We are 226,650 members in 82 forums discussing 158,895 topics.

Help with Abbreviations

Topic: Stage II w/Lymph Node Involvement

Forum: Stage II Breast Cancer — Meet, share and support others with Stage II Breast Cancer

Posted on: Nov 6, 2009 02:53PM - edited Nov 23, 2009 02:18PM by Warrior517

Warrior517 wrote:

I am so thrilled we finally have a place to call HOME here! I was diagnosed w/IDC last year at the age of 39. It was in 2/6 lymph nodes. I was also HER2 and Estrogen Positive.I had dbl mastectomy w/implants. This summer, one of the implants failed. So, I underwent a DIEP procedure w/Dr. Massey and Dellacroce in New Orleans. Great Outcome!! I did TCH for six rounds, rads and a year of Herceptin. I am currently on tamoxifen and Boniva (study). 

I just wanted to start this thread for those that had it spread to lymph nodes. I can't tell you how many threads I have read that said "thank God, my nodes were clear"...we all weren't as lucky. BUT I believe God puts people in our path when we need them most. Last year during Rads,I met an older lady(she was there for her hubby) who told me that she was a 30 year survivor and Yes..It was in her lymph nodes! The job of the lymph nodes is to catch that little sucker!

Dx 1/10/2008, IDC, Stage IIA, Grade 3, 2/6 nodes, ER+/PR+, HER2+
Log in to post a reply

Page 74 of 74 (2,203 results)

Posts 2191 - 2203 (2,203 total)

Log in to post a reply

Dec 8, 2019 12:32AM ROAREUS wrote:

can i ask... if your mammo and ultrasound were negative, what made them do a MRI?

Dx 9/11/2013, IDC, 1cm, Stage IIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- Surgery 9/23/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 10/23/2013 AC + T (Taxol) Hormonal Therapy
Log in to post a reply

Dec 8, 2019 01:18AM Peregrinelady wrote:

Actually, I was misdiagnosed for 20 months after the negative mammogram and ultrasound. That is why I think you are lucky they are suggesting further testing to be on the safe side. I am in a small town and my pcp did not suggest further testing which is supposed to happen after both are negative with a palpable lump. I had the MRI after diagnosis to check the other breast.
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/17/2016 Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/30/2016 Arimidex (anastrozole)
Log in to post a reply

Dec 8, 2019 11:11AM ROAREUS wrote:

Got it. While I am grateful they are being conservative even with a normal clinical exam, I am also terrified...

Dx 9/11/2013, IDC, 1cm, Stage IIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- Surgery 9/23/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 10/23/2013 AC + T (Taxol) Hormonal Therapy
Log in to post a reply

Dec 8, 2019 12:45PM Peregrinelady wrote:

Try to keep yourself busy and let us know how it goes. If the MRI comes back clear, you will have peace of mind.
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/17/2016 Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/30/2016 Arimidex (anastrozole)
Log in to post a reply

Dec 10, 2019 10:14PM HoneyBeaw wrote:

Same here did not show up on mama and had a hard time finding on ultrashould . Mine was right under my nipple right in the middle. I sill swear if it had not been for my nipple being inverted and and me being hell bent something was wrong I would have went another 2 yrs with that damm thing. I had clear mama 2 mts before finding it myself

Surgery 11/27/2016 Lumpectomy: Left Dx 12/5/2016, IDC, Left, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 12/25/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 1/15/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Dec 18, 2019 11:57AM ROAREUS wrote:

I got my MRI results and it was fine. Thank you everyone for your support. Will go back in 2-3 months for a follow up to make sure it does not happen again. Greatest Christmas gift I could have asked for. Hope everyone has a happy holiday.

Dx 9/11/2013, IDC, 1cm, Stage IIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- Surgery 9/23/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 10/23/2013 AC + T (Taxol) Hormonal Therapy
Log in to post a reply

Jan 4, 2020 02:27AM llilly wrote:

Anyone had their Oncologist suddenly state they no longer need to be seen and can be transitioned back to regular doctors. I am 8 years out from surgery and on Year 8 out of 10 for taking Arimidex. It was my understanding that I would be followed until completing Hormone Therapy (long term surveillance of bone and cardiac issues) and would still want my tumor markers reviewed after completing Hormone Therapy for comparison, especially since I had one positive lymph node. At this point, I need to be working on my Survivorship Plan. Thank you.

Log in to post a reply

Jan 5, 2020 05:54PM Nancy2581 wrote:

Hi llily though I am not 8 years out only 5 1/2 I am wondering if you were transitioned back because they (according to my oncologist) are recommending 7 years of hormone therapy now instead of 10. Not sure just a thought.

Nancy

2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/22/2014 AC + T (Taxol) Hormonal Therapy 1/28/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/29/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/17/2017 Femara (letrozole)
Log in to post a reply

Jan 8, 2020 06:48PM Pittiemama wrote:

Hi All! I love reading this thread, but I am curious what the ratio of pre-menopausal vs post-menopausal is? I've been diagnosed as IIb with 2 involved nodes and at 43 years old I am only pre-menopausal. Everyone I've talked with so far all seem to lean on a more aggressive treatment because of my age and want me to do 4 rounds of chemo. Have any of you had success at a younger age without chemo? My RO is already planning 30 rounds of rads with hormone blockers as well. Thanks in advance!

Dx 9/2019, LCIS/DCIS, Left, 2cm, Stage IIB, Grade 2, 2/5 nodes, ER+/PR+, HER2- Surgery Lumpectomy; Lymph node removal: Left, Sentinel
Log in to post a reply

Jan 9, 2020 01:15PM PebblesV wrote:

HI Pittiemama - I have a very similar case to yours, and hopefully its encouraging to hear that my first mammogram post-treatment in October came back completely clear and cancer free! In fact, they just said, "Everything looks good, see you next year." and the visits with my oncologist have gone from every month to every 3 months to 4 months and now 6 months.

I was also diagnosed at 43, ER/PR+ and HER2-, 2 involved nodes, also (and still) pre-menopausal. I did the surgery (lumpectomy, not masectomy), radiation and am currently on tamoxifen (hormone therapy) treatment. I DID NOT DO CHEMO. The saving grace was the Oncotype DX test which I highly recommend you insist on getting (seems you would qualify for it) where results came back to say that the risk of recurrence for me was the same whether I did just tamoxifen or chemo too, and at that point, my oncologist who had been assuming chemo would be part of my treatment prior to the Oncotype results, said - and I quote - that he would "no longer recommend chemo due to the EXTRA TOXICITY IT WOULD INTRODUCE for no benefit".

I personally felt like a cloud had lifted when I learned I did not need chemo. To be honest, I was already leaning towards not doing chemo, but I knew if I didn't have the data and tests to back up my decision, it would be very, very hard to hold my ground amongst family and friends and doctors who would be pushing me to do chemo. Yes, they say that because you are "younger" (the only place early 40's is young LOL), that we can better tolerate chemo and go for a more aggressive treatment. But I saw it the opposite way - that because I am younger, I am less willing to introduce debilitating side effects, many of which can be permanent (like a permanent neuropathy, or hair loss as has happened for some on taxol) into my life when I have such a full life ahead. Now, plenty of people do chemo and get through it just fine and make a full recovery. That said, I saw too many cases close to me where people did chemo and it came back anyways, or did chemo and suffered some very permanent side effects as a result, and in almost all cases, for someone pre-menopausal, chemo would push them towards menopause. Whereas on tamoxifen, for better or worse, I still get that time of month very regularly every month - and my oncologist actually thinks I'm tolerating tamoxifen so well BECAUSE I'm pre-menopausal, and far from menopause, so he says I'm not confusing any menopause symptoms with tamoxifen. Not getting hot flashes, not getting joint pain, had a little nausea when I started but it passed in a week and now I've adjusted to it. Did gain weight and much harder to lose weight but I'm trying to break through that now.

Anyways, I have no regrets on the path I chose because I've been able to get through all the treatment (including a fairly aggressive radiation treatment!) with minimal to no side effects, feel like I didn't lose any part or sense of myself along the way, and came out of it a year and a half later completely in the clear and feeling healthier than I did when I was first diagnosed! I'm a big believer that you have to do your research, be informed, trust your gut and choose the path that you feel is best for you and move forward with confidence. Everyone has a different risk/benefit scenario in terms of what risk they are willing to tolerate for what benefit, you just have to know what you're stepping into, what risk you are willing to take for what benefit, and go with it. For me, I said yes to some things and no to others. I was not OK with the risk of a full axillary node dissection with my surgeon told me had a 40% chance of lymphedema (a permanent condition) but was OK with an aggressive radiation treatment that still carried a 15% risk of lymphedema. Such were the chances I was willing to take, and I felt I could control how I reacted to radiation better too as my nodes are still there (yes they still treated all the nodes with radiation since I had 2 positive nodes). I was fine with tamoxifen and researched a lot how to manage and avoid side effects and am still taking it, and lucked out with an Oncotype score that validated my not needing chemo, but I was already leaning towards saying no to chemo, lots of stories behind that I can share another time or over messaging. There is another on this thread who had a high Oncotype score, still said no to chemo, and is thriving and healthy 6 or 7 years later.

Anyways, since we have really similar cases, I'm happy to share more insight - feel free to reach out to me over message. Best of luck with your journey, please keep us posted, and know that this is a very beatable and survivable thing. And its fully possible to get through this while maintaining your sense of self, not suffering, and minimizing side effects. I did it! I know others who have too!

Dx 9/7/2018, IDC, Right, 1cm, Stage IIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- (FISH) Surgery 9/19/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 9, 2020 07:43PM - edited Jan 9, 2020 07:47PM by JRNJ

Pittiemama, Your Dx does not appear correct. LCIS and DCIS do not spread to nodes. Did you have lumpectomy? Mx? Were they not able to find the primary invasive cancer? Maybe that's why they want to be aggressive? What is your Onctotype Score? I am 54, but my Dx is similar to yours and I am a "young" 54, totally pre-menopausal with very active hormones. With Drs. these days they really rely on Oncotype Score with Estrogen positive Dx. With a 15, I was in the low risk/gray area. I went for three opinions, 1. I don't know, 2. No chemo 3. Yes chemo, but since you are "low risk" CMF (from Sloan). It is not that common and most of the people on it were recommended by Sloan or a hospital in CA. Dr. said it is about 2% less effective than AC, but has lower risks of permanent side effects especially neuropathy and hair loss heart problems. I am on it now. They said my hair would "thin", but after 3 treatments I've lost about 60%. I feel pretty crappy the first week, but pretty good the second week. But not worst case scenario, to my surprise no nausea, but some chemobrain, fatique, slight headaches, slight digestive issues. Although it is better than TC and AC, it is still chemo and I am not working. And it is 8 rounds every other week, so takes longer. Just wanted to let you know there was another option. Also depending on if you have ILC or IDC, two of my Drs. recommended skipping Tamoxifen and going to AIs, which are supposed to be more effective, especially for ILC. Sloan recommended Lupron for ovarian suppression, but I am going to get my ovaries removed. I've had two periods already on chemo, nothing can stop them.

Pleomorphic Multifocal LCIS, Extranodal Extension, Lymphovascular Invasion. TE removed due to infection Dx 8/15/2019, ILC, Right, 2cm, Grade 3, 2/5 nodes, ER+/PR+, HER2- Dx 8/15/2019, LCIS, Right, 6cm+, Grade 3, ER+/PR+, HER2- Surgery 9/23/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/1/2019 CMF Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Jan 24, 2020 05:47AM Marguin wrote:

Hi, does anyone have info on how/why a BC surgeon decides how many lymph nodes to remove during a mastectomy?

Log in to post a reply

Jan 24, 2020 09:32AM Peregrinelady wrote:

With me, they injected a dye that goes to the sentinel node (where the cancer usually spreads first). My first node was clear, but the surgeon took the 2nd node as well, and it had micromets. Has anyone mentioned the sentinel node biopsy to you? Some surgeons take more, but I am not sure what they base that on.
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/17/2016 Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/30/2016 Arimidex (anastrozole)

Page 74 of 74 (2,203 results)