Topic: TRIPLE POSITIVE GROUP

Mar 31, 2021 11:55PM - edited Mar 31, 2021 11:56PM by JustStorm

Hi morrigan thx

I have been wery lucky,one day before new years eve found I had complete response to chemo, got clean phd after surgery. No complaints here. Just waiting to go to work, this cording delayed that, but I'm fixing it. I just need to start living,this delayed my life long enough.

About dates I missed all this year, but next year I'm celebrating. Had more issues with remebering names of all my medicines. Still find my self confused sometimes.

Apr 1, 2021 09:47PM JustStorm wrote:

Well your health is best present by far I guess. Hope U are doing well, that is something to be celebrated.

Apr 2, 2021 06:02PM NoBananas wrote:

I’d like to add, perusing all the chemotherapy list, I can’t believe the exact same chemos are used now that they used 18 years ago! I thought they may have moved forward. HP are the new therapies for HER2+

Apr 2, 2021 06:32PM NoBananas wrote:

Thank you Redcanoe, I appreciate that. I see you are on Taxotere, which was a brand new chemo 18 yrs ago. I took it too.

Apr 2, 2021 07:27PM Taco1946 wrote:

No Bananas - Herceptin is the game changer for TP. Quarterly echos are ordered to check on your heart but it shouldn't send you to the hospital unless you have other co-morbidities. Special K Is the expert with the statistics and talk to your MO but I'm glad I did it. I had NO problems with Herceptin after I finished chemo. I was able to easily tolerate a 30 minute infusion every 3 weeks although some ask them to slow the drip down.

Apr 3, 2021 05:06AM morrigan_2575 wrote:

"My SIL had Herceptin at a younger age than I am now, and went into heart failure. I’m too far from a hospital if this happens"

It's very rare but, they do monitor for it and, it does heal on its own (generally). My November Echo had me borderline but, the MO decided to proceed. I was worried that my February Echo would put my Kadcyla on hold but, my last echo was actually better than the previous 3 (55, 55, 45) February has me at 60.

If you're really worried about heart issues, I would say go with TCH over AC+T-H. Actually for your size tumor you might be able to get away with Taxol+Herceptin which (from what I'm told) is easier on the body. I've heard there's a new protocol (or perhaps it's still in trial) where you can do 17 rounds of Kadcyla (Herceptin bonded to a Chemo drug) and, avoid Taxol or Taxotere, Carboplatin, etc).

Personally, I handle Kadcyla very well but, there are others who really struggle with it so I don't know how great it is for 17 cycles (1 year) vs 11 weeks of Taxol or 5 months of TCH.

That is interesting that it's a new cancer and where it popped up. Glad you caught it so quickly. Although, I'm still sorry you have to go through this almost again.

Apr 3, 2021 07:25AM morrigan_2575 wrote:

Congratulations on completing Chemo proper!

Apr 3, 2021 02:00PM hopeful2020 wrote:

Congratulations MsMurphy! Me too!! I go back for Herceptin next week. And starting radiation in 2 more weeks!

Apr 3, 2021 09:33PM morrigan_2575 wrote:

I had Chemo before surgery so the first is a clinical staging the second is the surgical staging, same cancer.

Apr 6, 2021 06:53AM Kattis894 wrote:

Hallo Group! Thought I would come on here since I had my yearly check-up the other day. It was all clear. I have been doing ok since 2017. Thought it would be a positive note this day of spring. I got my first vaccine shot - Pfizer - and hope that will not mess anything up.

Apr 6, 2021 11:01AM Phoenixrose8 wrote:

Hi Redcanoe!

I had the exact same reaction under TCHP. I never completely lost my hair and had the same hair as you do in the above pic. Mine was even thinner! I’m not sure if they adjusted the Taxotere near the end of my chemo, but I definitely never lost all my hair, just some thinning of the eyebrows.

The best part is when it starts growing in! Mine came back full of curls that I always wanted and even the hair color I used to dye my hair to at a younger age. It is so fulfilling to me to be able to play with and comb my hair. You will get there too! Oh, and the hair that starts growing back is so soft, it’s just so cozy to run your hands through your new hair

Warm Hugs,

Phoenix

Apr 6, 2021 01:34PM SpecialK wrote:

msmurphy - yay!

kattis - hi! Good to see you! I have had both Pfizer injections on the advice of my MO - I was a tad reluctant because I am allergic to so many medications. I had almost zero reaction to the first injection, but the second was a doozy - I was down for a couple of days, but worth it to provide the protection for myself and others.

I had the same hair situation on TCH - never lost it all, no dose reductions, didn't lose all brows or lashes either.

Apr 8, 2021 05:24AM Nsbrown54 wrote:

Hi hopeful2020 - I just completed my 5th HP on Tuesday. I do get diarrhea but just for a day or so after treatment. My MO suggested taking Imodium before treatment and that seems to help. I take lomotil for subsequent bouts. I usually am tired the day after and take Tylenol for headache. I just take it easy and relax most of the day. The efffects have not been cumulative for me, so I’m back to my normal self after a day or two. My hair growth is slower than before BC, but it’s growing back. Most of my SE seem to be from letrozole. Best of luck with your treatment.

Apr 8, 2021 06:00AM Nsbrown54 wrote:

hopeful2020 - After TCHP treatments, I had to go in for extra IV fluids 3-4 days after treatment, sometimes weekly as I got to later rounds of treatment. I had vomiting and diarrhea for 5-7 days after. Some days I could barely get out of bed. With HP, so far I’ve only had a day or two of diarrhea. No nausea or vomiting. I drink Gatorade and water throughout the day to stay hydrated I’m much more active and my blood work has improved. A little tired for a day or two, but much easier for me than TCHP treatment.

Apr 8, 2021 11:19AM hopeful2020 wrote:

Thank you so much NsBrown and JavaJana. This is very helpful. When my MO said not everyone will tolerate Perjeta for a year my heart almost sank thinking of all that I would have to endure for her to stop. Hopefully it won't be too bad. I do feel better after my first HP yesterday without the TC. I would be so bloated and uncomfortable after TCHP. I do notice I have bad diarhea with meat and fish. Need to stay vegetarian.

Hope I continue to improve and I can have my hair back soon! My Hb was 8.6 borderline yesterday. Anything to try to get the RBC and Hb back up? WBC with Neulasta on last round didn't go to the usual 7s and stayed at 4.5 and Mg low at 1.3. I have gotten 3 Mg infusions so far.

How long does it take to normalize the blood counts?