Log in to post a reply
Nov 12, 2019 01:27PM
Uggg...I am so flustered and angry today!! I started this journey with my dx on 10.10. Started with one group in my city and scheduled a second opinion with the second group. I could not get into the second group till last week. Saw the oncologist on Tuesday and the surgeon on Thursday. All my diagnostics are done. The second oncologist and surgeon suggest surgery first with chemo and herceptin to follow...final chemo to be determined by final pathology but hoping for a weekly taxol/herceptin route. Got surgery scheduled for first available 12.18. That is 71 days from date of dx but I was at peace with it.
Then today I had to call the surgeons office because in my notes about scheduling the surgery I realized the scheduler did not say anything about port placement at the same time. The scheduler calls me back and this is what happened...
She never confirmed who she was talking to just said "you called with so many questions so I am calling you back."
She said I have no port order because "are you getting chemo? It says her you are getting Tamoxifen." Hello, lady I am 1a, triple positive, of course I am getting chemo and if not at the very least herceptin every 3 weeks.
Then I asked about my ins pre cert and she was like "I am not even done with Novembers, you will get a letter in the mail." So, I said that's nice but I will check back with you in a week or two because this cannot go out any further than 12.18. And if we have to appeal I want it done asap.
I then asked about pre op testing and nope they dont do anything. I am in shock...no one so much as touched me much less listened to my heart or lungs. I did have an echo done in case we did chemo first and I had routine blood work done so I guess they are using those. I dont even know.
So now my once peaceful calm about this group has quickly turned into fear that I made a wrong choice. I did call the oncologist nurse navigator and she had it fixed within 30 minutes. So, I guess I am hopeful that the oncologist has it all together and I wont really spend that much time with the surgeon anyway. But, damn this totally brought me to angry frustration!!
Rant over. 😥
My DX appears below but I am also a caregiver to my awesome Mom, a 13 year (2006) BC Survivor, IIIa IDC, ER/PR+, HER2+, R MX, Lymphedema R Arm
10/10/2019, IDC: Papillary, Right, 2cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH)
12/17/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
2/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)