Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 04:56AM

Posted on: Feb 1, 2013 04:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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Jan 11, 2015 02:46AM Beachbum1023 wrote:

Hi Lotusblossom, Thank You for telling your story. I so want to be like you, Stage 4 and living life! I have a lot of living to do yet, places to go, and hearts to break before I leave this earth. :)

I am waiting to start rads or chemo, depends on the decision of the Tumor Board on Tuesday. So I feel really good right now, so I hope the rads then chemo. I would prefer to skip it all and be cured, but I'm just making lemonade out of all of these lemons.

Have a peaceful weekend!

Beachbum - AIN'T NO 5! Dx 7/15/2014, IDC, 6cm+, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Chemotherapy 8/19/2014 AC Chemotherapy 10/14/2014 Taxol (paclitaxel) Surgery 12/15/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 12/26/2014, IDC, 5cm, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Radiation Therapy 1/26/2015 Breast, Lymph nodes
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Jan 18, 2015 05:12AM keldel wrote:

Well Thursday I came down with something a flu or bug.  Slept all day despite being on decadron steriods.  Had a fever around midnight of 34.8c.  Had chills, nausea, dehydration,  diarrhea,  fatigue.  I have also been losing weight - dr hasn't used the cachexia word - but that what it looks like to me.  My thigh muscles are floppy and about half the size they were a month ago.  My temperature has returned to normal in the last 24 hrs but I am still on liquids, lots of clear jjuice,  chicken broth and water.   I have also managed some hard boiled.eggs, whey isolate protein shake and almond coconut milk. The diarrhea may be over.  I will try a little gluten free toast today (sunday).  Ofcourse I just spent tome with Dr Google and learned that patients that develop cachexia have poorer prognosis.   Any advice?

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/8/2012 Mastectomy: Right Chemotherapy 4/16/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/14/2012 Breast Hormonal Therapy 11/10/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/14/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/31/2014 Lymph nodes Radiation Therapy 12/16/2014 Brain
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Jan 19, 2015 08:15PM smiley47 wrote:


Keep your strength up by doing what your doing with all the great foods and keep us posted. I believe there are some very sick people with the flu, when I went to the jospital today for my taxol the volunteers were at the door making sure we wore masks and washed our hands. Im following your progress on FB too

Dx 9/9/2008, DCIS, Left, 5cm, Stage 0, Grade 3, 15/40 nodes, mets, ER+/PR+, HER2- Surgery 9/27/2008 Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left; Prophylactic ovary removal Radiation Therapy 3/9/2009 3DCRT: Lymph nodes, Bone Hormonal Therapy 5/10/2009 Hormonal Therapy 5/10/2011 Aromasin (exemestane) Chemotherapy 11/10/2013 Xeloda (capecitabine) Chemotherapy 1/10/2014 Taxol (paclitaxel)
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Jan 20, 2015 12:07AM Adnerb wrote:

I have the flu. Kelly, I just had wheat crackers with strawberry cream cheese and Campbell's Italian Wedding soup. Yum!

Hope you don't lose any more weight!

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Jan 20, 2015 01:51PM Adnerb wrote:

I just found out that lostinmo died in November of 2014. It's shocking to me because her last post said she was in remission. That was in August of 2014. I will miss her posts. May she rest in peace.

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Jan 20, 2015 05:40PM ReadingMama wrote:

Kelly, hope you are feeling better??

I don't even know what cachexia is, will have to Google it.

Meegan - Age 47 @ 9/15/14 Mets to bone (sternum), liver, lung membrane and lymph nodes. Dx Recurrence on 10/14/11. BMX Nov 30th w/DIEP recon. Dx #1 9/2010 - ACx4, Taxolx4, Lump & ALND 2/16/11, Rads April, Herceptin 1 year, ended Nov. 2011 Dx 9/7/2010, IDC, 2cm, Stage IIB, Grade 2, 1/7 nodes, ER-/PR-, HER2+ Dx 9/15/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 10/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 5/19/2015 Halaven (eribulin)
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Jan 20, 2015 07:03PM keldel wrote:

Well this morning my symptoms changed and I had a tight chest. No cough, no fever but felt like my breathing was weak. My husband said I am taking you to the ER. I called my radiation oncologist and he said yes go. So we went. The ER doctor did ekg, bloodwork, vitals, chest xrays and a chest ct scan. His concerns were pulmonary embullism, pneumonia or blood clots in the lung. Results? All clear and sent me on my way. Told me if anything worsened or I had pain, nausea, fever, cough, pink flem, then come back. Bloodwork, kidney functions all good. So we left and have checked into a hotel down the road just in case we have to go back tonight. (Cause everything seems to worsen in the middle of the night!) On the plus side I feel like I am OK and we get to relax in a hotel room and pretend like we are normal.

Adnerb - sad to hear about lostinmo.  I too though she was in remission.   I like your flu therapy- hope you feel better soon.

(((Hugs)))

Kelly

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/8/2012 Mastectomy: Right Chemotherapy 4/16/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/14/2012 Breast Hormonal Therapy 11/10/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/14/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/31/2014 Lymph nodes Radiation Therapy 12/16/2014 Brain
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Jan 20, 2015 08:02PM smiley47 wrote:

How very sad we have lost another lady to this disease, hoping her family and friends find peace and comfort


Dx 9/9/2008, DCIS, Left, 5cm, Stage 0, Grade 3, 15/40 nodes, mets, ER+/PR+, HER2- Surgery 9/27/2008 Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left; Prophylactic ovary removal Radiation Therapy 3/9/2009 3DCRT: Lymph nodes, Bone Hormonal Therapy 5/10/2009 Hormonal Therapy 5/10/2011 Aromasin (exemestane) Chemotherapy 11/10/2013 Xeloda (capecitabine) Chemotherapy 1/10/2014 Taxol (paclitaxel)
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Jan 22, 2015 03:22PM BarbDenise64 wrote:


just to let everybody know I finally saw my oncologist today for my review and results of my last scan. He was very pleased -blood tests normal, no spread and neck tumour much reduced so not quite NED but much better than I thought. He is giving me 2 months off treatment so small celebration tonight

Dx 8/2014, Right, Stage IV, metastasized to other, Grade 3, 2/15 nodes, ER-/PR-, HER2- Chemotherapy
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Jan 22, 2015 04:39PM Beachbum1023 wrote:

BarbDenise64, Party like it's 1999! That rocks 2 months off and no spread, BIG celebration for that one.

Congratulations, enjoy every day.

Beachbum - AIN'T NO 5! Dx 7/15/2014, IDC, 6cm+, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Chemotherapy 8/19/2014 AC Chemotherapy 10/14/2014 Taxol (paclitaxel) Surgery 12/15/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 12/26/2014, IDC, 5cm, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Radiation Therapy 1/26/2015 Breast, Lymph nodes

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