Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 03:56AM

Posted on: Feb 1, 2013 03:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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Jan 4, 2015 03:37PM Adnerb wrote:

ReadingMama,

I'm wondering why you consider your cancer to be TN? Your signature says your BC is her2+. Did your BC hormone status change since 2010? Her2+ BC has so many more options than TNBC.

Good luck to you!

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Jan 4, 2015 03:40PM Adnerb wrote:

Hydeskate,

I see you in other forums and I continue to be fascinated by your case and very, very happy for you. Not only are you surviving past the 5 year mark with TNBC, your BC has shown NED most of that time. That is truly amazing. May you continue to give us good news about the cancer and may your symptoms from all the other stuff get better!

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Jan 4, 2015 03:41PM Adnerb wrote:

Readingmama,

There is also a lady who goes by "lotusblossom" who has lived with stage 4 TNBC for over five years.

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Jan 4, 2015 03:49PM WinningSoFar wrote:

I'm 3 years, 4 months from stage IV dx and NED for the last 6+ months. When I finally asked my MO recently how long she thought I'd live, she said more than 10 years. Hope she's right.

Dx 7/1999, ILC/IDC, Right, 2cm, Stage IIB, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 7/1/1999 Lumpectomy: Right Radiation Therapy 7/30/1999 Whole breast: Breast Surgery 7/1/2000 Prophylactic ovary removal Dx 9/26/2011, IBC, Right, 4cm, Stage IV, metastasized to bone, Grade 3, 0/5 nodes, ER-/PR-, HER2- Targeted Therapy 10/31/2011 Avastin (bevacizumab) Chemotherapy 11/4/2011 Abraxane (albumin-bound or nab-paclitaxel) Surgery 5/5/2012 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Radiation Therapy 4/14/2013 External: Bone Chemotherapy 3/1/2014 Abraxane (albumin-bound or nab-paclitaxel) Surgery 12/11/2014 Reconstruction (left); Reconstruction (right) Dx 3/2019, ILC/IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2-, Targeted Therapy 3/15/2019 Verzenio Hormonal Therapy Femara (letrozole)
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Jan 4, 2015 04:25PM - edited Jan 4, 2015 04:27PM by ReadingMama

hi Brenda, my first dx was a mix and included HER2+ clusters so was treated as positive and I received a year of Herceptin. Second dx and now third dx as Stage IV are both TN. Confirmed with biopsy of lymph node.

Good point though, I should make that clearer somehow in my signature.

Meegan - Age 47 @ 9/15/14 Mets to bone (sternum), liver, lung membrane and lymph nodes. Dx Recurrence on 10/14/11. BMX Nov 30th w/DIEP recon. Dx #1 9/2010 - ACx4, Taxolx4, Lump & ALND 2/16/11, Rads April, Herceptin 1 year, ended Nov. 2011 Dx 9/7/2010, IDC, 2cm, Stage IIB, Grade 2, 1/7 nodes, ER-/PR-, HER2+ Dx 9/15/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 10/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 5/19/2015 Halaven (eribulin)
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Jan 4, 2015 11:33PM SpiritBlessing wrote:

Hi ladies,

Great to hear such awesome news of long lives with TNBC. I know I am praying I am one of them too.

Adnerb is lotusblossom on this board?

Do any of you talk on the phone?

Lucy

Do not be afraid - I am with you! I am your God - let nothing terrify you! I will make you strong and help you; I will protect you and save you. Isaiah 41.10 Dx 8/28/2013, IDC, 3cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 9/18/2013 Lumpectomy: Left Dx 11/5/2013, IDC, 3cm, Stage IV, Grade 3, 0/0 nodes, mets, ER-/PR-, HER2- Chemotherapy 11/25/2013 Abraxane (albumin-bound or nab-paclitaxel)
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Jan 4, 2015 11:46PM keldel wrote:

Lotusblossom is in Canada, Quebec or Montreal I think. I don't speak with anyone on the phone but have exchanged private messages with a few if that is helpful for you.

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Jan 5, 2015 10:55AM springwatch wrote:

Anyone heard of this targeted therapy for advanced TNC or been on the trial.

http://www.hopkinsbreastcenter.org/artemis/201501/...


mets to lungs and bone (pelvis, spine, femur) . Liver mets Sep 2014. Dx 3/2011, IDC, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER+/PR-, HER2- Surgery 4/15/2011 Lumpectomy: Right Chemotherapy 5/26/2011 CEF Radiation Therapy 9/26/2011 Breast Hormonal Therapy 10/31/2011 Arimidex (anastrozole) Dx 2/25/2014, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 4/3/2014 Taxol (paclitaxel) Radiation Therapy 4/7/2014 Bone Chemotherapy 9/18/2014 Xeloda (capecitabine) Chemotherapy 11/27/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jan 5, 2015 01:31PM TXGigi wrote:

I was diagnosed in 2009.  Started with avastin, taxol and someta.  Was taken off taxol because of neurapathy and also had a huge whole in my shin bone that would not heal.  I was put on xeloda which lasted 3 1/2 years.  Then on to gemzar, abraxane and doxil.  Now on halvalen which is working really well.  My biggest problem is my jaw bone.  Seems either the zometa and xgeva has given me ONJ.  I am still on xgeva every other month.  Onc says the benefits of xgeva outweigh the ONJ since I already have the disease.

I never expected to live this long - 5 1/2 years.  If I did I would of lived my life different.  I would of lived it instead of worrying about it every single day and never enjoying my life.

Dx 7/21/2009, <1cm, Stage IV, Grade 1, 1/7 nodes, mets, ER-/PR-, HER2-
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Jan 5, 2015 11:57PM ReadingMama wrote:

Gigi, thank you for your wise perspective. I am trying to live my life and take advantage of feeling well. Will be planning extra vacation this year for the summer, with trip insurance just in case.

Am thrilled to hear you are over 5 years and to hear all the drugs you have had. I need to write them down or something for future reference. I seem to read all the time about er+ drugs that don't help us.

Meegan - Age 47 @ 9/15/14 Mets to bone (sternum), liver, lung membrane and lymph nodes. Dx Recurrence on 10/14/11. BMX Nov 30th w/DIEP recon. Dx #1 9/2010 - ACx4, Taxolx4, Lump & ALND 2/16/11, Rads April, Herceptin 1 year, ended Nov. 2011 Dx 9/7/2010, IDC, 2cm, Stage IIB, Grade 2, 1/7 nodes, ER-/PR-, HER2+ Dx 9/15/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 10/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 5/19/2015 Halaven (eribulin)

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