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Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 04:30AM - edited Dec 10, 2012 05:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Mar 31, 2021 01:34PM morrigan_2575 wrote:

Welcome JustStorm! Sorry you had to join the club.

"35 when diagnosed. On my daughters birthday. First chemo on my bf's birthday. Surgery on my brother's bd. And next are cording exercises on my sister's birthday. We joke about my timeing."

At least this way, you'll never forget the dates and I've been asked a lot from everyone doctor I see as part of the medical history


Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Mar 31, 2021 11:55PM - edited Mar 31, 2021 11:56PM by JustStorm

Hi morrigan thx

I have been wery lucky,one day before new years eve found I had complete response to chemo, got clean phd after surgery. No complaints here. Just waiting to go to work, this cording delayed that, but I'm fixing it. I just need to start living,this delayed my life long enough.

About dates I missed all this year, but next year I'm celebrating. Had more issues with remebering names of all my medicines. Still find my self confused sometimes.

Dx 7/13/2020, ILC, Left, 2cm, Stage IB, 0/5 nodes, ER+/PR+, HER2+ Chemotherapy 8/11/2020 Surgery 2/20/2021 Lymph node removal: Sentinel; Mastectomy; Reconstruction (left): Silicone implant Immunotherapy 3/7/2021 Hormonal Therapy Aromasin (exemestane)
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Apr 1, 2021 02:24PM hapa wrote:

JustStorm - if it's any consolation to you, I had my bilateral mastectomy on my husband's birthday! Happy birthday honey! At least I got immediate reconstruction, I guess.

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Targeted Therapy 3/28/2018 Perjeta (pertuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Apr 1, 2021 09:47PM JustStorm wrote:

Well your health is best present by far I guess. Hope U are doing well, that is something to be celebrated.


Dx 7/13/2020, ILC, Left, 2cm, Stage IB, 0/5 nodes, ER+/PR+, HER2+ Chemotherapy 8/11/2020 Surgery 2/20/2021 Lymph node removal: Sentinel; Mastectomy; Reconstruction (left): Silicone implant Immunotherapy 3/7/2021 Hormonal Therapy Aromasin (exemestane)
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Apr 2, 2021 05:58PM NoBananas wrote:

Thank you ladies for your response. I have no co-morbidities, and am in pretty good health. I’m on no medication either. My SIL had Herceptin at a younger age than I am now, and went into heart failure. I’m too far from a hospital if this happens. This is classed as a new cancer, and unusual as it is, appeared as a small pinhead on my mastectomy. It caught my eye in the mirror. I felt it did grow over the next couple of days, well, biopsy said 6mm. By then, it was an obvious lump, and could be seen clearly sticking out on top of my flat chest. So having a prophylactic mastectomy just now, will help me identify any other lumps that may arise in the future, very easy to identify on a completely flat chest. NO REGRETS! And no more mammograms.

Dx 10/2003, IDC, Left, 2cm, Stage IIA, Grade 2, 1/19 nodes, ER+/PR+, HER2+ (DUAL) Dx 3/9/2021, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (DUAL)
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Apr 2, 2021 06:02PM NoBananas wrote:

I’d like to add, perusing all the chemotherapy list, I can’t believe the exact same chemos are used now that they used 18 years ago! I thought they may have moved forward. HP are the new therapies for HER2+

Dx 10/2003, IDC, Left, 2cm, Stage IIA, Grade 2, 1/19 nodes, ER+/PR+, HER2+ (DUAL) Dx 3/9/2021, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (DUAL)
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Apr 2, 2021 06:08PM Redcanoe wrote:

Heart failure happens about 4% of the time with herceptin. So it's unlikely you would also have that side effect. Even if you did, heart failure isn't a call a 911 medical emergency. A lot of studies are showing the heart effects are reversible most of the time. I personally felt that the risks of herceptin far outweigh the risk of distant metastasis.

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/15/2020 Lumpectomy: Right Chemotherapy 1/12/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/12/2021 Herceptin (trastuzumab)
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Apr 2, 2021 06:32PM NoBananas wrote:

Thank you Redcanoe, I appreciate that. I see you are on Taxotere, which was a brand new chemo 18 yrs ago. I took it too.

Dx 10/2003, IDC, Left, 2cm, Stage IIA, Grade 2, 1/19 nodes, ER+/PR+, HER2+ (DUAL) Dx 3/9/2021, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (DUAL)
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Apr 2, 2021 06:59PM ElaineTherese wrote:

NoBananas,

There are some new chemos, but the Stage IV crowd gets them first. Xeloda is a relatively new chemo.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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Apr 2, 2021 07:27PM Taco1946 wrote:

No Bananas - Herceptin is the game changer for TP. Quarterly echos are ordered to check on your heart but it shouldn't send you to the hospital unless you have other co-morbidities. Special K Is the expert with the statistics and talk to your MO but I'm glad I did it. I had NO problems with Herceptin after I finished chemo. I was able to easily tolerate a 30 minute infusion every 3 weeks although some ask them to slow the drip down.

Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/29/2016 Balloon-catheter: Breast Chemotherapy 2/3/2017 Taxol (paclitaxel) Targeted Therapy 2/3/2017 Herceptin (trastuzumab) Hormonal Therapy 12/4/2017 Femara (letrozole) Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Targeted Therapy
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Apr 2, 2021 09:27PM Redcanoe wrote:

oops I meant benefits of herceptin outweigh risks

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/15/2020 Lumpectomy: Right Chemotherapy 1/12/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/12/2021 Herceptin (trastuzumab)
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Apr 3, 2021 05:06AM morrigan_2575 wrote:

"My SIL had Herceptin at a younger age than I am now, and went into heart failure. I’m too far from a hospital if this happens"

It's very rare but, they do monitor for it and, it does heal on its own (generally). My November Echo had me borderline but, the MO decided to proceed. I was worried that my February Echo would put my Kadcyla on hold but, my last echo was actually better than the previous 3 (55, 55, 45) February has me at 60.

If you're really worried about heart issues, I would say go with TCH over AC+T-H. Actually for your size tumor you might be able to get away with Taxol+Herceptin which (from what I'm told) is easier on the body. I've heard there's a new protocol (or perhaps it's still in trial) where you can do 17 rounds of Kadcyla (Herceptin bonded to a Chemo drug) and, avoid Taxol or Taxotere, Carboplatin, etc).

Personally, I handle Kadcyla very well but, there are others who really struggle with it so I don't know how great it is for 17 cycles (1 year) vs 11 weeks of Taxol or 5 months of TCH.

That is interesting that it's a new cancer and where it popped up. Glad you caught it so quickly. Although, I'm still sorry you have to go through this almost again.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 3, 2021 06:01AM - edited Apr 3, 2021 09:17AM by MsMurphy

Hi everyone, I had my last round of TCH yesterday and will just be on Herceptin for the rest of the year. I'm looking forward to starting to regain some strength and energy and getting back to being me! Just wanted to share my news with some people who actually understand what this truly means. 🥳

No more steroid or Neulasta!!!! The worst part for me.

Dx 8/27/2020, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2+ (IHC) Surgery 9/24/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 12/18/2020 Herceptin (trastuzumab) Chemotherapy 12/18/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy
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Apr 3, 2021 07:25AM morrigan_2575 wrote:

Congratulations on completing Chemo proper!


Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 3, 2021 09:33AM ElaineTherese wrote:

Good news, MsMurphy! I hated the steroids, too. I just loathe insomnia.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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Apr 3, 2021 02:00PM hopeful2020 wrote:

Congratulations MsMurphy! Me too!! I go back for Herceptin next week. And starting radiation in 2 more weeks!


Dx 9/17/2020, IDC, Left, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER+/PR+, HER2+ (FISH) Surgery 10/30/2020 Lumpectomy; Lymph node removal: Sentinel Targeted Therapy 12/2/2020 Perjeta (pertuzumab) Targeted Therapy 12/2/2020 Herceptin (trastuzumab) Chemotherapy 12/2/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 3, 2021 07:01PM NoBananas wrote:

morrigan_2575, may I ask, were you diagnosed twice within 6 months of a different cancer? While you were already on treatment? Or am I reading your profile wrong

Dx 10/2003, IDC, Left, 2cm, Stage IIA, Grade 2, 1/19 nodes, ER+/PR+, HER2+ (DUAL) Dx 3/9/2021, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (DUAL)
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Apr 3, 2021 09:33PM morrigan_2575 wrote:

I had Chemo before surgery so the first is a clinical staging the second is the surgical staging, same cancer.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 4, 2021 11:08PM NoBananas wrote:

Thank you morrigon_25. That’s relieving to know. My sister had a 6cm tumour, intertwined in her nerve bundle against the back of her chest. She had copious radiotherapy and chemotherapy, no surgery, and she has been cancer free for 14 yrs.

Dx 10/2003, IDC, Left, 2cm, Stage IIA, Grade 2, 1/19 nodes, ER+/PR+, HER2+ (DUAL) Dx 3/9/2021, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (DUAL)
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Apr 6, 2021 06:53AM Kattis894 wrote:

Hallo Group! Thought I would come on here since I had my yearly check-up the other day. It was all clear. I have been doing ok since 2017. Thought it would be a positive note this day of spring. I got my first vaccine shot - Pfizer - and hope that will not mess anything up.

ER+100%,, PR+85%, Her2+++100%, Ki65 30% went down to 6%, Hormon treatment 10 years, Zometa every 6 months for 3 years Dx 7/7/2016, DCIS/IDC, Right, 6cm+, Stage IIB, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 7/25/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Targeted Therapy 10/2/2016 Herceptin (trastuzumab) Chemotherapy 10/2/2016 Taxol (paclitaxel) Targeted Therapy 10/2/2016 Perjeta (pertuzumab) Surgery 12/18/2016 Mastectomy: Right Hormonal Therapy 1/2/2017 Femara (letrozole) Radiation Therapy 1/17/2017 Whole-breast: Breast, Chest wall Surgery 6/18/2017 Reconstruction (left)
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Apr 6, 2021 08:01AM Redcanoe wrote:

Question for those who did TCH or TCHP, did anyone else not lose all their hair? I'm 4/6 cycles in and still have a fuzz. My taxotere was reduced 20% after the second cycle, maybe that is why? I also had to take an extra week before my 4th cycle and all my chin hair grew back 🙃

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/15/2020 Lumpectomy: Right Chemotherapy 1/12/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/12/2021 Herceptin (trastuzumab)
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Apr 6, 2021 11:01AM Phoenixrose8 wrote:

Hi Redcanoe!

I had the exact same reaction under TCHP. I never completely lost my hair and had the same hair as you do in the above pic. Mine was even thinner! I’m not sure if they adjusted the Taxotere near the end of my chemo, but I definitely never lost all my hair, just some thinning of the eyebrows.

The best part is when it starts growing in! Mine came back full of curls that I always wanted and even the hair color I used to dye my hair to at a younger age. It is so fulfilling to me to be able to play with and comb my hair. You will get there too! Oh, and the hair that starts growing back is so soft, it’s just so cozy to run your hands through your new hair

Warm Hugs,

Phoenix

Dx IDC, Right, Stage IIIC, Grade 2, ER+/PR+, HER2+ Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 6, 2021 01:00PM ElaineTherese wrote:

Kattis!

So happy to hear that you are still all clear and that you're doing well! I got the Pfizer vaccine, too. After both shots, the only thing I noticed was that my arm was a little sore in the area of the shot.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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Apr 6, 2021 01:34PM SpecialK wrote:

msmurphy - yay!

kattis - hi! Good to see you! I have had both Pfizer injections on the advice of my MO - I was a tad reluctant because I am allergic to so many medications. I had almost zero reaction to the first injection, but the second was a doozy - I was down for a couple of days, but worth it to provide the protection for myself and others.

I had the same hair situation on TCH - never lost it all, no dose reductions, didn't lose all brows or lashes either.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Apr 7, 2021 08:13PM hopeful2020 wrote:

Hello everyone - I was happy that I was done 6 rounds of TCHP and I would just be on Herceptin. But today when I went for round 7, they added Perjeta! I had been struggling with diarrhea already and Perjeta appears to be famous for this.

For those who had been on Perjeta and Herceptin after 6 rounds of TCHP - could you please share your experiences? We're you able to complete the 11 rounds? What were your side effects? Did it affect your hair regrowth? Did you have to drop Perjeta? How was your experiences with HP vs TCHP?

Please let me know so that I can prepare for it. Thanks!

Dx 9/17/2020, IDC, Left, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER+/PR+, HER2+ (FISH) Surgery 10/30/2020 Lumpectomy; Lymph node removal: Sentinel Targeted Therapy 12/2/2020 Perjeta (pertuzumab) Targeted Therapy 12/2/2020 Herceptin (trastuzumab) Chemotherapy 12/2/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 8, 2021 05:24AM Nsbrown54 wrote:

Hi hopeful2020 - I just completed my 5th HP on Tuesday. I do get diarrhea but just for a day or so after treatment. My MO suggested taking Imodium before treatment and that seems to help. I take lomotil for subsequent bouts. I usually am tired the day after and take Tylenol for headache. I just take it easy and relax most of the day. The efffects have not been cumulative for me, so I’m back to my normal self after a day or two. My hair growth is slower than before BC, but it’s growing back. Most of my SE seem to be from letrozole. Best of luck with your treatment.

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Apr 8, 2021 05:38AM hopeful2020 wrote:

Thanks Nsbrown54. That helps. I had diarrhea end of day yesterday after infusion which has never happened in the 6 rounds of TCHP on day 1. I am not sure how I am going to make it through 11 more rounds at this rate.i hope it settles down as I really don't want to take immodium all the time. How have your day's been with TCHP vs HP?

Dx 9/17/2020, IDC, Left, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER+/PR+, HER2+ (FISH) Surgery 10/30/2020 Lumpectomy; Lymph node removal: Sentinel Targeted Therapy 12/2/2020 Perjeta (pertuzumab) Targeted Therapy 12/2/2020 Herceptin (trastuzumab) Chemotherapy 12/2/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 8, 2021 06:00AM Nsbrown54 wrote:

hopeful2020 - After TCHP treatments, I had to go in for extra IV fluids 3-4 days after treatment, sometimes weekly as I got to later rounds of treatment. I had vomiting and diarrhea for 5-7 days after. Some days I could barely get out of bed. With HP, so far I’ve only had a day or two of diarrhea. No nausea or vomiting. I drink Gatorade and water throughout the day to stay hydrated I’m much more active and my blood work has improved. A little tired for a day or two, but much easier for me than TCHP treatment.

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Apr 8, 2021 06:24AM JavaJana wrote:

hopeful, my situation is a little different but maybe can help. I only had taxotere, not carbo, but was on perjeta all along. I had minimal diarrhea, I believe because I was taking glutamine powder daily. Once chemo was finished, I have no diarrhea on just the H & P. Per recommendations on this forum I bought Naked brand powder (Amazon but you may have a health food store that carries it, or I'm sure another brand will work too) and just mixed it in a beverage once or twice a day. In my case I'll be on H & P indefinitely so I'm grateful it isn't causing diarrhea on it's own. Also, my hair is growing normally on it. Best wishes, the big D is the worst 🙅

Xgeva 9/2/2020. History: Stage IIIc Borderline Papillary Serous Ovarian Carcinoma TAH/BSO, 0/15 nodes - 2/18/20. Benign Papilloma/ADH Left breast, excisional biopsy 10/11/2016 Dx 10/1/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (IHC) Dx 10/23/2019, LCIS/DCIS, Right, 0/1 nodes Surgery 11/19/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 3/25/2020, IDC, Stage IV, metastasized to bone, 0/2 nodes Chemotherapy 4/8/2020 Taxotere (docetaxel) Targeted Therapy 4/8/2020 Herceptin (trastuzumab) Targeted Therapy 4/8/2020 Perjeta (pertuzumab) Hormonal Therapy 8/13/2020 Femara (letrozole)
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Apr 8, 2021 11:19AM hopeful2020 wrote:

Thank you so much NsBrown and JavaJana. This is very helpful. When my MO said not everyone will tolerate Perjeta for a year my heart almost sank thinking of all that I would have to endure for her to stop. Hopefully it won't be too bad. I do feel better after my first HP yesterday without the TC. I would be so bloated and uncomfortable after TCHP. I do notice I have bad diarhea with meat and fish. Need to stay vegetarian.

Hope I continue to improve and I can have my hair back soon! My Hb was 8.6 borderline yesterday. Anything to try to get the RBC and Hb back up? WBC with Neulasta on last round didn't go to the usual 7s and stayed at 4.5 and Mg low at 1.3. I have gotten 3 Mg infusions so far.

How long does it take to normalize the blood counts?


Dx 9/17/2020, IDC, Left, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER+/PR+, HER2+ (FISH) Surgery 10/30/2020 Lumpectomy; Lymph node removal: Sentinel Targeted Therapy 12/2/2020 Perjeta (pertuzumab) Targeted Therapy 12/2/2020 Herceptin (trastuzumab) Chemotherapy 12/2/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)

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