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Topic: Hair Hair Hair - Another question

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Jun 15, 2008 06:16AM

Deen wrote:

Hi All,

I know that there have been several threads on this, but I'm asking the question again: on average, when did your hair start growing back in after chemo?????

I'm 4 weeks out from my last AC and any positive encouragement (and "you're almost there" posts) would really make this week wonderful.

Deen.

Life's tough, get a helmet. Dx 1/2008, 1cm, Stage I, Grade 1, 0/35 nodes, ER+/PR+, HER2-
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Jun 22, 2008 11:58PM Diana63 wrote:

Deen, my husband offered to shave mine off, I told him if you do I'll break your hand. It may not be real hair but it's all I have right now.

Maybe you are more aware of it now because chemo is over, your head is telling you it's time to be normal again. Good luck in surgery Laughing

“Be still, and know that I am God” (Psalm 46:10). Dx 10/6/2007, IDC, 5cm, Stage IV, Grade 3, 4/9 nodes, ER+/PR+, HER2-
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Jun 23, 2008 04:17AM LorenaB wrote:

Deen, my surgery is Thursday and I feel the same way.  I think I'm going to bring a cap and ask if someone could please put it on me in recovery.  Up until a few days ago, I had to have something on my head at night because the feeling of the pillow against my prickles was really uncomfortable.  I am more comfortable now -- at least the grayish fuzz is good for something.

Dx 12/20/2007, IDC, 1cm, Stage II, Grade 3, 1/11 nodes, ER+/PR+, HER2-
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Jun 23, 2008 04:18AM LorenaB wrote:

Deen, my surgery is Thursday and I feel the same way.  I think I'm going to bring a cap and ask if someone could please put it on me in recovery.  Up until a few days ago, I had to have something on my head at night because the feeling of the pillow against my prickles was really uncomfortable.  It doesn't bother me anymore -- at least the grayish fuzz is good for something.

Dx 12/20/2007, IDC, 1cm, Stage II, Grade 3, 1/11 nodes, ER+/PR+, HER2-
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Jun 23, 2008 09:56PM smirasky wrote:

My last chemo was July 4th 07.  I had enough hair to go without anything by October.  My hair came in with curl!!!  I was thrilled after a lifetime with straight hair.  But now it is almost back to its original straightness.  It's just good to have hair.  I was back to coloring it by November.  Just couldn't stand the salt & pepper effect. 

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Jun 24, 2008 03:33AM NancyD wrote:

Oo, oo... you know what I saw this morning...EYEBROW STUBBLE! You know, those little black specs that preceed the appearance of an eyebrow? Unfortunately, they're in the area I usually clean out between my brow and my eyelid crease. And I actually tweezed one out! (And no, it wasn't specs of my eyebrow powder...I felt them.)

Life is good. It's not perfect. but it's good. Dx 2/22/2008, IDC, Left, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Chemotherapy 3/21/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 7/10/2008 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 8/31/2008 Arimidex (anastrozole) Radiation Therapy 9/4/2008 Breast, Lymph nodes Surgery 1/27/2010 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jun 24, 2008 07:53AM LorenaB wrote:

Nancy, I have a ton of crazy eyebrow stubble.  I actually think I'm going to go to my hairdresser and ask her to wax some of it off and clip the hairs that never fell out, so that there is a clean line to be filled in, if that makes any sense.  I've always had thick eyebrows (needed to wax every 3-4 weeks) that used to annoy me, but now I'm just thrilled to see them growing back to their shaggy old selves.  If only I could say the same for the hair on my head... although there are a lot more prickly hairs now so I suppose I'm making progress.

Dx 12/20/2007, IDC, 1cm, Stage II, Grade 3, 1/11 nodes, ER+/PR+, HER2-
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Jun 24, 2008 12:50PM lisa39 wrote:

I can't wait till I get eyebrow stubble.  Some bottom lashes would be nice too.  One more Taxol to go in early July... maybe after that.  Sigh.

Lisa Dx 11/29/2007, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2+
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Jun 24, 2008 01:05PM rock wrote:

I love this thread! People have such a great sense of humor; makes my own couple more months of baldness a helluva easier to face!   And I can't resist, I just had to post the "Hair" lyrics. D'ya think the composer might've had chemo?

 Hair, hair, hair, hair, hair, hair, hair
Flow it, show it
Long as God can grow it
My hair

Let it fly in the breeze
And get caught in the trees
Give a home to the fleas in my hair
A home for fleas
A hive for bees
A nest for birds
There ain't no words
For the beauty, the splendor, the wonder
Of my...

Hair, hair, hair, hair, hair, hair, hair
Flow it, show it
Long as God can grow it
My hair

I want it long, straight, curly, fuzzy
Snaggy, shaggy, ratty, matty
Oily, greasy, fleecy
Shining, gleaming, streaming
Flaxen, waxen
Knotted, polka-dotted
Twisted, beaded, braided
Powdered, flowered, and confettied
Bangled, tangled, spangled, and spaghettied!

Dx 1/12/2008, IDC, 1cm, Grade 3, 1/5 nodes, ER+/PR+, HER2-
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Jun 24, 2008 01:13PM otter wrote:

Gotta do this.

Someone in the "My head hurts" thread farther down on the Chemo list drew an analogy between the fuzzy-headed, non-shaved look and the main character in Beetlejuice.

Now, please!!!  My dh assures me I don't have anywhere near that much hair! 

otter 

Dx 2008, IDC, Stage IA, Grade 2, 0/3 nodes, ER+/PR-, HER2-
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Jun 24, 2008 01:25PM MsKarin wrote:

Otter,

I'm guilty, Im the one that started the BeetleJuice thing. But I DID NOT say the main character. What I said was "As thick as my hair was I'm estimating I only have 10 to 20 % left. When I look in mirror all I can see is one of the creatures in the movie Beetle Juice. Think it was a little head on a big body. The one that was almost bald but had kind of long scraggly hair." I also went looking for a picture to match what I see in my mind from the movie but had no luck. Shoot I would love to have the hair in the picture you posted. I could make that look really great!

Enjoy the day, Karin

Enjoy the day, Karin Dx 3/27/2008, IDC, <1cm, Stage IIA, Grade 1, 1/13 nodes, ER+/PR+, HER2-
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Jun 24, 2008 01:47PM KellyY wrote:

Hello.

This is my first time EVER in a chat room.  Headcovers.com has nice stuff, but I have been using pretty sqare scarves from anywhere...banana republic, TJ maxx ect and getting compliments...just fold into a triangle and tie in the back.  hope this helps. 

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Jun 24, 2008 02:01PM - edited Jun 24, 2008 02:37PM by otter

Thanks for the suggestion, Kelly.  I tried scarves like that, but my dh said I looked like a "babushka".  I looked that up, and the pic was not pretty so I won't post it here.  Unfortunately, I have a lot of scarves like you're describing:  20-inch squares that I used to fold in a triangle and tie behind my neck.  Even without hair, those scarves are too small to cover my bald head.  OTOH, I guess they cover more than my ball caps do!

Oh, and Karin, I was trying to think of other Beetlejuice characters, too, but the main guy in the pic I posted was the only one I could come up with in a Google image search.  I thought the Beetlejuice discussion was hilarious.  Wasn't the big body/small head thing the result of some sort of magic spell cast by one of the other characters? 

Mostly I look like a Chernobyl victim.  Believe it or not, the fuzzy hair that's left on my head is still growing!  I've had to trim it twice since everything else fell out toward the end of round #1.

Post edited to add:  Karin, were you thinking of this guy?

 otter

Dx 2008, IDC, Stage IA, Grade 2, 0/3 nodes, ER+/PR-, HER2-
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Jun 24, 2008 05:31PM kimbly wrote:

I was mostly bald when I went for my surgery.  I bought a cool scarf at Joanns and wore that...  I NEVER wore scarves otherwise. This was one of those hankerchief type things. It had peace signs and stuff like that all over it.   Anyhow they let me keep it on under the surgery cap and I woke up and both were still on!  I too was paranoid about waking up with a bare head....

Dx 11/21/2007, IDC, 1cm, Stage I, 0/3 nodes, ER+/PR+, HER2+
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Jun 24, 2008 05:39PM kimbly wrote:

I thought I posted a picture to this thread of my hair progress.. apparently I did not.... LOL

let me see if I can now.

Dx 11/21/2007, IDC, 1cm, Stage I, 0/3 nodes, ER+/PR+, HER2+
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Jun 24, 2008 06:48PM MsKarin wrote:

Otter,

He does have a small head on a big body but No thats not the one I'm visualizing either. Remember I said "Think it was a little head on a big body". Think is the key phrase here. These days I'm not thinking to clearly. It is good to know that there was a guy with a little head and big body in BeetleJuice. It means I did remember something and had the right movie, lol.  

Enjoy the day, Karin

Enjoy the day, Karin Dx 3/27/2008, IDC, <1cm, Stage IIA, Grade 1, 1/13 nodes, ER+/PR+, HER2-
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Jun 24, 2008 07:37PM WildRose wrote:

Just to throw in my two cents, someone upthread said that if you  do A/C then the taxanes, your hair could start to grow in during the taxanes. My onc started me on taxol for two txs, then switched me to taxotere. On the taxotere, my stubble started to grow right after the first tx. I have a tonsure, however! But the hair is dark, almost black, and probably 1/16 of an inch long.

My eyebrows and eyelashes thinned, I 've shaved my legs maybe three times since starting chemo, and I haven't had to shave my underarms once. That's OK by me. ;-) 

Today was my last tx forever.

Now my hair can start growing back in earnest.

  

Share your journey, thoughts and story: www.waterlily-naturals.com/eth...〈=en Dx 1/8/2008, IDC, 5cm, Stage IIIA, Grade 2, 2/5 nodes, mets, ER+/PR+, HER2-
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Jun 25, 2008 04:32AM Wintermoon623 wrote:

I am just four weeks out from last chemo treatment and I have salt and pepper fuzz on my head...more salt than pepper....and I was not nearly this gray before!!  I have a question about eyebrows and eyelashes....as much as I'd like my hair back, it's the loss of the brows and especially lashes that has me a bit unsettled.  I didn't lose them until AFTER the last Taxol...is that usual?  How long before I see something coming back?  I know this is trivial in the grand scheme of things with this disease but as I am starting radiation soon (and I'm scared) I'd like to be hopeful that I'll see brows and lashes soon.  Is that possible? 

Dx 10/25/2007, IDC, 3cm, Stage II, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jun 25, 2008 04:53AM cookie1956 wrote:

Lorena ....  Good luck on Thursday....I am not sure exactly what surgery you are having, but I had mine on May 23, and it went so very well, and recovery was so much easier than I thought!  I did not have the hair problem (that's coming in two weeks), however, I was paranoid about my partial dentures....and to my relief, they say it is very common, and they are very understanding about your needs.  Be sure to speak up!  Any woman taking care of you (nurse, doctor, etc.) will empathizek, I'm sure. 

Dx 4/14/2008, IDC, 1cm, Stage II, Grade 2, 1/4 nodes, mets, ER+/PR+, HER2+
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Jun 25, 2008 06:37AM dhettish wrote:

I had 4 tx of A/C and 4 Taxotere. I shaved my head by week 2. Being bald did not bother me. I wore wigs sometimes but by the end I was just wearing ball caps. Taxotere swelled me up so bad I looked like the guy on Ghosthunters. My face was so fat.

When my hair started coming back, it was all white fuzz (somebody called it dryer lint). I had big bald spots on my part and crown and I thought they would never fill in. My last tx was 3/11/08 and finally I am getting some dark brown hairs but still a lot of grey. I always colored my hair so I had no idea I was that grey! I lost all my eyelashes and eyebrows. I still have to pencil in my eyebrows and there are some bald spots there as well. My eyelashes are about 1/8 of an inch.

Now my legs hairs began growing immediately. I have to shave everyday now. I am tripple negative so on no hormone drugs. Last night I noticed a lot of very light but long hairs along my jawline. Freaked me out. I may look into electroylisis. Not too noticable, but it bothers me. 

I am not wearing anything now. My hair is very short, thicker, and very grey!

Debbie 

Debbie...Chemo's a bitch and then you live Dx 8/6/2007, IDC, 2cm, Stage II, Grade 3, 1/23 nodes, ER-/PR-, HER2-
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Jun 25, 2008 10:37AM mominaz wrote:

ROCK!!!!! That is my myspace song!!!!! heehee Great minds.....Wink
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Jun 27, 2008 03:46AM rock wrote:

Mominaz:  inDEED. Kiss
Dx 1/12/2008, IDC, 1cm, Grade 3, 1/5 nodes, ER+/PR+, HER2-
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Jun 27, 2008 08:50AM - edited Jun 27, 2008 08:51AM by susan5783

I lost most of my eyelashes AFTER my last treatment (TCH) which was May 15. that was a shock, since I assumed that would not happen.  They still look very sparse.   I have not seen any re-growth since then, which worries me.  My hair, what there is of it, is like dandelion fluff. I am now receiving Herceptin and taking Arimidex and wonder if either of these two drugs is delaying the re-growth. 

dx 12/22/07 1.1cm. ER+, HER2+ 

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Jun 28, 2008 01:10PM NancyD wrote:

OK, how perverse is this:

I have 14 hairs left on my right eyebrow (I counted them), but I had to tweeze several stray hairs this morning that are starting to grow back above my eyelid. Damn, that's just not right.

Life is good. It's not perfect. but it's good. Dx 2/22/2008, IDC, Left, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Chemotherapy 3/21/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 7/10/2008 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 8/31/2008 Arimidex (anastrozole) Radiation Therapy 9/4/2008 Breast, Lymph nodes Surgery 1/27/2010 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jul 2, 2008 12:49PM - edited Jul 2, 2008 12:50PM by artsee

Hi All....Haven't been around lately. Lots on the plate. Just wanted to share with you that this morning 4 of my eyelashes were laying on my cheek when I woke up. Now I have one bottom one on the left eye and three on the right bottom. Boy, is this insane or what? My last chemo was May 9th. Will they ever come back? I had thick and long lashes yet for my age. I also have 3 brows on one side and 1 on the other. I make up my eyes so you can't see them but when  I wash my face at night...boy, looks pretty yucky.

Guess I shouldn't complain to much because I am still here to look at them right? I don't like the alternative.

Artsee

Dx 1/15/2008, IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Dx 1/15/2008, IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 2/6/2008 Lumpectomy: Right Hormonal Therapy 5/13/2008 Femara (letrozole) Radiation Therapy Chemotherapy AC + T (Taxotere)
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Jul 3, 2008 09:50PM Deen wrote:

Ok - we've dropped off the first page and I still wanna see how people are progressing.

Artsee and Nancy - that sucks.

For me, losing the eyelashes and eyebrows was the worst.

Hope for those who have though - my eyebrows came in in about a week.  One week gone, next week back!

The hair is taking longer.  I'm 6 weeks out from chemo now and still have the sparse grey fuzz. Can anybody tell me how to post a picture so that I can share? 

I am going NUTS waiting for this to grow.

Life's tough, get a helmet. Dx 1/2008, 1cm, Stage I, Grade 1, 0/35 nodes, ER+/PR+, HER2-
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Jul 4, 2008 05:11AM LorenaB wrote:

Hey Deen, I was thinking about you and wondering how your regrowth has been going.

Someone on another thread said she looked like a chia pet, and that is a perfect description of the state of my head (minus the green!). I am 8 weeks out from my final chemo tx and I have a quarter to an eighth of an inch of dark prickles, along with that fine grayish-white fuzz that I hope is not going to be permanent!

On the positive front, my eyelashes have filled in (I never lost them completely) -- they are short but all there, although a few of them came back WHITE.  My eyebrows started coming in like crazy a few weeks ago -- I've always had thick eyebrows and used to wax every 3-4 weeks, and suddenly I looked like I hadn't plucked a brow in a year.  I actually went in and had them shaped on Wednesday.  For once I didn't mind the pain of waxing -- I was just so thrilled that the little hairs wanted to stay there.  My first indication of hair loss was when I plucked an eyebrow and didn't feel the tug, so this was very exciting to me, LOL.

I'm with you, the slow growth is driving me crazy!

Dx 12/20/2007, IDC, 1cm, Stage II, Grade 3, 1/11 nodes, ER+/PR+, HER2-
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Jul 4, 2008 05:37AM - edited Jul 4, 2008 05:56AM by Leahrc

Hello all,

I saw this thread, and thought I would share since my crowd went thru this last year. Here is a pic of me about 9 weeks post chemo, which is when I stopped wearing my wig. By the way, when this came in, it was white, then started to turn a disgusting gray, so I colored it in the shower with Nice 'n Easy. I didn't care about waiting. I really didn't know what color my hair was as I had dyed it for over 10 years, so it was an easy decision to just put it back immediately.

Also, eyelashes continue to cycle in and out for quite a while- close to 9 months. I used to have Ali McGraw eyebrows, which have never really grown back in. I add a little powder to them now. Leg and armpit have taken the better part of the year to come back (and I'm a dark Italian!). Pubic hair grows back quickly, but it may be a different color if you are over 50!

My hair did grow in VERY curly, but I loved it. Now that I am a 15 months out, it is still curly, but getting straighter every time I have it cut.

I have so much emotion remembering all this, so I just had to share! 

Dx 12/29/2006, IDC, Stage IV, Grade 3, 15/19 nodes, mets, ER-/PR-, HER2-
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Jul 4, 2008 05:59AM - edited Jul 4, 2008 06:04AM by rock

Um, Leah.  You look adorable, if a bit porcine about the snout, if you don't mind me saying. Steroids, perhaps? 

(The photo didn't upload -- tho I DO love the avatar, and appreciate the update!  Oh! There it is!  And it IS lovely!  Is this supposed to be the "disgusting gray"? Because it looks like a nice color from my perspective.  Again, though, thank you for posting.)

Dx 1/12/2008, IDC, 1cm, Grade 3, 1/5 nodes, ER+/PR+, HER2-
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Jul 5, 2008 03:05AM suz45 wrote:

Artsee, You asked for a weekly update hair pic. So this is now two weeks later...LOL, ignore the rope in front of my face. The people I was camping with had a few too many wobbly pops to even realize the rope was there. But my hair really is starting to fill in nicely and is slowly getting more ash with white tips. I am ready to have my sides and back professionally cleaned up ( had dh tidy the back of my hairline on the camping trip as it was getting unruly) Hugs to ya all, Suz

Photobucket

Laugh your heart out, dance in the rain, cherish the memories & ignore the pain, love and learn, forget & forgive. Remember you only have one life to Live. Dx 11/25/2010, IDC, 6cm+, Stage IV, 8/23 nodes, mets, ER-/PR-, HER2-
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Jul 6, 2008 07:43AM kimbly wrote:

Probably time for me to post a new hair progress picture too I suppose.  I was just looking at the picture I posted a few weeks ago and although as I look in the mirror now and shout COME ON at my hair .. the picture and me now well I see quite a bit of progress.  I am just so impatient!!!  Suz your hair looks great.  When did you finish your chemo again????  how far out from last tx is this?? 

Dx 11/21/2007, IDC, 1cm, Stage I, 0/3 nodes, ER+/PR+, HER2+

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