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Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

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Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 17, 2012 01:53AM lindakr wrote:

I always had bendryl with my herceptin, so hard to say what made me tired, but was generally tired and achy for a couple of days after herceptin, also, would get a headache 2 days after that lasted for 2 days.

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema. Dx 3/19/2010, IDC, 4cm, Stage IIIA, Grade 2, 5/18 nodes, ER+/PR+, HER2- Surgery 4/2/2010 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Targeted Therapy 5/15/2010 Herceptin (trastuzumab) Chemotherapy 5/15/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 9/15/2010 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Radiation Therapy 9/25/2010 Whole breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Dec 17, 2012 02:38AM - edited Dec 17, 2012 02:39AM by LeeA

Moonflwr, yikes!  4 weeks would suck!  My husband had his in (back and forth between both arms) for about the same amount of time (almost the entire time he was hospitalized - which was five weeks) and his poor arms became so infiltrated (?) that I had to massage them daily to try to get the fluid moving.  

Eventually his beautiful hands came back (I think my husband has beautiful hands - I, on the other hand - heh, no pun intended, have horrible-looking hands).  

---

RE: Herceptin - my first dose was 90 minutes long and included Benadryl.  Relda was there that day and stopped by and I was asleep and my hub had just awakened (lol, he wasn't being infused - just tired from all the cancer drama I suppose).  Anyway, I came home and took another nap for about two hours.  Very deep sleep.  I'm assuming it was due, in part, to the Herceptin but I've also been on Vancomycin so there's that.  In any case, I didn't mind it because I'm kind of an insomniac and I'm thrilled with any and every deep sleep episode I can get! 

God is with you in all that you do. Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2+ Chemotherapy 1/2/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 7/30/2013 3DCRT: Breast, Lymph nodes Hormonal Therapy 10/10/2013 Arimidex (anastrozole)
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Dec 17, 2012 07:56AM TonLee wrote:

Steiner,

Yes!  The afternoon of Herceptin I felt an overwhelming urge to nap.  And I never nap.  I literally have to be dying or close to it.  lol

So I don't care what they told you.....I know FOR A FACT it made me tired....wore out. Just for that day though.  (And I didn't take any pre-meds, just Herceptin straight up.)

IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 17, 2012 09:34AM Eileenohio wrote:

TonLee-   My thoughts and prayers are with you today as you see your doctor to address your back pain.

Dx 12/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2+
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Dec 17, 2012 09:45AM bcbarbie10 wrote:

TonLee, i was thinking about you today, too. God bless.

Surgery 3/8/2012 Lymph node removal; Lymph node removal (Right): Underarm/Axillary; Mastectomy; Mastectomy (Right) Dx 3/9/2012, IDC, 1cm, Stage IA, Grade 1, 0/20 nodes, ER+/PR+, HER2+, IHC Chemotherapy 4/26/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel) Targeted Therapy 7/25/2012 Herceptin (trastuzumab) Hormonal Therapy 1/27/2013 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 17, 2012 10:01AM Omaz wrote:

Good luck today TonLee

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Dec 17, 2012 10:10AM camillegal wrote:

Oh I'm so far behind, I'm sorry.

TonLee I hope u'r back problems turn out OK

SpecialK I'm glad that fat rat wasn't horrible bad.

Lee I didn't see if u decided to get a port, but I still have mine-and it's used all the time--they can't use either arm so it's great--It's so easy for me and for them.

Pbrain u sound so much better--I'm glad they chaned the mix.

Hi Cypher

My GF is still here so I haven't been on my cop. very much--But it's so nice to have her here.

Dx 2007, Stage IV, 24/38 nodes, HER2+
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Dec 17, 2012 10:25AM TonLee wrote:

Got xray a few minutes ago. They took 3. Came back for 3 more. Then came back (after radiologist saw them) and took 4 more. Should know something tomorrow.....meanwhile dr ruled out joint pain....doesn't think its muscle or gall bladder...but gave me muscle relaxers and anti inflammatory just in case....they're calling ...gotta run

IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 17, 2012 10:27AM TonLee wrote:

Just said they will let me know tomorrow if i need mri...have to talk with other radiologists

IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 17, 2012 10:43AM ashla wrote:

TonLee,

This forum and your current testing is one of those rare situations in life where we here can say ....we know what you are going through.
We are with you as you wait for answers.

Dx 10/13/2011, IDC, Left, 3cm, Stage IIA, Grade 2, 0/0 nodes, ER+/PR+, HER2+ Targeted Therapy 11/7/2011 Herceptin (trastuzumab) Chemotherapy 11/7/2011 Carboplatin (Paraplatin), Taxol (paclitaxel) Surgery 3/22/2012 Lumpectomy: Left Radiation Therapy 4/23/2012 Breast Hormonal Therapy 7/25/2012 Arimidex (anastrozole)

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