee you that only 7 of them will feel "lucky."

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 5, 2012 02:06PM Infobabe wrote:

I think what you women are saying should be said and out in the open.  You are very angry and have every right to be.  Turn Foctobe on it's head.  I like the pink skull.

I have a 21 year old relative by marriage who is brilliant in microbiology.  She is looking more at research in neuroscience.  She is a senior but has already studied at Princeton, Walter Reed internship,  somewhere in Hungary and some big company in CA.  I cannot keep track of all of them.  Also the Clair Booth Luce full ride scholarship.

Why can't a girl like this get the support to do research on breast cancer?  Komen and the pinkites should be looking for this type of talent, searching them out channeling them to breast cancer like the above has.  Better than some drug company in CA or all the others who have already spotted her. 

Dx 3/15/2012, DCIS, <1cm, Stage 0, Grade 1, ER+/PR+ Surgery 4/30/2012 Lumpectomy: Left

Page 5 of 109 (3,262 results)