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Aug 7, 2020 02:13PM
Welcome to the new posters! I have gotten a lot out of this 'group within a group'. I take comfort that ya'll are coming at this the same way I am and we truly have a shared experience being de novo.
Update from me: This has been a week of appointments: Cardiology echo, MO checkin, treatment (infusion H and P) and then cardiologist follow up today.
I have an appointment to have my drain removed next Tuesday. Fluid collected has gotten down low enough that I should be good for removal. I will be very happy to be done with the drain. But I know many women have 3 or 4 drains after surgery so I'm not complaining. It amuses me to think about how my husband would deal with one drain. I expect there would be a lot of wailing. Women are just amazing with what we can manage and still push onwards.
MO was very pleased with the pathology from surgery. He still does not want to move forward with Radiatiob because the last bits should be taken care of by the targeted therapies to which I am responding 'very well'. He did discuss it more with the BS but has not changed his opinion. I defer to my MO because he has more experience with Stage 4 spread than my BS. I think the BS more often has patients that are one and done instead of ongoing treatment. I'm OK with this plan and am pleased to have had surgery.
Hot flashes are better, although the effexor makes me quesy all day. I just started taking it at night and am hoping that will help.
Echo looks good with nothing changing from last echo in April. Unfortunately my blood pressure is a bit high (can be caused by Herceptin) so Cardiologist wants to monitor it. I'll be buying a cuff for at home daily checks and recording. I am meeting with him again in 6 weeks to review. It is possible my BP is higher because I am still recovering and because I have a drain stuck in my side which is uncomfortable. He said that is why he wants to track it instead of prescribing something.
That's the latest! I've been walking a bunch and using small weight for some arm exercising. Have to wait another 3 weeks before anything more but I've been enjoying the walks! I just have to get outside early to avoid the Texas heat.
Hugs to all! KBL, I am thinking of you as you wait for biopsy results.
And lauawill, hang in there. It is so so terrible right after diagnosis and then dealing with the loss of your father. It will get easier and you will find your new routine. I found it helped to have a plan. Good luck with your treatment!
Lynn, I totally hear u with the whirlwind of finding Mets after already starting down a treatment path. And also, I went to a dark place with Stage 4 diagnosis. My husband was even worse. Since then and thanks to all the amazing women on these boards, I am looking forward to living!
12/19/2019, ILC, Both breasts, Stage IV, metastasized to bone, ER+/PR+, HER2+
1/16/2020 Herceptin (trastuzumab)
1/16/2020 Perjeta (pertuzumab)
1/16/2020 Taxotere (docetaxel)
7/15/2020 Lumpectomy: Left, Right; Prophylactic ovary removal