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Apr 27, 2021 08:17PM
Thanks Moth ! I’ll send you a message !
Mike , I hope so too ! I hope it’s still works for me. I have a scan at the end of May once I’m done my 6th cycle. I had diffuse Mets throughout my liver and my halfway scan said that most were no longer able to be seen anymore and that the largest that was 4cm, was now no bigger than 2. So if the treatment has been effective and following the same trajectory the whole time , then I would hope and expect it to be mostly gone *fingers crossed* Definitely hoping that Polly has the same result . It’s a quick infusion too. About 40 mins from start to finish.
Sadie , I’m on the opposite coast , in Newfoundland. We are a little behind on the times here and def don’t Have the same access to things that other parts of Canada do which is frustrating. For example, I asked about Parp inhibitors because I’m BRCA2 and she was like “they’d be great to try but we don’t have access”
I think our MO’s are likely thinking on the same lines to be honest. the first time around I was being treated with curative intent after having a complete response to chemo and only one 5 mm met so ending chemo then was more clear.
I have a friend on these boards who has a similar story to me but when she finished iv chemo, she was put on ibrance even though she was NED. I asked my MO why that approach wasn’t being taken and she said she wouldn’t know what she was treating being that I was ned, and that if I had bad side effects and couldn’t tolerate it after a while , then we would be eliminating a treatment forever. She also said I’d likely not feel well and so I imagine QOL is a factor as well.
Granted I have no idea how long the break is supposed to be , but My understanding is that endocrine therapy is next. I only hope it’s effective this time. I don’t know if AIs are even an option anymore since Letrozole failed very quickly. I think my only real option is tamoxifen .
All that being said, I do like that I’m not on chemo indefinitely, but there’s definitely a vulnerability because ya know, we are all trying to survive as long as we can. My recurrence was aggressive so I worry that if I recur again, it’s going to be worse.
I guess it’s one day at a time right ?
8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH)
9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil)
2/25/2019 Mastectomy: Left, Right
4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall
IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH)
Abraxane (albumin-bound or nab-paclitaxel)
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Prophylactic ovary removal