We are 201,330 members in 81 forums discussing 146,899 topics.

Help with Abbreviations

All TopicsForum: HER2+ (Positive) Breast Cancer → Topic: TRIPLE POSITIVE GROUP

Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
Log in to post a reply

Page 1168 of 1,170 (35,083 results)

Posts 35011 - 35040 (35,083 total)

Log in to post a reply

Feb 12, 2018 11:38AM - edited Feb 12, 2018 11:39AM by Gudrun

thank you so much for all your caring answers. You are such a great community.

Photogirl: I do like your answer to your mother who has had to endure so much, seeing her as the gift you have while battling all this. Thank you for this view.

Cherry: Yes, my daughter is a fighter, and your mom has to be strong as well. In this, I'm not alone.

LaughingGull: You're right, I ought to be nice to myself so that I can be this priceless support your mother is to you. My fingers are crossed for good surgery results.

Coachvicky: " Glad she got rid of her BF". You got it right. He was one of them who only share the bright side of life. I always had that feeling, but didn't want to meddle.

Love to all of you

Daughter dx at 28: Dx 8/2015, IDC, Left, 3cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ (IHC) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery Mastectomy: Left; Reconstruction (left): TUG flap
Log in to post a reply

Feb 12, 2018 12:26PM Cherry-sw wrote:

coachvicky, I am very sorry about your pregnancies and your son, life is indeed very unfair.


Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/17/2017 Lumpectomy: Left Targeted Therapy 8/20/2017 Herceptin (trastuzumab) Chemotherapy 8/20/2017 Taxol (paclitaxel)
Log in to post a reply

Feb 12, 2018 12:55PM Gudrun wrote:

"and showed no impact of pCR in the luminal A group or among luminal B cancers that are HER2-positive"

Thank you so much, SpezialK. I'll memorize this part until I'll know it inside out. So anxiety relieving.

Love

Daughter dx at 28: Dx 8/2015, IDC, Left, 3cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ (IHC) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery Mastectomy: Left; Reconstruction (left): TUG flap
Log in to post a reply

Feb 12, 2018 03:12PM LaughingGull wrote:

Gudrun: indeed you need to take care of yourself. You have many ears here ready to listen to you and support you, vent and rant as much as you need to.

Dx 10/26/2017, IDC, Right, Stage IIB, ER+/PR+, HER2+ Chemotherapy 11/16/2017 AC Targeted Therapy 1/18/2018 Perjeta (pertuzumab) Targeted Therapy 1/18/2018 Herceptin (trastuzumab) Chemotherapy 1/18/2018 Taxotere (docetaxel)
Log in to post a reply

Feb 12, 2018 04:04PM Photogirl81 wrote:

hello ladies,

CoachVicky and SpecialK, thank you for sharing your stories with me. They were inspiring and comforting. DH and I will find our path once the scare of this bc eases.

Gudrun, you would not believe if I told you how much strength my mum had while I was getting chemo. I mean she was going for treatments (Avastin) every three weeks, and still she managed to cook for me and my husband (even though I told her to rest). On the day of the chemo, she would tell us to come by, and she cooked us so much food that we did not have to cook for a full week. I am sure that my mama's cooking helped greatly in recovering so fast from treatments. :)

So be that anchor for your daughter and cherish every phone call or meeting. I know it means a lot to just be mummy's little girl a bit...no matter how old we are.


Dx 12/20/2016, IDC: Papillary, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 2/1/2017 Lumpectomy: Left Chemotherapy 2/27/2017 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Whole-breast: Breast
Log in to post a reply

Feb 12, 2018 06:36PM deni1661 wrote:

Hello everyone, I'm playing catch up....

Kae - congrats on your last Herceptin! You are so beautiful, I love your smile

Hapb, wishing you good results and no more complications as you start on Herceptin again. You made a tough decision but I know your faith will see you through.

Coach- I am always amazed at your strength and wisdom. I am truly sorry for your miscarriages and the loss of your son. You inspire us all to push through hardship and perseverance toward a life worth living.

Suburbs, your post has inspired me to get back on track with my eating. Since my surgery I have been eating too many convenience foods to make it easier on my hubby. I know not eating sugar, dairy and gluten will make me feel better and it will probably help with healing too. Thanks for the kick in the butt I needed! I made a batch of mushroom, spinach and wild rice soup to get headed in the right direction 😊

Dx 7/25/2016, IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 9/6/2016 Perjeta (pertuzumab) Hormonal Therapy 9/6/2016 Arimidex (anastrozole) Targeted Therapy 9/6/2016 Herceptin (trastuzumab) Surgery 4/27/2017 Lymph node removal: Sentinel; Mastectomy: Left Surgery 5/9/2017 Reconstruction (left): Stacked DIEP flap
Log in to post a reply

Feb 12, 2018 06:37PM deni1661 wrote:

Posey, happy 49th birthday! Hope you are feeling much better and you had a great celebration with your friends! I appreciate your question about changes since dx...I feel like a completely different person! Mentally I am calmer, more patient, forgiving and positive. My faith and spirituality is stronger, I start each day with gratitude and appreciation for the many blessings I do have. Physically I lost 40 pounds, cut way down on drinking and drastically changed my eating habits. I meditate. I can sit on my porch and just listen to nature without feeling like I should be doing something else. I am retiring from a stressful job in less than 2 months. I want to give back so will be looking for a new “career” where I can make a difference in someone's life. I no longer feel the need to fill every waking minute with activity, but instead I want to be fully present in everything I do.
Dx 7/25/2016, IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 9/6/2016 Perjeta (pertuzumab) Hormonal Therapy 9/6/2016 Arimidex (anastrozole) Targeted Therapy 9/6/2016 Herceptin (trastuzumab) Surgery 4/27/2017 Lymph node removal: Sentinel; Mastectomy: Left Surgery 5/9/2017 Reconstruction (left): Stacked DIEP flap
Log in to post a reply

Feb 12, 2018 06:41PM deni1661 wrote:

Photogirl, I am so sorry your dx will prevent you from having children. I pray God blesses you and your husband in other ways that bring you joy and fulfillment. Please let us know how we can help, this group has been a tremendous support for me throughout my cancer journey. Sending hugs

tld2017 - welcome to our group, you will find tremendous support and great info here. Yay you did not have node involvement, that is a plus! I did Herceptin and Perjeta for 1 year, no chemo in a clinical trial. I did not have any bad side effects from either and a great response. I had a mastectomy after 6 months of treatment and pathology indicated only a few single cells in the tissue that was removed. I am on AI for a total of 5 years and that has caused the majority of side effects.

Laughinggull and faith323’ I am sorry you are feeling down. Unfortunately this is part of the process and the doom and gloom of HER2 hits us all from time to time, even for those of us done with treatment. My approach is to focus on all the blessings happening today and push aside the what ifs of tomorrow. It is easier said than done for sure but I make a conscious effort to stay positive and I say my mantra every day “I am cancer free”. You will find your new normal and there is much joy ahead for you I promise!

Gudrun, welcome to our group. You and your daughter will find the unconditional support needed to get through this cancer fight. You are blessed to have each other and you as a mother can provide the comfort your daughter needs that only a mother can give. As a mother myself, I can understand how tough it must be to see your daughter go through this. Your daughter has the right attitude and you must follow her lead. Appreciate every moment you have together and lift each other up on the down days. I pray you find the strength, comfort and peace to get through these tough times.
Dx 7/25/2016, IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 9/6/2016 Perjeta (pertuzumab) Hormonal Therapy 9/6/2016 Arimidex (anastrozole) Targeted Therapy 9/6/2016 Herceptin (trastuzumab) Surgery 4/27/2017 Lymph node removal: Sentinel; Mastectomy: Left Surgery 5/9/2017 Reconstruction (left): Stacked DIEP flap
Log in to post a reply

Feb 12, 2018 06:49PM deni1661 wrote:

Gudrun, I want to add that my mom passed 17 years ago and I have missed her more so since getting cancer. There is no one better at caretaking than a mother and while my husband, kids, family and friends all did a great job, I know my mother would have given me so much more. I can't explain it but you have that something special your daughter needs. And don't forget to get your needs met too, take good care of you 😊
Dx 7/25/2016, IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 9/6/2016 Perjeta (pertuzumab) Hormonal Therapy 9/6/2016 Arimidex (anastrozole) Targeted Therapy 9/6/2016 Herceptin (trastuzumab) Surgery 4/27/2017 Lymph node removal: Sentinel; Mastectomy: Left Surgery 5/9/2017 Reconstruction (left): Stacked DIEP flap
Log in to post a reply

Feb 12, 2018 06:50PM HapB wrote:

deni, yum, that soup sounds good!

Do you remember how many Herceptin treatments you had total?


Dx 4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (FISH) Surgery 5/10/2017 Lumpectomy: Right Targeted Therapy 6/9/2017 Herceptin (trastuzumab) Hormonal Therapy Radiation Therapy
Log in to post a reply

Feb 12, 2018 07:19PM - edited Feb 12, 2018 07:20PM by KimCee

Hi everyone,

Been crazy with work and appointments so I had a lot of catching up to do.

Coach, I am very sorry to hear of the loss of your son. No parent should ever have to bury a child. Big hugs xo.

Photogirl, if I remember correctly, you are only 36. My first breast cancer was when I was 36. It is hard to deal with all the changes that you will experience. Especially, your insides changing before it is meant to, like menopause. But as coach said, you will experience a full life, unfortunately, you have to make some alternate plans. I know this doesn't ease your pain either, but in time, you will conquer.

HapB, I must have missed something, saw you had another Herceptin. Hoping all goes well. Hope your Shortness of breath is not related. I saw your article...omg...is nothing I eat right? Love chicken, asparagus, dairy...ugh!!!!!

Oh, and I get these awful expanders out on 3/15. So sick of them...


Dx 8/10/1999, IDC, Right, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 8/24/1999 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 9/9/1999 AT Radiation Therapy 1/5/2000 Whole-breast: Breast Dx 7/31/2017, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 9/27/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 10/26/2017 Taxol (paclitaxel) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
Log in to post a reply

Feb 12, 2018 08:03PM shelabela wrote:

So hard to keep up commenting. I will just leave a general comment

All you ladies are incredible . We each bring something to this page!

Have a wonderful evening.

Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 2/4/2017 Perjeta (pertuzumab) Chemotherapy 2/5/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Chemotherapy 5/1/2017 AC Surgery 7/19/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Targeted Therapy 8/1/2017 Herceptin (trastuzumab) Radiation Therapy 9/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 10/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Feb 12, 2018 08:12PM - edited Feb 12, 2018 08:13PM by deni1661

Hapb I had a total of 17 Herceptin and Perjet

Dx 7/25/2016, IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 9/6/2016 Perjeta (pertuzumab) Hormonal Therapy 9/6/2016 Arimidex (anastrozole) Targeted Therapy 9/6/2016 Herceptin (trastuzumab) Surgery 4/27/2017 Lymph node removal: Sentinel; Mastectomy: Left Surgery 5/9/2017 Reconstruction (left): Stacked DIEP flap
Log in to post a reply

Feb 12, 2018 08:15PM deni1661 wrote:

KimCee, I can't wait until you get those expanders out...they are horrible. Hang in there
Dx 7/25/2016, IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 9/6/2016 Perjeta (pertuzumab) Hormonal Therapy 9/6/2016 Arimidex (anastrozole) Targeted Therapy 9/6/2016 Herceptin (trastuzumab) Surgery 4/27/2017 Lymph node removal: Sentinel; Mastectomy: Left Surgery 5/9/2017 Reconstruction (left): Stacked DIEP flap
Log in to post a reply

Feb 12, 2018 08:46PM HapB wrote:

deni, yikes, that is a lot. Are there any results of the study yet?

Dx 4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (FISH) Surgery 5/10/2017 Lumpectomy: Right Targeted Therapy 6/9/2017 Herceptin (trastuzumab) Hormonal Therapy Radiation Therapy
Log in to post a reply

Feb 12, 2018 08:47PM KimCee wrote:

Thanks Deni...hope you are feeling better. Also, happy almost retirement...yay you!!!

You are right Shelabela...I always realize who I forgot to say something to after I hit submit lol.

Dx 8/10/1999, IDC, Right, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 8/24/1999 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 9/9/1999 AT Radiation Therapy 1/5/2000 Whole-breast: Breast Dx 7/31/2017, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 9/27/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 10/26/2017 Taxol (paclitaxel) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
Log in to post a reply

Feb 12, 2018 10:39PM trina21 wrote:

Hi, I'm new.

My mom, son and I are NBN positive. My mom has breast cancer and my son is in remission from Lymphoma. My great Grandma had ovarian cancer, My grandpa had colon cancer, my sister, mom and 2 nieces had melanoma.

Ive noticed that most of you have had radiation. Why? Aren't your doctors telling you that radiation just makes tumors grow? I know doctors know very little about this gene but I can't believe anyone doctor would recommend it.

My urologist, oncologist, breast surgeon and gynocologist all say my only option is surgery. Ive had my uterus removed and I'm in the planning stages of removing my ovaries and a masectomy.

My mom has had a partial masectomy. Chemo and radiation were not recommended.

My son nearly died from only 3 doses (not rounds, doses) of chemo and he was stage 0.

Cancer caused by NBN cant be treated like other genes.

Log in to post a reply

Feb 12, 2018 10:50PM HapB wrote:

Hi Trina, I don’t know what NBN is, but your family has certainly had to struggle with cancer. Do you think there might be environmental factors? Common dietary habits? Shared environmental toxins? I have known families that had no genetic markers but because of toxins in shared environment coupled with shared dietary habits suffered cancer in multiple generations.

What are you referring to with radiation? Chemo? Where did you get this information?

Dx 4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (FISH) Surgery 5/10/2017 Lumpectomy: Right Targeted Therapy 6/9/2017 Herceptin (trastuzumab) Hormonal Therapy Radiation Therapy
Log in to post a reply

Feb 13, 2018 07:11AM shelabela wrote:

i have never heard that radiation makes tumors grow, but i guess i don't know what NBN means either. Sorry to hear about all the cancer in your family.

I think i have shingles again. Will this crap ever go away?

Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 2/4/2017 Perjeta (pertuzumab) Chemotherapy 2/5/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Chemotherapy 5/1/2017 AC Surgery 7/19/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Targeted Therapy 8/1/2017 Herceptin (trastuzumab) Radiation Therapy 9/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 10/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Feb 13, 2018 08:08AM Suburbs wrote:

Hi everybody. Deni1661, so happy to hear that my meltdown inspired you. I recall a time when you inspired me to move forward with my surgery and for that I thank you. Your bravery helped me get over my reconstruction fears. Sending healing thoughts for that shoulder.

Shelabela, wah! I had shingles before cancer. The Valtrex worked wonders. Sorry to hear this.

Herceptin and the runny nose. I was warned of this side effect. I am about 3 weeks out from my last Herceptin. The symptom still exists but it is dissipating. I don't leave the house without a box of Kleenex and cough drops though.

For everyone new to the board, welcome. You have come to the right place for support. It's a special community.


Dx 1/9/2017, DCIS/IDC, Right, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (IHC) Chemotherapy 1/31/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/31/2017 Herceptin (trastuzumab) Surgery 6/20/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/20/2017 Arimidex (anastrozole)
Log in to post a reply

Feb 13, 2018 08:58AM KimCee wrote:

When does the runny nose start? I have been on Herceptin since October. Had the runny nose after the first infusion only. I chalked it up to something else.

Dx 8/10/1999, IDC, Right, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 8/24/1999 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 9/9/1999 AT Radiation Therapy 1/5/2000 Whole-breast: Breast Dx 7/31/2017, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 9/27/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 10/26/2017 Taxol (paclitaxel) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
Log in to post a reply

Feb 13, 2018 09:02AM Cherry-sw wrote:

Trina, I am so sorry to hear about all the cancers your family went through. I never heard that radiation makes tumors grow. I believe I red somewhere that radiation can cause bc mutations, when it changes hormonal receptor status for example. I am in Europe, the standard of care here is always to go with radiation after breast-preserving surgery but I know that some TN patients receive radiation even after BMX.

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/17/2017 Lumpectomy: Left Targeted Therapy 8/20/2017 Herceptin (trastuzumab) Chemotherapy 8/20/2017 Taxol (paclitaxel)
Log in to post a reply

Feb 13, 2018 09:41AM tld2017 wrote:

Good morning, Ladies! Couple of questions that I'm hoping someone will have thoughts on. I had my sentinel node biopsy and lumpectomy on January 19th. My chemo is not going to start until the week of March 19th, two months after the surgery. The reason for this is that we had already scheduled a vacation with my family and I'd really like to go, since it is already paid for and can't get refunded. The doctor said he would prefer chemo to start within six weeks of surgery but the extra two weeks won't make that big of a difference. Now I'm second-guessing myself and thinking I should cancel the trip... :( Has anyone else here waited that long between surgery and the start of chemo? Also, my next question is about cold caps. What do you think of them? I understand they are expensive, painful, and only work in about 50% of women, and that, on average, women only save about 50% of their hair if it works. I'm considering this route but would love to hear input from all of you! Thank you so much!

Log in to post a reply

Feb 13, 2018 10:43AM - edited Feb 13, 2018 10:44AM by PatinMN

Tld2017, on cold caps, success really depends on which chemo you will be getting. If you have weekly taxol and herceptin, cold capping is extremely effective. I lost essentially none of my hair - maybe 5% at the most. Taxotere is harder on the hair, but most are successful in keeping more than 50% of their hair. Adriamycin is hardest for keeping hair with cold caps. There is a very active cold capping board in the Managing Side Effects forum. Sorry I'm bad at doing links on my iPad. Check out that board and read back a number of pages to get some feel for cold capping.

Dx 7/13/2012, IDC, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Surgery 8/1/2012 Lumpectomy: Left Targeted Therapy 9/20/2012 Herceptin (trastuzumab) Chemotherapy 9/20/2012 Taxol (paclitaxel) Radiation Therapy 1/8/2013 Breast Hormonal Therapy 4/1/2013
Log in to post a reply

Feb 13, 2018 10:57AM SpecialK wrote:

kim - if you are not yet experiencing the runny nose you may one of the lucky ones that it doesn't happen to.

hap - 17 Herceptin is the norm, on every three week dosing - although deni also had Perjeta.. I got the first 6 Herceptin infusions with chemo every three weeks, then 11 more Herceptin infusions, one every three weeks, for the remainder of the year - which equals 51 weeks of treatment. This number changes with Herceptin dosing with weekly Taxol - you would receive 12 smaller doses over the three months of chemo, then receive three week dosing for the remainder of the 9 months, which I think works out to another 12 doses, but the same amount of medication since the weekly doses are smaller. I have actually seen a very few continue with weekly Herceptin for the whole year, so either 51 or 52 doses depending on how the doses were calculated.

tld - I had 14 weeks from surgery to the start of chemo. I had skin healing issues and surprise positive nodes so needed 4 more surgeries after the BMX.

All - NBN is an uncommon genetic mutation - like BRCA, which increases risk for certain cancers

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
Log in to post a reply

Feb 13, 2018 02:22PM rljes wrote:

couchvicky - funny you should mention your dogs stretching.  Every morning I get down on the doggie bed with Truman to cuddle him awake, and both of us do the "downward facing dog".  He stretches EVERY time he gets up.  Amazing. 

*Started Chemo 11/28/17 / No recontruction - going flat /Neulasta Injection Pod Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Feb 13, 2018 02:32PM rljes wrote:

tld2017 - Yes, I waited after my BMX until Chemo.  I waited 3 months after surgery for several reasons.  One, I had a rough time recovering from Surgery - I have a skin disorder and don't heal well, and two - my MO terrified me about Chemo.  I saw him 4 times, and each time he kept telling me "Don't worry about Chemo, you wont have any side effects"  WHAT?   When I asked him how did he know that, he answered "Because I'm that good".  BullSh*t.  Finally I went to a chemo 101 clinic and had a one on one with the Pharmaceutical MO and she told me the reason my MO said that is because of all the pre-meds that are given and SE's are usually minimal.   If he has told me that the first visit, I would have started Chemo much sooner. 
   However, no one seemed to be concerned I waited 3 months.  Take care! Hope you get your answers and are at peace - don't second guess yourself.  

*Started Chemo 11/28/17 / No recontruction - going flat /Neulasta Injection Pod Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Feb 13, 2018 02:44PM rljes wrote:

Sheabela - sorry you got the shingles - again?  I've had them 3/4 times, none since BC.  I have Valtrex and Prednisone on hand to take mega doses if I even think its coming back.  So very painful.  The only good thing about going flat - No Bra, No itching, No rubbing.  I hurt with a bra, I hurt without a bra before BC because of the shingles Neuropathy.  Now Problem solved. Yeah. 

Runny nose - all the time. Now, I have watery eyes. Like I'm crying.  I guess its better than dry eyes. 

*Started Chemo 11/28/17 / No recontruction - going flat /Neulasta Injection Pod Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Feb 13, 2018 03:31PM deni1661 wrote:

Hapb, no results yet from my trial. They are still accepting patients.

Shelabela, it's terrible you have shingles again, that sucks - hope you feel better soon.

Trina, I'm so sorry for all the pain cancer has caused your family. I hope you find the answers and support you need.

Runny nose - I had my last Herceptin 5+ months ago and I still have a runny nose although it is not as bad. My nose bleeds a lot and has been all through treatment. I too don't go anywhere without Kleenex. Just another annoyance I've gotten used to



Dx 7/25/2016, IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 9/6/2016 Perjeta (pertuzumab) Hormonal Therapy 9/6/2016 Arimidex (anastrozole) Targeted Therapy 9/6/2016 Herceptin (trastuzumab) Surgery 4/27/2017 Lymph node removal: Sentinel; Mastectomy: Left Surgery 5/9/2017 Reconstruction (left): Stacked DIEP flap
Log in to post a reply

Feb 13, 2018 03:42PM Photogirl81 wrote:

tld2017,

I really think that this depends on the result of your nodes. If there's no nodal involvement, no lympho-vascular invasion is seen, then I think the extra two weeks waiting is fine.

Also, it depends on the chemo regimen. After taxol, the first week was a bit hard, but then the rest (two weeks) were kinda like nothing happened. If you get AC or EC, that is a bit different. (I got both.) Meaning that with taxol, you can probably go and start the treatment, and enjoy the trip. Of course, no harsh sun. :)

Cold caps... unfortunately they are not available in my country in Europe. I would have done anything to keep my hair, for me, losing my hair was the hardest thing actually. BUT: as I later found out, they prevent chemo to get to your head. Her2+ bc's met areas are: brain, lungs, liver, bones. So honestly, I know that if I had done the cold capping, now I would worry more.

But I had an excellent wig, which helped me keep my situation a secret. If you need more info on that, let me know. I used that wig every single time I stepped out the door.

Dx 12/20/2016, IDC: Papillary, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 2/1/2017 Lumpectomy: Left Chemotherapy 2/27/2017 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Whole-breast: Breast

Page 1168 of 1,170 (35,083 results)