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Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Aug 16, 2013 07:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Feb 17, 2021 02:05PM Bliss58 wrote:

Dee, yay for clear brain MRI, and improved morning bp readings. Fingers crossed the afternoon and evening readings subside along with those headaches. Hugs.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Feb 17, 2021 05:02PM HopeandGratitude wrote:

Dee- good news on brain MRI!!! Yes!!! Nice to hear improvement in BP am readings. Hope they are good throughout the day and this is the new trend. Maybe the headaches will start to resolve......

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/6/2020 Faslodex (fulvestrant)
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Feb 17, 2021 05:50PM Husband11 wrote:

AlabamaDee, that is great news about the mri.

Nicole, you have gone through so much after that Y90 procedure. It is good to hear that your liver is clear. I pray that you can get the pain resolved. That has got to be debilitating.

Saulius, good to hear your wife got the vaccine. Hooray!

Heba, you are in my prayers for success with your current treatment.

SeeQ, praying for good scan results.

SusyS, praying you get your energy back.

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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Feb 17, 2021 08:07PM theresa45 wrote:

Nicole - I'm so happy that after all the pain you've endured, your IR (the true expert!) confirmed that your liver is DISEASE FREE!!! Shame on that PT for not checking your scans and acting like she's an expert. Fortunately you knew more than she did. Your IR is obviously very compassionate and doing everything possible to resolve your pain. I'm praying that you will soon be PAIN FREE!

Dx 4/20/2009, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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Feb 17, 2021 10:27PM SuzyS wrote:

Thank you for the support and advise everyone🤗.

Bliss58- my MO suggested to stay on Docetaxel until the side effects become too overwhelming or it stops working. I believe we would just switch to another chemotherapy after this.

Moth- my blood count and liver enzymes are normal. I’ll give the dose decrease a little more time. Thanks for sharing your experience.

It’s wonderful to hear the good news from others scans and tests. It’s so encouraging!

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Feb 17, 2021 10:44PM NicoleRod wrote:

Thank you Theresa, ladies and Husband 11! Theresa I really do LOVE my IR. I am so amazed that she has literally personally called me once a week since my procedure. I am basically 100% sure I want to do the Plexus Block. I even asked my GI doctor about it and he said hes on board with me giving it a try.

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Feb 19, 2021 05:56PM theresa45 wrote:

Nicole - I'll be praying that the Plexux Block puts an end to your pain! Your interventional radiologist is truly exceptional! I love my interventional radiologist, but even getting in to see her is REALLY challenging. I'm 3 months out from my last liver ablation and want to have her review my latest CT scan which shows some progression in the liver. I'm having trouble even getting an appointmnt. Sigh!

Dx 4/20/2009, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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Feb 19, 2021 08:25PM NicoleRod wrote:

Oh theresa..that stinks. So you never had liver mets before now? I guess your ablation went well? I wish I could say the same. :(. I am hanging in there. I am hoping to hear back from IR Monday and we will set up for the block.

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Feb 19, 2021 11:04PM theresa45 wrote:

Nicole - My first liver met showed up in June 2019 and I had a liver resection. Then more liver mets showed up and I had two microwave ablations in Aug 2020 and Oct 2020. There were a couple more small lesions that were too small to treat. Now those lesions have grown. I hope to investigate more liver ablations or Y90, but they can be tough to get approved. I squeaked by for one more treatment on the Enhertu trial and will probably be changing systemic treatment soon. I'm investigating off-label Trodelvy or Halaven.

Dx 4/20/2009, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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Feb 20, 2021 06:06AM Karenfizedbo15 wrote:

Nicole, here’s hoping

Surgery 9/6/2007 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2- Dx 2021, Stage IV, metastasized to bone Chemotherapy 2/3/2021 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole)
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Feb 20, 2021 10:39AM - edited Feb 20, 2021 10:41AM by Lost47

Hello All,

I'm new to breast cancer. Went from Stage 1 to Stage 4 Mets to liver in 3 months from diagnosis. (November 2020) I'm shocked and so are my doctors. I haven't even begun medication because it was thought that my bilateral mastectomy and radiation was going to be it for awhile. I'm ER/PR + both in breast and liver HER 2 -. Sentinel biopsy 2/2 nodes were positive with growth permeating the nodes. My liver has 2 masses, 1- 1.5x1.5 cm the other 1.2 x 1.2 cm with multiple tiny lesions.

I'm so grateful to have found this site and blog. It's sad and comforting to have others to talk to in the same situation. Reading others posts gives me insight into a future I know nothing about. The education and wisdom from those who have walked this way before me is what's going to give me the courage to keep up the fight.

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Feb 20, 2021 11:06AM Sadiesservant wrote:

Lost47,

I’m so sorry you find yourself here and can imagine how shocked you must be. I’m also new to the liver thread but you will find a wealth of information, support and much caring. Don’t hesitate to ask any questions you may have.

Sending hugs

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/7/2022 Halaven (eribulin)
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Feb 20, 2021 06:18PM Nkb wrote:

theresa45- so sorry to hear about your progression. How long have you been on the enhertu study

Dx 12/2011, ILC, Both breasts, 6cm+, Stage IIIC, Grade 2, 34/40 nodes, ER+/PR+ Surgery 2/4/2012 Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 2/28/2012 AC + T (Taxol) Radiation Therapy 9/11/2012 Hormonal Therapy 10/21/2012 Arimidex (anastrozole) Dx 5/2017, ILC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 6/1/2017 Faslodex (fulvestrant) Targeted Therapy 6/1/2017 Ibrance (palbociclib) Targeted Therapy 3/13/2019 Afinitor (everolimus) Hormonal Therapy 3/13/2019 Aromasin (exemestane) Chemotherapy 3/10/2020 Xeloda (capecitabine)
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Feb 20, 2021 07:23PM NicoleRod wrote:

Ok so it seems I am the ONLY person on this website that I can find that has had such a harsh reaction to Y90... The first 5-6 weeks my stomach was HORRIBLE hopsitalized 2 times...Then week 7 my liver started hurting hospitalized for a week...I am now as of Feb 22nd will be exactly 2 months out from the procedure that was done on Dec 22. I still have pain in my liver...it feels exactly the way it feels when you run to much and you get a "stitch/cramp". how you are unable to take a deep breath or the pain get worse...also I (and others) if they put their hand on my ribs (where my liver is) we can sometimes feel what feel like gurgling..or almost what your chest feels like when its consgested and you can feel it in there...but in my liver. I am beginning to wonder if it's die off...I asked if my liver pain (before feeling the gurgling) 2 weeks ago could be from die off...she said she didn't think so...but a lot of the pain either is high up on my rib cage where my old cryoblation was done (Oct 2019) and also down by the bottom rid on my side which is exactly where the Y90 was done (near the colon wall).... Just wondering if anyone has heard of this or anything.

I have now stopped all MEDS and began taking Ibprophen 3 times a day. I just don't feel like the didlaudid and the patch were taking my pain away so why take them......I will cross post this for maximum exposure.

TIA

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Feb 20, 2021 07:47PM candy-678 wrote:

Nicole- Just a thought, but colon/GI versus liver?? I periodically have pain to Right side, under ribs, just under right breast. I have mentioned it to my PCP and he said colon/ constipation. I do have a lot of constipation. Though I have had constipation issues for years, way before liver mets and never had discomfort in that area before. Just since liver mets diagnosis. I personally think it is my liver with the lesions, but.....

When you said "feel gurgling" I thought of colon/ GI. Maybe the area they ablated against the colon wall?? Didn't you say that a scan said "colitis". Maybe your continued pain is the colon irritated/ injured and not the liver.

I have been following your posts and wish you could get relief. Maybe the block you mentioned will help.

I am keeping you in my prayers.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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Feb 20, 2021 08:33PM - edited Feb 20, 2021 08:34PM by NicoleRod

Candy...I prob shouldn't have said gurggling...more like I can feel something...hard to explain. Yes original CT scan from 4 weeks ago showed colitis..but most recent CT scan 2 weeks ago showed that all cleared up...and I had an upper endoscopy again and it looked at all the ducts..all clear.

I also don't think I am constipated I had a bowel movement today but..maybe I am though this pain was there even when I had soft super soft stool almost dirreah....

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Feb 20, 2021 09:41PM leftfootforward wrote:

I feel bad posting this with everything going on in everyone else’s life but I could use some positive energy. I have a pretty stressful week ahead of me.

Wednesday I have my systemic treatment of kadcyla. Thursday I have my brain mri and CT mapping for my cyber knife radiation treatment on March 4th snd 5th.

I have been going to PT because every joint in my body aches. It has helped as I do t feel like I need do me one to drive me any more and I can get up and down stairs without holding onto the rails.

I have recently lost about 20 lbs and am battling eating. Currently trying to navigate just consuming calories do that my weight and strength loss stop.

For the first time in as long as I can remember I just want a break. Every day is a battle snd I am tired of hurting, being sick to my stomach, and all the stress that comes with my impending brain treatment.


oh and I am due for my echo and head down body CT scan.

I know this is the liver thread but I know you all understand. Done of us have Ben in this journey for a long time together.,

I just needed to go somewhere I know people understand. Just being able to express myself to a group of people helps. Thank you sll for giving me a safe place to share my true feelings

Dx 12/13/2010, IDC, 3cm, Stage IIIA, Grade 2, 1/16 nodes, ER-/PR-, HER2+ Dx 12/4/2012, IDC, Stage IV, 0/0 nodes, ER-/PR-, HER2+
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Feb 20, 2021 09:47PM BevJen wrote:

LFF,

Thinking of you as you enter this crazy week for you. You DO have a lot going on right now. But this, too, shall pass. Just put one foot in front of the other, and you will be able to get through it. You are an incredibly strong individual, and I hope that the week passes quickly and much more easily than you anticipate.

Good thoughts coming your way....

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Keytruda (pembrolizumab) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy
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Feb 20, 2021 10:30PM Nkb wrote:

LFF- that does sound overwhelming and I know you have kids and travel for some of your treatments. I hope you can find someone to help release some of this stress by taking care of some of the other parts of your life. I know you have tried lots of food strategies- soup ( hearty) and potato chips ( I know, bad, and rare for me) seemed to help me. Esp chicken amd rice soup or pollo de limĂłn etc. My mom thought baklava was wonderful-

I agree with BevJen- one step at a time is the only way - you are amazing! Thinking of you and sending hugs!

Dx 12/2011, ILC, Both breasts, 6cm+, Stage IIIC, Grade 2, 34/40 nodes, ER+/PR+ Surgery 2/4/2012 Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 2/28/2012 AC + T (Taxol) Radiation Therapy 9/11/2012 Hormonal Therapy 10/21/2012 Arimidex (anastrozole) Dx 5/2017, ILC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 6/1/2017 Faslodex (fulvestrant) Targeted Therapy 6/1/2017 Ibrance (palbociclib) Targeted Therapy 3/13/2019 Afinitor (everolimus) Hormonal Therapy 3/13/2019 Aromasin (exemestane) Chemotherapy 3/10/2020 Xeloda (capecitabine)
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Feb 20, 2021 11:00PM Sadiesservant wrote:

Hi LFF. I am new to this thread but am embracing you in a warm hug from Canada. You have a very tough week ahead to be sure but we are all here, st ding behind you. Just think of us standing over your shoulder as you navigate through...

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/7/2022 Halaven (eribulin)
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Feb 21, 2021 08:53AM 50sgirl wrote:

LFF, You should never feel bad about posting here or to any other thread. These threads belong to everyone, and your struggles, thoughts, fears, and concerns are no less important than anyone else’s. You have a busy life even without all those appointments. The week you have ahead of you would be exhausting and overwhelming to any one of us. I hope all goes well for you. I understand why you just want a break. It would be nice to be able to take a month away from everything-cancer. I wish I had some wise words to help you. All I can offer are my support and good thoughts. I will be thinking of you every day. I will also say a prayer for you. Please let us know how you are doing.

Hugs and prayers from, Lynne


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/10/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/27/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 10/2/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
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Feb 21, 2021 08:53AM candy-678 wrote:

LFF- On another Thread we talk about "Pocket Duty". Picture a big comfortable sweater with large pockets. Enough room for all of us to be in those pockets. Meaning we are in your pockets as you have your scans and treatments. Surrounding you with love and comfort. Your virtual friends are right there with you. Hugs.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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Feb 21, 2021 11:53AM theresa45 wrote:

Nkb – I've been on Enhertu since 4/30/20. I feel very fortunate to have had access to Enhertu through the DESTINY04 trial for HER2 low.

Lost47 – Sorry that you've developed liver mets. I would talk to an interventional radiologist about local treatment such as microwave ablation to the two larger liver mets.

LFF – Your upcoming week of appointments would be overwhelming for anyone, especially when you're not feeling well and stressed about the upcoming brain treatment. Of course you want a break from it all!!! For those of us who are fortunate to survive for years with Stage 4 breast cancer, the journey sometimes just seems to get more challenging with appointment fatigue, stress and mounting side effects wearing us down. On tough weeks, I put one foot in front of the other and think about happy times with my husband and kids. I will be praying for you this week and sending positive energy. Hugs!

Dx 4/20/2009, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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Feb 21, 2021 12:20PM - edited Feb 21, 2021 12:24PM by Rosie24

Lost, Sorry about your sucky news of liver mets. It will probably take you sometime to absorb the new dx. For me it helped a lot to read as much as I could, and settle in a place where I felt supported and could learn from others in the same situation. Your MO will hopefully get you started on treatment soon. There are some very knowledgeable and caring folks here. I'm set for microwave ablation tomorrow after about 2 years on Ibrance/Letrozole and shrinking mets. Welcome to the thread.

LFF, I agree with the others above that you shouldn’t hesitate to “unload” here if you need to. You have a lot going on and I know it would have me at a high stress level too. Thinking of you.

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Dx 1/6/2022, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2- Radiation Therapy Whole-breast
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Feb 21, 2021 12:25PM werone wrote:

theresa45, i see your at cupertino,ca. you might want to check this trail @ Stanford NCT04278144

Looks like they are taking in Her low people .


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Feb 21, 2021 12:30PM HopeandGratitude wrote:

Lost 47 - I can only imagine how unsettled and afraid you must have been when you received the news of Stage iV. Seems it all hits us in different ways. My liver is the site of first metastases for me and it took me a long time to come to terms with it....if I have. I just know this MBC isn’t going away. S I have to do what I can to beat it back. Be sure your MO is keeping every option on the table - from targeted systemic therapies (get biopsy for testing mutations) to local options. Get second opinions from specialists in the field who stay current and also, continue touse this blog!!! There are so many experienced people here who can offer advice that’s been investigated or put into practice. You are not alone!!!

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/6/2020 Faslodex (fulvestrant)
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Feb 21, 2021 12:39PM HopeandGratitude wrote:

LFF - You have been fighting so long and so hard, I can only imagine the exhaustion amd the stress. I have only been 2 years from diagnosis amd sometimes I already feel that way. So wrong that this becomes the focus of our life. We don’t get a break and we can never go back. It gets more and more complicated as time goes in...it doesn’t get easier. Please know we are here for you whenever and however you need. Your strength and story are an inspiration. Let it inspire you! As candy says, we will be in your pocket amy time you need us. We are a big group but we will all squeeze in.

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/6/2020 Faslodex (fulvestrant)
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Feb 21, 2021 09:07PM BlueGirlRedState wrote:

Left - sending warm thoughts. It is ok to vent. The cancer/treatment journey sucks and seems to be filled with so many bumps and hurdles. If the PT helps, keep with it. You might asked the PT about nutrition/eating strategies or if they know a good nutritionist.

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Feb 22, 2021 01:48AM BSandra wrote:

Dear LFF, it is only possible to imagine what you go through:/ Please never hesitate to write here. Actually I do not know a better place and better people than here...

Dear Lost47, sorry you had to come here. As I understand you are on treatment already for some time or you stopped everything and still recover from surgery and radiation?

Saulius

Since May'21:NED. Mar'21:axilla LN surgery. Sep'19-Mar'21:NED. Feb'19:recurrence, left breast,IBC. May'18-Feb'19:NED. Jun'18:DC/CIK. Aug'17:stage IV de novo at age 33. Dx 8/4/2017, IDC, Left, 6cm+, Stage IV, metastasized to liver, Grade 2, ER-/PR-, HER2+ (IHC) Chemotherapy 8/27/2017 Taxotere (docetaxel) Targeted Therapy 8/28/2017 Herceptin (trastuzumab) Targeted Therapy 8/28/2017 Perjeta (pertuzumab) Chemotherapy 3/12/2019 Taxotere (docetaxel) Surgery 7/22/2019 Mastectomy: Left Radiation Therapy 9/9/2019 Whole-breast: Lymph nodes, Chest wall Surgery 4/15/2021 Lymph node removal: Underarm/Axillary Radiation Therapy 12/13/2021 3DCRT: Lymph nodes
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Feb 22, 2021 11:50AM S3K5 wrote:

Lost47, sorry to see you going through such a tough diagnosis. We are all here to support you, help you if you have any questions. Has your oncologist charted any treatment plans for you? Is surgery happening first or are you starting systemic therapy soon? I understand it is overwhelming right now, but you have plenty of options and things will be under control soon.

leftfootforward , you have too much on your plate at this time and I don't know how we can help. My only suggestion is for you to take one day at a time. With the impending brain treatments, it is understandable that you have a lot of stress going on. Hope you have some family and friends to support you during this difficult time.

S3K5 Dx 3/24/2008, IDC, Right, 3cm, Stage IIIA, Grade 2, 5/10 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 4/15/2008 AC + T (Taxol) Targeted Therapy 5/30/2013 Ibrance (palbociclib) Chemotherapy 2/1/2019 Xeloda (capecitabine) Chemotherapy 4/5/2019 Taxol (paclitaxel) Chemotherapy 10/30/2019 CMF Targeted Therapy 7/7/2020 Piqray (alpelisib) Dx 10/19/2020, IDC, Right, Stage IV, metastasized to bone/liver, ER-/PR-, HER2- (IHC) Chemotherapy 12/10/2020 Doxil (doxorubicin) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Chemotherapy Gemzar (gemcitabine)

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