Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 11:56AM

Posted on: Feb 1, 2013 11:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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Feb 1, 2013 12:40PM Angela-R wrote:

Well I'm here.
Original tumour Feb 2009 showed a small amount of Her2 so I did a year of Herceptin after full on chemo and rads.
Subsequent tumours and nodes have all been TN.
Was on Xeloda for a while but had progression, so am now on Abraxane which is hopefully keeping it at bay for a while.
My sister is also TN and just finished her year of chemo and rads. We will investigate the genetic stuff soon.
I love to hear about current research into TN. I know they are trying to make it a priority but we do hear so much about the hormonal stuff.
Cheers
Angela

Angela Dx 2/7/2009, IDC, 2cm, Stage IIIC, Grade 3, 16/18 nodes, ER-/PR-, HER2- Dx 4/1/2011, IDC, 1cm, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Dx 4/23/2012, IDC, 5cm, Stage IV, Grade 3, ER-/PR-, HER2-
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Feb 1, 2013 02:05PM marywh wrote:

Im here too. Was dx originally in jan 08, with recurrance in 11 and in aug. of 12 mets to liver,lung and chest wall. Im also currently on abraxane and doing well.

Dx 1/2008, IDC, 2cm, Stage IV, Grade 3, 2/3 nodes, ER-/PR-, HER2- Surgery 6/15/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2008 Breast Surgery 8/5/2011 Mastectomy: Left Chemotherapy 8/25/2012 Abraxane (albumin-bound or nab-paclitaxel), Carboplatin (Paraplatin) Chemotherapy AC Chemotherapy Doxil (liposomal doxorubicin), Xeloda (capecitabine)
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Feb 1, 2013 05:00PM bottkota wrote:

Add me as well. Original diagnosis Apr. 2005 stage 2 no node involvement. Nov 2009 mets to sternum and surrounding lymph nodes. Did abraxane, Gemzar and avastin for 10 months...then the cancer got sneaky and moved to my liver. While waiting for my name to be drawn for an expanded access trial, I did 5 radiation treatments to my sternum and brachial plexus. Name was drawn for trial and began carbo, Gemzar and iniparib (former PARP inhibitor) in Nov. 2010. Have been on it ever since. Reached NED in sept. 2011 and have maintained it since. Stopped Gemzar in sept. 2012 due to low platelets and stopped carbo in jan, because my body is tired....and breaking down. Doing iniparib only right now, hoping it will keep me NED. I am also braca 1 and 2 positive. And have a HUGE family history. :/.

Cathi

Dx 11/2009, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2-
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Feb 1, 2013 11:22PM TonyaB wrote:

Well, you can add me to the group too.  Dx stage 3C on 2/07 with ER- PR- Her2+. Today is actually my 6th year of living with cancer.

In 1/08 Skin mets that were TN treated sucessfully with Xeloda. 07/10 Chest wall met (very deep and close to lung). I was put on Carbo/Gemzar and Iniparib and have been stable for 2 1/2 years.

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Feb 2, 2013 03:32AM lotusblossom wrote:

I'm here too. Diagnosed at stage IV from the get-go in June 2009 with mets to bone, lungs, biliary tract,spleen and nodes from neck to pelvis.  I was on Gemzar/Xeloda for 8 months, then Caelyx for 4.  Taxol kept me stable for 12 months and navelbine has now kept me stable for 16 months.  At this point. I only have small mets to lungs (largest is 6mm).  I will be turnng 49 later this month and am excitedly looking to celebrating the big 50!!

Dx 6/5/2009, Right, <1cm, Stage IV, metastasized to bone/lungs/other, mets, ER-/PR-, HER2-
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Feb 2, 2013 03:33AM kskier wrote:

Yes!  The other TN forum IS just too broad, and there was no place for us Stage IV TN's to all congregate.  Thank you.  Count me IN!

Dx 8/15/2008, IBC, 6cm+, Stage IV, mets, ER-/PR-, HER2-
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Feb 2, 2013 04:05AM Evans1128 wrote:

This is great. Count me in. DX with mets in November, week of my birthday.

Kskier- you are such an inspiration and I'm sure give many of us hope here.

I will win this fight!!!! Dx 1/24/2012, IDC, 3cm, Stage IIIC, Grade 3, 3/8 nodes, ER-/PR-, HER2- Chemotherapy 2/1/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/27/2012 Lymph node removal: Right, Sentinel; Mastectomy: Right Radiation Therapy 8/9/2012 Breast, Lymph nodes Chemotherapy Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Feb 2, 2013 10:22AM svetik wrote:

I am here. I was diagnosed as stage 4 from the start in January 2012 with mets to my neck and chest (close to the heart). I had to go to the emergency room with a burning chest pain,  and this is when I was first told about the cancer. Chemo shrinked the mets a little, so I am not in much pain right now, but the thing has now spread to my spleen, left lung, and left thigh.  

Dx 1/27/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2- Chemotherapy 2/17/2012 Taxotere (docetaxel) Chemotherapy 11/7/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Chemotherapy 4/16/2013 Xeloda (capecitabine) Radiation Therapy 6/27/2013 Chemotherapy 8/20/2013 Taxol (paclitaxel) Radiation Therapy 10/15/2013 Chemotherapy 12/4/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine), Ixempra (ixabepilone)
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Feb 2, 2013 03:29PM Angela-R wrote:

I'm glad this thread is gathering a few ladies together. Lotusblossom; I am also 49 and I believe Renae is also. I wonder how many of us were diagnosed relatively young. I also wonder if many of us know our brca status. I don't know yet but hope to.
Cheers
Angela

Angela Dx 2/7/2009, IDC, 2cm, Stage IIIC, Grade 3, 16/18 nodes, ER-/PR-, HER2- Dx 4/1/2011, IDC, 1cm, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Dx 4/23/2012, IDC, 5cm, Stage IV, Grade 3, ER-/PR-, HER2-
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Feb 3, 2013 02:47AM svetik wrote:

I am 43. I had the genetic test done in August, so I am still waiting for my BRCA results. I was told that this can take up to a year.

Dx 1/27/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2- Chemotherapy 2/17/2012 Taxotere (docetaxel) Chemotherapy 11/7/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Chemotherapy 4/16/2013 Xeloda (capecitabine) Radiation Therapy 6/27/2013 Chemotherapy 8/20/2013 Taxol (paclitaxel) Radiation Therapy 10/15/2013 Chemotherapy 12/4/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine), Ixempra (ixabepilone)

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