Topic: Kiwi ladies who need encouragment, but all welcome.

Forum: Australians and New Zealanders Affected by Breast Cancer — Australian health care, clinical trials, and life in general in the land down under.

Posted on: May 28, 2012 12:10AM - edited May 28, 2012 12:12AM by midnight1327

Posted on: May 28, 2012 12:10AM - edited May 28, 2012 12:12AM by midnight1327

midnight1327 wrote:

I did start a thread for kiwi ladies, and another lady suggested we start one  in the community support. this is just  an encouraging and support thread for any kiwi and anybody who needs support, and bring kiwi women together, so  do feel free to join in.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
Log in to post a reply

Page 3 of 377 (3,768 results)

Log in to post a reply

May 30, 2012 05:56PM - edited May 30, 2012 06:02PM by midnight1327

you have a  great time at your wedding, and hope things go well. and your sis has a lovely Birthday Alyson.  I got results back from my mammo other week and not the result i had hoped for, they want to another different kind of mamo picture as they see changes on the (r) breast this time  and i have to do that June 12 at one pm. was hoping it was clear as we all do, it could be ok, but she said they were concerened about a certain area, but could not go into it more until they know. another WAIT.  BUt they are pretty on to it in Palmy, if i still lived in Whangarei, you would not be as lucky, i know of alot of women who have been waiting and mucked around, but once they in there, its very good, never mind, this last bit of news it does bring insecurities tho. ,  , . Any way everybody have a good day, and KiwiMum it is lovely to see you, you have had alot of  things to deal with  your BC,  i hope  you are recovering nicely,  iam on five years of  Tamoxifen as well. Take care and welcome.

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
Log in to post a reply

May 30, 2012 09:44PM Hils wrote:

Hi Midnight Will be thinking of you on June 12th, sorry you have to wait, waiting is the pits buty it sounds like you have a good team at Palmy. Hope you all have a great Queens B'day weekend and the weather is good for all of us.

Hils SNB and Partial MX 16th Dec 2011; UMX 6th Mar 2012 found <1cm IDC as well as the DCIS Dx 11/26/2011, DCIS, 6cm+, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 2/16/2012, IDC, <1cm, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2-
Log in to post a reply

May 30, 2012 10:28PM midnight1327 wrote:

you to have a great wekend Hils, and i hope the weather stays good, has been dam cold down here. but today was alot better, we have only 7  like at lunch time, today was double that, but now dropping., catch up  with yas later,

Dx 8/12/2011, IDC, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- Surgery 8/30/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/9/2011 Breast Hormonal Therapy 11/22/2011
Log in to post a reply

May 31, 2012 01:47AM KiwiMum wrote:

Alyson, yes similar dx - but I am thrilled that you are 5 years out and going strong!! It gives me hope.

Midnight - I'm sorry about your new "challenge". This BC gig is the pits! I will be thinking of you.

I have a busy Q Birthday ahead. My Gran died this week and her funeral is on Saturday in Napier. My youngest has Brownie camp, starting Saturday morning for 2 nights/3 days. I'm going to and from Napier same day and then doing mummy help at camp Sunday, Sunday night and Monday. Phew, I feel tired thinking about it!

Has anyone got anything fun planned? Relaxing sounds good!

Dx 3/2/2011, IDC, 2cm, Stage IIIC, Grade 2, 12/24 nodes, ER+/PR+, HER2- Surgery 3/13/2011 Lymph node removal: Right; Mastectomy: Right Chemotherapy 4/18/2011 AC + T (Taxol) Radiation Therapy 10/24/2011 Breast, Lymph nodes Hormonal Therapy 10/31/2011 Surgery 1/31/2013 Reconstruction (right): DIEP flap Surgery 6/30/2013 Reconstruction (right): Nipple reconstruction Hormonal Therapy 10/16/2014 Aromasin (exemestane) Surgery Prophylactic ovary removal
Log in to post a reply

May 31, 2012 02:03AM Hils wrote:

Wow kiwimum, sorry to hear about your Gran. Just reading what you are getting up to over the weekend makes me feel tired.

I'm off to Rotovegas for the weekend to take some time out and hopefully go to one of the spas after a days mountain biking. Looking forward to it and hoping the weather is good for all of us.

Hils SNB and Partial MX 16th Dec 2011; UMX 6th Mar 2012 found <1cm IDC as well as the DCIS Dx 11/26/2011, DCIS, 6cm+, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 2/16/2012, IDC, <1cm, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2-
Log in to post a reply

May 31, 2012 03:12AM KiwiMum wrote:

Sounds fab Hils. Have a great time. Mountain biking followed by pampering sounds like heaven!

Dx 3/2/2011, IDC, 2cm, Stage IIIC, Grade 2, 12/24 nodes, ER+/PR+, HER2- Surgery 3/13/2011 Lymph node removal: Right; Mastectomy: Right Chemotherapy 4/18/2011 AC + T (Taxol) Radiation Therapy 10/24/2011 Breast, Lymph nodes Hormonal Therapy 10/31/2011 Surgery 1/31/2013 Reconstruction (right): DIEP flap Surgery 6/30/2013 Reconstruction (right): Nipple reconstruction Hormonal Therapy 10/16/2014 Aromasin (exemestane) Surgery Prophylactic ovary removal
Log in to post a reply

May 31, 2012 03:40AM SuzyBlue wrote:

First time writing on any forum though I have been reading this one for a while. I found it somewhat cathartic to follow other women's journeys and see myself in them too. I had a mastectomy and DIEP reconstruction on the right side and a reduction on the left, back in January, and have nipple reconstruction and tidy up of scars in a couple of weeks. It has been a roller coaster ride few others can relate to unless you have been on it, which is why I think we can offer so much to each other here.

Dx 12/21/2011, DCIS, 5cm, Stage 0, Grade 3, 0/3 nodes
Log in to post a reply

May 31, 2012 04:39AM KiwiMum wrote:

Hi SuzyBlue. I've not yet ventured down the recon road yet.

Some questions.

Are you in Auckland?
If yes, who was your surgeon?
What was the recovery time?
I've seen a surgeon for a consult but he was talking Tram Flap. From what I've read on here Diep seems a better alternative. Your thoughts? Not sure why he recommended Tram.
Did you have medical insurance or go public?

Hope you don't mind the questions. Thanks.

Dx 3/2/2011, IDC, 2cm, Stage IIIC, Grade 2, 12/24 nodes, ER+/PR+, HER2- Surgery 3/13/2011 Lymph node removal: Right; Mastectomy: Right Chemotherapy 4/18/2011 AC + T (Taxol) Radiation Therapy 10/24/2011 Breast, Lymph nodes Hormonal Therapy 10/31/2011 Surgery 1/31/2013 Reconstruction (right): DIEP flap Surgery 6/30/2013 Reconstruction (right): Nipple reconstruction Hormonal Therapy 10/16/2014 Aromasin (exemestane) Surgery Prophylactic ovary removal
Log in to post a reply

May 31, 2012 04:32PM SuzyBlue wrote:

Hi KiwiMum, yes I am in Auckland too.

My Surgeon is Ashwain Chunilal and he is fantastic, I could not have asked for a better guy. He is based out at the Manukau Super Clinic but also works from Middlemore Hospital where I had my mastectomy and reconstruction and he also did a reduction on my left breast at the same time. There was never any question that he would not try and get them looking the same and I was very relieved I was not going to be left with one looking 30 and the other more like 60! (I am 49 and breastfed 4 kids so they were not in good shape haha).

I went through the public system and I do not have any complaints at all. The surgeons are by and large the same and I was told my waiting time would have been about the same too. Three weeks for the partial mastectomy and then three weeks after finding out I needed a full mastectomy. The first one was done at North Shore Hospital.

I was told that I did not have enough flesh for the tram flap and surprisingly enough to me it was also borderline whether I had enough for the DIEP flap either, but obviously he came up with enough in the end and he did not need to take any muscle which meant my recovery was quicker and I dont have to worry about hernias.

You do end up with a very large scar across your lower abdomin but it is fairly low down and not visible under clothes. I also have a flat stomach that I haven't seen in 25 years pre kids so that is a bonus. It was a 9 hour operation all up and I was in hospital for 5 nights. I was not able to drive for 6 weeks and for the first 2 - 3 weeks you can not stand up straight as the skin across your abdomin is very tight. The pain was pretty minimal, I only took panadeine at home, and really I was back into normal life in 4 weeks apart from driving.

Maybe your surgeon is recommending the Tram flap because it is not such a big operation? Personally I would think not having to remove muscle is an advantage but you would need to weigh up the pros and cons of each. Also I was told not all surgeons can perform the DIEP because it involves microsurgery which is why it is done at Middlemore.

Hope this answers some of your questions. Feel free to ask anything else that might help.

Dx 12/21/2011, DCIS, 5cm, Stage 0, Grade 3, 0/3 nodes
Log in to post a reply

May 31, 2012 04:34PM kt1966 wrote:

Good morning all. Another sunny day, yippee (cold tho)!

Kiakaha, I see you are having zometa. I'm having it once a year, only had one so far & it was awful. I was vomitting for 2 days as well as the flu symptoms, aches etc. My next one is due in 2 1/2 months so I'm not really looking forward to it. I will have anti-nausea meds on hand tho...

I have a pretty quiet weekend planned- my son has a sleepover party (at someone elses house-phew) and hubby is coming back from Aus for the weekend. (He's working on the GC at the moment, and no, not on the TV show the GC)

Hope you all have a good long weekend & get some relaxing in there somewhereSmile 

Age at Diagnosis: 37 Dx 12/11/2003, ILC, 4cm, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Surgery 12/15/2003 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 2/24/2004 AC Hormonal Therapy 5/19/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/25/2004 Hormonal Therapy 7/3/2011 Femara (letrozole), Zoladex (goserelin) Surgery 10/7/2013 Prophylactic mastectomy: Left Dx 7/9/2014, ILC, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+ Chemotherapy 7/14/2014 Xeloda (capecitabine) Chemotherapy 6/16/2015 Taxol (paclitaxel) Dx 7/8/2016, Stage IV, metastasized to brain/liver Radiation Therapy 7/18/2016 External: Brain Chemotherapy 8/29/2016 Navelbine (vinorelbine) Chemotherapy 10/18/2016 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)

Page 3 of 377 (3,768 results)

Scroll to top button