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Topic: Stage III Cancer Survivors...15+ years and out

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Nov 22, 2015 11:02AM

weesa wrote:

Let's just see what happens here...This is a "build it and they will come" experiment. It's time.

If you are not a 15 year survivor but know the story of someone who is, please join in.

Sometimes I wonder if I am an old soul temporarily trapped in a breast cancer body. Dx 11/22/2002, IDC, 6cm+, Stage IIIA, Grade 2, 5/25 nodes, ER+/PR+, HER2- Chemotherapy 1/20/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/14/2003 Breast, Lymph nodes Hormonal Therapy 8/23/2003 Femara (letrozole) Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap
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Posts 151 - 180 (204 total)

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Dec 18, 2018 05:05PM Nadiap wrote:

Hi everyone,

I was diagnosed as 3C in Aril 2017 at 34.

Like @Lianakalb says it gives so much hope to read such stories.

Being so young and listening to oncologists saying you have 50% or less to make it to 10 years, is really tough to get your head around and figure out how to keep going on as a normal young person.

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Dec 23, 2018 10:57AM - edited Dec 23, 2018 10:59AM by Gapeach13

Hello everyone!

Thought I would add myself to this list as I made it to the 15 year mark earlier this year.

We ARE out here. Hugs to all of you and blessing into the next year.

Ruth

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Dec 23, 2018 01:32PM beeline wrote:

Thanks Ruth! Amazing milestone! Thank you for sharing the hope. Have a wonderful holiday. xx.


American in NZ. Dx’d at 42. Had to stop Taxol after #6 due to neuropathy. Randomised to control group in MonarcheE trial 😩 Dx 7/17/2018, IDC, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 8/2/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Dx 8/21/2018, DCIS/IDC/Paget's, Right, 2cm, Stage IIIC, Grade 2, 10/22 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 9/18/2018 AC + T (Taxol) Hormonal Therapy 2/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/25/2019 Whole-breast: Lymph nodes, Chest wall
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Jan 21, 2019 10:04PM Carolehebert wrote:

Hi i was wondering if you are still on antihormonal drugs.I also had stage 3,9 nodes and they want me on it forever .I am on Tamoxifen now almost 7 years .I wish so much i could stop but what if ...

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Jan 22, 2019 05:43AM NoteRed wrote:

its such a relief to hear from you all...I'm getting to one year - point of no return - so I m getting a little scare....

Dx 2/2/2018, ILC, Left, 1cm, Stage IIA, Grade 3, 7/17 nodes, ER+/PR+, HER2- (SPOT) Surgery 2/22/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 3/26/2018 Taxol (paclitaxel) Chemotherapy 6/28/2018 CEF
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Jan 31, 2019 10:36PM Imlalaland wrote:

great attitude!


Lori
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Feb 1, 2019 05:48AM countca04 wrote:

Weesa: thank you for sharing. Just finishing AC treatment #4, yesterday and then will begin twelve weeks of Taxol. It's been a change of everything in my life when I thought like my mom who just turned 92 I had 30 years and now I just look at the next five years ahead. So your post gives me much HOPE that this cancer can be beat and I will be here to live with my wonderful husband and two adult daughters that I adore. Breast cancer is a life changer::: I don't have the energy to sweat the small stuff, I must continue exercises. And eating well!! So much encouragement from these posts! Thank God! Today I can't seem to get out of bed because I'm so exhausted and lack energy but I know three days from now I will feel better!!!





Dx 11/5/2018, IDC, Right, 1cm, Stage IIIA, Grade 3, ER+/PR+, HER2+ (IHC) Chemotherapy 12/16/2018 AC + T (Taxol) Radiation Therapy 3DCRT: Breast, Lymph nodes, Chest wall Surgery
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Feb 9, 2019 07:51PM hopefour wrote:

Thank you to all for the encouragement!! Wessa once again you put a smile on my face and fill my heart with hope that maybe I'll get to 16!! Cheering us all on to 16 years and beyond!!

Dx 5/2011, IDC, 1cm, Stage IIIA, Grade 1, 4/22 nodes, ER+/PR+, HER2-
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Feb 16, 2019 03:30PM Beatthis wrote:

Sugarplum - i have a very similar diagnosis to you, diagnosed 48 years old November 17, 2cm idc grade 3 her2- with 10/30 lymph nodes affected! Mastectomy left breast and lymph node removal, chemo, radiotherapy and ovary removal, taking Femara letrozole! It gives us newbies so much hope to see that we can still have the chance to lead normal lives after such a scary diagnosis, thanks so much to all you lovely ladies who take the time to help others like myself not to feel doomed and so alone, it really does help so much xxx

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Feb 18, 2019 10:57AM mpetago wrote:

Hooray, I get to post here officially today!!! 15 years NED 😃😊😁 So incredibly grateful to be here posting this today ❤️


Dx 2/18/2004, IDC, 6cm+, Stage IIIA, Grade 3, 1/11 nodes, ER+/PR-, HER2- Surgery 2/22/2004 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): DIEP flap Chemotherapy 4/1/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/15/2004 Breast Hormonal Therapy 1/1/2005
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Feb 18, 2019 04:06PM IAmElaine wrote:

Gapeach13 and mpetago, thanks for posting your HUGE 15 year milestones! WooooHooooo! A big congratulations to both of you!

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Feb 18, 2019 06:18PM beeline wrote:

mpetago - amazing!! Congratulations and thank you so much for coming back and spreading the hope!!!

American in NZ. Dx’d at 42. Had to stop Taxol after #6 due to neuropathy. Randomised to control group in MonarcheE trial 😩 Dx 7/17/2018, IDC, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 8/2/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Dx 8/21/2018, DCIS/IDC/Paget's, Right, 2cm, Stage IIIC, Grade 2, 10/22 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 9/18/2018 AC + T (Taxol) Hormonal Therapy 2/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/25/2019 Whole-breast: Lymph nodes, Chest wall
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Feb 18, 2019 07:12PM wallan wrote:

Me too now.

15 years! NED from grade 3, stage 3 hormone positive!

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 18, 2019 09:33PM mpetago wrote:

Hooray wallan!!!! We're still here and doing great!! 😊🤗

Dx 2/18/2004, IDC, 6cm+, Stage IIIA, Grade 3, 1/11 nodes, ER+/PR-, HER2- Surgery 2/22/2004 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): DIEP flap Chemotherapy 4/1/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/15/2004 Breast Hormonal Therapy 1/1/2005
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Feb 19, 2019 03:13PM mpetago wrote:

Thank you so much ladies and as long as I'm here, I'll be back to post 😊


Dx 2/18/2004, IDC, 6cm+, Stage IIIA, Grade 3, 1/11 nodes, ER+/PR-, HER2- Surgery 2/22/2004 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): DIEP flap Chemotherapy 4/1/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/15/2004 Breast Hormonal Therapy 1/1/2005
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Feb 19, 2019 05:16PM Nas wrote:

please ladies, come back and tell us you are doing great, we so need it❤️❤️

Dx 12/5/2017, IDC, Right, 1cm, Stage IIA, Grade 1, 1/8 nodes, ER+/PR+, HER2- Surgery 12/13/2017 Mastectomy: Left, Right Radiation Therapy 2/6/2018 Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 19, 2019 08:54PM karen1956 wrote:

Not quite to 15 - This month is 13 years since diagnosis - there is life after BC!

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Feb 26, 2019 03:06PM bestrongforeveryone wrote:

hi everyone,

I am new to BC , just done surgery and waiting for Chemo and radiation etc. I read all your stories and feel so warm... it encourages me , I am sure I can do it, like all of you did, thank yo

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Mar 1, 2019 11:47AM IAmElaine wrote:

It was 15 years ago today that I received my diagnosis. I truly cannot believe it has been that long. I was 47 at the time and have seen my kids graduate from college, two received their Masters, they have all purchased homes and two have gotten married. We are expecting two grand babies this year as well. My husband and I have traveled quite a bit and we are so thankful for each and every day.

There is life after bc. Live and love large, ladies.

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Mar 1, 2019 02:35PM Fritzmylove wrote:

All of your posts bring me so much hope. I just finished neoadjuvant chemo and had my BMX. My pathology showed 4/7 nodes still positive, even though my 6cm breast tumor and sentinel node were completely negative for cancer cells. Is there a chance i could be posting on this thread in the future?

CHEK2+ Dx 9/19/2018, IDC, Right, 6cm+, Stage IIIA, Grade 2, ER+/PR+, HER2- Chemotherapy 10/1/2018 TAC Surgery 2/20/2019 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/4/2019 Femara (letrozole), Zoladex (goserelin) Radiation Therapy 4/22/2019 Whole-breast: Lymph nodes, Chest wall
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Mar 2, 2019 05:39PM maryds wrote:

Hi, thank you for sharing this wonderful story! Do you know if your friend's mom went through chemo for all 3 cancer?

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Mar 16, 2019 12:17PM Elderberry wrote:

IAmElaine -- you give me hope. I have just been diagnosed with Stage III, saw my surgeon yesterday and will be seeing the oncologist very soon. I don't know the size of the tumour (yet) because I know it's huge and was afraid to ask. I am a good candidate for all the stuff they can throw at it. I dread the thought of chemo but am anxious to get on with it and get it out of my body. I am so happy to find this forum. It is a great comfort and gives me such encouragement.

I am told I shouldn't kiss or pet my cat when I am undergoing chemo. That depresses me. I love my husband and he is so supportive (he offered to shave his head in support) but Aelfric, my kitty, also is so comforting. Bob will have to clean the litter box! Should I wear gloves and mask during kitty time? He sleeps on Bob's end of the bed.

Can anyone suggest how to manage a messy/cluttered house that is "mostly" clean. Kitchen and bathroom counters always wiped down. There are instruments, crafts stuff everywhere, books, CD's/vinyl. When I looked at preparing your house before chemo it looked like I should strip the place down until it looks like a monk's or nun's cell. Nothing but flat surfaces for disinfecting.

Let me know how you all managed. The thought of prepping the homestead is daunting. It was built in 1929 so it is perpetually dusty. Artist live here -- we hate spartan surroundings.


Keep on keeping on, my new found sisters.





De Novo - Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Taxol (paclitaxel)
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Mar 16, 2019 12:27PM Elderberry wrote:

IAmElaine -- you give me hope. I have just been diagnosed with Stage III, saw my surgeon yesterday and will be seeing the oncologist very soon. I don't know the size of the tumour (yet) because I know it's huge and was afraid to ask. I am a good candidate for all the stuff they can throw at it. I dread the thought of chemo but am anxious to get on with it and get it out of my body. I am so happy to find this forum. It is a great comfort and gives me such encouragement.

I am told I shouldn't kiss or pet my cat when I am undergoing chemo. That depresses me. I love my husband and he is so supportive (he offered to shave his head in support) but Aelfric, my kitty, also is so comforting. Bob will have to clean the litter box! Should I wear gloves and mask during kitty time? He sleeps on Bob's end of the bed.

Can anyone suggest how to manage a messy/cluttered house that is "mostly" clean. Kitchen and bathroom counters always wiped down. There are instruments, crafts stuff everywhere, books, CD's/vinyl. When I looked at preparing your house before chemo it looked like I should strip the place down until it looks like a monk's or nun's cell. Nothing but flat surfaces for disinfecting.

Let me know how you all managed. The thought of prepping the homestead is daunting. It was built in 1929 so it is perpetually dusty. Artist live here -- we hate spartan surroundings.


Keep on keeping on, my new found sisters.





De Novo - Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Taxol (paclitaxel)
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Mar 16, 2019 04:01PM beeline wrote:

Elderberry, I’m so sorry you’re here but glad you found this group. I didn’t do any kind of “house prep” and in fact gave up any cleaning whatsoever during chemo. I also cuddled my cat as usual and took great comfort in her sleeping under the covers with me as she has always done. My husband took over cleaning the litter box and I took precautions about illness, but also continued to work and took my kids to school events, etc. Generally you don’t have to quarantine yourself these days. Ask your dr about nuelasta which is a shot they give to help keep your blood counts up. Good luck as you go through this process.


American in NZ. Dx’d at 42. Had to stop Taxol after #6 due to neuropathy. Randomised to control group in MonarcheE trial 😩 Dx 7/17/2018, IDC, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 8/2/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Dx 8/21/2018, DCIS/IDC/Paget's, Right, 2cm, Stage IIIC, Grade 2, 10/22 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 9/18/2018 AC + T (Taxol) Hormonal Therapy 2/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/25/2019 Whole-breast: Lymph nodes, Chest wall
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Mar 16, 2019 04:49PM Elderberry wrote:

Beeline, bless you. I feel a bit better about this stuff now. The thought of attempting to tidy our wonderful chaos was overhwelming. I'll keep checking in. I saw in one post a lady with a 10 cm tumour that went down to 3 cm after 4 chemo sessions. So I have hope. This is a wonderful forum.


De Novo - Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Taxol (paclitaxel)
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Mar 18, 2019 10:42AM IAmElaine wrote:

Hi, elderberry. When I was dxed the big win/win for me was I no longer had to scoop the cat boxes! We have always had 3 fur babies and they are always inside cats only. I was never told not to cuddle them. In fact, they slept with us while I was in treatment. They would lay on me and purr, taking care of me in their own way.

As for the house, we have never been people who can live around clutter but my home is not by any stretch, spotless. We just kept up the general cleaning as always. On days I didn't feel up to it, my husband or my grown kids would step up and do whatever it took to keep it up.

Honestly, the important things to do are take care of yourself. Eat well, get lots of rest and keep doing the things that make you happy.

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Mar 24, 2019 12:22AM kdrake1007 wrote:

Elderberry,

My cat was a great support during my treatment! He’s not usually very cuddly but always seemed to know when I was having a bad day and needed some cuddle time. Husband cleaned the litter box, I’m the feeder. Had my daughters come by to do it when he was out of town, although MO said I could do it with mask & gloves on if necessary.

Good luck with your treatment

Dx 3/15/2018, IDC: Tubular, Right, 1cm, Stage IIIA, Grade 3, 4/21 nodes, ER+/PR-, HER2- (IHC) Surgery 4/16/2018 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 4/26/2018 Lymph node removal: Underarm/Axillary Chemotherapy 5/31/2018 AC + T (Taxol) Radiation Therapy 11/14/2018 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/8/2019 Arimidex (anastrozole) Targeted Therapy 1/30/2019 Verzenio
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Mar 25, 2019 11:23AM Carmelle wrote:

16 years for me. Diagnosed 38 but had lump through pregnancies over 3 yrs...hugs to all going through now. It's a rough ride, like crossing a raging river with no boat. Yet it's doable. Wishing you all lots love. HUG. Michelle

Yesterday is History... Tomorrow is Mystery...Today is a gift. Dx 3/7/2003, IDC, 6cm+, Stage IIIA, Grade 2, 5/15 nodes, ER+/PR-, HER2-
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Mar 25, 2019 01:16PM Misstic wrote:

Thank you Carmelle for your testimony. What kind of hormone therapy did you get to achieve this great outcome and what was your percentage of ER+ ?

Dx 6/26/2014, ILC, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/16/2014 Mastectomy: Left; Reconstruction (left) Chemotherapy 8/24/2014 Cytoxan (cyclophosphamide), Taxol (paclitaxel) Hormonal Therapy 3/8/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/4/2016 Reconstruction (left): Fat grafting Dx 1/5/2018, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- Chemotherapy 2/5/2018 Gemzar (gemcitabine), Navelbine (vinorelbine) Radiation Therapy Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 1/10/2020 Faslodex (fulvestrant)
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Mar 26, 2019 10:51AM IAmElaine wrote:

Carmelle, that is wonderful news to be blessed to report! Thanks so much for popping back in here and sharing your 16 year milestone!

Misstic, I have been on an AI for over 14 years. I took tamoxifen for one year then switched to Arimidex for 6 years or so and am now taking Femara (letrozole).

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes

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