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Oct 26, 2017 12:39PM
Today I started my first dose of weekly taxol. Next week I'm going to get a port before the 2nd dose. To ease my panic the nurse was kind enough to tell me that there is a risk of collapsing the lung as they make room for the port!
The chemo went relatively well. Apart from becoming rather tired of the antihistamine I did not experience anything. However, as soon as I came home I noticed a very strong tingling in my hands and feet - especially in my left arm that also has lymphedema. The nurses said that neuropathy was a risk - but it would build up over time. First times I most certainly wouldn't experience anything. And not everybody gets it. Now already strong reaction after first dose - that's bad news I think.
Given that my tumors are very aggressive I have told the doctors that I prefer life quality to life length. And they understand that. I think neuropathy is one of the SE I will not tolerate - most people I've talked to describe this SE as hell on earth. The doctor told me on my consultation a couple of weeks ago, that the neuropathy would be the worse SE (+ loosing the hair). Should I get it, they might take me off taxol because the damages in most cases are permanent. I fear I already have to let go of taxol.
Right now my fingers have become so numb I can hardly write on the computer. Anybody knows if this early neuropathy might be just transient and disappear as the treatment continues - or is it a sign that I'm a strong candidate for serious neuropathy as the treatment goes on?
4/2001, ILC, Left, Stage IIA, Grade 3
5/2008, LCIS/DCIS, Left, 2cm, Stage IIIA, Grade 3, 9/18 nodes, ER+, HER2-
5/2014, LCIS/ILC, Left, 1cm, Stage IIIC, Grade 3, ER+, HER2-
2/28/2015 Femara (letrozole)
6/2017, LCIS/DCIS/ILC, Stage IV, metastasized to liver, ER+, HER2-
7/4/2017 Faslodex (fulvestrant)
7/4/2017 Ibrance (palbociclib)
10/25/2017 Taxol (paclitaxel)
Arimidex (anastrozole), Aromasin (exemestane)
Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary; Prophylactic ovary removal
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)