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Aug 29, 2020 05:43PM
MyMiracle, what you are experiencing is normal. I will say that fatigue is one of the biggest issues post WBRT. Treatment and steroids take so much out of us. I would not be a good person as far as how long it took me to get over fatigue and SE as I was severely depressed and scared to death. I did maintain walking, got stress fractures in my feet walking. My appetite returned few weeks after radiation was complete. I mainly survived on boost or ensure type shakes with protein added. I really did not like food for about 6 weeks. I did not lose too much weight. Once my appetite kicked back in, I recovered very quickly.
Your recovery will depend a lot on your mood as well. I was almost suicidal and wanting to just die at the time. Took me a long time to put those thoughts aside. I also got a social worker. A lot of people who have had WBRT have had fatigue and appetite issues but recovered quicker than me.
I will say once I felt like walking, I was out an hour a day and that sped up the recovery. Walked in all weather as well. The biggest thing you can do is move your body. Keep up your strength. March in the chair you sit in, or walk if you feel safe. This will help the appetite quicker. If eating is a problem, do get the ensure or boost shakes with lots of vitamins in it and add protein wherever you can. If there is anything you like, eat a lot of it. When you do start eating again, I found that black beans, shredded cheese and a bit of spinach nuked for 90 seconds in the microwave. I would add some wheat bran mixed with taco seasoning. Topped with queso, it is delicious and nutricious. Helps avoid low RBC so if that is possible once you can eat, I do recommend this. A digestive enzyme is also recommended after being treated to help you with eating and avoiding a lot of side effects. It does not need to be expensive to work either. Steroids and the forced menopause of treatment can wreak havoc on digestion. After adding the beans and the others mentioned above, I feel much better. If you can eat that kind of stuff, it is really good.
I have been going at Stage IV according to my MO from the start, came out of a 10 cm tumour, most aggressive form of BC, IBC and HER2+ I have been going for 5 years. I am strong, physically active and a lot of the cognitive issues I had, not being able to read and retain books anymore and all of that has lifted. I have had some short term memory stuff but even that has improved. If this helps to hear at all, I am glad to say it. Give yourself time to process everything. It takes a long time and treat each day as a new start as far as recovery. Good luck.
2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta.
3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+
4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right
5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+
7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+