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Topic: TE TROUBLE

Forum: Breast Reconstruction —

Talk with others facing decisions about whether or not to have breast reconstruction, and if so, what type and when.

Posted on: Jul 16, 2011 11:00AM - edited Feb 5, 2020 01:58PM by Rennasus

Rennasus wrote:

I've been inducted into yet another "club" — the TE TROUBLE CLUB — and wanted to start a thread specifically for all of us out there dealing with tissue expander problems. There are many of us out there who develop complications with our tissue expanders, including (but not limited to) the following: necrosis; infection; cellulitis; swelling; lymphedema; redness; rash; rejection; delayed healing; pin holes; sebum leakage; expander leakage ... oh, the list goes on! There are many compassionate women on this thread who have dealt with all of this — and more. (Just look at the surgery list below!) Whatever your troubles with your tissue expander(s), we'd love to hear from you. Ladies who had TE Trouble and are on the other side of reconstruction are also encouraged to share your stories ... it helps everyone to know we will get there one day! UPDATE: As I write this (FEB 2020), it's been 9 years since I started this journey. Hard to believe! If I hadn't blogged about my experience, I would have forgotten most of the details of what I went through. So let that be hope for anyone going through this: As time goes by, you will forget. (Kinda like childbirth!) You can read my BC story here: https://thebigcandme.blogspot.com/2011/04/joining-cancer-club.html

*********** TE TROUBLE MEMBER SURGERIES IN 2011 ************

  • JULY 6, 2011: Rennasus: (right TE removed due to delayed incision healing)
  • AUG. 11, 2011: MondaysChild: (both TE's removed & replaced)
  • NOV. 4, 2011: Fluffqueen01: (exchange to squishies)
  • NOV. 10, 2011: MondaysChild: (exchange to squishies)
  • NOV. 11, 2011: MTnester (left TE removed, new one put in)
  • NOV. 14, 2011: Chickadee521 (exchange to squishies)
  • NOV. 30, 2011: Momof3infla (right TE put back in)
  • DEC. 1, 2011: Rennasus (right TE put back in after 5 months being out)
  • DEC. 20, 2011: Tatina123 (right TE put back in)
  • DEC. 22, 2011: Katarina (exchange to squishies)
  • DEC. 23, 2011: JBennett38 (exchange to squishies)

*********** TE TROUBLE MEMBER SURGERIES IN 2012 ************

  • JAN. 6, 2012: Survivor11 (left TE put back in)
  • JAN. 6, 2012: Sundermom (TE put back in)
  • JAN. 7, 2012: Debbiey (right TE put back in)
  • JAN. 17, 2012: DM13 (TE removed due to necrosis)
  • JAN. 2012: Moonflwr912: (left TE removed due to infection)
  • JAN. 25, 2012: Krystalrose (right TE removed due to infection)
  • JAN. 27, 2012: Beebop (both TEs removed due to infection)
  • FEB. 2, 2012: MarcyK (left TE replaced)
  • FEB. 3, 2012: MRochon (Salpingo-oophorectomy)
  • FEB. 7, 2012: Mich_M (exchange to squishies)
  • FEB. 7, 2012: MTnester (exchange to squishies)
  • FEB. 9, 2012: Olgah34 (Left TE being exchanged due to leakage)
  • FEB. 14, 2012: DLL66: (adjustable saline implant put in)
  • FEB. 24, 2012: SpecialK (exchange to squishies)
  • FEB. 27, 2012: Chickadee521 (revision to lefty & fat grafting)
  • MAR. 1, 2012: MKW1 (left TE put back in)
  • MAR. 20, 2012: Evebarry (exchange to squishies)
  • MAR. 21, 2012: Olgah34 (Left TE removed due to infection)
  • MAR. 30, 2012: fluffqueen01 (nips, lipo, fat grafting)
  • APR. 17, 2012: DM13 (right TE put back in)
  • APR. 23, 2012: Psalms91 (right TE put back in; hysterectomy)
  • APR. 23, 2012: JBennett38 (tattoos)
  • APR. 24, 2012: Greenmonkey (both TE's replaced)
  • APR. 26, 2012: Sundermom (exchange to squishies & fat grafting)
  • MAY 8, 2012: Bonseye (Left TE exchanged to squishy; right TRAM)
  • MAY 12, 2012: Survivor11 (exchange to squishies)
  • MAY 15, 2012: 1Curlyfry (new TE being put back in)
  • MAY 16, 2012: Momof3infla (exchange to squishies)
  • MAY 23, 2012: Erika8 (implant and reduction)
  • MAY 23, 2012: GreenMonkey (left TE being replaced)
  • MAY 29, 2012: Tatina123 (exchange to squishies & fat grafting)
  • JUNE 4, 2012: MTnester (revision surgery: out with the silicone, in with the saline)
  • JUNE 5, 2012: 1Curlyfry (new TE taken out due to staph infection again)
  • JULY 2, 2012: Orange73 (right TE removed)
  • JULY 3, 2012: BCAvenger (complete revision surgery, including new TEs)
  • JULY 6, 2012: Roadwarrior28 (left TE removed)
  • JULY 9, 2012: Orange73 (left TE removed)
  • JULY 12, 2012: LisaMarie68 (exchange to squishies)
  • JULY 17, 2012: Chickadee521 (nips)
  • JULY 17, 2012: Binc (right TE removed due to infection)
  • JULY 19, 2012: GreenMonkey (exchange to squishies)
  • AUG. 7, 2012: DLL66 (exchanging saline for silcone)
  • AUG. 12, 2012: Survivor11 (nips)
  • AUG. 14, 2012: Moonflwr912 (left TE replaced)
  • AUG. 22, 2012: Blessings2011 (exchange to squishies)
  • AUG. 24, 2012: CMartin (exchange to squishies)
  • AUG. 27, 2012: jill47 (bilateral incision repair)
  • AUG. 30, 2012: Layla2525 (exchange to squishies)
  • AUG. 30, 2012: Katarina (right implant removed due to delayed healing)
  • SEPT. 4, 2012: Dunesleeper (exchange to squishies)
  • SEPT. 5, 2012: Rennasus (exchange to squishies)
  • SEPT. 5, 2012: ShaeG45 (exchange to squishies)
  • SEPT. 6, 2012: Mkw1 (exchange to squishies)
  • SEPT. 7, 2012: BCavenger (exchange to squishy on right side due to leaky TE)
  • SEPT. 10, 2012: Moonflwr912 (left TE removed due to infection)
  • SEPT. 10, 2012: GreenEyes57 (exchange to squishies)
  • SEPT. 11, 2012: Rosetx (exchange to squishies)
  • SEPT. 21, 2012: FluffQueen01 (final fat grafting)
  • SEPT. 24, 2012: GreenMonkey (redoing implants with Alloderm)
  • OCT. 18, 2012: DigitalCowgirl (exchange to squishies)
  • OCT. 18, 2012: Tatina123 (tattoo consult with Vinnie)
  • OCT. 25, 2012: LynMichel (exchange to squishies)
  • NOV. 8, 2012: LynMichel (staph infection; implant removed)
  • NOV. 12, 2012: Survivor11 (tattoos)
  • NOV. 14, 2012: Redninrah (TE replaced in May, removed in Nov; delayed healing)
  • NOV. 27, 2012: akrazykat (both TEs removed due to infection)
  • DEC. 5, 2012: chrisrenee77 (exchange to squishies)
  • DEC. 6, 2012: Momof3infla (nips)
  • DEC. 6, 2012: Momof3infla (nips)
  • DEC. 7, 2012: Bonseye (tattoos)
  • DEC. 7, 2012: DLL66 (nips)
  • DEC. 7, 2012: LeeA (TE removed & replaced due to infection)
  • DEC. 12, 2012: tfee (exchange to squishies)
  • DEC. 13, 2012: GreenMonkey (fat grafting & tattoos)
  • DEC. 14, 2012: SpecialK (fat grafting)
  • DEC. 14, 2012: Chickadee52 (tattoos)

*********** TE TROUBLE MEMBER SURGERIES IN 2013 ************

  • JAN. 8, 2013: Binc (Right TE put back in)
  • JAN. 9, 2013: 1Curlyfry (TE put back in)
  • JAN. 11, 2013: RoadWarrior28 (left TE put back in)
  • JAN. 16, 2013: jill47 (exchange to squishies)
  • JAN. 22, 2013: Olgah34 (Left TE put back in with Latissimus Dorsi)
  • JAN. 30, 2013: DM13 (exchange to squishies)
  • FEB. 14, 2013: Beth1951 (exchange to squishies following TE infection)
  • APR 18, 2013: olgah34 (exchange to squishies)
  • MAY 1, 2013: 1Curlyfry (exchange to squishies)
  • MAY 24, 2013: SheChirple (DIEP!)
  • MAY 30, 2013: melmcbee (exchange to squishies)
  • JUN 5, 2013: patriciahurtado (TE removed)
  • JUN 6, 2013: not-me (exchange to squishies)
  • JUN 11, 2013: Kathymc (exchange to squishies)
  • JUN 14, 2013: psalms91 (exchange to squishies)
  • JUN 18, 2013: roadwarrior28 (exchange to squishies)
  • JUN 18, 2013: LeeA (both TEs replaced)
  • JUN 27, 2013: Mondayschild (right implant ruptured; both implants replaced)
  • JULY 8, 2013: Kathymc (right implant removed due to infection)
  • JULY 10, 2013: andrea623 (exchange to squishies)
  • JULY 24, 2013: SheaJ (exchange to squishies)
  • JULY 24, 2013: Lesley0417 (both TEs replaced due to infection)
  • AUG. 8, 2013: jnprsn (right TE removed due to seroma, fluid buildup at drain site & infection)
  • Aug 14, 2013: Momof3infla: (left side revision)
  • Aug 14, 2013: Moonflwr912: (left TE being put back in after being out a year due to infection)
  • Sept 4, 2013: Moonflwr912 (surgery to replace drain)
  • Sept 4, 2013: Michele2013 (exchange to squishies; had TE placed after radiation was completed)
  • Sept 4, 2013: Lesley0417 (back in hospital due to another infection)
  • Sept 5, 2013 Lucky777 (exchange, bilateral breast lifts and extensive pocket work)
  • Sept 10, 2013: Hotpinkmess (Cipro for pseudomonas; Lat Flap w/TE)
  • Sept 25, 2013: Mamasixtaz: (exchange to squishies)
  • Oct 18, 2013: Binc: (exchange to squishies following infection, TE removal and replacement)
  • Oct 25, 2013: purple87 (surgery to close wound after TE placement)
  • Nov 5, 2013: togetherness (exchange to squishes following cellulitis infection and fluid buildup)
  • Dec 3, 2013: goldie4040 (exchange to squishes after debridement and wound reclosure)
  • Dec 6, 2013: sandra4611 (exchange to squishes after infection)
  • Dec 6, 2013: Babs6287 (left TE removed due to rash/infection)
  • Dec 16, 2013: denise4603 (right TE removed due to excess fluid/infection)
  • Dec 18, 2013: Moonflwr912 (exchange to squishes after 2 yrs, multiple TEs and infection)
  • Dec 19, 2013: tangandchris (left TE removed due to necrosis & infection)
  • Dec 20, 2013: togetherness (implant removed due to fluid buildup, debrided and replaced)
  • Dec 31, 2013: Bobogirl (left TE removed due to infection)

*********** TE TROUBLE MEMBER SURGERIES IN 2014 ************

  • May 23, 2014: Galsal (implant being replaced due to car accident)
  • Jan 2, 2014: Purple87 (bilateral latimus dorsi flap after delayed healing following TE placement)
  • Jan 10, 2014: denise4603 (left TE removed due to excess fluid/infection)
  • Jan 14, 2013: togetherness (both implants removed due to rejection)
  • Jan 19, 2014: sherriR6379 (left TE removed due to excess fluid leakage)
  • Jan 22, 2014: denise4603 (received wound vac due to open wound healing)
  • Jan 27, 2014: tangandchris (both TEs removed due to infection)
  • Jan 31, 2014: Babs6287 (fat grafting on left side after TE removal in Dec 2013 due to rash/infection)
  • Feb 7, 2014: Purple87 (latimus dorsi flap incision infection; surgery to repair)
  • Feb 11, 2014: SchoolCounselor (left TE removed due to infection)
  • Mar 4, 2014: Naiviv (left TE removed due to infection)
  • Mar 5, 2014: Bobogirl (right TE removed due to infection)
  • Mar 7, 2014: SpecialK (revision: replacing dermal matrix bilaterally)
  • Mar 15, 2014: Purple87 (right TE removed due to fistula and delayed healing after LAT Flap)
  • Mar 19, 2014: jnprsn (TE replaced after removal following infection)
  • Mar 19, 2014: AnnieeC (TE re-do due to capsular contracture)
  • Mar 21, 2014: Lakegirl1 (hospitalized for staph infection; TE replaced; developed hives from hibiclens)
  • Apr 4, 2014: SpecialK (implant removed due to infection and healing issues; smaller implant placed)
  • Apr 9, 2014: SpecialK (implant removed)
  • Apr 16, 2014: theBCavenger (formerly DM13) (revision surgery: fat grafting and Alloderm)
  • Apr 21, 2014: Lissab (TE removed due to infection and excessive fluid output)
  • Apr 25, 2014: NJmomof3 (left TE removed, new one placed due to staph infection)
  • Mar 19, 2014: Purple87 (right TE put back in)
  • May 22, 2014: Babs6287 (fat grafting)
  • June 24, 2014: Galsal (left TE replaced; damaged in car accident)
  • June 25, 2014: SharonS (TE replaced...3rd time's the charm!)

***********************

  • Diagnosis: 12/8/2010, IDC, 3cm, Stage 2A, Grade 1, 0/8 nodes, ER+/PR+, HER2- History: BMX & TE 2/3/11; ONCOTYPE SCORE: 16. Three incision revisions (2/19/11, 3/28/11, 4/26/11); right TE removed (delayed healing) 7/6/11; right TE replaced 12/1/2011; exchange 9/5/12. Took Tamoxifen Mar 2011-Sep 2013; took Letrazole (Femara) Nov 2013-Apr 2016. In Feb 2016 I took the Breast Cancer Index (BCI) test which came back that I had a LOW risk of late recurrence between years 5-10 (my score: 1.8% risk) and a LOW likelihood of benefit from extended endocrine therapy. That's why I stopped hormonal treatment at the 5-year mark (April 2016). Photos of my healing issues are on my blog (thebigcandme.blogspot.com); search for "DELAYED HEALING" and "GIVING UP THE GHOST" posts. To read my BC journey from the beginning, start with my oldest blog post "Cancer Club" thebigcandme.blogspot.com/2011... then work your way backwards. :-)
BMX & TE 2/3/11; incision revisions 2/19/11, 3/28/11, 4/26/11; right TE removed 7/6/11; put back 12/1/11; exchange 9/5/12. Tamoxifen 3/2011-9/2013; Femara 11/2013-4/2016. BCI test 2/2016. Blogging at: thebigcandme.blogspot.com/ Dx 12/8/2010, IDC, Right, 3cm, Stage IIA, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/3/2011 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/3/2011 Lymph node removal: Right, Sentinel, Underarm/Axillary Surgery 2/19/2011 Reconstruction (right) Hormonal Therapy 3/24/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/28/2011 Reconstruction (right) Surgery 4/26/2011 Reconstruction (right) Surgery 7/6/2011 Reconstruction (right) Surgery 12/1/2011 Reconstruction (right): Tissue expander placement Surgery 9/5/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/1/2013 Femara (letrozole)
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Posts 8761 - 8788 (8,788 total)

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May 4, 2019 08:55PM - edited May 5, 2019 03:27PM by rrshannon

Hi everyone, did anyone have to have there TE taken out due to large hematoma then put back in later ? My TE had to be taken out 5 hours postop and we will be adding it back 2 months later.

BRCA Negative. Dx 7/2/2003, ILC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 7/11/2003 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 7/23/2003 AC Radiation Therapy 10/30/2003 Dx 12/11/2018, IDC, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Chemotherapy 1/16/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/15/2019 Lymph node removal: Right; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right) Hormonal Therapy 5/9/2019 Femara (letrozole) Surgery 6/16/2019 Reconstruction (right): Tissue expander placement Surgery 9/22/2019 Reconstruction (left): Fat grafting, Saline implant; Reconstruction (right): Fat grafting, Saline implant
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May 10, 2019 01:07PM ygbowl wrote:

I received a Double Mastectomy with Reconstruction in Jan 2019. I have been going back and forth to the PS every 2 weeks to get my expanders filled since then . My right was always distorted looking with a crease in the bottom. He said it would fill out eventually. ( It didnt) After the first fill. I begin to develop fluid around each breast that had to be drained. Well now months later it looks like both expander are leaking. I wondered why I couldn't get to the large size that I wanted. I am so disappointed and sad. My PS (who is very nonchalant about it ) said I could have the expanders replaced or just have surgery to place the implants and maybe go bigger later. I don't know what to do. I'm so tired of it all after Chemo the Double Mastectomy. I just want my life back to normal and I need to get back to work. I have been off since Aug. Any advice is welcomed. Take care and God bless you all that are going through this awful journey


Dx:TNBC July 26,2018, Port Placement and Chemo Aug through Nov 2018, Double Mastectomy with Reconstruction Jan 2019

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Jun 29, 2019 03:40PM - edited Jun 30, 2019 02:21PM by JulieSim

This Post was deleted by JulieSim.
Dx 3/18/2019, DCIS, Right, 6cm+, Stage 0, Grade 2 Surgery 5/10/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 7/23/2019 Surgery 6/1/2020 Reconstruction (right): Silicone implant
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Jun 30, 2019 05:40PM Moonflwr912 wrote:

rrshannon, I had my left removed due to infection. Its lucky this is not a race, because sonetimes it takes more time than we plan. As dissappointing as it is, you WILL get there. Hugs.

Ygbowl, what a position to be in. Ugh. If you want bigger implants i suggest take the slow route and get replacement TEs. If you get squishies in a smaller size, there could be some insurance issues, as it could be considered cosmetic if you go bigger. Replacing the TEs count as continuing care. Not really sure, but you dont want a nasty surprise!

Much love

Sometimes life SUCKS! Sometimes it doesn't. I prefer when it doesn't! If you're ever bored, read my biography. Bring snacks..... LOL Monica Dx 11/11/2011, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (FISH) Dx 12/8/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ Surgery 12/8/2011 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/17/2012 Reconstruction (left) Targeted Therapy 2/16/2012 Herceptin (trastuzumab) Chemotherapy 2/16/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/13/2012 Reconstruction (left): Tissue expander placement Hormonal Therapy 8/20/2012 Arimidex (anastrozole) Surgery 9/10/2012 Reconstruction (left) Surgery 8/14/2013 Reconstruction (left): Tissue expander placement Surgery 9/4/2013 Reconstruction (left) Surgery 12/13/2013 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant
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Jul 4, 2019 12:46PM - edited Jul 4, 2019 02:36PM by JulieSim

Hi all,

I am looking for some advice with my subpec TE. I will be starting radiation therapy in a few days, so I am short of time to make a decision. Last TE expansion from 540 to desired 600ml made me uncomfortable, with lots of pain and pressure. I can either leave it and hope for the best, or take some saline from the expander prior to my planning CT. After the CT changes to expander cannot be made..

If someone has been through radiation with TE, could you please share your experience? My nurse is suggesting it might get better as time goes by, but I am wondering what usually shrinks during radiation- my skin, or expander, or both?

I also have scoliosis, so my nights have been very uncomfortable.

Thank you!

Dx 3/18/2019, DCIS, Right, 6cm+, Stage 0, Grade 2 Surgery 5/10/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 7/23/2019 Surgery 6/1/2020 Reconstruction (right): Silicone implant
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Jul 4, 2019 05:06PM Jaybird627 wrote:

Hi JulieSim,

I had radiation on my TE side with no issues. My TE was not subpec though. I had TE replaced with implant 6 months later, also over pec.

My skin recovered just fine. Radiologists said the TE somewhat protected the skin?

Good luck!

Jaybird. My hopes are not always realized, but I always hope - Ovid. Surgery 3/4/2005 Lumpectomy; Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Dx 3/5/2005, IDC, Right, Stage IIB, Grade 2, ER+/PR+, HER2-
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Jul 4, 2019 09:56PM JulieSim wrote:

Rhank you Jaybird. Hopefully it will be my case too.

Dx 3/18/2019, DCIS, Right, 6cm+, Stage 0, Grade 2 Surgery 5/10/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 7/23/2019 Surgery 6/1/2020 Reconstruction (right): Silicone implant
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Jul 29, 2019 11:59PM Moonflwr912 wrote:

julie, wondrring how you are doing. And thx jaybird for answering.

Much love

Sometimes life SUCKS! Sometimes it doesn't. I prefer when it doesn't! If you're ever bored, read my biography. Bring snacks..... LOL Monica Dx 11/11/2011, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (FISH) Dx 12/8/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ Surgery 12/8/2011 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/17/2012 Reconstruction (left) Targeted Therapy 2/16/2012 Herceptin (trastuzumab) Chemotherapy 2/16/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/13/2012 Reconstruction (left): Tissue expander placement Hormonal Therapy 8/20/2012 Arimidex (anastrozole) Surgery 9/10/2012 Reconstruction (left) Surgery 8/14/2013 Reconstruction (left): Tissue expander placement Surgery 9/4/2013 Reconstruction (left) Surgery 12/13/2013 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant
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Jul 31, 2019 01:23PM JulieSim wrote:

Moonflwr - thank you for asking. I was actually very close to canceling my planning CT date and I have already booked an appointment to take some volume from the expander, it wasn't recommended by PS but I was in so much pain and discomfort that I didn't really care. And then, literally two days prior to the appointment, I was at the back seat of my car with my little one, and she (totally by accident of course) hit my breast and displaced the expander. Believe me or not, it moved to a perfect position, leaving me with sore pec muscle but totally without nerve pain! It was later confirmed at my doctor's office that the expander has actually moved. I did my planning CT on time and started radiation therapy week.

So if someone need to adjust expander placement, feel free to contact my daughter, she know what to do..

Dx 3/18/2019, DCIS, Right, 6cm+, Stage 0, Grade 2 Surgery 5/10/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 7/23/2019 Surgery 6/1/2020 Reconstruction (right): Silicone implant
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Sep 5, 2019 11:02PM Moonflwr912 wrote:

So happy to hear it cleared up, although I wouldnt reccommend that particular way! LOL!

Sometimes life SUCKS! Sometimes it doesn't. I prefer when it doesn't! If you're ever bored, read my biography. Bring snacks..... LOL Monica Dx 11/11/2011, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (FISH) Dx 12/8/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ Surgery 12/8/2011 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/17/2012 Reconstruction (left) Targeted Therapy 2/16/2012 Herceptin (trastuzumab) Chemotherapy 2/16/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/13/2012 Reconstruction (left): Tissue expander placement Hormonal Therapy 8/20/2012 Arimidex (anastrozole) Surgery 9/10/2012 Reconstruction (left) Surgery 8/14/2013 Reconstruction (left): Tissue expander placement Surgery 9/4/2013 Reconstruction (left) Surgery 12/13/2013 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant
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Oct 19, 2019 06:11PM Luckymomof4 wrote:

I am 4 weeks post op from a bilateral mastectomy with TEs. I had my second fill yesterday and my rightTE today has shifted/rotated completely. I felt a pop and some pain and immediately knew something was wrong. I did contact my PS who said it's not an emergency but he will see me Wednesday (that's when he does clinics at Moffitt) Has anyone had this happen nd what was the solution if any? The magnet used to be at the top of my breast and is now at the bottom, most of the liquid has risen to the top and pushed into my upper chest near my collarbone....the bottom below the incision is flat and with little saline. I am completely lopsided and have a marginal amount of pain (just when I was feeling a little like ,self again🙁)

I admittedly am freaking about the possibility of another surgery so soon. Anyone have any input?

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Oct 31, 2019 07:51AM Ldershaw wrote:

I just found out this week that my TE rotated. It scared me..will i need another surgery? Going to see PS next week

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Jan 22, 2020 02:17AM CENOK2017 wrote:

Did any of you feel TE was too high on chest? And, if so, was implant lower?

Thanks in advance

Dx 1/2/2018, IDC, Right, 6cm+, Stage IIB, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Radiation Therapy
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Jan 22, 2020 06:26AM LiveLoveLaugh2020 wrote:

CENOK yes the TE's sit very high compared to implants. I just had my exchange surgery a little less than 2 weeks ago and after exchange your implant will not be as high. I almost miss how they sat lol just not how uncomfortable they were!! :)

DCIS Dx @ 34 - Bil NSM 09/2019 - Bil implant exchange with FG 01/2020.
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Jan 22, 2020 07:23PM CENOK2017 wrote:

Live, Laugh, Love 2020,

Thanks so much for your reply....I was freaking out a little!

I’m happy your exchange is over! Did you have drains? I forgot to ask my PS.


Carol

Dx 1/2/2018, IDC, Right, 6cm+, Stage IIB, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Radiation Therapy
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Jan 22, 2020 08:22PM LiveLoveLaugh2020 wrote:

You're welcome. No drains...I was told to expect them as to not be disappointed but don't be surprised if you don't have them. I was soooo happy when I woke up lol So I hope no drains for you too.

DCIS Dx @ 34 - Bil NSM 09/2019 - Bil implant exchange with FG 01/2020.
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Jan 24, 2020 11:31AM Moderators wrote:

Hi All,

One of our writers, Cheryl, would like to talk to people who has had a great caregiver they could speak on behalf of following a mastectomy with reconstruction. OR, directly talk with the caregiver themselves. This information would be so helpful to writing the piece she is working on. Please PM us if you are interested, or your caregiver.

Many, many thanks!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Feb 5, 2020 01:02PM Rennasus wrote:

Hi Ladies, it has been a while since I checked in here at BCO! 9 years ago (on Feb 3, 2011), I had my double mastectomy with Tissue Expanders placed, and my journey with TE trouble began soon thereafter. To all who are starting on this road, or are stuck in the middle of it, don't despair! It takes time but it will work itself out in the end. There is help here: Ask questions. Gather advice. Make decisions. Repeat. Sending hugs to all!

-Renn

BMX & TE 2/3/11; incision revisions 2/19/11, 3/28/11, 4/26/11; right TE removed 7/6/11; put back 12/1/11; exchange 9/5/12. Tamoxifen 3/2011-9/2013; Femara 11/2013-4/2016. BCI test 2/2016. Blogging at: thebigcandme.blogspot.com/ Dx 12/8/2010, IDC, Right, 3cm, Stage IIA, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/3/2011 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/3/2011 Lymph node removal: Right, Sentinel, Underarm/Axillary Surgery 2/19/2011 Reconstruction (right) Hormonal Therapy 3/24/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/28/2011 Reconstruction (right) Surgery 4/26/2011 Reconstruction (right) Surgery 7/6/2011 Reconstruction (right) Surgery 12/1/2011 Reconstruction (right): Tissue expander placement Surgery 9/5/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/1/2013 Femara (letrozole)
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Feb 8, 2020 03:35AM - edited Feb 8, 2020 03:36AM by CENOK2017

Hi Live, Love, Laugh,

It's me again about how high my TE is. It sits almost up to my clavicle! Was yours THAT high? Am disappointed cuz exchange has been delayed by two days. How is your implant feeling?

Caro

Dx 1/2/2018, IDC, Right, 6cm+, Stage IIB, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Radiation Therapy
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Feb 8, 2020 05:21AM - edited Feb 8, 2020 05:22AM by LiveLoveLaugh2020

Hi Cenok,

I don't remember if they exactly sat there but it pretty much felt like it. So high and perky and uncomfortable.

Don't worry your implant will not be that high! I kind of miss how perky/high mine were lol (but definitely not the torture associated with it).

My implants feel pretty good. They felt amazing the first two weeks so comfortable compared to the TE's but lately they feel a little hard/pain twinges. But I don't notice them much and they don't bother me until I'm trying to sleep. So I guess I can't complain :)

I'm sorry that your surgery has been delayed. Thankfully it is only by a couple days although I'm sure it's still upsetting. I hope all goes well. Keep us updated :)

DCIS Dx @ 34 - Bil NSM 09/2019 - Bil implant exchange with FG 01/2020.
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Feb 28, 2020 01:34PM puredust wrote:

Hi, Dear ladies,

First time here. Can anybody share your experience if you got TE removed due to infection? How long did you wait to have another try and did you still try TE or try tissue flap? In my case, I had left side skin/nipple spare mastectomy immediately followed by TE placement on 12/30/19, all were well (no need for chemo or radiation) until I got infection and had new TE replaced on 2/3/20. Unfortunately three weeks later lots of fluids coming out of my nipple area even though I am on ABX, therefore my PS removed the TE on 2/25/20. Now I am flat. PS said I could try after the left breast was completely heeled. Some document online says if a patient has complication during TE, she will also have high risk to encounter complications after the implant, so I highly doubt if I want to try this again. Appreciate if you share your experience.

Thanks!

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Feb 28, 2020 01:59PM JRNJ wrote:

Puredust, my TEs were removed on October 30 due to infection. At the time I searched "TE infection" and found a lot threads with the topic. I also find sometimes searching google provides better results for this website. There were a lot of people that experienced this and were successful later with implants. My issue is I'm doing chemo and radiation. I was going to try putting expanders back in, in between chemo and radiation. After consulting with another PS and thinking about it, I decided to do DIEP with possible small implants after. I don't want to delay radiation and the skin can't be expanded after. They won't do DIEP until 6 months after radiation. I'm going to try and gain weight to avoid implants. If you are not doing radiation, you still have more options. I'm looking at it as a blessing in disguise. I was rushed into making a decision, than after I had more time to research and think. There are also several threads on above or below the muscle, which my surgeon did not discuss with me prior to placement. Mine were above the muscle. My Dr. tested my infection, it was pseudomonas, a hospital infection.

Pleomorphic Multifocal, Extra nodal Extension, Lymphovascular Invasion. TEs removed due to infection Dx 8/15/2019, LCIS, Right, 6cm+, Grade 3, ER+/PR+, HER2- Dx 8/15/2019, ILC, Right, 2cm, Grade 3, 2/5 nodes, ER+/PR+, HER2- Surgery 9/24/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/2/2019 CMF Radiation Therapy 3/30/2020 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/4/2020 Aromasin (exemestane) Hormonal Therapy 8/6/2020 Arimidex (anastrozole) Surgery 8/25/2020 Prophylactic ovary removal Surgery 1/29/2021 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/10/2021 Femara (letrozole)
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Feb 28, 2020 02:45PM puredust wrote:

@JRNJ, thank you for the suggestion! Let me do some google search w/ the key word.

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Dec 7, 2020 11:31PM Divergent wrote:

Hi ladies, I'm hoping to get some advice about the problems with my TE. I finished radiation about 9 months ago and my skin looked ok up until 4 months ago. I ended up with a skin infection that was cleared up with antibiotics. But my skin started shrinking dramatically and hasn't seemed to stop. The bottom of my breast developed what looked like a blister. My PS says that the skin is thin and she recommended that I have my TE removed due to the possibility of infection and due to possible Covid restrictions on the number of surgeries in the next few weeks. She then said she could recommend other PSs to finish the reconstruction.

I just don't want to remove the TEs at this point. I feel like she just gave up on me and I don't feel she has my best interests in mind. I'd really like to get the DIEP flap procedure ASAP instead. But is that crazy to do because of Covid and the shrinking of my skin? I don't want to rush into this and get poor results. I've been talking with another PS that is willing to do the DIEP. I'm having trouble deciding what to do. Any thoughts or advice would be great.

Dx 6/2019, IDC, Right, ER+/PR+, HER2- (FISH) Chemotherapy 7/18/2019 AC + T (Taxol) Surgery 1/7/2020 Lumpectomy: Left; Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 2/6/2020 Whole-breast Surgery 3/2/2021 Reconstruction (right): DIEP flap, Fat grafting, Nipple reconstruction Immunotherapy 12/3/2021 Immunotherapy Keytruda (pembrolizumab) Hormonal Therapy Femara (letrozole)
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Dec 8, 2020 11:06PM - edited Dec 8, 2020 11:07PM by JRNJ

Divergent, you can read my post above for my history. I have diep scheduled for 1/7/21.I'm a little concerned they might delay my surgery due to Covid But so far it's a go. I'm in kind of a hot spot in central Jersey. I hate the hospital and left last year with an infection but I'm hoping it was caused by the TEs not the hospital.

Pleomorphic Multifocal, Extra nodal Extension, Lymphovascular Invasion. TEs removed due to infection Dx 8/15/2019, LCIS, Right, 6cm+, Grade 3, ER+/PR+, HER2- Dx 8/15/2019, ILC, Right, 2cm, Grade 3, 2/5 nodes, ER+/PR+, HER2- Surgery 9/24/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/2/2019 CMF Radiation Therapy 3/30/2020 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/4/2020 Aromasin (exemestane) Hormonal Therapy 8/6/2020 Arimidex (anastrozole) Surgery 8/25/2020 Prophylactic ovary removal Surgery 1/29/2021 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/10/2021 Femara (letrozole)
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Dec 17, 2020 02:40PM bluewillowskys wrote:

so i dont have to read the whole thread....


Has anyone had successful implant AFTER rads with using TEs after the rads?

Yippy Skippy ! Dx 4/7/2011, DCIS, Right, 1cm, Stage 0, Grade 1, 0/0 nodes, ER+/PR+ Radiation Therapy 5/31/2011 Breast Hormonal Therapy 7/31/2011
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Dec 17, 2020 09:08PM MinusTwo wrote:

BLue - posted to your question on another thread. Search for fat grafting after rads to prep for implants

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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May 20, 2021 08:25PM JanetM wrote:

Had BMX in Nov 2020 with planned DIEP flap that failed during surgery so I ended up with TEs. Had some healing issues on the right side and a seroma formed that needed to be drained of 130cc of fluid but thankfully after culturing there was no infection. Skin on both sides was thin so a round of fat grafting was done prior to having any fills done. My first fill was finally at the end of April. I am now at 250cc on both sides but the right side is very tight and hard while the left is soft. At my fill last week my PS said that he might need to go in and remove some scar tissue that has built up around the right expander. Not sure how that can be done without taking that expander out and then having to start over again.

DCIS 10/2020 Bilateral Mastectomy Lumpectomy 5/24/11 - LCIS, ALH and ADH and SAH/BSO - 8/10/11 Dx 5/25/2011, LCIS, Left, 0/0 nodes

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