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Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Aug 17, 2013 07:02AM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Sep 23, 2021 01:53AM - edited Sep 23, 2021 01:54AM by B-A-P

husband ,

I can ask but my money is betting on that we don't have that drug access in NL

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/7/2021 Ibrance (palbociclib) Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Faslodex (fulvestrant)
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Sep 23, 2021 01:56AM Husband11 wrote:

BAP, are you in New Zealand, or Newfoundland?

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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Sep 23, 2021 02:01AM Sadiesservant wrote:

BAP, so sorry you are going through all this. I'm not in your place but understand the challenges of one's body not cooperating. My blood/bone marrow doesn't play nice with chemo (or Ibrance for that matter). Hopefully you can recover a bit and they will find a treatment that works for you.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)
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Sep 23, 2021 04:04AM - edited Sep 23, 2021 04:04AM by B-A-P

Husband - Newfoundland !

Ibrance is back on the table. They changed their minds thinking it might be a good idea. We are still waiting for my markers to come back in. She just said if I choose that route over over chemo , I have to commit to it and realize that if it fails , bc I am so sick , I might miss the window where chemo would work. I think she meant I wouldnt be able to start chemo right away due to needing to washout the other drugs.

We will reevaluate my whole situation in 2 weeks and if they think chemo is still far too dangerous then we will go the ibrance way even though it has its own risks. Mind you I still have a clot I'm currently unable to treat with thinners. So every day is a risky one. But I'm trying to be cautiously optimistic that I'll be able to try atleast something. They've changed their minds a thousand times already but today ended good.

So I'll take what I can get for now

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/7/2021 Ibrance (palbociclib) Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Faslodex (fulvestrant)
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Sep 23, 2021 05:44AM Karenfizedbo15 wrote:

Saulius great news! BAP hang in there and you are right to keep your team exploring the options…. But that’s hard work and very tiring indeed.

Surgery 9/6/2007 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2- Dx 2021, Stage IV, metastasized to bone Chemotherapy 2/3/2021 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole)
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Sep 23, 2021 06:19AM nixie wrote:

dear bap, i wanna tell you what happened today. the nhs hospital we use is a small city hospital, not many oncology patients. it was our consultation day, seen the onc, talked about ascites, drainage, xeloda dosages etc. pretty standard stuff. our oncologist is a professor, he is head of cancer research for the south of england. he has many published papers. you get the idea. one thing lead to another and my mrs asked what is next when xeloda fails. he said im not a big fan of dropping xeloda completely, he said we might move to iv chemo, mix and match things. he also said there was this lady who he saw in 2003 (18 years ago), came in in a terrible shape. her liver was about to fail, v frail, malnourished, dehydrated, mets in her liver, lungs, bone marrow and abdominal cavity. he said he had no option but to give her low dose chemo as she couldnt handle anything else. she pulled through and is still with us, he said he sees her once every three weeks and she is still on low dose chemo. i though this was a great anecdote and worth sharing. good luck.

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Sep 23, 2021 07:12AM B-A-P wrote:

wow nixie thank you so much for sharing. That is definitely uplifting and hopeful. I’ve been surprising them in a lot of ways which is why they haven’t yet given up on me. I was told twice I was dying and turned it around. Was told no more treatment but now we are back to the drawing table. thank you

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/7/2021 Ibrance (palbociclib) Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Faslodex (fulvestrant)
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Sep 23, 2021 07:41AM Casun19 wrote:

hello, I don't post here often. And actually have never posted on the liver thread before but I recently had more progression in my liver and my oncologist is going to switch my from Piqray to an IV chemo Carboplatin by itself… my question is, is anyone familiar with or received Carboplatin as a single therapy? I was always under the impression it was paired with another chemo. any insight would be great! (I tried searching the boards and didn't come up with much)

Saulius - I read your posts about the spot on the mastectomy scar. I had a recurrence on my mastectomy scar. It never showed up on scans. A dermatologist ended up taking a punch biopsy to get an answer. I also had a different suspicious spot on my scar open up to “spit out" a stitch. My surgeon said it can happen years later. Old stitches that don't/ didn't dissolve and your body eventually pushes it out. Hope you get to the bottom of it! Just sharing personal experiences.

Dx 4/2016, IDC, Right, Stage IIB, Grade 1, ER+/PR+, HER2- Surgery 6/6/2016 Mastectomy: Left, Right Chemotherapy 8/4/2016 AC + T (Taxol) Dx 11/2016, Stage IV, metastasized to bone/other Hormonal Therapy 11/15/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/11/2017 Prophylactic ovary removal Hormonal Therapy 2/13/2017 Femara (letrozole) Targeted Therapy 2/14/2017 Ibrance (palbociclib) Hormonal Therapy 5/1/2020 Aromasin (exemestane) Targeted Therapy 5/1/2020 Afinitor (everolimus) Radiation Therapy External: Bone
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Sep 23, 2021 02:59PM BSandra wrote:

Dear Casun19, tanks a lot. For me it really looks like a wound/opening (aligns with stitch explaining) with some infection cleaning itself more than recurrence but we'll see a surgeon-dermatologist next Wednesday.

Now here's a bummer: CT sees nothing. NOTHING! But ultrasound guy (yesterday) sees increase in 3 not resected (they were too small or surgeon did not reach them) lymph nodes, up to 5 mm now (two months ago they were up to 3 mm). He wrote down ,,stable disease, control in 3 months". I know he's right according to numbers but we don't want to wait any 3 months. Something has to be done. Crap... it is always something!:/

Saulius

Since May'21:NED. Mar'21:axilla LN surgery. Sep'19-Mar'21:NED. Feb'19:recurrence, left breast,IBC. May'18-Feb'19:NED. Jun'18:DC/CIK. Aug'17:stage IV de novo at age 33. Dx 8/4/2017, IDC, Left, 6cm+, Stage IV, metastasized to liver, Grade 2, ER-/PR-, HER2+ (IHC) Chemotherapy 8/27/2017 Taxotere (docetaxel) Targeted Therapy 8/28/2017 Herceptin (trastuzumab) Targeted Therapy 8/28/2017 Perjeta (pertuzumab) Chemotherapy 3/12/2019 Taxotere (docetaxel) Surgery 7/22/2019 Mastectomy: Left Radiation Therapy 9/9/2019 Whole-breast: Lymph nodes, Chest wall Surgery 4/15/2021 Lymph node removal: Underarm/Axillary
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Sep 23, 2021 03:38PM BSandra wrote:

Dear BAP, hang on. It is great you have options and were able to persuade them. Please, could you find more people, like friends, who could help you out with daily things, so that you could recuperate quickly, and then jump on Ibrance. Ah, wish you luck. We are fighters, we never loose hope and do what we have to do! Saulius

Since May'21:NED. Mar'21:axilla LN surgery. Sep'19-Mar'21:NED. Feb'19:recurrence, left breast,IBC. May'18-Feb'19:NED. Jun'18:DC/CIK. Aug'17:stage IV de novo at age 33. Dx 8/4/2017, IDC, Left, 6cm+, Stage IV, metastasized to liver, Grade 2, ER-/PR-, HER2+ (IHC) Chemotherapy 8/27/2017 Taxotere (docetaxel) Targeted Therapy 8/28/2017 Herceptin (trastuzumab) Targeted Therapy 8/28/2017 Perjeta (pertuzumab) Chemotherapy 3/12/2019 Taxotere (docetaxel) Surgery 7/22/2019 Mastectomy: Left Radiation Therapy 9/9/2019 Whole-breast: Lymph nodes, Chest wall Surgery 4/15/2021 Lymph node removal: Underarm/Axillary
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Sep 23, 2021 06:33PM B-A-P wrote:

Hi Salius,

always wonderful to hear from you. Once I get home I will be having some respite care as well as my own food and own space so I’m positive I can recoup faster. I have no shortage of people who want to help.

The hard part about treatmentis having a clot they can’t treat yet so there’s always the risk with that. My hemoglobin and bilirubin have been playing the fluctuating game but I’m positive I can get that turned around. I think the wait is really too see what’s going to be best. Chemo will kill the cancer faster , ibrance and fluvestrant will slow the division. So they prefer chemo , but I currently can’t have it. Anyway , I do think the ibrance is going to end up being the route for me to take. Just a feeling I have. I’m glad I now have an option atleast . I hope they don’t change their minds again. It’s been a rollercoaster.

My oncologist is currently trying to work out coverage with my insurance company to make sure we can get it that way and if not, then try to argue for compassionate use. A lot of steps but we will get there.

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/7/2021 Ibrance (palbociclib) Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Faslodex (fulvestrant)
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Sep 25, 2021 02:05AM BevJen wrote:

Dee,

Have a wonderful birthday and a wonderful trip. Put thoughts of cancer out of your head so you can enjoy being around your family. You've done so well on this treatment, too, so there's no reason to think that this is anything but a little glitch.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy Immunotherapy
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Sep 25, 2021 03:47AM Sadiesservant wrote:

Hi All,

Well, it’s on to IV chemotherapy for me. Nice while it lasted but no surprise really. “Met” (phone call - stupid Covid) with the temporary MO. He seemed good and discussed a number of options, ultimately landing on Vinorelbine. Anyone have any experience with it? I haven’t been able to find a specific thread but will keep looking. The one worry I have is my veins, wondering if a port is in my future.

I find the ins and outs of access here fascinating. I think he was initially leaning toward Eribulin, after determining that Doxorubicin was off the table due to prior exposure to Epirubicin in the adjuvant setting, but then decided we should do Vinorelbine first. Apparently here you can get approval to go from Vinorelbine to Eribulin but can’t go from Eribulin to Vinorelbine. Go figure…

I won’t start for a week or two as they have to figure out scheduling. In the meantime I can try to squeeze in enjoyment of a few more side effect free days.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)
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Sep 25, 2021 04:02AM BlueGirlRedState wrote:

Sadie - I do not know anything about Vinorelbine. But depending on how many infusions and health of your veins, going without a port might be an option. I did chemo in 2016, 4 infusions without a port. I was concerned about a port becoming a source of infection even though the clinic was not. Also, could not stand the thought of one. I don't think I could do that today, hopefully I won't have to face that decision.

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Sep 25, 2021 04:19AM Sadiesservant wrote:

Thanks BGRS. My veins are already starting to cry uncle from overuse. Almost five years of blood draws, CT IVs and pamidronate infusions have taken a toll with technicians having more and more trouble getting access. It also depends a bit on the as some are much more caustic than others. I had trouble with my veins in 2001, ultimately opting for a PICC line. I take it Vinorelbine is also hard on veins (MO asked up front if I had a port - never a good sign). We’ll see. If I have trouble I will push for a port. The tricky bit may be getting one with the clamp down on surgeries and elective procedures due to Covid. But I’ll cross that bridge when I get to it.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)
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Sep 25, 2021 04:55AM B-A-P wrote:

ugh bilirubin slowly going up again. What’s up with that 🤦🏼♀️

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/7/2021 Ibrance (palbociclib) Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Faslodex (fulvestrant)
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Sep 25, 2021 06:13AM BevJen wrote:

Sadiesservant,

So sorry to hear this. What happened to being off all treatment for a bit of time? Did the time pass that quickly?

I hope this drug treats you kindly. I have no experience with it at all. But I trust that you will ask all of the right questions and that you will make sure that you are set up with a port if that's what's needed.

Good luck. Thinking of you.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy Immunotherapy
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Sep 25, 2021 09:24AM Sadiesservant wrote:

Yes BevJen, time passed that quickly. I technically got four months of treatment but in reality it was about two months before things started to go pear shaped. The liver twinges started and got progressively worse. At the three month mark the one met was about the same size as it was before. Now, judging by the discomfort, I would say bigger.

But I’m good. I couldn’t really comprehend how no treatment was going to be sustainable. My cancer is slow but determined.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)
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Sep 25, 2021 12:04PM SeeQ wrote:

sadiesservant- I remember someone talking about vinorelbine before - maybe grannax?

AlabamaDee- FWIW my MO warned me, when I reached NED, that my tumor markers would probably yo-yo a little bit, and they have. Have fun on you vacation in the Smokies. It sounds wonderful and the leaves should be turning, right?

BAP - ugg. Your body just needs to give you a break and calm down so you can work on fixing it. Hoping things settle down for you.

Diagnosed de novo Stage IV; numerous liver mets; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Sep 25, 2021 12:21PM nopink2019 wrote:

Sadiesservant- I had port in 2008 for 6 mos of chemo. MO said do what you want about having one put in. Nurses said "you want one". I had much easier time than folks I watched in infusion room heating up their arms trying to get veins to pop up. Had it removed after chemo. I'd do it again if necessary. My only problem was it was very high and showed in any but crew or high neck shirt. Should have been put in lower where it wasn't visible.

Dx 2008, IDC, Stage IA, Grade 3, ER+/PR-, HER2- Dx 2019, Stage IV, metastasized to bone/liver/lungs, ER+/PR-, HER2- Chemotherapy 8/22/2019 Taxotere (docetaxel) Chemotherapy 9/12/2019 Xeloda (capecitabine) Targeted Therapy 11/8/2019 Kisqali Hormonal Therapy 11/8/2019 Faslodex (fulvestrant) Targeted Therapy 5/10/2021 Afinitor (everolimus) Hormonal Therapy 5/10/2021 Aromasin (exemestane) Chemotherapy 11/14/2021 Xeloda (capecitabine)
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Sep 26, 2021 05:25AM B-A-P wrote:

I’m finally home from the hospital. It’s bittersweet bc I still have ascites but I’m with my people. Hoping ibrance is still on the table when my dr and I speak next and will get me more time and comfort. Holding on to all those hopeful stories.

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/7/2021 Ibrance (palbociclib) Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Faslodex (fulvestrant)
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Sep 26, 2021 06:48AM OhioNana1605 wrote:

dear BAP

Glad you are home and with loved ones. That’s the best medicine. Hoping you aren’t in pain and can be comfortable. Thinking of you and sending good thoughts. Be

Dx 3/1/2013, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes Dx 2/4/2021, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ Targeted Therapy 4/30/2021 Perjeta (pertuzumab) Chemotherapy 5/20/2021 TAC
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Sep 26, 2021 06:57PM Kattysmith wrote:

BAP,

I'm so glad that you are home with your people and I hope each day brings more comfort in every way.

First diagnosed borderline Stage 2 IDC, left breast in 2003. No problems until a surprise (!) Stage IV recurrence in 2015! In addition to treatments listed below, I started monthly injections of Xgeva for bone support in July 2016. Dx 10/23/2015, Left, Stage IV, metastasized to other, Grade 3, 0/3 nodes, ER+, HER2- Chemotherapy 11/4/2015 AC Hormonal Therapy 2/5/2016 Femara (letrozole) Targeted Therapy 2/5/2016 Ibrance (palbociclib) Immunotherapy 12/23/2018 Hormonal Therapy Faslodex (fulvestrant)
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Sep 26, 2021 10:23PM Grannax2 wrote:

BAP. So glad to hear that you’re back home. Such good news. I’m happy for you and your family.

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Sep 26, 2021 11:17PM B-A-P wrote:

thanks everyone!
If these ascites would go away I’d be a happy camper. I look about 36 weeks pregnant

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/7/2021 Ibrance (palbociclib) Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Faslodex (fulvestrant)
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Sep 27, 2021 03:18AM Husband11 wrote:

Ascites can reverse itself if the cancer is beaten back. I know that from my wife's experience. She was generating a gallon of fluid in less than a week at her worst.

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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Sep 27, 2021 03:30AM B-A-P wrote:

thanks husband. Hopefully I can start something soon. I’m pretty sure I’m producing the same as your wife. I usually get 4/5 litres removed every tap. There’s always more than that but I have low blood pressure they’re watching

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/7/2021 Ibrance (palbociclib) Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Faslodex (fulvestrant)
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Sep 27, 2021 09:57AM Husband11 wrote:

My wife had a drain line installed so we could do it at home. Taking our time, we could get more out than them using a needle. It seemed with the needle, they had to pick a spot, and they said they couldn't go in twice during the same draining.

They also put my wife in an injectable blood thinner, and two types of diuretics, which somehow compensate for each other's side effects.

If it didn't reverse, the liver specialized recommended doing a shunt through her liver, where they bore a hole though the liver so that the vein (yes it is a vein that runs from the small intestine) that runs into the liver could simply pass through her liver unobstructed and remove the hepatic hypertension.

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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Sep 27, 2021 07:27PM BSandra wrote:

Dear BAP, please hold on! I just want you to go on some treatment... man, I completely agree with Husband11 - to revert ascites, you need to beat cancer back. We also went for the treatment when liver was in failure and put signature under words ,,on our own risk". We have come a long way after that...

Saulius

Since May'21:NED. Mar'21:axilla LN surgery. Sep'19-Mar'21:NED. Feb'19:recurrence, left breast,IBC. May'18-Feb'19:NED. Jun'18:DC/CIK. Aug'17:stage IV de novo at age 33. Dx 8/4/2017, IDC, Left, 6cm+, Stage IV, metastasized to liver, Grade 2, ER-/PR-, HER2+ (IHC) Chemotherapy 8/27/2017 Taxotere (docetaxel) Targeted Therapy 8/28/2017 Herceptin (trastuzumab) Targeted Therapy 8/28/2017 Perjeta (pertuzumab) Chemotherapy 3/12/2019 Taxotere (docetaxel) Surgery 7/22/2019 Mastectomy: Left Radiation Therapy 9/9/2019 Whole-breast: Lymph nodes, Chest wall Surgery 4/15/2021 Lymph node removal: Underarm/Axillary
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Sep 27, 2021 08:19PM B-A-P wrote:

Husband- I wanted the permanent drain but they won’t consider it until there’s no treatment options. They’re too terrified that it’ll get infected and then be too hard to remove. So I get the taps which just don’t last as long. I should be on a thinner for my clot but there’s things that have been going on preventing it. They tried diuretics once. And I think they’re concerned they’ll lower pressure more but they have mentioned it a few times. So I will as weds. I tried asking about the shunt “your body is too weak” which is crazy because if I didn’t have the belly I’d feel fine.

Salius - trust me. I’m fighting for something one way or the other. Whether it be chemo or ibrance with AI/fluvestrant. Something ! I’m not just gonna let them say no. I’ll try . We know cisplatin and gemcitabine oished it back a little in ONE treatment. But then I actually did almost die. The dr said “what you did is the most remarkable thing I’ve ever seen in my whole career and I wanted you to know that” They had never seen anyone with bleeding like mine , blood pressure that low , be conscious, alert, and with faculties. If anyone can do this , it’s me. And the fact that you and your wife took the risk and it’s paying off in spades , is inspiring and gives me that extra push. Here’s to hoping blood work is good tmr and my MO has some good news weds.

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/17/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/7/2021 Ibrance (palbociclib) Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Faslodex (fulvestrant)

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